BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Ta ...
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Cheat Codes: A Sickle Cell Podcast, is led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan, and produced by BloodStream Media. Each episode of Cheat Codes: A Sickle Cell Podcast brings listeners a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Cheat Co ...
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SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
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Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.
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Content independently created by BloodStream Media. Novartis is our exclusive advertising partner. Introducing "PNH: Facts, Fiction & FYI," a limited series that unveils the enigmatic realm of Paroxysmal Nocturnal Hemoglobinuria (PNH). Join us as we journey through real stories, medical insights, and groundbreaking advancements, offering a comprehensive view of PNH. Explore the lives touched by this rare blood disorder and discover the intersection of facts, fiction, and must-know informatio ...
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Acute pain. Chronic pain. Physical pain. Emotional pain. Psychological pain. Spiritual pain. Pain is a part of life, it’s everywhere, and it can be devastating. There are many tools, techniques, and resources for managing it, but what do we actually understand about pain? The Pain Podcast explores this and other pain-related questions. Subscribe now, and tell a friend about us! Produced by BloodStream Media. Presenting Sponsor: Tremeau Pharmaceuticals.
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What do you do when you’ve achieved your dreams only to realize- your work’s just begun? In January of 2018, Chris Bombardier became the first person with severe hemophilia to complete The Seven Summits. It was the end of an adventure, and the start of a whole new chapter in Chris’s life. From the team behind the documentary Bombardier Blood comes a podcast for adventurers, bleeders, and anyone who’s ever chased a dream. Join Chris for a brand new, seven-episode adventure launching on May 22 ...
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Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.
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The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: The PV Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit Pharm ...
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Good Day To Everyone! We all understand The Seriousness of The Times We Live In and It’s About Time To Address iT! Operation Amber: Help The Homeless -- Donate and Get Free Items - - discounts and more! Sponsorship available! www.marketguides.ca Set Good On The Plain! Spiritual Warfare!! We All Must Get Ready TOGETHER within SPIRIT & TRUTH! World News / Media : Bible Reading : Music / Vibration! NEW ITEM SECTION -- Listen to the previews (https://mrpersonality1.bandcamp.com) Sponsored By: ww ...
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Delving deep into the brain and bloodstream of artists, creators and creatives. Join Venus Bleeds, a queer immigrant musician and visual artist discuss physical, mental and environmental systems that affect creativity, and artistic identity with renowned artists from all over the world. This is a show about mental health, patriarchy, feminism, creativity and productivity. We are humbled by the beauty of communication, and the power of sharing each other's voices. What does it mean to be a sl ...
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Breathing exercises over a hand pan played by Malte Marten ~ Only Because I know it can help someone:). I hope you enjoy and Have a great day!By thetimewelivein
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This episode is a smooth - calm reggae gospel mixed with 2 Quick Bible Verses, the song of the day and news. (Not in that order). "The News" is really a report about China using a fake sun. I decided to look this up because many people believe our sun has changed. I think the sun is much brighter than normal. Not to mention - some animals seem to w…
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A Rendition Of My Live Stream ~ When The Joke Gets A Serious Mix
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1:00:55
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This is when the joke gets serious than it becomes a mix of joke & serious ness - A Rendition of My Live Feed ~ Subscribe Today!By thetimewelivein
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Hand pan from Malte Marten / change of colours - - w/ breathing instructions ~ let it all goBy thetimewelivein
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Back by popular demand.. is a cool mixture of Smooth Gospel Hip Hop Music than weather --mainly the Caribbean like Jamaica TnT and along that coast - watch for flooding -- rain-- hurricanes-- extra warm waters-- Buy Truth & Lies Poetic Series Here - https://bit.ly/truthandliesprt1 than is Bible Time - Romans 11 11 I say then, Hath God cast away his…
