Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for ...
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Bienvenidos a Somos Pasionarias! Welcome to Somos Pasionarias… where we talk about women who are changing lives and leaving legacies by pursuing their passions. My name is Nena Contreras Barnett. I am a pasionaria and your host. Juntas, somos pasionarias. Join me to meet some amazing women and explore what it means to live your passions and realize your dreams.
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Season 4 | Episode #6 with Master Certified Grief and Transformation Coach and Lupus Patient, Olivia Abousaid
28:13
28:13
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Season FOUR Episode SIX of the Your Story Our Fight® podcast welcomes Olivia Abousaid. Master Certified Grief and Transformation Coach, Olivia Abousaid understands the profound significance of resilience through her own journey. She was diagnosed with discoid lupus and SLE in July of 2021. Olivia has cultivated a deep appreciation for personal grow…
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Season 4 | Episode #5 with Computer Scientist, Certified Yoga Instructor, Lupus Advocate and Lupus Patient, Sheba Family Zaman
36:44
36:44
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36:44
Season FOUR Episode FIVE of the Your Story Our Fight® podcast welcomes Sheba Family Zaman. As a computer scientist, Sheba has spent the last 20 years working in a technical software role with the quality department of pharmaceutical and life science companies. Her role spans from pre-sales technical information to professional services post-sale wi…
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Season 4 | Episode #4 with Model, Actress, Designer, Lupus Advocate and Lupus Patient, Mercedes Yvette
30:02
30:02
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30:02
Season FOUR Episode FOUR of the Your Story Our Fight® podcast welcomes Mercedes Yvette. Mercedes Yvette Shorte gained fame as a contestant on America’s Next Top Model, leading to a successful 20-year career in modeling and acting. She later became a spokesperson for the Lupus Foundation of America, advocating for awareness and funding on a national…
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Season 4 | Episode #3 with Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner, Tiffany Kaloustian
28:57
28:57
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28:57
Season FOUR Episode THREE of the Your Story Our Fight® podcast welcomes Tiffany Kaloustian. Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner. Tiffany's personal journey battling severe lupus has fueled her passion for helping others find their path to wellness. She is well versed in a variety of holistic healing moda…
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Season 4 | Episode #2 with Nurse Practitioner, Charissa Barsos
21:50
21:50
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21:50
Season FOUR Episode TWO of the Your Story Our Fight® podcast welcomes Charissa Barsos. Charissa is a nurse practitioner with over 15 years of medical experience. She graduated with her BSN from Millikin University in Decatur, IL, in 2010 and worked as a cardiothoracic surgery RN for 5 years. Charissa graduated with her FNP from Olivet Nazarene Univ…
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Season 4 | Episode #1 with Integrative Nutrition Health Coach and Lupus Patient, Elizabeth Lo Serro
29:59
29:59
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29:59
Season FOUR Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth Lo Serro. As a certified Integrative Nutrition Health Coach, Elizabeth helps clients alleviate fatigue, pain, and rashes while promoting the growth of beautiful, healthy hair. Through her unique approach, Elizabeth empowers people to feel energized, resilient, and radia…
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Season 3 | Episode #18 with Musician, Lupus Advocate and Lupus Patient, Dion Langley
31:59
31:59
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Season THREE Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes Dion Langley. Dion was born and raised in Portsmouth, Va. He was diagnosed with Systemic Lupus Erythematosus ( SLE ) in 2010. Dion decided to use his career as a professional drummer as an avenue to promote Lupus advocacy. Dion also established the #BeatLupus organization a…
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Season 3 | Episode #17 with Board member of the Lupus Research Alliance, Lupus Advocate and Lupus Patient, Molly McCabe
25:49
25:49
