The Research Works podcast is designed for health professionals in the area of child health, where we discuss emerging, modern, evidence based research - the behind the scenes stories, interviews with world renowned authors and researchers, material that never made the papers and a breakdown on how you can implement this into your clinical practice.
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Kindy Moves: the feasibility of an intensive interdisciplinary programme on goal and motor outcomes for preschool-aged children with neurodisabilities requiring daily equipment and physical assistance Matthew Haddon, Loren West, Catherine Elliott, Corrin Walmsley, Jane Valentine, Natasha Bear, Dayna Pool, Healthy Strides Research Advisory Council A…
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Episode 138 (Caitlin Gray - PhD Candidate)
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Down syndrome or Rett syndrome in the family: Parental reflections on sibling experience Caitlin Gray, Helen Leonard, Kingsley Wong, Sally Reed, Kate Schmidt, Rachel Skoss, Jianghong Li, Alison Salt, Jenny Bourke, Emma J. Glasson Abstract Background: Siblings of children with intellectual disability have unique family experiences, varying by type o…
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MYTHS AND FACTS ON HIPS IN CHILDREN WITH CEREBRAL PALSY Reflections on this episode: Professor Susan Stott is a Professor of paediatric orthopaedic surgery at the University of Auckland, New Zealand and paediatric orthopedic surgeon at Starship Children’s Hospital in New Zealand. Professor Stott was the second President of the AusACPDM and was the …
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Prioritized strategies to improve diagnosis and early management of cerebral palsy for both Māori and non-Māori families Sian A Williams, Ivana Nakarada-Kordic, Anna H Mackey, Stephen Reay, N Susan Stott Abstract Aim: To identify prioritized strategies to support improvements in early health service delivery around the diagnosis and management of c…
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Early otitis media puts children at risk for later auditory and language deficits Abstract Background: Otitis media is a common disorder of early childhood suspected of hindering auditory and language development, but evidence regarding these effects has been contradictory. To examine potential sources of these contradictory past results and explor…
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A family-tailored early motor intervention (EMI-Heart) for infants with complex congenital heart disease: study protocol for a feasibility RCT Elena Mitteregger, Tineke Dirks, Manuela Theiler, Oliver Kretschmar, Beatrice Latal Abstract Background: Children with congenital heart disease (CHD) undergoing open-heart surgery are at risk for development…
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Episode 133 (Assistant Professor Giovanni Di Liberto)
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EMERGENCE OF THE CORTICAL ENCODING OF PHONETIC FEATURES IN THE FIRST YEAR OF LIFE Giovanni M. Di Liberto, Adam Attaheri, Giorgia Cantisani, Richard B. Reilly, Áine Ní Choisdealbha, Sinead Rocha, Perrine Brusini & Usha Goswami Nature Communications volume 14, Article number: 7789 (2023) Abstract Even prior to producing their first words, infants are…
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Episode 132 (Associate Professor Alexander Larcombe)
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“Chemical analysis of fresh and aged Australian e-cigarette liquids” published in the Medical Journal of Australia “Electronic cigarette usage patterns and perceptions in adult Australians” published in Toxics in 2023. Chemical analysis of fresh and aged Australian e-cigarette liquids Alexander Larcombe, Sebastien Allard, Paul Pringle, Ryan Mead-Hu…
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Parenting Practices May Buffer the Impact of Adversity on Epigenetic Age Acceleration Among Young Children With Developmental Delays Alexandra D W Sullivan, Anne K Bozack, Andres Cardenas, Jonathan S Comer, Daniel M Bagner, Rex Forehand, Justin Parent Affiliations expand PMID: 37733001 PMCID: PMC10626625 (available on 2024-09-21) DOI: 10.1177/09567…
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Episode 130 (Sue-Anne Davidson - PhD Candidate)
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Implementation of an Integrated Knowledge to Action strategy can be used to implement the clinical guidelines for the early detection of cerebral palsy in a state-wide early intervention service and the impact of social determinants of health on service engagement. In this retrospective longitudinal cohort study that was completed in Western Austra…
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Including a relationship-focus in paediatric occupational therapy interventions: Introducing the PAIR Model The importance of parent-child relationships for child developmental outcomes suggests a need to incorporate a relationship focus into early intervention programs for children with developmental delays. Nevertheless, confusion exists about th…