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Good For Your Bloodstream ~ Handpan/Bom para sua corrente sanguínea ~ Handpan/Bon pour votre circulation sanguine ~ Handpan/
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1:01:34
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Malte Martin playing the hand pan ~ "The Art Of Letting Go What are the benefits of handpan? Handpan music is a form of sound therapy that offers a range of benefits for holistic healing: Promotes relaxation and stress reduction. Enhances mood and emotional well-being. Supports mental clarity and focus. Encourages deep meditation and mindfulness. F…
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The Warrior Poet: A Rising Star: Dr. Alex Glaros
27:44
27:44
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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…
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Tornado Warning For Missouri / Winona, Wisconsin, St. Louis, Roachtown, toward freeburg, Mountain Valley, Belleville in illinois, U.S.A
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0:26
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Tornado's warnings - Be Careful!By thetimewelivein
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10 hrs later...This podcast starts off with the song of the day from my friends wife.. Amazing Song-- So Beautiful-- than Psalm 108 - The rest instrumentals -mainly trumpet + sax - sometimes 4 tracks mixed together - Enjoy... Thanks For Listening! & Have a Great Day!! :)By thetimewelivein
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Mild hemophilia truly does matter and we’re with Shellye Horowitz, formally with HFA, to hear about HFA’s Mild Matters program. Plus the final Elite Athletes segment with Paul McLaughlin and I’m Fine with Luke Pembroke. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I’m Fine and…
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May This Weather Get Better ~ Important Storm Watch
51:44
51:44
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Intro - Gets a Little Passionate News From Mr. Weatherman, Ryan Hall Yall, and The Weather Network -Tornado warnings across North America, Caribbean + more! + Psalm 81By thetimewelivein
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Important Upcoming International Weather & The El Salvador President
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This podcast has an intro, important upcoming weather and a speech from the El Salvador PresidentBy thetimewelivein
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Raising & Being a Teen with PK Deficiency
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32:47
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On this episode, Dr. Rachael Grace talks with Jessica Kellar and her teenage son Travis. They discuss Travis’ diagnosis, actively involving him in his own care and how to navigate life as a teenager with pyruvate kinase deficiency. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended fo…
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Hence: All Instruments used obtain healing properties. This podcast begins with my opinion of thought process - n how it relates to consciousness. The native flute begins Than is News (Sorry to hear about all the floods and 'natural' disasters.) Canada- new c63 bill- (internet law) Africa vs West than it's breathing exercises-- 1st english instruct…
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Important ~ Must Share! Current Solar Storms, Aurora's, (Everything you need to know), Great Music, Bible Reading + Encouragement ~ Important Share
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This Episode (you don't want to miss) is made up of... - Instrumentals - Gospel Music - 4 x 15 min avg informational based recordings from Suspicious Observers, BP Earthwatch and Mr. Weatherman regarding the current record breaking solar flare explosions (Spots exploding from the sun- Facing Earth -As it Hits it causes Aurora's) - Bible Readings - …
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UK Blood Inquiry Clive Smith & Laurence Woollard
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Our blood brother buds, Clive Smith & Laurence Woollard join us today to share the latest from the ongoing saga of UK Blood Inquiry, plus our latest Gene Therapy segment has Mason Buxton’s story (the first hemophilia B patient to be commercially dosed with gene therapy!). Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, vi…
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Illinois, Kentucky, Tennessee OKC - North Carolina - South and East of St. LouisBy thetimewelivein
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A few stories really about real cause and effect situations. A mannerism to help and here's the link to donate www.marketguides.ca Have a great day:)By thetimewelivein
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Navigating the Currents: Interferons in the Treatment of Polycythemia Vera
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On this special episode of the BloodStream Podcast, we explore interferons in the treatment of polycythemia vera (or PV). This episode is brought to you by PharmaEssentia. If you’d like to learn more about polycythemia vera, check out our sister show PV Pod: Stories from the Marrow (brought to you by BloodStream Media and PharmaEssentia). Connect w…
