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AlzAuthors: Untangling Alzheimer's & Dementia

AlzAuthors Featured on The Whole Care Network

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Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our a ...
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Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common thread—each has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along wit…
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Perhaps you can’t cure or even prevent Alzheimer’s, but what if you could slow the disease progression? Want to unlock the secrets to living in the moment with Alzheimer's? Get ready to embrace practical advice and actionable insights for a positive journey with Alzheimer's and dementia in this podcast with Danel Gibbs, MD. He’s a retired neurologi…
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Delight in the surprising journey of Ruth Stevens, from crafting a stage play to penning a heartfelt novel about Alzheimer's. Delve into the unexpected twists and turns as Ruth shares her personal experiences and the emotional impact of her work. Stay tuned for eye-opening insights on turning personal stories into fiction and a sneak peek into her …
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When you’re caregiving, it can often feel like you are out there on your own without direction or resources. Sometimes, it can even feel like your healthcare providers aren’t able to meet your needs. If any of this sounds familiar, this episode will be of comfort. Our special guest is Lance A. Slatton. Lance A. Slatton, the founder of a prominent h…
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This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the b…
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By Christy Byrne Yates, MS, California, US Podcast Description: Discover the unexpected truth about dementia care from a professional who found herself on the other side of caregiving. Get ready to uncover the surprising insights that transformed her perspective and could change yours too. Find out what left her reevaluating her own caregiving advi…
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Podcast Description: Jane Dwinell, co-author of Alzheimer's Canyon, brings a heartfelt and personal touch to the podcast. As a former Unitarian Universalist minister and with a background in nursing and hospice care, Jane's journey as a caregiver for her husband, Sky Yardley, provides a unique and empathetic perspective on the impact of Alzheimer's…
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This is the replay of our inaugural book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle Community at Aging & Amazing, then meet with the author for an in-depth discuss…
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Have you heard these myths about the power of art in dementia care? Myth 1: Only artistic individuals can benefit from art therapy. Myth 2: People with advanced dementia can't engage in creative activities. Myth 3: Art therapy is only about painting and drawing. In this podcast, you will learn how different art forms can benefit those living with d…
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Anyone living with Alzheimer's or dementia, and those who care for them, knows the importance of lifestyle adjustments to successfully navigate this journey. From simple strategies like making lists, reducing social commitments, and focusing on tasks that bring joy, to complex maneuvers like family involvement in advanced directive planning, the li…
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AlzAuthors is excited and honored to partner with the online community Aging & Amazing for a monthly book club, a “Meet the Author” type of event: AlzAuthors Books and Chit Chat. The book club will feature a new book and author every month. The first few months have been scheduled and include: January 30th 7pm EST: Andrea Couture – Embracing What R…
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Caregiver Andrea Couture juggles young children, caregiving during the COVID 19 pandemic, and stigma to share her father's Alzheimer's journey, seeking connection and support in a rural community. Andrea Couture, the author of "Embracing What Remains," brings a unique perspective to the podcast with her firsthand experience caring for her father, a…
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Lori Aden and Sheila Parsley are two incredible women who have taken their personal experiences as caregivers for loved ones with Alzheimer's and turned them into a powerful tool for support and understanding. Through their series of children's books, Lori and Sheila have found a unique way to address the complexities of Alzheimer's disease in a re…
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In a health crisis, we often refer to our journey as a "battle." We may see ourselves as "warriors." This is true for those impacted by Alzheimer's and dementia. The diagnosis brings uncertainty, disruption, and fear. But what happens when you're dealing with dementia in the middle of a war zone? When airstrikes are the norm, and screeching sirens …
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In this episode of Untangling Alzheimer's & Dementia, hosts Marianne Sciucco and Christy Byrne Yates are joined by guests Cynthia Stone and Caroline Prioleau to discuss their documentary film "Keys Bags Names Words." The film explores the experiences of individuals and families affected by dementia and highlights the importance of community support…
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In this episode, you'll hear from a diverse group of guests who share their personal experiences and insights on living with dementia. Peter Berry, Michael Ellenbogen, Gerda Saunders, and Jennifer Bute each bring their unique perspectives, providing a wealth of knowledge and understanding about the challenges and triumphs of navigating life with de…
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Join hosts Marianne Sciucco and Christy Byrne Yates as they discuss the launch of the Whole Care Network's new streaming radio channel with guest Christopher MacLellan, the passionate founder, who aims to connect and empower caregivers through this groundbreaking platform. The app provides trusted information and support to caregivers. Listen to Th…