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Season THREE Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Molly McCabe. Molly McCabe began her career at the young age of 16 when she joined the inaugural board for the Kids Making Miracles program at Doernbecher Children’s Hospital. She also was part of the founding family that created Potluck in the Park in 1993 where she serve…
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Season 3 | Episode #16 with Advocate, Educator, and Founder of Lupus In Color, Racquel Dozier
30:25
30:25
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30:25
Season THREE Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Racquel Dozier. Racquel H. Dozier is a passionate lupus advocate, educator, and the founder of Lupus In Color. Her mission is to educate, inspire, encourage, and empower lupus warriors and their supporters worldwide. Through Lupus In Color, Racquel advocates for lupus warrio…
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Season 3 | Episode #15 with Spoken Word Poet, Singer, Education Consultant, and Lupus Patient, Shanelle Gabriel
31:51
31:51
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31:51
Season THREE Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Shanelle Gabriel. Shanelle Gabriel is a spoken word poet, singer, education consultant, and lupus warrior from Brooklyn, NY. She has shared her fusion of poetry and soulful singing in esteemed venues from The Vatican to Lincoln Center, and has penned and featured in national…
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Season 3 | Episode #14 with Founder and Chief Executive Officer of LupusChat, Tiffany Peterson
27:59
27:59
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27:59
Season THREE Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Tiffany Peterson. Tiffany is a New York City-based patient advocate whose inspiration arose from her battles within the healthcare system following her diagnosis of systemic lupus erythematosus in 2010. She is the Founder and Chief Executive Officer of LupusChat, a patient/…
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Season 3 | Episode #13 with Artist, Mother and Lupus Advocate, Donna Jordan
39:35
39:35
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39:35
Season THREE Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Donna Jordan. Born in the vibrant city of Newark, NJ in 1956, Donna emerged as an artist nurtured by the rich tapestry of culture and creativity surrounding her. From an early age, her parents encouraged her artistic freedom, leading her to immerse herself in every art prog…
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Season 3 | Episode #12 with Graphic Designer, Influencer and Lupus Patient, Seda Bryant
34:16
34:16
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34:16
Season THREE Episode TWELVE of the Your Story Our Fight® podcast welcomes Seda Bryant. Seda Bryant is an overcomer, mother, graphic designer, storyteller & influencer. She’s using her gifts to turn pain into purpose. She created the first digital stickers for all social media platforms for stories, video reels, Tik Toks & Snaps for Lupus Awareness …
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Season 3 | Episode #11 with Realtor, Salon Owner, Philanthropist and Lupus Patient, Kim Peacock
1:09:51
1:09:51
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Season THREE Episode ELEVEN of the Your Story Our Fight® podcast welcomes Kim Peacock. Realtor, Salon Owner, Philanthropist, wife, and mother of four amazingly beautiful children. Kim was diagnosed with Lupus in 2008, Rheumatoid Arthritis in 2019, just to name a few life altering chronic illnesses. Kim, age 53, was born and raised in Santa Monica C…
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Cafecito con mi Comadre: Janelle Reyes Chase
31:30
31:30
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Join me and my neighbor Janelle Reyes Chase as we talk about how life on the Westside of San Antonio bridges our Southside and South-Central El Paso roots, the problems with youths these days, and how these stray dogs end up joining our family! Filmed at one of our neighborhood coffee and sandwich shops, Panaderia Jimenez in the heart of the Deco D…
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Season 3 | Episode #10 with Certified Holistic Nutritionist, Autoimmune Nutrition Specialist, Fitness Coach, Forager and Lupus Patient, Genny Mack
30:54
30:54
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30:54
Season THREE Episode TEN of the Your Story Our Fight® podcast welcomes Genny Mack. Genny Mack’s mission is to empower women to redefine what ‘eating good’ means and to thrive by prioritizing the whole self. Genny transformed her overall well-being, after being diagnosed with lupus and kidney nephritis, by transitioning to eating whole nourishing fo…
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Season 3 | Episode #9 with Student, Lupus Advocate and Lupus Patient, Sam Gehrls