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On the Shoulders of Giants is a hit (!) and I’m Fine is back
38:37
38:37
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Hear about the premiere of the On the Shoulders of Giants film from HFA Symposium with Patrick and Amy. Plus the I’m Fine segment is back with Luke Pembroke and Hazri Aris is featured on the latest Elite Athletes segment. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. On the Sho…
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Let's talk about iTBy thetimewelivein
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Revving Up for Clinical Trial Awareness in the Motor City
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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…
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A Treat For You is a Treat For Me ~
1:18:13
1:18:13
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Warm Up Meal - Intro w/ Half a Glass Of A Sing Song Appeal Main Course - Gospel Reggae BOGO DEAL Mixed Side Special - Gospel Hip Hop Back To The Main Course - Gospel Reggae Toppings - Luke Chapter 18 Dessert - Gospel Soca 'Doggy' Bag - North American Gospel --Treats That Come w/ Your Meal-- - Mark 13 - News Regarding The Attack On Bishop Breaking N…
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speaking about before birth to person to personality to persona to self actualizationBy thetimewelivein
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We have newly appointed NBDF CEO, Phil Gattone with us sharing his background and his vision for the organization and community. And, we have the story of the first commercially dosed patient of hemophilia B gene therapy. Hear from Jamison Buxton, the father of the patient…who also happens to be the director of the HTC. Show Notes: Subscribe: The B…
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Commentating The Eclipse - - Energy - - Vibrations + Whatever else comes with the eclipse!By thetimewelivein
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I only play God Music NowBy thetimewelivein
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Mind you I don't listen to this type of music anymore but it's just a demoBy thetimewelivein
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A News Demo - From Community Radio - Toronto - Back In The Day
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By thetimewelivein
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Back Story - - I thought i should add a Bible Verse -- of course I wasn't sure.. yet Isaiah 40 felt right and behold - - I looked and read - - Scroll down to read it - - I think it's a sign This one is made for.. you:) All gospel music genres - -conversations about Native history and the eclipse (Why-I'm staying inside) - Russia Announcement-- Past…
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Well.. Here's the story. I was making a little dinner for myself.. I started singing - - it got louder and louder - - So, I decided to turn on The Time We Live in Live Session - - Normally, these sessions are strictly live - as I wouldn't put my singing - - too much - - on here set so - - usually only live - - but this time is okay - - why not and …
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Stress Relief w/ Malte Marten Hand pan
1:02:39
1:02:39
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This is Really Nice! ! All sounds are from this gentleman playing the hand pan Hand pan is a soothing instrument that sends positive vibrations through your body! Enjoy:)By thetimewelivein
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I believe it goes talking than music and music and talking --reading from the Bible (one of those books they took out) back to music than - they cut me off - - but this talking may have gone too deep. -- Oh yes i remember -- i'm reacting to the lady capturing alien footage on her cameras - - than the podcast just took some turn n twist straight to …
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Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman
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45:09
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Dr. Glenn Pierce is with us to share what to expect from the upcoming WFH Congress in Madrid, and Amy sits down with President and CCEO of the Plasma Protein Therapeutics Association (PPTA), Anita Brikman. FLOW co-host Jessica Richmond sits in for Patrick and we’ll finish up with an Elite Athletes segments will feature bleeding disorder community m…
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Let's Talk About it! Operation Amber: Help The Homeless - Donate and Receive A Free Audio Gift And All Donations over $20 receives a Teamwork 3d-Embossed Crystal Label 4" x 4" Waterproof Go To www.marketguides.ca Have A Great Day!By thetimewelivein
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Started Rocking 2 Mics Than a bit of an interruption turned into chatting and Bible Reading From Chronicles!By thetimewelivein
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If You know someone escaping to U.S. ~ Listen To This 1st!