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Anne Kenny, MD had been practicing medicine for more than 30 years, recognized by her peers as a “Top Doc” in Geriatric Medicine, but that did not make her caregiving journey with her mother any easier. In fact, when the professional became personal, she sought guidance through the available literature and found little to guide her and her family t…
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Have you heard these common myths about reading to individuals with dementia? Myth 1: People with dementia can't understand or enjoy reading. Myth 2: Reading is a solitary activity and won't benefit socialization. Myth 3: It's too late to start reading to someone with dementia. In this episode, Susan Ostrowski debunks these myths and shares the tru…
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Kate Hanley’s discovery of her parent’s unique love language set her on a path she never anticipated—writing a book. Yet these beautiful “paper napkin sonnets,” and the story that surrounds them, were too precious and inspiring not to share, as they offer hope for anyone in the throes of caring for someone with dementia. The overwhelming peace she h…
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Join hosts Marianne Sciucco and Christy Byrne Yates on the Untangling Alzheimer's & Dementia podcast as they dive into a lively conversation with AlzAuthor Tami Anastasia about the challenges caregivers face in supporting individuals with dementia. Tami's book, Essential Strategies for Dementia Care: Learning to P.A.C.E. Yourself, offers guidance f…
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Register for Everything You've Always Wanted to Know About Living with Dementia September 1 at 10:30 AM EST Watch the June 2021 episode on YouTube *** Rayna Neises comes to us from the heartland of Kansas to share her experience as a former caregiver for parents with dementia. She is the author of No Regrets: Hope for Your Caregiving Season. She al…
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After a dementia diagnosis and heart surgery, Tony Copeland-Parker and his partner, Catherine, aka "Cat," traveled for years worldwide to run marathons and half-marathons. Now, due to the progression of Cat's early onset Alzheimer's, they've recently settled down in an assisted living facility. Tony and his memoir, Running All Over the World: Our R…
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Jane Mullins, Ph.D. is a dedicated professional with a 30-year background in dementia care. As a trained nurse, Jane has worked in various roles, including managing care homes and supporting people with dementia in memory clinics. Her empathetic approach focuses on enhancing communication and understanding between individuals with dementia and thei…
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A crucial aspect of caregiving is keeping those in your care engaged and productive with simple, everyday tasks. Such activities can include folding laundry, arranging books, cooking, and eating. Not only does this provide purpose and enjoyment for the care recipient, but it also promotes independence and preserves dignity. Encouraging participatio…
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When Sandra Strauss' husband, Rick, was diagnosed with dementia overnight, she was determined to uncover the truth behind the cause--but what she discovered was far more shocking than anyone could have imagined. Unbeknownst to them, Rick had a rare genetic predisposition that made him highly susceptible to environmental toxins--a factor that could …
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In celebration of National Poetry Month, we hosted a gathering of poets on April 18, 2023, to share work inspired by their dementia experiences. We understand that storytelling, of any kind, but especially through poetry lightens burdens. For many caregivers, poetry can be a means of expression, of sharing their experience, opening hearts to joy, o…
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In celebration of National Poetry Month, we hosted a gathering of poets on April 18, 2023, to share work inspired by their dementia experiences. We understand that storytelling, of any kind, but especially through poetry lightens burdens. For many caregivers, poetry can be a means of expression, of sharing their experience, opening hearts to joy, o…
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Cindy Weinstein is an English professor at the California Institute of Technology and the author of the award-winning Finding the Right Words: A Story of Literature, Grief, and the Brain, based on her experience with her father's early onset Alzheimer's in the 1980's. During her father's illness she was a graduate student at the University of Calif…
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Poetry, whether reading or writing it, can be a powerful tool to ease our dementia caregiving journey, allowing us to express our deepest emotions, unravel our confusion and angst, and learn from and understand others. Susan J. Farese, MSN, RN is the author of Poetic Expressions in Nursing: Sharing the Caring, poems written when she became a nurse …
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Angela G. Gentile, MSW, RSW, is the author of two books in the AlzAuthors collection. She came to us in 2016 with her book, Caring for a Husband with Dementia: The Ultimate Survival Guide, inspired by her experience counseling eight amazing caregiving women. Her second book, Alzheimer’s, Dementia, & Memory Loss: A Helpful Guide for Caregivers, was …
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This podcast is a duet with authors Annette Jannuzzi Wick and Pauletta Hansel, both of Cincinnati, Ohio, who are not only good friends but collaborators on writing workshops. Both have cared for mothers with dementia. Annette is a writer, speaker, and author of I’ll Have Some of Yours: What my mother taught me about dementia, cookies, music, the ou…
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Tom and Karen Brenner have a passion for helping those with dementia and their families connect on a meaningful level. Both bring their professional experience to their work. Tom is a gerontologist who specializes in creating dementia care programs that are strength-based and positive leaning. Karen is a Montessori educator who co-founded a Montess…