29:40
29:40
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29:40
Season THREE Episode NINE of the Your Story Our Fight® podcast welcomes Samantha Gehrls. Samantha Gehrls is a Lupus fighter and advocate who resides in Phoenix, Arizona. Sam is 27 years old and was diagnosed with Lupus when she was 25, but has been sick since she was 20. Sam is passionate about helping others get through difficult times and diagnos…
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Season 3 | Episode #8 with Author and Lupus Patient, Amanda Chay with Professional in Sports Management and Lupus Patient, Ahnna Chay
31:18
31:18
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Season THREE Episode EIGHT of the Your Story Our Fight® podcast welcomes Amanda and Ahnna Chay. Amanda Chay is a lupus warrior and author of “The Girlfriend’s Guide to Lupus”. Her book serves as a beacon of hope for women grappling with lupus, providing practical, health-focused steps that empower them to prioritize their well-being. Amanda's oldes…
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Season 3 | Episode #7 with Student and Lupus Patient, Eve McAusland & CPA and Mother Margi McAusland
25:02
25:02
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Season THREE Episode SEVEN of the Your Story Our Fight® podcast welcomes Eve and Margi McAusland. Eve is a 15 year old sophomore at Notre Dame Academy who has had lupus sense she was 13. Her mom, Margi, is a CPA and has had Sjogrens since 2019. Eve has been working through her diagnosis by finding ways to take care of herself through her web of sup…
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Season 3 | Episode #6 with Influencer, Healthcare Worker and Lupus Patient, Sharan Singh
27:20
27:20
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27:20
Season THREE Episode SIX of the Your Story Our Fight® podcast welcomes Sharan Singh. Sharan is a twenty-three year old UC Irvine graduate, a current healthcare worker, Content Creator on TikTok, Lupus Advocate/Warrior and a future Physician Assistant. Sharan is passionate about working in the field of Rheumatology in the future as a healthcare prov…
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Season 3 | Episode #5 with EVP of Drama Series at NBCUniversal and Lupus Patient, Cara Dellaverson
36:31
36:31
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Season THREE Episode FIVE of the Your Story Our Fight® podcast welcomes Cara Dellaverson. Cara Dellaverson joined NBC in 2015 as Senior Vice President of Drama Development and was promoted to Executive Vice President for the network in 2018. In 2020 she was elevated to EVP of Drama Series across all platforms including NBC, Peacock, USA and SYFY. I…
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Season 3 | Episode #4 with Model, Actress, Lupus Patient & Advocate, Kay Daniels
27:03
27:03
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27:03
Season THREE Episode FOUR of the Your Story Our Fight® podcast welcomes Kay Daniels. Kay is a 25 year old independent model & actress, Lupus patient and advocate. At the age of 14, Kay was diagnosed with Lupus SLE. It has always been an aspiration of Kay's to have the opportunity of sharing my story with the world, to better relate with other young…
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Season 3 | Episode #3 with Yoga Athlete, Instructor, Model, Influencer, Lupus Patient & Advocate, Victoria Gibbs
28:11
28:11
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28:11
Season THREE Episode THREE of the Your Story Our Fight® podcast welcomes Victoria Gibbs. Victoria began practicing yoga ten years ago and from the first time that she stepped onto her mat, her passion was evident; shaping her into the woman she is today. Victoria is a Dartmouth College graduate, a former financier turned health and wellness entrepr…
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Season 3 | Episode #2 with Founder and CEO of Bare Bodhi & Lupus Patient, Ashley Greene
23:10
23:10
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23:10
Season THREE Episode TWO of the Your Story Our Fight® podcast welcomes Ashley Greene. Ashley Greene is the Founder and CEO of Bare Bodhi. Growing up in a salon with a hairdresser mother, Ashley developed a passion for beauty early on. While assisting one of the biggest names in the industry, Ashley was diagnosed with lupus, which prompted her to em…
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Season 3 | Episode #1 with Cyber Security Program Manager, Board Member of EMT Advisory Board, Lupus Advocate & Lupus Patient, Shamekka Marty
29:16
29:16
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29:16
