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A Raw Conversation About Living Gene Positive - with Charlotte Conn
Manage episode 409122926 series 2922328
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.
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In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.
Chapters
1. A Raw Conversation About Living Gene Positive - with Charlotte Conn (00:00:00)
2. The Impact of Social Media (00:03:11)
3. Exploring HD Research and Treatments (00:04:08)
4. Coping Mechanisms and Advocacy (00:06:29)
5. Managing Anxiety and Uncertainty (00:08:54)
6. Balancing HD Awareness and Personal Well-being (00:11:40)
7. Finding Support and Distractions (00:14:14)
8. Personal Experiences with HD Testing (00:16:10)
9. Navigating the HD Journey (00:23:17)
10. Concerns and Discussions about HD Testing (00:24:45)
11. Impact of Genetic Diagnosis (00:25:21)
12. Balancing Life Choices (00:29:15)
13. Impact on Siblings (00:33:35)
14. Family History of HD (00:36:15)
15. Mental Health Symptoms (00:39:44)
16. Different HD Experiences (00:41:44)
17. Faith and Coping (00:45:55)
18. Finding Joy in Music (00:53:03)
19. The Role of Exercise in Mental and Physical Health (00:57:06)
20. The Complexity of Relationships with HD (01:14:10)
21. Navigating Relationships with HD (01:17:15)
22. The High Cost of IVF and Adoption (01:23:33)
23. The Importance of Not Being Alone (01:42:48)
31 episodes
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