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Welcome back to the podcast! This episode is a duet with two of our authors who happen to be years long friends brought together by their work in dementia care and the arts. Tryn Rose Seley and Mary Crescenzo are award winning authors and master teaching artists who have each worked for decades to empower caregivers and enhance the lives of those l…
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This episode is a replay of a recent panel discussion the management team did with Sue Evans of Kensington Senior Living. You'll hear us share our personal caregiving stories, and we'll explain why we chose to share them in our books. We'll also talk about the value of storytelling in caregiving and the many resources in our collection to support y…
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In this AlzAuthors Live! Virtual Q&A Dementia with Difficult People (November 8, 2022) you'll meet four of our authors who either cared for a parent who had hurt them in the past, or dealt with siblings who made caregiving difficult, or both. A professional mediator is also on hand to offer advice on how to navigate a dementia journey with a diffic…
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Welcome to the third and last episode in our 2022 Summer Book Series with HFC featuring Christy Byrne Yates, MS. Christy is an expert in navigating the challenges and opportunities in life, including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. A former…
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Laura Davis and her mother had a troubled relationship that began in her teenage years. It seems Laura did not live up to her mother's expectations. They were often at war with each other and grew estranged over decades, finally coming to some sort of functional truce after Laura became a mother herself. When her mother was in her 80's and showing …
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Welcome to the second in our 2022 Summer Book Series with HFC. In this episode, Renée Harmon, MD, author of Surfing the Waves of Alzheimer's shares her story of caring for her husband, Harvey, who had younger-onset Alzheimer's. This interview was recorded on July 12th. Christy Byrne Yates, MA moderated. We discuss the importance of acknowledging yo…
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In this AlzAuthors Live! Virtual Q&A we explore the similarities and differences caregivers and those living with dementia encounter as they seek care and search for solutions to the many questions and problems a dementia diagnosis brings. The authors featured in this event represent the United States, Canada, and Argentina. We hope their stories w…
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Susie Singer Carter is a Los Angeles-based creative specializing in film and podcasting. She’s a writer, director, producer, and actress. She’s also an advocate for dementia caregivers having been on a journey with her own mother for 16 years. This inspired her to write, direct and produce the 2018 Oscar Qualified short film, “My Mom and the Girl,”…
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The podcast you are about to listen to is a recording of an event we did with Kensington Senior Living in June, 2022. "On the Same Page this Summer: A Collection of Stories to Support You on Your Caregiving Journey" features four authors discussing their personal dementia experiences. You'll hear from a young woman whose mother was diagnosed with e…
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Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer’s. His is a unique perspective once the doctor diagnosing other people’s cognitive issues and now the patient facing his own. Alzheimer’s disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered thr…
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What are memories? Do our memories make us who we are? What happens to “us” when our memory fails, and cognitive decline ensues? I discussed these profound questions with one of my favorite authors, Patti Callahan Henry. She is a New York Times and USA Today bestselling author of sixteen novels, a podcast host, and a co-creator and host of the popu…
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Welcome to the first in our 2022 Summer Series with HFC. We kicked off this season on June 14th with Ruth Stevens’ novel, Stage Seven. Christy Byrne Yates moderated. About Ruth Stevens Ruth Stevens believes in stories that make you laugh and cry. She says, “I like to write about the topics that worry me the most. Since I worry about a great many th…
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Caring for a father with a dementia diagnosis brings to caregiving its own special set of circumstances and considerations. In this AlzAuthors Live! Virtual Q&A we explore these changes and challenges with four of our authors. Their stories will inspire and empower you on your own dementia journey with your dad. This free virtual event was held on …
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“If there’s one thing worse than Alzheimer’s, it’s ignorance of the disease,” says Martin Schreiber, author of My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, where he tells the story of his caregiving journey with his wife, who recently succumbed to her illness. Written with Milwaukee author Cathy Breitenbucher, the bo…
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Join the AlzAuthors team as we discuss the launch of our latest initiative, Custom Caregiver Collections. Managers Jean Lee, a co-founder, Ann Campanella, and Susan Landeis, and author Paulette Sharkey join host Marianne Sciucco to discuss the beautifully crafted table top wooden bookshelves holding a collection of approximately 15 to 18 books abou…
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Chris MacLellan is well-known in caregiving circles. You might know him as The Bow Tie Guy – because, he says, “Wearing a bow tie is like wearing two smiles." Or you might know him from his caregiving blog, The Purple Jacket, where he chronicled his and his partner Richard’s journey with esophageal cancer. Or you might know him as the founder of Th…
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When his parents began to show early signs of dementia, independent documentary filmmaker Frank Silverstein captured their story with the camera on his iPhone. This resulted in a short film he titled Lousy: Love in the Time of Dementia. The film has gone on to receive positive reviews, was screened at London’s Global Health Film Festival and the Ne…
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