Best Chromosomedisorder podcasts we could find (Updated March 2019)
Related podcasts: Specialeducation Raredisease Earlyintervention Downsyndrome Diagnosis Developmentaldelays Disabilities Specialneeds Kids Autism Death Parenting Children Kids and Family Lifestyle Conversations Society  
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Bringing Up Betty is a podcast about the unique experiences that come with raising special needs kids. The podcast is a collection of narrative interviews with parents who are raising children with disabilities, developmental delays, diseases and other challenges.
 
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We're kicking off summer with a special mini episode! Kathy Hooven's 14 year old son Ryan has autism. Last summer he attended a choral camp and at the final concert Kathy had some surprising realizations. Tune in to hear her story.
 
Donna Kirk's son Matthew was born in 1970. Due to oxygen deprivation during delivery he was born with severe brain damage and doctors advised Donna and her husband Ed to do the unthinkable - put him in an institution, have another baby as soon as possible, and get on with their lives. They called him a vegetable with a heartbeat. In this episod ...…
 
Today we're doing something a little different. Betty's beensick and I didn't want to wait yet another week to put a newepisode out, so instead I'm sharing a few uncut chunks of my chatwith Mary Evelyn Smith that didn't make it into her story inepisode #17. I had such a great time chatting with Mary Evelyn andfound her so relatable. I think you ...…
 
Robert Thornton is the founder and CEO of Paper Clouds Apparel, a business he launched to change lives and serve the special needs and disabled communities. http://www.bringingupbetty.com/18
 
Mary Evelyn Smith tells the story of becoming a mother to her son Simeon, who has spina bifida, and daughter Franny, who does not have a disability. She explains why constant attention can be exhausting, and how parenting a child with special needs can make you feel like you've got a big secret.
 
In "Expectations and IEPs," Sarah tells the story of Betty's transition out of Early Intervention and into the public education system. How they made the first round of tough decisions about Betty's future, plus bidding farewell to the first round of Betty's wonderful helpers. Episode 16 Show Notes
 
Parents and individuals living with disabilities and special needs share the kindest things people have done to show love and support.
 
Dawn offers tips and information for parents of kids with feeding struggles, swallowing disorders and general pickiness.
 
Above and Beyond It's so nice to have supportive people around me who feel like I'm doing something exceptional by being Betty's mom. But I'll let you in on a little secret: I don't feel exceptional. I feel like a regular mom who is doing what I need to for my daughter to have the best chance at a good, happy, fulfilling life. I feel like I'm d ...…
 
Episode #12 Courtney is the mom to Connor and Brenna. Brenna has a rare skin disorder called Harlequin Ichthyosis. Courtney shares her story of Brenna's birth, diagnosis, and the ins and outs of Brenna's condition. We chat about balancing special needs with regular needs, celebrating beauty and how to respectfully approach a stranger who is dif ...…
 
Today Megan Goates is back to share her how special needs have changed Halloween for her family. Megan's oldest and youngest sons are typically developing, and her middle two sons are on the autism spectrum. Tune in to hear how her expectations for the holiday have changed. A few other parents share their experiences of special needs on Hallowe ...…
 
Fifteen months after finding Holden on Holt International's website, Beth Anne and Chris finally got to bring him home. Beth Anne thought that by going into this adoption with eyes wide open, well aware of Holden's disability, that she would bypass the difficult grieving process that can accompany this journey. But she found that she was in for ...…
 
When Beth Anne spent a summer abroad at 20 years old, she wasn't sure she ever wanted kids. But after falling in love with the children in an orphanage in India where she worked that summer, she knew she wanted to be a mom. And not only that, she felt strongly that she wanted to adopt a child from another country who had special needs. Internat ...…
 
Marica and her husband were expecting their first baby when they got a diagnosis that would change their lives forever. Before they even had a chance to process the news, they were on a plane to Florida for a work conference. They mourned and researched from their hotel room until they finally decided to head to the pool to try to cheer up. The ...…
 
Jeannie Ewing is a writer, speaker and grief recovery coach. She's also the mother of two girls with special needs. Felicity is four and Sarah is two. Felicity has SPD, ADD and anxiety. Sarah has Apert syndrome. Jeannie talks about her journey as a mother and how she came to help others who are in a dark place. Love Alone Creates Jeannie's Arti ...…
 
Cami talks about her son Calvin who was diagnosed prenatally with spina-bifida. At 25 weeks gestation, a fetal surgery was performed to close Calvin's back. Cami discusses her hopes and fears as a mom, some of the awkward and wonderful conversations she's had with strangers, and the common ground she finds with other parents facing all kinds of ...…
 
Kera has three red-headed children, each with their own set of special needs. Julianna has autism, Tourettes, anxiety, sensory processing disorder, stereotypic movement disorder, and OCD. Blake has mastocytosis. Nathan was born with a cleft palate. Each mile of Kera's parenting journey has taught her something she never expected to have to lear ...…
 
Angela and her husband have had two babies with prenatal diagnoses. Their daughter Grace had hypoplastic left heart syndrome and the diagnosis helped them prepare for all necessary interventions including fetal surgery and open heart surgery at 3 days old. Their son William also had a prenatal diagnosis. He has Down Syndrome. Tune in to find ou ...…
 
Annie and Jonathan were told that they wouldn't be able to have children so they moved half way across the world, bought a two-seater convertible and... found out they were pregnant. Lots of other surprises followed, including some special friendships that developed after discovering their son's disabilities. Have any special relationships deve ...…
 
Megan is raising four boys. Two of them have special needs. She talks about the challenges that parents face regardless of the child's diagnosis. She also talks about the sweet relationships that develop among siblings of special needs kids.
 
Host Sarah Evans tells the story of her daughter Betty and how they arrived at her diagnosis of Potocki-Shaffer Syndrome, an extremely rare genetic disorder.
 
Bringing Up Betty is a podcast about the struggles and stories of parenting children with special needs. Every other week host Sarah Evans will interview a parent raising a child with special needs about their unique experiences. For more information visit www.bringingupbetty.com
 
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