Season THREE Episode ONE of the Your Story Our Fight® podcast welcomes Shamekka Marty. In 2012, Shamekka was diagnosed with Lupus, Scleroderma, Mixed Connective Tissue Disease, Reynaud’s, and Sjogren’s Syndrome. Shamekka seeks to motivate others who are in the same boat as her. She speaks on various public platforms, has a blog, a vlog , provides c…
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Season 2 | Episode #24 with Lupus Advocate and Lupus Patient, Emmitt Henderson III
26:41
26:41
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26:41
Season TWO Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Emmitt Henderson III. Emmitt Henderson III was diagnosed with Systemic Lupus and Lupus Nephritis in 1995 but had symptoms going back to 1980. Through the years, he has endured major complications from heart, liver, kidney and lung failures, avascular necrosis that led to a…
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Season 2 | Episode #23 with Social Media Influencer and Lupus Patient, Samantha Boothe
27:31
27:31
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27:31
Season TWO Episode TWENTY-THREE of the Your Story Our Fight® podcast welcomes Samantha Boothe. Samantha was diagnosed with lupus at the age of 14, and she has been sharing her journey with lupus online since 2010. Her main goal is to create relatable and informative content to empower anyone navigating life with chronic illness. When Samantha was d…
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Season 2 | Episode #22 with Attorney, Author, Patient Advocate and Lupus Patient, Olga Luca Torres
39:42
39:42
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39:42
Season TWO Episode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Olga Lucia Torres. A few years after law school, Olga was diagnosed with lupus and eventually the doctors found she had 4 other autoimmune diseases. Olga's health has never stopped her from following her dreams and attending Cornell University and Georgetown University Law …
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Season 2 | Episode #21 with Medical Writer and Lupus Patient, Melissa Walker
33:39
33:39
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Season TWO Episode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Melissa Walker. Melissa is a Medical Writer, with a biomedical research background focusing on traumatic spinal cord injury and traumatic brain injury. She earned her Ph.D. in Medical Neuroscience from Indiana University School of Medicine before returning to UCLA departmen…
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Season 2 | Episode #20 with Lupus LA Board Member, Lupus Advocate and Lupus Patient, Stacey Uberstine
30:11
30:11
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30:11
Season TWO Episode TWENTY of the Your Story Our Fight® podcast welcomes Stacey Uberstine. Stacey graduated from California State University Northridge in 1990 with a bachelor of science degree in Health Administration with a computer science minor. One of her most notable jobs was helping to establish the Industrial Care Center which is operational…
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Season 2 | Episode #19 with Actress, National Spokesperson for the Autoimmune Association, Author and Lupus LA Ambassador, Kellie Martin
34:20
34:20
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Season TWO Episode NINETEEN of the Your Story Our Fight® podcast welcomes Kellie Martin. Kellie began acting at the age of seven. She is most fondly remembered for playing Becca Thacher on the groundbreaking ABC family drama Life Goes On, for which she received an Emmy nomination. And, her portrayal of Lucy Knight, a precocious med student who met …
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Season 2 | Episode #18 with Lupus Patient and Policy, Advocacy and Mobilization Manager for SisterLove, Inc., J. Christopher Reed
43:14
43:14
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43:14
Season TWO Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes J. Christopher Reed. Christopher Reed was diagnosed with lupus in 1990 at the age of 16. Despite several serious attacks to his organ system, he earned a bachelor’s degree with honors from the Georgia State University and a law degree from Tulane University. He managed his fi…
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Season 2 | Episode #17 with Special Education Teacher, Mother and Lupus Patient, Alma Torres
44:15
44:15
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44:15
Season TWO Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Alma Torres. Alma is in her twelfth year working in education. Alma was diagnosed with lupus in the summer of 2009. In 2014, her younger sister was diagnosed with lupus. She went from lupus patient to lupus patient/care giver. In 2020, Alma's sister lost her battle with lupu…
