In rarity we unite, connect and find our way to purpose.
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The LACNETS Podcast - Top 10 FAQs with neuroendocrine tumor (NET) experts
Learn Advocate Connect Neuroendocrine Tumor Society
The LACNETS Podcast is a monthly series where we interview neuroendocrine tumor (NET) experts on various NET topics. Each expert will answer to top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the LACNETS Podcast serves as a tool to help anyone better understand NET. For more information, visit www.lacnets.org/podcast.
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Conversations started by The Whitworth Group
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Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laug ...
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TGen Talks explores the human genome to tackle the latest science and discoveries in cancer, neurological disorders, rare diseases, metabolic disorders and infectious disease. Learn about causes and potential cures in our monthly podcast!
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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OUR MISSION To facilitate tangible improvements in the lives of people who have been affected by cancer(s), by providing them and their loved ones the necessary survival tools, education, support and advocacy so that they can become responsible for and take an active role in their own medical care and wellbeing. OUR GOAL Our goal is to teach all people affected by cancer, including those with multiple cancers and/or rare cancers, to become CANCER THRIVERS.
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We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which br ...
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Discover the real things that matter in life. Real Things Living explores the power of resilience and connection in navigating life’s challenges. Brigitte Cutshall draws on her personal experiences, including overcoming cancer twice and surviving a rare brain tumor, to inspire and encourage others to focus on what’s important and find their inner strength. This podcast delves into topics such as overcoming adversity, resilience, finding purpose and meaning. Brigitte and her guests share prac ...
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Honest authentic conversations about the experiences of long-term caregiving, grief and loss, and moving forward. This is a personal journey through 25 years of cancer, dementia, decline, losses, hope, gratitude, and learning to live not just exist. Gain some insight and understanding of what the life of a caregiver is like. Caregivers, know that there is life ahead of you. You are not alone.
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The Mighty Podcast infuses the health space with positivity, humor, and vulnerability. Explore topics on mental health, chronic illness, rare disease, disability, and more. Continue the conversation with a community who gets it on TheMighty.com.
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This podcast is all about testicular cancer--the survivors, medical researchers, stories from caregivers, those who didn't make it, awareness advocates, and much more. It covers the whole subject with compelling stories about this cancer--which, though rare in general, is the number one cancer hitting young men. "Don't Give Up" fighting this wildfire-like form of cancer, because great strides have been made and with more awareness and effort, we can BEAT testicular cancer for good.
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All Talk Oncology is a Cancer Podcast that empowers cancer patients through insightful conversations that reinforces confidence and certainty about their cancer condition. Transforming a terrifying experience into a manageable one, by arming patients with the understanding they need, and the ability to take control of their treatments through knowledge, allowing effective interaction with their medical team.
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Out of Patients is a no-BS podcast about making healthcare suck less for everyone. Join award-winning host Matthew Zachary each week as he and his guests sardonically deconstruct all the shenanigans in terms normal humans can understand, along with a healthy dose of 80s nostalgia and random pop culture references. So strap in, and let's all make the system less horrible; because advocacy is the only thing that's ever changed anything.
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A podcast exploring the role of mathematics and statistics in cancer research – and the stories behind the people making it happen. Maths + Cancer is hosted by Dr Vicky Neale, a mathematician at the University of Oxford. Since March 2021, she has been receiving treatment for a rare form of cancer, prompting her to discover more about how her colleagues in the mathematical community are contributing to cancer research – from prevention, through to diagnosis and treatment.
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Life as a widow can be full of grief, pain, and loneliness. But through this we also find strength, courage, independence, and new beginnings. I believe every widow deserves to live a life happily even after loss! And how do you do that? Widow Your Way! So, if you enjoy a slightly dark sense of humor, and are looking for a little laughter and encouragement, I invite you to laugh with me or at me each week as I share my journey through widowhood, surviving multiple losses, living with a rare ...
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Each year more than 12 million people will hear the devastating words "you have cancer." In each episode of WE Have Cancer we share the stories of patients, survivors, caregivers and medical professionals as a way to provide information, inspiration and hope to those touched by cancer. The host, Lee Silverstein, is a survivor of a rare form of pediatric kidney cancer and has been battling stage 4 colon cancer since 2011.
