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Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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A genetic disease Cover art photo provided by Efe Kurnaz on Unsplash: https://unsplash.com/@efekurnaz
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By Brayden and Tyler
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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
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Podcast by Jerry Cahill
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This podcast dives deep into the risks and benefits of attempting gene therapy on cystic fibrosis patients. Listen to see the final decisions made on the matter.
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The Lancet Respiratory Medicine publishes a range of article types in respiratory medicine and critical care. These include Original Research, Reviews, Personal Views, Comments, and News articles. Topics include but are not limited to asthma, COPD, tobacco control, critical care, lung cancer, cystic fibrosis, pneumonia, sarcoidosis, mesothelioma, sleep medicine, and respiratory infections.
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An original podcast that gets inside the heads of the Cystic Fibrosis Community to talk about all kinds of topics with respect and honesty.
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Podcast by Jerry Unplugged: A Cystic Fibrosis Podcast
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Sickboy is determined to break down the stigma associated with illness and disease. Join Jeremie, Brian and Taylor as they tackle health taboos with people who have experienced them firsthand. Taking the lead from Jeremie's life long battle with Cystic Fibrosis, the three best friends help us understand that sometimes the best way to deal with illness, disease and life is simply to laugh. Follow Sickboy on Instagram & TikTok!
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Breaking Through is a monthly narrative podcast produced by the Cystic Fibrosis Foundation's Tomorrow's Leaders group. Breaking Through is meant to help Tomorrow's Leaders members develop professionally, foster community, and learn from others through rich storytelling, while also recruiting and engaging new members.
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My name is Justin. I created this podcast to tell the life of a person with Cystic Fibrosis. I am in my late 30's and run half marathons as well as live the life as best as I can in San Diego, CA.
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A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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Straight from the Lungs helps to share real stories from real people affected by Cystic Fibrosis.
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When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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Cystic fibrosis (CF) is one of the most prevalent global congenital disorders, affecting some 70,000 individuals worldwide and 30,000 children and adults in the United States. While clinical efforts are expanding worldwide to improve diagnostic testing and treatment approaches for this progressive lung disease, targeted therapies for CF against any specific mutation remain elusive. The Cystic Fibrosis in Focus series gathers the latest information from leading medical experts devoted to adva ...
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Jerry Cahill used the short video format to educate and inspire people with cystic fibrosis to utilize exercise to improve health.
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A podcast for those wanting to learn more about health conditions and the personal experience.
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A Pediatric Podcast here to feed pediatric knowledge food to your adult-sized brain hole & provide weight-based dosings of fun.
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Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic. Hosted on Acast. See acast.com/privacy for more information.
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Two friends who are just thinking out loud. Reddit, anonymous, true crime, mental health... We talk about it all, and we talk a lot.
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Join long-term sufferer of Cystic Fibrosis & diabetes, Tim Wotton, who's learnt many survival strategies & uses the power of the mind & presence ('The Gift') to help him deal with adversity, stress & negativity. Anyone with life & health challenges will hugely benefit from what Tim & his remarkable guests have to share...
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Can bacteria communicate with each other, and if they do communicate, how and why do they do so? And how might understanding the mechanisms of bacterial communication be used to inform development of anti-bacterial drugs? In this album scientists involved in pioneering work into bacterial 'quorum sensing'' at Nottingham University in the UK reveal some of the techniques they use and give insight into what they hope to achieve. This material forms part of The Open University course S204 Biolo ...
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The Choose Your Attitude® podcast is a source of inspiration and motivation for many, fueled by real stories from real people who have struggled with real challenges. Each podcast — and show guest — reminds you that no matter the challenge, you hold the power of perspective, allowing it to shift your attitude from being held down by the impossible to being propelled with the possible. No struggle is too big to impact the small choice you make of your attitude on how you approach it, all in t ...
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Simon J Green is a Melbourne writer telling stories steeped in the joy of genre. Working in science fiction, horror and comedy, he uses tropes of the fantastic to blow up our social anxieties. Living with cystic fibrosis, Simon is driven by telling dangerously fun stories readers love.
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Radio In Vivo
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A Pediatric Podcast for Healthcare Providers
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The Truth About Sales | Klyn Elsbury
Klyn Elsbury | Sales Strategist | Motivational Keynote Speaker
All results are preceded by action. The Truth About Sales tackles the biggest sales challenge that virtually all sales professionals and sales managers face at some point in their career: failure to take consistent action. Klyn combines experience with cystic fibrosis, sales, & recruiting with this no BS action-packed roadmap for your sales success. The Truth About Sales helps sales teams, sales professionals, and sales managers win more often. To get access to Klyn's free sales strategies i ...