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Season 2 | Episode #16 with Lupus Patient, Valerie Gilkey with Dancer & Daughter, Marcella Lewis
34:32
34:32
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Season TWO Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Valerie Gilkey and Marcella Lewis. Valerie Gilkey is a 55 year old woman suffering with SLE. She was diagnosed at the early age of 19. Despite doctors advising her of the dangers to her life as well as her child’s, with faith she gave birth to one daughter, Marcella Lewis. Eve…
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Season 2 | Episode #15 with Lupus Coach, Executive Director of Gibson Lupus ARC and Lupus Patient, Zuriel Gibson
28:11
28:11
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28:11
Season TWO Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Zuriel Gibson. Zuriel received her Lupus diagnosis and was told that she wouldn’t live past the age of twenty-four. After many bouts with depression, pain, addictions and hospital stays, she became discontent and decided to use her pain to propel her into purpose. As a lupus s…
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Season 2 | Episode #14 with Model, Influencer, Activist and Lupus Patient, Cambria Francesca
27:19
27:19
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27:19
Season TWO Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Cambria Francesca. Life plans were sidelined when she woke up one night to an excruciating pain. A constant pain that she has now grown so accustom to that she no longer remembers what it felt like to be painless. Having a sister with SLE and a father with Discoid, Cambria's …
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Season 2 | Episode #13 with Biomedical Scientist, TEDx Speaker, Adjunct Professor and Lupus Patient, Judith Mills
32:17
32:17
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32:17
Season TWO Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Judith Mills. Judith Mills is a Biomedical scientist, a TEDx speaker, an adjunct professor, lupus & disability advocate. October 1999, Judith's Lupus diagnosis was a relief after 3 years of constant doctors visit with symptoms of fatigue, loss of appetite, body aches, and hai…
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Season 2 | Episode #12 with High School Student and Lupus Patient, Lexi Hamburger
31:07
31:07
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31:07
Season TWO Episode TWELVE of the Your Story Our Fight® podcast welcomes Lexi Hamburger. Lexi Hamburger is a high school student and lupus patient. Lexi was diagnosed with lupus two years ago. For the past year, she has been sharing her experiences navigating high school with a chronic illness. In her free time, she enjoys spending time with her fam…
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Season 2 | Episode #11 with Abstract Artist, Visual Communicator and Lupus Patient, Fatema Siddiki
29:01
29:01
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29:01
Fatema Siddiki is an Abstract Artist and a visual communicator. After being diagnosed with Lupus and Scleroderma in 2007, her life took a miraculous turn. Art was there for Fatema when no one was, it helped her overcome her worst days when she was fighting against Lupus. Art soon became her therapy and purpose to fight.…
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Season 2 | Episode #10 with Property Manager and Lupus Patient, Raven Lexime
29:13
29:13
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29:13
Season TWO Episode TEN of the Your Story Our Fight® podcast welcomes Raven Lexime. Raven Lexime currently live and works in the Inland Empire. Raven has worked retail most her life and transition into property management in late 2003. When Raven is not working, she enjoys traveling and spending time with close family and friends. Raven is Lupus Pat…
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Season 2 | Episode #9 with Correctional Officer and Photographer, Teri Scott with Author and Magazine Owner, Demetria Buie
28:13
28:13
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28:13
Season TWO Episode NINE of the Your Story Our Fight® podcast welcomes Teri Scott and Demetria Buie. Teri T. McIntyre-Scott is a 43 year a mother of two who lives in Clewiston, Florida. She is a certified correctional officer and has been on the job for almost 20 years. She also has her own photography business, T'Shots Photos. She has been battling…
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Season 2 | Episode #8 with Legendary Producer, Lauren Shuler Donner
33:34
33:34