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Oncology experts summarize current and emerging issues in cancer management for patients and caregivers. Information from the Global Resource for Advancing Cancer Education (GRACE) helps people to become informed partners in their care.
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The StateChange Podcast brings real human stories of personal resilience & transformation to life through conversations with people from all walks of life who have faced extraordinary adversity, trauma, loss, or emotional struggle, and found their way through to the other side. Each episode features conversations between guests & podcast host Shauna Hill, a career trauma therapist & resilience science expert who shares her own harrowing journey through a rare cancer & neurosurgery as a singl ...
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Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. Rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a la ...
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Join Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is t ...
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Welcome to the Brooke's Light Podcast - We are super excited to start off what we feel will be the beginning of something wonderful through the power of vulnerability and transparency. In 2018, my daughter - Brooke Pearson - was diagnosed with an extremely aggressive and rare form of cancer. During this journey of ups and downs we learned so much and it through it all Brooke's memory has shown us the Light. Her legacy has taught us that through the power of connecting with others, being vuln ...
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Timely consultations relevant for family medicine, primary care, and general internal medicine topics for physicians, nurse practitioners, physician assistants, and residents. Offering CME credit for most episodes at https://ce.mayo.edu/podcast. Produced by @MayoMedEd.
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I’m Ella McCrystal and over the last 20 years I’ve been using neuroscience, to help a broad spectrum of individuals, including leaders in the world of business, sports, and the arts find and reach their full potential.I want to welcome you to a new show about the brain and the unbelievable potential you have when your mind has the training, programming and support it needs. A place that will showcase practical strategies and solutions; whether you're an individual looking to improve their me ...
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Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make ...
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Welcome to Talking Hope, breakthrough conversations about preventing, treating and curing cancer, brought to you by City of Hope Orange County, part of NCI-designated City of Hope comprehensive cancer center and Orange County’s most advanced cancer care.
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Oncology experts summarize current and emerging issues in cancer management for patients and caregivers. Information from the Global Resource for Advancing Cancer Education (GRACE) helps people to become informed partners in their care.
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Our COR2ED podcast brings together world-renowned medical experts to discuss and provide clear guidance on the latest scientific and clinical insights in various therapeutic areas, including oncology, cardiology, hemostasis, rare diseases, hemato-oncology, and endocrinology. At COR2ED, we are committed to providing balanced and evidence-based independent medical education to support healthcare professionals in enhancing patient care. Many of our podcast episodes are created in collaboration ...
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A woman’s journey through breast cancer and chemotherapy is often shrouded in mystery. What happens after I’m diagnosed? What toll will this take on me mentally and physically? What is Chemo really like? How can I surround myself with other inspiring women throughout this process? In Chemo Stories, Tina Zaremba seeks out those answers, and invites you to process them with her. Chemo Stories is a heartbreakingly honest, up close and personal account of a woman’s battle with breast cancer. Wit ...
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A podcast bringing you the stories behind news-worthy molecular biology research. From The Scientist‘s Creative Services Team.
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A podcast for curious GPs Hosted on Acast. See acast.com/privacy for more information.
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Welcome to The Royal Record. Every week Cameron Walker, GB News' Royal Correspondent, and Svar Nanan-Sen, Royal Editor of GBNews.com, will bring you the latest news and analysis on the Royal Family and give you exclusive insight into everything going on behind palace walls. New episodes released every Thursday. Hosted on Acast. See acast.com/privacy for more information.
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SheSpeakz is a platform used to “Speak Life” into ourselves and those around us. SheSpeakz is also a way to tell our stories and encourage women to embrace their journeys. At times it may be uncomfortable but there is someone who needs to hear your truth. The topics discussed using this platform will show you that you are not taking this journey called life alone. Cover Art: SheSpeakz, LLC Support this podcast: https://podcasters.spotify.com/pod/show/neek3/support
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Madeline Bell, CEO of the renowned Children’s Hospital of Philadelphia, takes you behind the scenes to meet the brilliant minds who are making - and supporting - incredible breakthroughs in pediatric medicine.