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Episode 127 (Professor Catherine Elliott)
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Building a clinical researcher’s career - lessons from a mentor Professor Elliott is the Director of Research at Telethon Kids Institute, the Chair of Kids Rehab at Child Adolescent Health Services (CAHS) and a Professor in the School of Allied Health at Curtin University.By Professor Catherine Elliott
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The potential of cell therapies for cerebral palsy: where are we today? Iona Novak, Madison Cb Paton, Alexandra R Griffin, Michelle Jackman, Remy K Blatch-Williams, Megan Finch-Edmondson PMID: 37428111 DOI: 10.1080/14737175.2023.2234642 No abstract available Keywords: Cerebral palsy; efficacy; inflammation; mesenchymal stem cells; safety; stem cell…
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Episode 126 (ResearchWorks Live at SSBI23)
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Live from the Small Steps | BIG Impact 2023 Conference! The art of Science Communication.By ResearchWorks Live
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Season 3 Wrap Up Final episode of the season?!? As Ash and Dayna reflect on this incredible year, we pull together some key themes of the episodes and the ever so wonderful and brilliant guests we have had on the show. We are so grateful for all of the researchers who so generously gave their time to help spread the word on the current state of sci…
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Navigating the Credibility of Web-Based Information During the COVID-19 Pandemic: Using Mnemonics to Empower the Public to Spot Red Flags in Health Information on the Internet Jessica Stokes-Parish Free PMC article Abstract Misinformation creates challenges for the general public in differentiating truth from fiction in web-based content. During th…
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Episode 123 (Associate Professor Asha Bowen)
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Bivalent Prefusion F Vaccine in Pregnancy to Prevent RSV Illness in Infants List of authors. Beate Kampmann, M.D., Ph.D., Shabir A. Madhi, M.B., B.Ch., Ph.D., Iona Munjal, M.D., Eric A.F. Simões, M.D., Barbara A. Pahud, M.D., M.P.H., Conrado Llapur, M.D., Jeffrey Baker, M.D., Gonzalo Pérez Marc, M.D., David Radley, M.S., Emma Shittu, Ph.D., Julia G…
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Episode 122 (Professor Ana Carolina de Campos)
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F-words and early intervention ingredients for non-ambulant children with cerebral palsy: A scoping review Ana Carolina De Campos, Álvaro Hidalgo-Robles, Egmar Longo, Claire Shrader, Ginny Paleg Abstract Aim: To explore the ingredients of early interventions provided to young children with cerebral palsy (CP) who are classified in Gross Motor Funct…
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Episode 121 (Loren West, Marissa Smith, Dr Dayna Pool, Dr Ashleigh Thornton)
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A roundtable discussion about the clinical application of Mobility as a Human Right! Mobility is a fundamental human right and is supported by the United Nations and the ON Time Mobility framework. W Logan, Bethany M Sloane, Lisa K Kenyon, Heather A Feldner PMID: 37232636 PMCID: PMC10215286 DOI: 10.3390/bs13050399 Free PMC article Abstract Mobility…
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Episode 120 (Associate Professor Samuel Logan)
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Powered Mobility Device Use and Developmental Change of Young Children with Cerebral Palsy Mobility is a fundamental human right and is supported by the United Nations and the ON Time Mobility framework. The purpose of this study was to understand the effect of a powered mobility intervention on developmental changes of children with cerebral palsy…
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Episode 119 (Assistant Professor Heather Feldner and Andrina Sabet)
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ON Time Mobility: Advocating for Mobility Equity Abstract Mobility is a human right. The traditional definition of mobility in physical therapy practice is centered on translocation and, while accurate, is not comprehensive. In this article, we propose the ON Time Mobility framework: that all children have the right to be mobile throughout their de…
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Brain activation changes following motor training in children with unilateral cerebral palsy: An fMRI study Rodrigo Araneda, Laurance Dricot, Daniela Ebner-Karestinos, Julie Paradis, Andrew M Gordon, Kathleen M Friel, Yannick Bleyenheuft Free article Abstract Background: Intensive motor-learning-based interventions have demonstrated efficacy for im…
