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SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
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Like a pink laser beam of insanity beaming straight into your brain hole, authors and longtime D**kHeads David Agranoff and D. Harlan Wilson break down each of Philip K. D**k's novels in order of publication with very little help from their engineer Langhorne J Tweed. Plus: Interviews. Story Vs. Film episodes. And other bits of PKD history. Support this podcast: https://anchor.fm/dickheadspodcast/support
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Losing weight is challenging and knowing how to keep it off is confusing. Everyone starts their “diet” on Monday and often break by Thursday because “stress” or health issues get in the way. If that sounds like you then meet Karina Rabin. She was born with a genetic kidney disease, ( PKD ), had 2 c-sections & shares with you how she got fit & healthy by eating real foods we all love. This podcast includes nutrition, meal prep, fitness, health, how to overcome the fear of carbs and how to hav ...
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Having overcome a near-death experience, I decided to close my life coaching practice (accessible previously on this page) and place my health at the forefront of my journey. My focus has pivoted towards advocating not only for myself but also for others. While life coaching tips will still find their place in my content, my main emphasis is now on patient advocacy through sharing my story. Six months ago, I dove into a career in the AI field, aiming to improve my financial stability in the ...
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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In this episode of the podcast we speak to Valen Keefer, a professional speaker and patient advocate who was diagnosed with polycystic kidney disease (PKD) at age 10. Valen has faced a number of challenges in her journey, including a double organ transplant, and now inspires other PKD and chronic illness patients by sharing her story. Connect with …
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Welcome back to PKD, the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick! In this episode, things are getting super weird. Are they dead? Is everyone dead? Come back next week for chapters 11, 12, and 13! Note: I’m giving myself a pass for being less coherent than usual. I didn’t check until after recording…
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Welcome back to PKD, the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick! In this episode, things are getting super weird. Are they dead? Is everyone dead? Come back next week for chapters 11, 12, and 13! Note: I’m giving myself a pass for being less coherent than usual. I didn’t check until after recording…
  continue reading
 
Welcome back to PKD, the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick! In this episode, things are getting super weird. Are they dead? Is everyone dead? Come back next week for chapters 11, 12, and 13! Note: I’m giving myself a pass for being less coherent than usual. I didn’t check until after recording…
  continue reading
 
On this episode, host Dr. Rachel Grace interviews Dr. Satheesh Chonat, a pediatric hematologist and expert in red cell disorders. They discuss Dr. Chonat’s career path and focus on the complexities of managing anemia in patients with pyruvate kinase deficiency, emphasizing the role of the spleen. They explore why splenectomy might be considered, po…
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Welcome the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick. This is an introduction where Brian explains a bit about who PDK was and gets up prepped to start our first of three of his books. We’re starting with Ubik, chapters 1 and 2 next week! (We change the name next episode as the one we went for with t…
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Welcome the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick. This is an introduction where Brian explains a bit about who PDK was and gets up prepped to start our first of three of his books. We’re starting with Ubik, chapters 1 and 2 next week! (We change the name next episode as the one we went for with t…
  continue reading
 
Welcome the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick. This is an introduction where Brian explains a bit about who PDK was and gets up prepped to start our first of three of his books. We’re starting with Ubik, chapters 1 and 2 next week! (We change the name next episode as the one we went for with t…
  continue reading
 
In this episode of the podcast, we speak to professional speaker and community advocate Keisha Hickson, who was diagnosed with multiple myeloma in 2016. That’s a rare form of cancer that develops in a type of white blood cell called a plasma cell. We discuss navigating a rare cancer diagnosis, adjusting to a new normal and the importance of resilie…
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On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the impor…
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This episode's guests include Dr. Tracy Dixon-Salazar, Executive Director for the Lennox-Gastaut Syndrome (LGS) Foundation, as well as Meg Alexander, Chief Strategy Officer of Ovid Therapeutics. We discuss the treatment landscape for seizure disorders such as LGS and why further research and investment is crucial. Connect with the LGS Foundation: W…
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The 'Not a Book Club Book Club' podcast on PKD, his books, and influence.We recently went live from the Philip K. Dick Festival in Fort Morgan, CO, along with fellow DickHeads Jonathan Lethem & Stephen Graham Jones. I was at home but had fun in the chat and even managed to get some technical difficulties under control once I realized I could. Enjoy…
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In this episode of the podcast we sit down with Brandi Benson, a U.S. army veteran, author and patient advocate who was diagnosed with Ewing sarcoma in 2008. That’s one of rare family of cancers that develop in bones and the surrounding soft tissues. Brandi shares her story of resilience and survivorship, hoping to inspire others to share their can…
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On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
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