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Season TWO Episode EIGHT of the Your Story Our Fight® podcast welcomes Lauren Shuler Donner. Lauren Shuler Donner has produced many films, including Pretty in Pink, Free Willy, St Elmo’s Fire, Dave, You’ve Got Mail, Secret Life of Bees, and nine X-men movies. She was also an Executive Producer on another seven films and five tv shows including “Leg…
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Season 2 | Episode #7 with Writer, Producer, Director and Lupus Patient, Nzingha Stewart
31:42
31:42
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Season TWO Episode SEVEN of the Your Story Our Fight® podcast welcomes Nzingha Stewart. Nzingha Stewart attended NYU’s Gallatin School and upon graduation went on to shoot over a hundred music videos for artists like Common, Eve, Jay-Z, and 50 Cent breaking down barriers for women of color in the music video world along the way. An equally in-deman…
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Season 2 | Episode #6 with Chronic Illness and Lupus Patient, Mother, Wannabe Gardener Krissy Stephenson
35:35
35:35
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35:35
Season TWO Episode SIX of the Your Story Our Fight® podcast welcomes Krissy Stephenson. Krissy has been living with chronic illnesses for over 12 years. Her full time job is managing her health and household with a supportive husband, two boys and 2 dogs.By LupusLA
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Season 2 | Episode #5 with Patient Advocate and Lupus Patient, Lauren Fenty
25:19
25:19
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25:19
Season TWO Episode FIVE of the Your Story Our Fight® podcast welcomes Lauren Fenty. Lauren's Lupus journey began in 2013. She has experience in Healthcare primarily focused on Patient Advocacy and Clinical informatics. Her passion is to promote awareness for Lupus.By LupusLA
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Season 2 | Episode #4 with Founder and CEO of Gemini Beauty Products, Joann Zehenni and Director of TeachPlayLern & Lupus Patient, Jennifer Zehenni
40:12
40:12
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40:12
Season TWO Episode FOUR of the Your Story Our Fight® podcast welcomes sisters Joann and Jennifer Zehenni. Joann Zehenni is a 17-year-old entrepreneur and the founder and CEO of Gemini Beauty. Having family members with lupus, and having borderline lupus herself, Joann was inspired to develop Gemini Beauty to accommodate those in need of clean, natu…
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Season 2 | Episode #3 with Model and Actress, Abby Mooring and her Mother, Tina Allen, a Lupus Patient
25:33
25:33
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25:33
Season TWO Episode THREE of the Your Story Our Fight® podcast welcomes Abby Mooring and Tina Allen. Abby and Tina are from North Carolina. Abby moved across the country to Los Angeles last August to continue her modeling and acting careers. Abby has worked on editorials for New York Fashion Week, London Fashion Week, and multiple commercial, TV, fi…
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Season 2 | Episode #2 with Advisory Council Char at ReelAbilities, Owner of Snugs & Sweets and Lupus Patient, Jordana Sandler Manzano
30:40
30:40
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30:40
Season TWO Episode TWO of the Your Story Our Fight® podcast welcomes Jordana Sandler Manzano. Jordana Sandler Manzano, a trained chef, has worked in restaurants and event planning, volunteers for other organizations, and is raising three children with her husband, David. She enjoys putting her culinary degree to work baking challah and other sweet …
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Season 2 | Episode #1 with Lupus Advocate, Elizabeth SantaCruz and Lupus Patient, Mia SantaCruz
24:35
24:35
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24:35
Season TWO Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth and Mia SantaCruz. Elizabeth became a passionate advocate for raising Lupus Awareness after her daughter was diagnosed with lupus at the young age of 8. As a parent and caregiver, she was invited by to participate as a Lupus Advocate at the Annual Advocacy Meeting and Hi…
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Cafecito con mi Comadre, Nicole Garza-Martinez: mom, teacher, Latina, pasionaria
28:41
28:41
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Two Senior English teachers on Spring Break... sounds like the beginning of a good joke, right? Join me and Nicole Garza Martinez as we relax and enjoy our Spring Break and a little cafecito and comadreando. We talk about imperfect tortillas, the importance of respecting your elders, Southside holiday traditions, Spring Break plans gone awry and mo…
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