Best Hypoplastic Right Heart Syndrome Podcasts (2024)

1
James Robinson's Emotional Odyssey: Love and Loss in a Heart Family 46:00

15h ago46:00

46:00

Send us a Text Message. What happens when your entire world is defined by hospital walls and medical jargon? On "Heart to Heart with Anna," we share the poignant and raw journey of James Robinson, a father who walks us through the emotional highs and profound lows of raising his son Nadav, who was born with a congenital heart defect known as single…

1
Heartfelt Battles to Artistic Revelations with Amy Milz 31:26

22d ago31:26

31:26

Send us a Text Message. Amy Milz opens her heart to us—quite literally—in a candid recount of her life as a congenital heart defect survivor. With grace and vulnerability, she takes us through the paces of her medical odyssey, from the relentless advocacy of her mother to her personal victories in the operating room. Each scar tells a story of resi…

1
Mother's Day Reflections: The Valor and Vitality of Heart Moms 27:14

24d ago27:14

27:14

Send us a Text Message. When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to raise a child with a congenital heart defect. Join me, Anna Jaworski, in an episode where we explore the deep em…

1
The Courageous Chronicle of Hope: From Heart Surgery to Self-Discovery 34:48

1M ago34:48

34:48

Send us a Text Message. When my daughter Hope graced the podcast with her presence, her story wasn't just a chronicle of living with a single ventricle heart at 29—it was a profound testament to her strength amid her gender transition. Our conversation unveils the seamless integration of her heart health with her journey of self-discovery, all whil…

1
Embracing Life's Pulse Amidst HLHS and PLE Hurdles with Hollie Stephenson 36:18

1M ago36:18

36:18

Send us a Text Message. Witnessing your child's bravery and resilience as they navigate a life-altering condition like hypoplastic left heart syndrome (HLHS) is both harrowing and inspiring. Hollie Stephenson joins Anna to share the profound story of her son Tom, who not only fought through the early challenges of HLHS but also the complex battle w…

1
Navigating the Emotional Landscape of Raising Children with Congenital Heart Defects 39:06

2M ago39:06

39:06

Send us a Text Message. When your child's heartbeat is a symphony laced with irregularities, every moment becomes a measure of uncertainty. This is the world heart moms like myself, Anna Jaworski, and my guest Kelsi Rogers live in every day. Join us as we peel back the curtain on the mental marathon of raising children with congenital heart defects…

1
Heart Mom Kelsi Rogers on Jett's Electrical Problems with His Heart 49:25

2M ago49:25

49:25

Send us a Text Message. This episode of "Heart to Heart with Anna" features a very special heart mom. Kelsi Rogers talks about the surprising circumstances around her son's heart condition. Born with an electrical problem in his heart, Jett has already faced life-and-death situations several times in his short life. Not even three years old yet, he…

1
An Author for CHD Adults with Learning Disabilities: Deanna Altomara 58:07

3M ago58:07

58:07

Send us a Text Message. As an author myself, I understand the power of stories to heal and inspire. That's why I'm thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself, Deanna understands what it means to have had open-heart surgery. Deanna's tal…

1
Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects 1:06:42

3M ago1:06:42

1:06:42

Send us a Text Message. When Ellen Boyer's voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with Down Syndrome. From the awe-inspiring feat of Chris Nikic, the first athlete w…

1
Ellen Boyer and World Down Syndrome Day 2024 & Volume Two: Endurance! 1:02:02

3M ago1:02:02

1:02:02

Send us a Text Message. When Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every stereotype. Through the Brett Boyer Foundation, Ellen's dedication to challengin…

1
Learning about Anesthesia During Ablations & Volume Two! 41:07

3M ago41:07

41:07

Send us a Text Message. In this episode of Heart to Heart with Anna we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation. Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering an…

1
Embracing the Heartbeat of Motherhood: Meagan Houpt’s Adoption Journey 1:06:03

4M ago1:06:03

1:06:03

Send us a Text Message. When Megan Houpt made the heart-wrenching decision to pursue adoption over pregnancy due to her heart condition, it struck a chord with me as a heart mom. Together, we unfold her narrative in this episode, navigating the complexities of adoption with a CHD. From the intricate dance of home studies to the emotional synergy wi…

1
Resilience in Motion: The Unseen Struggles of Adult Life with Congenital Heart Defects 1:00:19

4M ago1:00:19

1:00:19

Send us a Text Message. Navigating life with congenital heart defects (CHD) is a journey of resilience and emotional fortitude. As I converse with my fellow heart mom, Rita Scoggins, we unearth the layers of complexity that come with raising adult children affected by CHD. This episode goes beyond the clinical; it’s an intimate foray into the emoti…