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The GovCIO Media & Research podcast network comprises GovCast, CyberCast and HealthCast featuring conversations with key leaders on timely issues impacting the federal IT landscape. Topics include cybersecurity, artificial intelligence, cloud computing, IT modernization, data analytics, workforce development and more. New episodes release each Tuesday.
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Wonders and Miracles podcast is a show dedicated to the miraculous moments in our everyday lives. Each episode features awe inspiring true stories from regular people that have had a Divine encounter. In a world full of seemingly endless struggle, this podcast helps us become aware of and recognize God's hand and love in our lives. Psalm 96:3-4 Declare his glory among the nations, his wonders among all people. For the LORD is great, and greatly to be praised... It's time to celebrate God!
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Welcome to the CRISPR revolution. Take a break and join us as we guide conversations with an expert CRISPR cast about this cutting-edge science.
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Each week, physician, economist, and author of "Random Acts of Medicine" Dr. Bapu Jena will dig into a fascinating study at the intersection of economics and healthcare. He takes on questions like: Why do kids with summer birthdays get the flu more often? Can surviving a hurricane help you live longer? What do heart surgery and grocery-store pricing have in common?
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I’m just doing this podcast so people talk to me and I don’t become a domestic terrorist. It really doesn’t have a subject or through-line. It’s just chaotic rambling. Justin IG: thejustintimee
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Sirencreatrix is the creative mastermind of Haute & Cosmic botanical perfumes, chocolates and elixirs. A songstress stargazer with an exceptionally rare and unique healing style that integrates acupuncture, astrology, and soul retrieval for a sensually heart centered lifestyle. If you like my work support me here! https://www.patreon.com/rss/sirencreatrix?auth=176b6648ae7a5e5e17ac3a7266604081
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Medical Industry Feature highlights topics brought to you by makers of products and services in the medical industry.
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Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease. Please Note: We recognise that everyone's experience's are completely unique and will be different for everyone. The people who come on the podcast are sharing their own personal experiences, these may differ from yo ...
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The official podcast of Chubbyemu. Heme Review is a podcast about case reports in medicine. Each episode will tell a patient’s story, while teaching about the pathogenesis of disease, the treatment modalities and the dilemmas that arise during their care.
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A daily podcast of upbeat news, thoughts, stories, and music
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Welcome to Talking Techniques! In this Podcast BioTechniques Digital Editor Tristan Free, interviews researchers at the forefront of their fields about the latest breakthroughs, controversies and conversations in the life sciences. From CRISPR to COVID-19, organoids to the microbiome, this podcast will explore the latest developments in the lab and interesting applications of techniques, while trying to determine how we can drive science forward in progressive and inventive ways. Hosted on A ...
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Cancer HealthCast: How an NCI Data Registry is Helping Diagnose, Treat Rare Pediatric Cancers
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A special initiative and data registry at the National Cancer Institute is helping researchers understand and treat rare childhood cancers. Dr. Mary Frances Wedekind, a pediatric oncologist and assistant research physician with the Pediatric Oncology Branch at NCI, explains how the Childhood Cancer Data Initiative follows children, teens and young …
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Richard Tyler: How West End Star Survived a Rare Cancer
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Welcome to The New Mind Podcast, where we explore the deep intersections between creativity, resilience, and the human spirit. Today, we're honored to have Richard Tyler, an extraordinary individual with a rich tapestry of experiences that defy convention. Once a star on the West End stage, gracing productions like Phantom of the Opera, Richard's j…
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From Losing a Husband to Saving Her Son: Michael and Ashlee Cramer's Cancer Journey | Ep. 59
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In this conversation, we sit down with Michael and Ashlee Cramer, a mother and son from Florida who faced unimaginable challenges. Michael, diagnosed with rare Hepatosplenic T-cell lymphoma at 19, defied the odds with the support of his mother, Ashlee, who became his full-time caregiver. Together, they endured intense treatments and a recent battle…
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Storytelling & Resilience: Afarin Bellisario's Unstoppable Journey
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Afarin Bellisario shares her unique journey from a high tech to historical fiction author. She discusses the motivations behind her latest book, Silenced Whispers, and reflects on the intersection of technology, culture, and human resilience. Afarin's story highlights the power of storytelling to connect past and present, offering insights into how…
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164: Jillian’s Story | Medical Mom x 2 and the Saying “Someone Always Has It Worse”
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Before we have children, most of us never envision what it would be like to raise a disabled child...and certainly not two of them with the same degenerative disease (Acid Sphingomyelinase Deficiency, ASMD for short, also sometimes called Niemann Pick Disease Type A/B). But this is the exact situation Jillian Arnold foundherself in after the birth …
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Episode 14: Prince Harry’s latest ‘red flag’ in his bitter feud with the Royal Family
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This week Cameron and Svar analyse Prince Harry's decision to not include additional chapters in the paperback version of his autobiography Spare and take a look at a clash between the book's release date and a very important engagement to King Charles. Welcome to The Royal Record. Every week Cameron Walker, GB News' Royal Correspondent, and Svar N…
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Linking Fasting to Health and the Gut Microbiome
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Gut microbes affect humans in many ways, including altering the gastrointestinal tract’s function and influencing a person’s body weight, and the nutrients that people ingest can affect the microbiome. Researchers now ask how popular weight loss strategies involving calorie restriction change the bugs in our guts and human health overall. In this e…
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Aman Ali, Anna Smith, Moestak Hussein and Naimah Callachand: How can we bridge the gap between diverse communities?