1:20:44
1:20:44
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The things we hear - - chatting - - Serious Tone - - How The Rya Garci conversation ties into migrants deportation - - -- you know i'm going t make a song wit that phrase. No More 'Migrants' To The U.S.- it may just be a trapBy thetimewelivein
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We’re back with Dr. Akshat Jain who shares highlights in bleeding disorder research from ASH 2023, plus the differences between hemophilia A vs hemophilia B gene therapies with Dr. Mark Redding. We close out with our latest Elite Athletes segments featuring bleeding disorder community legend, Perry Parker. Don’t miss it! Show Notes: Subscribe: The …
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i made a song last night - voiced it live - - than i edited it for privacy - - lol-- but here are some snips - - I'm going to make it more versatile -so it my be a while - - than some chatting touching on the migrant topic and Burkina Fasco + + 1 song at the end This one is semi edit - - sorry my mic picks up all sounds i couldn't edit right now bu…
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On this episode, we reintroduce you to NinaMaria Badalamenti as our new co-host of Thal Pals. NinaMaria is a patient advocate who has previously appeared on the show. Alongside Dr. Kevin Kuo, the two discuss what’s new in thalassemia. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and …
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What We’ve Learned So Far About Polycythemia Vera
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35:56
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On this episode, we travel back to our previous episodes to deliver some highlights of what we’ve learned so far. Dr. Prithviraj Bose gives us an overview of polycythemia vera, patient Nick Napolitano discusses his diagnosis, husband and wife team Joe and Patty Monteleone discuss the caregiver/patient relationship, David Wallace talks about his ins…
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HFA CEO Dan Kelsey and Rare Disease Day tribute
1:08:50
1:08:50
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HFA CEO Dan Kelsey joins Patrick and Amy to respond to recent organizational changes, followed by Blood Brother, Carl Weixler, who shares a bit about HFA’s history, mission, and current state. Also, a tribute to Rare Disease Day, led by voices from BloodStream Media. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit b…
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This podcast comes with instructions; When listening to the 'chatting' -- you may want to have a seat When listening to the 'music' -- you may want to get up & dance ---- Freestyle, chatting, music, chatting - 1870's Bible -Music - The End Donate / Sponsor Operation Amber: Help The Homeless Mainly, I use these 2 software Twinkle - Music, SFX, VFX, …
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A Few Reasons Why More People Are More Upset -
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A conversation about decision making life and unconditional love - - analysis of selfBy thetimewelivein
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NBFD landed a new CEO, and HFA has responded to recent organizational changes; plus, we hear from Dr. Mark Reding and Dr. Steven Pipe about their excitement over gene therapy being added to the treatment landscape in hemophilia. We close with @theHemeNP, Maya Bloomberg talkin’ Rare Disease Day. Show Notes: Subscribe: The BloodStream Podcast Present…
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Polycythemia Vera: Treatment Considerations with Dr. Aaron Gerds
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21:01
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On this episode, we hear from Aaron Gerds, MD of the Cleveland Clinic about what to expect when starting treatment for polycythemia vera. He talks about setting treatment goals, monitoring treatment progress, how to have an open conversation with your doctor, and more on this episode of the PV Pod. Transparency Statement: The PV Cancer Podcast is p…
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Preserving Tainted Blood History and Bath Bleeds
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49:35
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We’ve got a terrific interview with Kathy MacKay and Dana Kuhn about the efforts the Committee of Ten Thousand (COTT) is taking to preserve documents from the tainted blood tragedy. And another Elite Athletes segment featuring blood brother and cyclist, Giovanny Pernudi. Oh …and Patrick had a bath bleed. Show Notes: Subscribe: The BloodStream Podca…
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There is much to discuss - - this discussion is like a shovel that's digging reached a certain point and decided to dig again on another day another stream. Let's help Amber - - n others Operation Amber: Help The Homeless Business Sponsors from $50.00 cad. Videography for you? Go to www.mppro.ca @ least 30% of profits goes towards Operation Amber: …
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Operation Amber: Help The Homeless (Is In Effect)
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Operation Amber: Edmonton Homelessness - My job now is to help-- Ladies losing her toes from the cold -https://gofund.me/e2a72761 - https://bit.ly/Operationamber Homelessness breaks my heart. I understand what it is to be homeless, but not to the degree of being outside in record-breaking cold temperatures. I don't record or speak about the good th…
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