1
Threads of Resilience Sewn by Heart Moms and Their Children with CHDs 58:22

4M ago58:22

58:22

Send us a Text Message. Navigating the torrent of emotions that come with being a heart mom to an adult child, Rita Scoggins and I, Anna Jaworski, unfold the layers of our unique journey. Our intimate conversation traverses the evolution of care, from the hands-on nurturing of our children's younger years to the complexities of supporting their mat…

1
Heart Month News February 2024 and an Audiobook Surprise! 43:37

4M ago43:37

43:37

Send us a Text Message. This episode of Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD commun…

1
Enriching Lives with CHD Support Networks and Healing Stories 47:54

5M ago47:54

47:54

Send us a Text Message. Embark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. …

1
From Manuscript to Masterpiece: Tales of Tenacity and Triumph 47:27

5M ago47:27

47:27

Send us a Text Message. Ever wonder about the emotional odyssey of creating a book that captures the essence of human resilience? My co-editor Megan Tones and I, Anna Jaworski, take you on the intimate trek behind "The Heart of a Heart Warrior," from the flicker of an idea to the jubilance of publication. Our conversation unwraps the passion and de…

1
Embracing Healing: The Synergy of Functional Medicine, Aromatherapy, and Spirituality 56:14

5M ago56:14

56:14

Send us a Text Message. Have you ever felt the tug of curiosity towards an approach to mental health that strays from the conventional path? Today, I'm thrilled to welcome Valerie Chavez MD and Ryan Hunter to share their insights on functional medicine's transformative role in mental health care, especially for those touched by congenital heart def…

1
Uniting Hearts: A Decade of Hope, Support, and Volunteerism 21:10

5M ago21:10

21:10

Send us a Text Message. As I sit back and reflect on Heart to Heart with Anna in the year 2023, I want you to celebrate with me, Anna Jaworski, as we mark a milestone of connection and growth within the congenital heart defect community. From the early days on Voice America to our move to Blog Talk Radio and beyond, we've weathered sponsorship stor…

1
Finding Hope Amidst Long Q-T Syndrome: Jackie Renfrow's Journey 33:57

6M ago33:57

33:57

Send us a Text Message. Imagine living in a family where sudden deaths were a tragic norm. That's the reality heart mom Jackie Renford faced before the fateful identification of Long Q-T Syndrome, a genetic heart condition, in her family. Her misdiagnosis and the subsequent loss of her son and daughter have inspired her to become an advocate for ea…

1
Battling Congenital Heart Defects: The Extraordinary Stories of Emily Falcon and Mabel's Friendship, Advocacy, and Resilience 32:37

7M ago32:37

32:37

Send us a Text Message. How does a young child learn to fight, to survive, and even thrive when they're born battling a congenital heart defect? Join us as we journey through the inspiring life stories of Emily Falcon and Mabel, two extraordinary women who refused to let their heart conditions define them. Emily, born with the rare ALCAPA--Anomalou…

1
Exploring Functional Medicine: Harnessing the Power of Essential Oils and Holistic Health Approaches 53:53

8M ago53:53

53:53

Send us a Text Message. Have you ever considered how your lifestyle choices could be affecting your health? Ever wondered about the benefits of essential oils or how to improve your gut health? Then you're in the right place. In a riveting discourse with renowned Valerie Chavez, MD, and Ryan Hunter, we delve into the heart of Functional Medicine. T…

1
A-Kid-Again Family 48:33

9M ago48:33

48:33

Send us a Text Message. Have you ever wondered about the strength that it takes to parent a heart warrior child? What does the journey of raising a child with a congenital heart defect look like? Meet Alison and Brian Blankenship, parents to two children, one of whom is a heart warrior named Ian. Ian was born with a critical congenital heart defect…

1
An Unseen Threat: The Cody Watkins Story of Heart Failure and Recovery 53:32

11M ago53:32

53:32

Send us a Text Message. Meet Cody Watkins, a beacon of resilience and health, who brushed against mortality when he discovered a congenital heart problem lurking beneath his ripped physique. Unaware of the ticking time bomb in his chest for 30 years, Cody offers a riveting recount of his journey within the world of bodybuilding, his shocking discov…

1
Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy 41:19

12M ago41:19

41:19

Send us a Text Message. As a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. That's why I invited Melanie Letzer and Kelly Blumenthal to join me for a candid conversation about their experiences navigating this complex journey. Together, we discuss the importanc…

1
Cardiac Chronicles and Community Connections: Leigh Kamping-Carder's Story 41:57

1y ago41:57

41:57

Send us a Text Message. What if you could find a space to share your story, ask questions, and connect with others living with congenital heart conditions? Join me as I chat with Leigh Kamping-Carder, founder and writer of "The Heart Dialogues," a free newsletter that does just that. We discuss Leigh's own experience of living with tricuspid atresi…