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In this episode of Behind the Genes, we explore the challenges diverse communities face in accessing genomic medicine. The discussion focuses on issues including language barriers, cultural differences, and socioeconomic disparities that hinder marginalised communities from accessing and benefitting from genomic medicine. Our guests delve into succ…
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Episode 74: Breaking Down Multiple Myeloma’s New Subtypes and Their Impact
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Scientists at TGen have released the results of a more than decade-long study into multiple myeloma. Looking at more than 1100 patients from four different countries, scientists identified new genetic subtypes of the disease, providing insights that could transform how we approach treatment (see related story above).Listen as Jonathan Keats, Ph.D.,…
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Working Effectively with Patients with Obsessive Compulsive Disorder (OCD)
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Host: Darryl S. Chutka, M.D. [@chutkaMD] Guest: Craig N. Sawchuk, Ph.D., L.P. It’s estimated that 1 in 40 adults have obsessive compulsive disorder. Obsessions are repetitive, unwanted thoughts that are very difficult to control. They commonly cause distress and anxiety and are often focused on a specific theme such as germs and contamination. Comp…
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[HIATUS] This Little Diagnostic Went To Market...
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On the show today, I'm thrilled to welcome – LIVE IN STUDIO — Liz Cormier-May, CEO of Mammogen, and Marty Keiser, CEO at IV Bioholdings. It's hard to blend funny, entertaining wit with healthcare jargon like diagnostics, market access, go-to-market strategy, etc. And yet, somehow, we did it. The process is gnarly and ridiculous, but now more than e…
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My Cousin, Skydiving, House Raids and the Psych Ward Ep 35
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Available on Youtube- 🤣🤣🤣 My Cousin, Skydiving, The House Raid (her perspective) and The Psych Ward Ep 35 🤣🤣🤣 (youtube.com)Apple Podcasts- https://podcasts.apple.com/us/podcast/if-this-doesnt-work/id1366535800https://www.tiktok.com/@ifthisdoesntworkpodcastInstagram-https://www.instagram.com/ifthisdoesntworkpodcast?igsh=NWxxeXNhbXpqYjFw&utm_source=…
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Long Chain Hydrocxy Coenzyme A Dehydrogenase Deficiency (LCHAD)
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Send us a Text Message. This week Rare Connection goes back to it's roots with a condition covered by the Medical Nutrition Equity Act if it were to pass. The MNEA would mandate that health insurance cover medically prescribed food, formula and vitamins for those who need them. At the beginning of last season in February Nutrition Equity became Rar…
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My husband was diagnosed with a rare blood cancer 15 months after we got married. That changed our entire life and all the plans we had for our future. I was his caregiver for 25 of the 27 years we were together. This intro video gives a glimpse into what our life looked like and why I am sharing our story. I want to help caregivers feel less alone…
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Finding Purpose & Reimaging Philanthropy with Ali Horriyat
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"Compassion is lacking in the world and is the key to resolving conflicts and inequalities." Ali Horriyat is the founder of Compassiviste and author of over 13 books. Ali shares his journey from the finance world to a life focused on compassion. He realized that money and material possessions did not bring lasting happiness and decided to use his e…
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Season 10 Kickoff | Episode Sneak Peaks, Newsletters + ISO a Final Board Member w/ Alyssa Nutile
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It’s time for Season 10! And once again, we’re coming back to the topic of our children’s disabilities and medical complexities. We have episodes on what we wish therapists knew, being a “crunchy” parent with medical complex children, some heart-wrenching story episodes, and a few *spicy* (and currently secret) episodes that’ll come out toward the …
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Genes and Your Health Edition | GeneRx: Revolutionizing Primary Care with Pharmacogenomics
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Host: Denise M. Dupras, M.D., Ph.D. Guest: Isa J. Houwink, M.D., Ph.D. Pharmacogenomics (PGx) is transforming everyday primary care practice. By using patients’ genetic profiles, providers are guiding more precise, personalized treatments. In this episode of Genes & Your Health podcast, primary care physicians Dr. Denise Dupra and Dr. Isa J. Houwin…