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Think Outside The BlueBox Podcast by BlueBox Digital is not just a podcast; it's a movement. Broadcasting from Tampa, FL, we're setting the stage for a revolution in creativity, thought leadership, and entrepreneurship. Our mission? To shine a spotlight on the daring, the innovative, and the visionary - the people who are not just thinking outside the box but are redefining it. Become a Paid Subscriber: https://podcasters.spotify.com/pod/show/bluebox/subscribe
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Becoming a better person (personally) one podcast at a time.
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Marci in the Middle is a podcast about real life and the transitions that come along with it. Here we talk about everything from relationships, to finding yourself and your place in the world, aging, as well as food, faith and everything fun. Just think of me as an older sister who’s gonna share her friends and maybe a few things I’ve learned along the way. Episodes premiere every other Monday and you can always find me on Instagram and Facebook @marciinthemiddle and on the web at marciinthe ...
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Every Monday, Antonio and Joe talk about the things that they find interesting from physics, to philosophy, to technology.
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The State of Health is the podcast where patients put healthcare decision makers, thought leaders, and policy makers in the hot seat.Hosted by Gunnar Esiason, a patient advocate living with cystic fibrosis, The State of Health gives listeners a front row seat to patient advocacy. Gunnar's three decades of surviving inside the American healthcare system has given him a front row seat to the complexities that make health care delivery so challenging. The State of Health will unravel these comp ...
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In this series, Frederick “Rick” L. Greene, MD, FACS, talks to the editors and experts featured in Selected Readings in General Surgery, an American College of Surgeons (ACS) publication that highlights highly relevant and practice-changing information from the world’s most prominent medical journals.
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Leeds Voices is a brand new weekly podcast brought to you by the University of Leeds. Join us as we interview some of the illustrious alumni who studied at the University of Leeds, as well as discussions with the institution's world-class researchers. Follow us on Twitter and Instagram at @leedsalumni or email us at alumni@leeds.ac.uk
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A podcast about life ups and downs and the beauty of it all. If you are looking for some real talk, about real life, with a lot of inspiration, this podcast is for you.
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Our Scientific Director Megan Hall takes questions from the forum and answers them in a live Office Hours session on Zoom.
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This book and subsequent audio companion reflect what I would have wanted when I was studying for the USMLE Step 2 CK exam. One of the major hurdles I faced while studying for my exam was the lack of a single reference resource similar to what existed for the USMLE Step 1 exam at the time of writing this book. This meant I had to use multiple resources which presented information in different formats and with different points of emphasis, resulting in a disorganized study approach. Despite m ...
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A monthly podcast from the European Respiratory Journal, summarising the research findings of a number of papers published in each issue.
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Podcast by Bone Banter
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My Podcast is about how Life occurs to me, and what my say is in the matter. Hopefully you find this thought-provoking, and insightful. My intention is to have Conversations that move Humanity forward. Question everything....including me!!! :-D Support this podcast: https://podcasters.spotify.com/pod/show/dean-jackson/support
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Talks about nursing, health & social care, academics & study skills. A Podcast for nurses & health professionals but really, all welcome to listen!
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Providing health tips about weight loss, energy, sports performance, and psychology of motivation and achievement.
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Defying Cystic Fibrosis One Mountain at a Time [Rebroadcast]
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Episode 23: Chloe Hyatt on Cystic Fibrosis & Making the Most of Every Day
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When I first met Chloe, I was immediately drawn to her zest for life. While she has battled CF her whole life, she hasn’t let that slow her down or dim her light. She’s a true beauty with a big smile and wisdom that only comes from persevering through difficult times. In this episode, Chloe shares about the loss of her sister, life with Cystic Fibr…
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Laura and Beth talk about what makes a Foundation work!
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Everyone always asks me "What does it take to run a Foundation?" So I thought I would explain some of the different aspects of funny and challenging parts of running a Foundation. Please join me with my friend Beth Vanstone who asks me all sorts of questions about what running a Foundation is all about! Please follow us on social media! Please cons…
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EP. 13 | #ScottieStrong | Cystic Fibrosis
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Hello and welcome back to The "Real Friends" Podcast! This week is a HUGE week for us over here at RFP. We are going to be diving DEEP on Ry's life in regard to her perfect daughter Scottie. Scottie was diagnosed with Cystic Fibrosis when she was just 3 weeks old and Ry walks us through what everything was like in the eyes of a mom. Please take the…
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Chapter 7: Nephrology - Cystic Kidney Disease
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Comparing benign versus malignant cysts, and review of polycystic kidney disease.By Abdillahi Omar, M.D.
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Episode 10: Coeliac disease - Not a Diet Trend
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What is coeliac disease, and how long has it existed? In this episode we discuss the condition in the mouths of many talk show hosts and painted incorrectly in the show “Do Revenge”. Tune in to learn the truth behind this autoimmune condition, and why it is not just a trend. Check out our website: https://anatomyofillness.com/ If you're interested …
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Dr Anne Chang discusses the burden of chronic respiratory diseases in Indigenous people.By The Lancet
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EP 14. | Reddit Threads | No SEX?! Alcohol... and... CUCUMBERS!?