1
Heart Mom and Heart Daughter on Being a Mom 43:19

1y ago43:19

43:19

Send us a Text Message. What was it like to give birth to a baby with hypoplastic left heart syndrome (HLHS) in the 1990s? How would it feel like to watch that miracle child grow up to become a mother herself? What is it like to then see your daughter's daughter for the first time? Answers to those questions and many more will be answered in this M…

1
Myocardial Bridging and Boots Knighton 40:10

1y ago40:10

40:10

Send us a Text Message. What is myocardial bridging? Why might someone with myocardial bridging have a heart attack? What is The Heart Chamber? Boots Knighton is a 45-year-old myocardial bridging survivor from Victor, Idaho, and an avid mountain biker. She suffered a heart attack while biking when she was in her 40s. To correct the myocardial bridg…

1
Mended Little Hearts Austin, Texas Coordinator: Dana Henning! 33:30

1+ y ago33:30

33:30

Send us a Text Message. Dana Henning is mother to Evan Henning, who is a 12-year-old Heart Warrior born with a critical congenital heart defect. Evan has has multiple procedures and open-heart surgeries. His life is very full of therapy appointments, homeschool activities, and extra-curricular activities such as Special Olympics and track. Dana is …

1
Vicky Gooden: 2022 Baby Hearts Press People’s Choice Award Winner 34:11

1+ y ago34:11

34:11

Send us a Text Message. Today's episode features Vicky Gooden, the author of My Wonder Line and the winner of the 2022 Baby Hearts Press People’s Choice Award. In this episode, we will hear about how Vicky came to write her book, what it meant to her to win the BHP People’s Choice Award, and what the future holds for this very special author and he…

1
How Can You Do Heart Surgery Through a Hole in the Groin? 32:56

1+ y ago32:56

32:56

Send us a Text Message. Welcome to the 4th and final Medical Monday mini-series episode of Heart to Heart with Anna for Heart Month, February 2023. How can you do heart surgery through a hole in the groin? It seems like magic, but is it? What is a Maze Procedure? Why might someone need a pacemaker, even if they've had an ablation? How can heart val…

1
A Heart Like Mine? 30:28

1+ y ago30:28

30:28

Send us a Text Message. This is the final Heart Dad Sunday mini-series episode for Heart Month, February 2023. Frank Jaworski, Anna Jaworski's husband, and Heart Dad to a single ventricle heart warrior is back as the Guest Host. In this episode he interviews Dan Rodenbaugh. Dan is father to Caylee Rodenbaugh, who was born on June 26, 2009, at St. L…

1
The Heart of a Heart Warrior Book Project 50:31

1+ y ago50:31

50:31

Send us a Text Message. This is our final episode for our Saturday Success Stories mini-series for Heart Month, February 2023, and it's hard to imagine any greater success story than the 40 Heart Warriors who have come together to create an amazing anthology called The Heart of a Heart Warrior: Congenital Heart Defect Stories of Hope. This is the b…

1
CHDs in Society #4: The Movies 4:31

1+ y ago4:31

4:31

Send us a Text Message. With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-…

1
CHD Spotlight #4: Transposition of the Great Arteries 17:14

1+ y ago17:14

17:14

Send us a Text Message. Welcome to the 4th CHD Spotlight episode for Heart Month 2023. Our Expert Guest is HUG MAB member, Chris Donald. Chris Donald is a pediatric cardiology nurse and she was born with a complex congenital heart defect. Chris Donald also serves on the Hearts Unite the Globe Medical Board. Today's CHD Spotlight is on a type of hea…

1
Beauty Queen Author! 27:42

1+ y ago27:42

27:42

Send us a Text Message. Here is another episode in our Wednesday Writer Chat series of “Heart to Heart with Anna.” This is a special mini-series produced for Heart Month, February 2023. Today’s show is Beauty Queen Author and our Guest is Faith Brackett. We’ll start today’s program by learning a bit about Faith and her health condition in Segment 1…

1
Warrior Pets and More with Lilac Lumpkin! 31:16

1+ y ago31:16

31:16

Send us a Text Message. How can one mom make a difference when it comes to children born with special needs? What kind of comfort and support is available to children living with a range of illnesses and disabilities? How can you get involved in helping our most vulnerable children feel supported? Lilac Lumpkin is a mom to angel Heart Warrior Jaxon…