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It has been an incredible week for the podcast this week. A quick debrief with Ash and Dayna and a look ahead to some exciting new epsiodes!By Dr Dayna Pool and Dr Ashleigh Thornton
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The NDIS (National Disability Insurance Scheme) and evidence based practice. A very special ResearchWorks episode as we speak with (Australian) Federal Minister Bill Shorten - the Minister for the National Disability Insurance Scheme (the NDIS). The NDIS is a very unique Australian treasured, national health care service - there may be no other equ…
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Episode 115 (Professor Ben Jackson)
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Persuasion and Communication in Sport, Exercise, and Physical Activity How can we use persuasion methods to make people more physically active and improve their sport and exercise experiences? How can instructors, coaches, athletes, and practitioners most effectively communicate their messages to others? Persuasion and Communication in Sport, Exerc…
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Eye movements and stress during eye-tracking gaming performance in children with dyskinetic cerebral palsy Saranda Bekteshi, Petra Karlsson, Lieselot De Reyck, Karen Vermeerbergen, Marco Konings, Patrick Hellin, Jean-Marie Aerts, Hans Hallez, Bernard Dan, Elegast Monbaliu Affiliations expand PMID: 35393636 DOI: 10.1111/dmcn.15237 Abstract Aim: This…
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Episode 113 (Associate Professor Dana Anaby)
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Reliability and Validity of the Youth and Young-Adult Participation and Environment Measure (Y-PEM): An Initial Evaluation Saeideh Shahin, Sara Ahmed, Briano DiRezze, Dana Anaby Abstract Aim: To examine psychometric properties and aspects of utility of the Youth and young-adult Participation and Environment Measure (Y-PEM). Methods: Young people wi…
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Financial cost and quality of life of patients with spinal muscular atrophy identified by symptoms or newborn screening Tamara Dangouloff, Mickael Hiligsmann, Nicolas Deconinck, Adèle D'Amico, Andreea M Seferian, François Boemer, Laurent Servais Free article Abstract in English and Spanish Aim: To compare the societal financial costs and quality of…
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Poor comprehenders have difficulty with reading comprehension despite adequate word reading accuracy and fluency. Weaknesses have been identified with lower-level vocabulary and grammar skills, and higher-level language skills such as inference making. It is important that speech-language pathologists (SLPs) tailor intervention to meet the specific…
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EACD 2023 (Professor Rocío Palomo-Carrión)
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EACD 2023 Supplemental. Professor Rocío Palomo-Carrión University of Castilla-La Mancha Interview re: Mini-symposium: Powered mobility: Facilitating participation in children with Spinal Muscular Atrophy (SMA) type I. Ready for the race?By Professor Rocío Palomo-Carrión
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"...The journey of 100 episodes begins with one interview..." YouTube video link: https://youtu.be/R0wGTaDI9Yw A look back at a significant milestone in the life of the Pod. We are honoured and privileged to be able to bring the podcast to you each and every week. We take great joy in highlighting the work of incredible researchers, clinicians and …
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Dr Dayna Pool Curtin University and the Healthy Strides Foundation The final words.... Thank you!By Dr Dayna Pool
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Professor Nora Shields LaTrobe University, Olga Tennison Autism Research Centre Presentation title: Effect of a community-based intervention (FitSkills) for young people with disability on physical activity participation: a stepped wedge cluster randomised trialBy Professor Nora Shields
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EACD 2023 (Assistant Professor Sudarshan Dayanidhi)
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Assistant Professor Sudarshan Dayanidhi Shirley Ryan Ability Lab, NorthWestern University Presentation title: Mitochondrial energetics in impaired muscle growth and across functional levels in children with cerebral palsyBy Assistant Professor Sudarshan Dayanidhi
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EACD 2023 (Amy De Roubaix - PhD Candidate)
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Amy De Roubaix, PhD Candidate Ghent University Presentation title: The impact of developmental coordination disorder: preliminary results in BelgiumBy Amy De Roubaix - PhD Candidate
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EACD 2023 (Anke Arkesteyn - PhD Candidate)