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Hello and welcome back to The "Real Friends" Podcast. This week is all Reddit threads, from not having sex for 15 years.... to CUCUMBERS ARE THE WORST?! It's a wild ride y'all. Don't Forget, May 11th in Nashville TN is the Great strides walk, walking to find a cure, that is hosted by the amazing Cystic Fibrosis Foundation. If you can donate to Scot…
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S5 Ep108: Restrictive Eating Disorders - From Assessment to Recovery
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Eating disorders are among the most challenging and consequential mental health diagnoses in pediatric medicine. Join us and Dr. Abigail Donaldson, Medical Director of the Eating Disorders Program at Hasbro Children’s Hospital, as we tackle the complexities of anorexia nervosa and other restrictive eating disorders from a clinical perspective. Tune…
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Legally Blind or Faking It? - Retinitis Pigmentosa
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Sometimes, the world we see isn't just defined by light and shadows, but by the stories we tell and the voices we hear. Mara Hutchinson offers the fellas a candid glimpse into her life with Retinitis Pigmentosa (RP), a rare eye disease that affects the retina. She’s lived a journey marked not just by challenges but also by profound resilience. Mara…
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A couple miscellaneous topics to briefly review including nephrogenic systemic fibrosis and analgesic nephropathy.By Abdillahi Omar, M.D.
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Episode 9: Scoliosis - But have you tried Ladder Τherapy?
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Scoliosis, what is it? An age old question that we have been trying to solve for centuries. Because of this, we have centuries of scoliosis medical devices, such as bracing or old exercise devices, with good intent but not always good results. Tune into this week's episode to find out about what we currently know about Scoliosis and how we currentl…
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Life is a storyboard, and every chapter counts, especially those we write in advance. Karine Diedrich, the Director of Advance Care Planning at the Canadian Hospice Palliative Care Association (CHPCA) unravels the threads of advance care planning—a blueprint for future healthcare that aligns deeply with one's values and wishes. Karine explains the …
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Review of cystitis and pyelonephritis.By Abdillahi Omar, M.D.
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The Making of 'The Heist': A Conversation with the Cast
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In this insightful episode of the "Think Outside the BlueBox" podcast, host Anthony Rivera is joined by the creative minds behind the short film "The Heist." The episode delves into the challenges and triumphs of crafting a buddy comedy under the constraints of the Easterseals Disability Film Challenge. The cast and crew discuss their experiences i…
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Rabbi Moskowitz, embracing the Queer community
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He’s been arrested. He’s CIS gender with a wife and kids. Rabbi Mike Moskowitz is also an orthodox Jew’is and he is one of the biggest supporters of the queer community. Rabbi Moskowitz is the Scholar-in-Residence for Trans and Queer Jewish Studies at Congregation Beit Simchat Torah, the world’s largest LGBT synagogue. He is a deeply traditional an…
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Pediatric Prehospital Airway Resuscitation Trial (Pedi-PART) - PediaCast CME 096
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Dr Julie Leonard and Dr Henry Wang visit the studio as we explore Pedi-PART. This national research study examines advanced airway management for children in the prehospital setting. We detail the study and consider exception from informed consent. We hope you can join us!By Dr Mike
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Episode 8: Kawasaki disease - Not your normal Childhood Sniffles
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Have you ever wondered what Kawasaki Disease is? What are the symptoms and why is it so dangerous? Tune in to this week's episode to find out about the history, symptoms and treatment of Kawasaki Disease as well as some interesting little tidbits. Check out our website: https://anatomyofillness.com/ If you're interested in Kawasaki Disease Foundati…
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S5 Ep107: Burning Up! Caring for Pediatric Burn Patients
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Extinguish any fears you have about pediatric burns with our great guest, Dr. Tam Pham. Dr. Pham is a board-certified surgeon and Director of the University of Washington Medicine Regional Burn Center and a Professor of surgery at UW. In our episode we cover: burn classification and triage, first aid of burns, and care for burns in different clinic…
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A Luddite's Guide to Conquering Complex Regional Pain Syndrome
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In the analog corners of Utah, Libby Slem navigates the digital age with a Luddite's charm and a warrior's grit, facing Complex Regional Pain Syndrome (CRPS). This isn't your everyday pain; it's a journey through a rare nerve disease that transforms every facet of life, from motherhood's joys and trials to the heart's metallic beats, courtesy of an…
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Navigating Genetic Testing in Pregnancy & the Path to FiND Genetics
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When Ushta was pregnant with her third child, she found herself being told which tests she would be having done—rather than being offered options and having them explained to her. As a genetic counselor working in reproductive genetics, she had also started fielding many questions from individuals looking for more insight and direction in a time of…
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Episode 22: Ashley Self on Addiction, Recovery & Restoration
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In today’s world, there is almost no one who hasn’t been personally affected by substance-abuse or addiction. And while it may seem impossible to overcome, today’s guest has a beautiful story of not only overcoming addiction but also living a life to help others out of the same darkness. Ashley Self is a beautiful example of hope, perseverance, and…
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CF in Brazil, and one outstanding advocate
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We’re going to Brazil for this podcast. Brazil is famous for some soccer players; you remember Pele and others. It’s the largest country in South America, it has 4 times zones…60 percent of the amazon rainforest is in Brazil, their flag has 27 stars on it and they speak Portuguese there. And the food looks amazing there. I have never been to Brazil…
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Review of renal cell carcinoma and bladder cancer.By Abdillahi Omar, M.D.