1
A Parent Heart-Lung Machine: The Ultimate Gift 29:26

1+ y ago29:26

29:26

Send us a Text Message. This is the 3rd episode in our Medical Monday mini-series for Heart Month, February 2023. What pediatric cardiothoracic surgeon seemed "too Hollywood"? Why? What is cross circulation and what was this experimental technique the predecessor of? This Medical Monday episode deals with an amazing experimental surgical technique …

1
Carl Wolford: Heart Warrior, Dad, and Grandfather 33:35

1+ y ago33:35

33:35

Send us a Text Message. Here is another Heart Dad Sunday episode for Heart Month, February 2023. Like the other two episodes, this episode also features Heart Dad Frank Jaworski as the Guest Host. Today's Guest is Carl Wolford. Carl Wolford was born with total anomalous pulmonary venous return or TAPVR and had surgery by Dr. Denton Cooley at 4 mont…

1
2023 AHA Teen Impact Sisters 29:02

1+ y ago29:02

29:02

Send us a Text Message. Why would a pair of teen sisters be interested in working with the American Heart Association? How can these sisters make a difference? How much money do these young ladies plan to raise and how can you get involved? This is the 2nd Saturday Success Story in our Heart Month 2023 mini-series! This features two sisters who hav…

1
CHDs in Society #3: The Musicians 7:50

1+ y ago7:50

7:50

Send us a Text Message. With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-…

1
CHD Spotlight #3: Tetralogy of Fallot 22:21

1+ y ago22:21

22:21

Send us a Text Message. This is the 3rd episode in our CHD Spotlight mini-series and we'll be talking about Tetralogy of Fallot. Our expert Guest is Roslyn Rivera and she is a pediatric cardiology nurse who was also born with a congenital heart defect. In this episode, Roslyn shares with Anna what tetralogy of Fallot is, who coined the term for thi…

1
Heart Mom Author: Maggie Schmeider! 24:15

1+ y ago24:15

24:15

Send us a Text Message. This is another episode in our Wednesday Writer Chat mini-series of Heart to Heart with Anna for Heart Month, February 2023. We’ll start today’s program by learning a bit about Maggie and her daughter’s health condition in Segment 1. In the second segment, we’ll talk about how Maggie came to write her book for the CHD commun…

1
Healing Hearts and Minds in the CHD Community 30:06

1+ y ago30:06

30:06

Send us a Text Message. What are some special considerations that need to be made for the mental health of someone born with a cardiac condition? Why should there be a book specifically for understanding the mental and emotional development of people born with critical congenital heart conditions requiring multiple open-heart surgeries? What makes …

1
Medical Monday #2: Monkey Lungs! 10:26

1+ y ago10:26

10:26

Send us a Text Message. This is the second episode in our Heart Month 2023 Medical Monday series. In last week's Wednesday Writer Chat, Anna talked to author Richard Schwindt about his life and he was born in the 1950s with a congenital heart condition. He informed Anna that monkey lungs helped to keep him alive through one of his surgeries. Curiou…

1
Heart Dad Sunday #2: Tom Hansen: Heart Dad Podcaster and Author 29:56

1+ y ago29:56

29:56

Send us a Text Message. Why would a heart dad decide to host a podcast? Why would he write a book for the congenital heart defect community? What has this dad learned from having a child with a heart defect? Tom and Kat Hansen are parents to Audrey and Harding. In 2014, Harding was diagnosed with multiple congenital heart defects in utero, for whic…

1
HRHS Heart Warrior Mom 35:09

1+ y ago35:09

35:09

Send us a Text Message. How safe is it for a woman born with hypoplastic right heart syndrome to get pregnant and carry a baby to term? What considerations need to be made when Heart Warriors with complex CHDs decide to get pregnant? What advice does a Heart Warrior Mom have for others considering having a baby? Katelynn Scoggins was born with a cr…

1
CHDs in Society #2: The Athletes 8:13

1+ y ago8:13

8:13

Send us a Text Message. With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-…

1
CHD Spotlight #2: Holes in the Heart 38:42

1+ y ago38:42

38:42

Send us a Text Message. In our second CHD Spotlight episode, we'll discuss holes in the heart—atrial septal defects (ASDs), ventricular septal defects (VSDs) and more! Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the heart." This episode features Dr. William Novick—an internationally-known cardi…

1
Social Worker, Heart Warrior Author 34:42

1+ y ago34:42

34:42

Send us a Text Message. Are congenital heart defects hereditary? How might someone born with a hole in his heart choose to live his life? Why might a social worker choose to write a book to help the congenital heart defect community? This is our 2nd Wednesday Writer Chat--a special mini-series during Heart Month, February 2023. Today’s show is "Soc…

Podcasts Worth a Listen

Hypoplastic Right Heart Syndrome Podcasts

Podcasts Worth a Listen

Quick Reference Guide