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Episode 13: Prince William made to 'sign disclaimer’ after ignoring King’s demand on George, Charlotte and Louis
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This week Cameron and Svar are joined by royal author Robert Jobson who provides a unique insight into Kate Middleton and Prince William’s roles in the Royal Family Welcome to The Royal Record. Every week Cameron Walker, GB News' Royal Correspondent, and Svar Nanan-Sen, Royal Editor of GBNews.com, will bring you the latest news and analysis on the …
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Justin Jones-Fosu is the founder of Work Meaningful and author of "I Respectfully Disagree."Justin shares the inspiration behind his book, emphasizing the importance of building bridges, understanding different perspectives, and fostering respectful disagreement. Tune in to learn about the five pillars of bridging divides and the significance of ma…
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Skills-based teaching and microcredentialing in STEM
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This episode of Talking Technique deviates slightly from specific lab technologies to instead discuss techniques and methods we use for teaching and testing life sciences. To do this, I’m speaking to two pioneers of unconventional teaching and testing approaches to STEM education. Angela Consani is the Co-Founder and CEO of the Bioscience Core Skil…
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CyberCast: GAO’s Take on Harmonizing Cybersecurity Policy Across Government
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Government’s recent efforts to coordinate cybersecurity regulations have evolved as the threats have. A recent Government Accountability Office report examines the work that remains to support a longer-term strategy for juggling these policies across agencies. Dave Hinchman, director in GAO’s IT and cybersecurity team, oversees the IT and cybersecu…
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RISE for EQUITY Podcast | Women in Medicine
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Brought to you by: Mayo Clinic Talks Podcast HOST: Nicole Nfonoyim-Hara GUESTS: Aminah Jatoi, M.D.; Yemi Sokumbi, M.D. On this episode of the RISE for Equity podcast, host Nicole Nfonoyim-Hara is joined by Dr. Aminah Jatoi and Dr. Yemi Sokumbi to discuss women in medicine. Drs. Jatoi and Sokumbi share their personal stories of deciding to practice …
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[HIATUS] Overhead: Dan Pallotta on How Great Nonprofits Actually Work
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On today's show, we welcome one of the most influential human beings of my career: Dan Pallotta, champion of charity and the entire nonprofit business sector. Dan's take on how we as a culture think about charity the wrong way planted a bedrock philosophy in my head for how I was going to grow and lead Stupid Cancer to scalable success without the …
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Navigating The Joys and Challenges of Parenting Autism / Neurodiversity Ep 34
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Check out Danielle's Podcast called Magically Wired.Youtube: https://www.youtube.com/@MagicallyWiredWebsite: https://magicallywired.comInstagram: https://www.instagram.com/magicallywiredpodcast/Available on Youtube- Navigating The Joys and Challenges of Parenting Autism / Neurodiversity Ep 34 (youtube.com)Apple Podcasts- https://podcasts.apple.com…
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Host: Jennifer Caudle, DO Guest: Samuel R. Wilson, MD Sickle cell disease is among the most common inherited conditions globally, affecting more than seven million individuals worldwide.1-3 Given its prevalence, it is important to understand all of the complexities surrounding this disease. Joining Dr. Jennifer Caudle to discuss the pathophysiology…
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Episode 36: "NEN Treatments: Focus on Immunotherapy" with Dr. Jennifer Eads
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ABOUT THIS EPISODE What is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. TOP TEN QUESTIONS ABOUT IMMUNOTHERAPY FOR NENS: What is immunotherapy? How does it wor…
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Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon
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Send us a Text Message. Join me as I talk with Rebekah about her child Mason's diagnosis with HypoHidrotic Ectodermal Dysplasia. Mason is now years old and he is already advocating for his health with his mother's help. HypoHidrotic Ectodermal Dysplasia is a rare genetic condition characterized by the bodies inability to sweat, sparse hare, tooth l…