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Episode 7: Pheochromocytoma - You’re giving me an Adrenaline Rush
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Pheochromocytoma, you may have heard this term thrown around in your favourite medical show, but how much do you know about it. What are the symptoms of pheochromocytoma, how do we diagnose it, how do we treat it, and how long have known about its existence? Which US president had it? Tune into this week's episode to find out. Check out our website…
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EP 12. Anonymous, Pet Peeves, & Conspiracy Theories!
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Hello and welcome back to The "Real Friends" Podcast! This week we decided to lighten it up a bit and be prepared for some belly laughs. We had some more amazing submissions from you all, and of course some Reddit threads of unpopular opinions! So lets dive in deep with some conspiracies, aliens, mermaids... OH MY! So thankful to have you here! Don…
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Cannabinoid Hyperemesis Syndrome - PediaCast CME 095
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Alicia McVity, Dr Leah Middelberg, and Dr Alek Adkins visit the studio as we consider cannabinoid hyperemesis syndrome. The legalization of recreational marijuana has led to a drastic rise in this condition, which results in nausea, vomiting, and dehydration. Tune in as we explore the details!By Dr Mike
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Isobel's journey isn't just about battling Postural Orthostatic Tachycardia Syndrome (POTS) and Chronic Fatigue Syndrome (CFS); it's a deep dive into resilience and self-discovery amidst the challenges of chronic illness. Facing skepticism and navigating a world not built for her, she shares the highs and lows of her path to recovery. Isobel walks …
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So many people with cystic fibrosis have gut pain. It is often times, debilitating. Dr. Matthew DiMagno and Dr. Jorge Machicado are working to find answers to the suffering of people with CF, and others without. Dr. Machicado is a Clinical Assistant Professor in the Division of Gastroenterology and Hepatology at the University of Michigan. Dr. Mach…
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Episode 6: Preeclampsia/Eclampsia - Not a case of the Wandering Womb
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Have you wondered what are the symptoms of preeclampsia? How long have we known about preeclampsia and how did we used to treat it? How do we treat it now, and what do we really know about it? Tune into this week's episode to find out. Check out our website: https://anatomyofillness.com/ Preeclampsia Foundation: https://www.preeclampsia.org/ Austra…
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EP 11. "Quiet On Set" | Docu-series Recap
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Hello and welcome back to The "Real Friends" Podcast! This week we have fallen down the rabbit hole with the release of ID Channels newest Docu-Series, "Quiet On Set". The moment we started to watch it we KNEW we needed to talk about it on the podcast with you guys. We have major trigger warnings with this episode and a multitude of resources avail…
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S5 Ep106: Parenting for the Pediatrician Part 2: Discipline and Limit Setting
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Unlock prescriptions for parenting success in this episode as we delve into tips to address behavior concerns! Join us and expert guest Dr. Nakiya Showell (@NShowell) as we discuss unique challenges and opportunities for addressing everything from the 'terrible twos' to teenage tumult. Tune in to learn parenting pearls tailored for the pediatric pr…
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People with cystic fibrosis have 5-10 times the risk of developing colon cancer (25-30 times the risk post-transplant). Learn about the connection between colon cancer and CF, and the vital importance of early screening in this recorded webinar. CFRI Executive Director, Siri Vaeth, was joined by community members Anna Payne, Thomas Horal, and Elyse…
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People with cystic fibrosis have 5-10 times the risk of developing colon cancer (25-30 times the risk post-transplant). Learn about the connection between colon cancer and CF, and the vital importance of early screening in this recorded webinar. CFRI Executive Director, Siri Vaeth, was joined by community members Anna Payne, Thomas Horal, and Elyse…
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Dump Truck Dysplasia: HPV In Your Butt
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Forget everything you thought you knew about the birds and the bees because this episode dives deep into the world less spoken of, yet equally vital: anal health. Dr. Gary Bucher, a pioneer in HIV medicine and an advocate for HPV-related disease awareness, illuminates the shadowy misconceptions surrounding HPV and its implications beyond the cervix…
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