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Anke Arkesteyn, PhD Candidate KU Leuven Poster title: Physical activity participation in adolescents with autism spectrum disorder: barriers and facilitations - a qualitative study.By Anke Arkesteyn - PhD Candidate
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Dr Cristina Simon-Martinez University of Applied Sciences in Valais (Switzerland) Poster title: RehaBot: A chatbot between therapists and patients to establish telerehabilitation programs and quantify their outcome.By Dr Cristina Simon-Martinez
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Dr Rachel Toovey University of Melbourne Presentation title: Pathways to participation:understanding the experiences of families of children with disability in gymnasticsBy Dr Rachel Toovey
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EACD 2023 (Lize Kleeren - PhD Candidate and Lisa Decraene - PhD Candidate)
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Lize Kleeren (PhD Candidate) and Lisa Decraene (PhD Candidate) KU Leuven Presentation titles 1: Proximal proprioception in children with and without unilateral cerebral palsy, measured with state-of-the-art robotics. 2: Robotic evaluation of bimanual coordination in children with unilateral cerebral palsy with different manual abilities.…
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EACD 2023 (Álvaro Hidalgo-Robles - PhD Candidate)
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Álvaro Hidalgo-Robles - PhD Candidate Universidad Internacional de La Rioja | UNIR Topic: Perspectives on EACD2023, early career researchers and an evidence based approach to early intervention,By Álvaro Hidalgo-Robles
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EACD 2023 (Professor Sylvain Brochard and Niek De Taeye)
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Professor Sylvain Brochard (Co-chair of the technological task force for EACD) and BEaCHiLD (Breizh Research and Innovation Centre for Child Development and Rehabilitation) and Niek De Taeye: Head of family user forum of EACD and parent of daughter with CP. Presentation title: Building technologies for children with disabilities: how to start from …
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EACD 2023 (Atefeh Taghizadeh - PhD Candidate)
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Ms Atefeh Taghizadeh, PhD Candidate LaTrobe University Presentation title: Development and psychometric properties of the Upper Limb-Motor Learning Strategy Tool (UL-MLST) for children with cerebral palsyBy Atefeh Taghizadeh - PhD Candidate
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Ahlam Zidan, PhD candidate McGill University Presentation: Understanding the effectiveness of transition to adult interventions for adolescents with disabilities it’s a realist informed, mixed method, systematic review.By Ahlam Zidan - PhD candidate
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EACD 2023 (Associate Professor Leanne Johnston)
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Associate Professor Leanne Johnston University of Queensland Presentation title: Effectiveness of school-based physiotherapy intervention for children: a systematic reviewBy Associate Professor Leanne Johnston
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Professor Roslyn Boyd Queensland Cerebral Palsy and Rehabilitation Research Centre, University of Queensland Presentation title: Efficacy of infant friendly Baby-CIMT and Baby-BIM in a randomised trial of home-based parent delivered early intervention for infants at risk of unilateral cerebral palsyBy Professor Roslyn Boyd
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Aisling Ryan, PhD Candidate University of Queensland Presentation title: Expert consensus on optimal child-led goal setting practices for school-aged children with a disability or delay: An International Delphi StudyBy Aisling Ryan - PhD candidate
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Dr Mari Carmen Lillo Miguel Hernandez University Presentation title: Early intervention in neurodevelopmental disabilities in Europe: sharing experiencesBy Dr Mari Carmen Lillo
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Dr Lisa Mailleux University of Leuven Presentation: The assessment of grip strength and stereognosis in preschool aged children with and without unilateral cerebral palsyBy Dr Lisa Mailleux
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Dr Stacey Cleary CPAchieve, Murdoch Children’s Research Institute, Honorary University of Melbourne Presentation title: The experiences and perceptions of participation in daily life of adolescents and young adults with cerebral palsy: a scoping reviewBy Dr Stacey Cleary
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Professor Reidun Jahnsen University of Oslo, Oslo University Hospital Presentation title: How did youth with cerebral palsy perceive participation in everyday life after participating in a periodical intensive rehabilitation programme based on adapted physical activity? A qualitative interview studyBy Professor Reidun Jahnsen
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