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Teams at Children's Hospital of Philadelphia (CHOP) are committed to delivering breakthroughs for patients, including keeping them safe from injury – the leading cause of death and acquired disability for children. In this episode of Breaking Through, Madeline talks to CHOP expert Dr. Kristy Arbogast about how caregivers can keep kids safe during f…
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Summer Mini #12: Adjusting to Disability Parenting as a Single Mom | Maddison’s Catch-Up
24:23
24:23
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It’s only been a year since we’ve heard from Maddison... but oh the things that can change in a year. Shortly after we initially recorded Maddison’s story, she and her husband separated. And the life that Maddison and her daughter knew before with a team of two parents working side by side and supporting each other, it just didn’t look the same any…
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Genes and Your Health Edition | Antisense Oligonucleotide (ASO) Therapeutics for Rare Genetic Disease
30:31
30:31
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Host: Denise M. Dupras, M.D., Ph.D. Guest: Margot A. Cousin, Ph.D. This episode of Genes & Your Health provides a comprehensive look at how ASO (Antisense Oligonucleotide) therapy is paving the way for personalized medicine and offering new hope for patients with previously untreatable conditions. Margot A. Cousin, Ph.D., an Assistant Professor of …
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Episode 12: Prince William’s latest move triggers ‘war’ with Prince Harry
28:53
28:53
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28:53
This week Cameron and Svar are joined by royal commentator Richard Fitzwilliams to explore the security issues surrounding Prince Harry’s return to the UK Welcome to The Royal Record. Every week Cameron Walker, GB News' Royal Correspondent, and Svar Nanan-Sen, Royal Editor of GBNews.com, will bring you the latest news and analysis on the Royal Fami…
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Navigating Relationships with Fred Talisman
29:28
29:28
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Fred Talisman is a seasoned business consultant and marriage counselor with over 25 years of experience. He shares his journey from learning about communication and psychology at a young age to facing personal challenges. Effective communication and timing are crucial in relationships. Creating mutually satisfying agreements can prevent resentment.…
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Vivienne Parry, Professor Bill Newman, Anita Hanson and Professor Matt Brown: Can genomic testing prevent adverse drug reactions?
36:49
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Pharmacogenomics plays a critical role in personalised medicine, as some adverse drug reactions are genetically determined. Adverse drugs reactions (ADRs) account for 6.5% of hospital admissions in the UK, and the application of pharmacogenomics to look at an individuals response to drugs can significantly enhance patient outcomes and safety. In th…
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Introducing AI GovCast With Federal Chief AI Officers
10:38
10:38
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Federal agencies are undergoing largescale transformation to meet White House directives on artificial intelligence development. This includes establishing chief AI officers to build implementation plans and programs. The AI GovCast monthly miniseries connects with these leaders across government to discuss how they are shaping their roles and wher…
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Weight Changes Associated with Antidepressants
28:52
28:52
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Host: Darryl S. Chutka, M.D. [@chutkaMD] Guest: Mark A. Frye, M.D. We have a variety of antidepressant medications available to us including SSRI’s, SNRI’s and others, and for the most part they’re very well tolerated by our patients. They are much better tolerated compared to some of our older options such as the tricyclic antidepressants and MAO …
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Today's show is not a "very special episode" of Different Strokes, Facts of Life, Family Ties, Webster, or Blossom, BUT it is a "very special episode" nonetheless. Jane Sarasohn-Kahn has been a friend, a teacher, a mentor, a sherpa, a conscience, and a big sister to me for over 15 years. I mean it when I say she is as close to her biological family…
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Rare Medical Diagnosis, Justin's New Car, Raising Kids Ep 33
1:32:11
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Available on Youtube- Rare Medical Diagnosis, Justin's New Car, Raising Kids Ep 33 (youtube.com)Apple Podcasts- https://podcasts.apple.com/us/podcast/if-this-doesnt-work/id1366535800https://www.tiktok.com/@ifthisdoesntworkpodcastInstagram-https://www.instagram.com/ifthisdoesntworkpodcast?igsh=NWxxeXNhbXpqYjFw&utm_source=qr…
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Using Art for Healing: Dr. Tasha Golden's Innovative Work
33:55
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Dr. Tasha Golden is an international leader in arts and health with a PhD in public health. She shares her unique journey from being a singer-songwriter to becoming a health scientist and thought leader in creativity and well-being. Her initiatives include the "Arts on Prescription" program and "Project Uncaged," which use arts to enhance public he…
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Host: Charles Turck, PharmD, BCPS, BCCCP Guest: Jessie Hsieh, MD Guest: David Isaacson, MD About 70 percent of all cancer-related deaths are associated with cancers that don't have recommended USPSTF screening modalities.1 But the good news is that adding multicancer early detection (MCED) testing to usual care screenings could help address this ga…
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Summer Mini #11: Family Planning Decisions + Changing Sibling Relationships | Madeline’s Catch-Up
24:58
24:58
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Three years ago, I shared two episodes about my ownfamily: one where I discussed how I discovered that I was a carrier for my son’s condition, and another where I talked about how much my older daughter struggled with accepting her brother. In the years since, we’ve navigated difficult decisions and agonizing choices, and now, for once, we feel som…
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Genes & Your Health Edition | Microbiome and Ovarian Cancer
35:11
35:11
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Host: Denise M. Dupras, M.D., Ph.D. Guest: Marina Walther-Antonio, Ph.D. Can microbe populations affect women’s health in areas like ovarian cancer or predicting pre-term delivery? Tune into this episode of Genes & Your Health with Marina Walther-Antonio, Ph.D., a microbiome researcher within Mayo Clinic's Center for Individualized Medicine, to lea…
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Episode 11: Prince Harry and Meghan Markle dragged into fresh storm as Colombia tour looms
27:27
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This week Cameron and Svar take a look at the storm surrounding Prince Harry and Meghan Markle's upcoming tour of Colombia after the Duke of Sussex's recent comments regarding the UK. Welcome to The Royal Record. Every week Cameron Walker, GB News' Royal Correspondent, and Svar Nanan-Sen, Royal Editor of GBNews.com, will bring you the latest news a…
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HealthCast: Hackathon Recruits Innovators to Tackle VA Health Challenges
53:22
53:22
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As the nation’s largest integrated health care provider, the Veterans Health Administration prioritizes how technology can address challenges in how it is delivering patient care and securing its infrastructure. Indra Sandal, chief of innovation at VHA in Tampa, Florida, breaks down how more than 300 participants collaborated and addressed challeng…
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Host: Darryl S. Chutka, M.D. [@chutkaMD] Guest: Kristina M. Thurber, Pharm D., R.PH. Obesity in the U.S. is reaching epidemic proportions. Managing our overweight patients has been challenging, with few being able to adopt and adhere to a healthy diet and exercise program. There is a class of medications that improves blood glucose in type 2 diabet…
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Cooking Up a Cure with Chloë Crampton | EP 58
42:12
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In this episode, we sit down with Chloë Crampton from London, England, UK, a former actress turned chef and nutrition coach. Chloë bravely shares her personal battle with triple-negative breast cancer, offering hope and inspiration to others facing similar challenges. Discover how she transformed her life after her diagnosis, focusing on healing th…
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[HIATUS] Cancer Guidelines: Excuse Me While I Whip This Out
31:48
31:48
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Throughout the history of cancer advocacy, there are the advocates who made us and the organizations who made us. And one such organization is the National Comprehensive Cancer Network, which is — for all intents and purposes — the “Good Housekeeping meets Consumer Reports” of all cancer standards of care, best practices, guidelines, and credibilit…
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