show episodes
 
Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) -- two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA. Though they live in two different states, in two different parts of the country, through the amazing power of technology, they virtually join each other to share their experiences about living life with MS. They are often joined by noted MS speciali ...
 
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show series
 
When a person is diagnosed with MS, the entire family is diagnosed with MS. In Chapter 2 of our latest intimacy series, we focus on connection and families. We are joined by two amazing MS care partners -- Becca Agauas & Courtney Townsend. Becca's mother, Faith has MS, and she shares her reflections on the importance of communication. Find Becca on…
 
We're embarking on another intimacy series, but it's not what you think. We know that intimacy is much more than physical or romantic, even. In this series, we focus on connection and the many different ways that intimacy is fostered #becausems. Today we're joined by Lydia Guillory and Cathy Chester. They share their very different stories about ho…
 
Join us for Part III of "The Language of MS" -- a 3 part series produced in partnership with Emilyn. Today we chat about "toxic positivity". It's not just "good vibes only" when it comes to a disease like MS. All vibes should be welcomed... Emilyn is a free MS companion app to help manage life with MS. On Emilyn you can log your symptoms, medicatio…
 
Observe. Accept. Release. Transform. Join us today as talk about what these words mean to us on our MS journeys -- and the grace necessary to really absorb them. We recently came across a post on Instagram from @yung_pueblo that reads: "Observe. Accept. Release. Transform." After sitting with it for a moment, we took some time to reflect on how the…
 
Join us for Part II of "The Language of MS" -- a 3 part series produced in partnership with Emilyn. Has anyone ever told you that if you had more faith or prayed harder your illness would be cured? It's happened to us, and it's gross. Today we chat about something called "spiritual bypass". Download the Emilyn: My MS Companion app for Apple and And…
 
Join us as we chat with Mindy Eisenberg, founder of Yoga Moves MS -- a community AND adaptive yoga classes dedicated to those with Multiple Sclerosis and other similar neuromuscular conditions. Connect with Yoga Moves MS on their website: http://yogamovesms.org and on Facebook and Instagram @yogamovesms. You can also find them on YouTube. You can f…
 
We are joined by two fantastic past guests -- Anna Sweeney, MS, RD, LDN, CEDRD-S, and Achea Redd -- for a chat about body narratives and how they are shaped by wellness culture. You can find Achea's books 'Be Free. Be You.' and 'Authentic You: A Girl's Guide to Growing Up Fearless and True' on Amazon and all booksellers. You can connect with her on…
 
Join us for Part I of "The Language of MS" -- a 3 part series produced in partnership with Emilyn. Today we talk about the super problematic quasi-compliment "But you don't look sick" that many MSers have faced. Don't miss this great conversation. Emilyn is a free MS companion app to help manage life with MS. On Emilyn you can log your symptoms, me…
 
In this bonus episode, we talk with our guest about making space, holding space, and taking up space as a Black scholar & professor with MS. You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Consider supporting us through our Patreon -- http://patreon…
 
Join us for a conversation with the blogger, advocate and according to Damian Washington the "O-est of Gs" in the MS world -- the amazing Cathy Chester. THE Cathy Chester. Find Cathy on Instagram @thecathychester, Twitter @cathyches, and her blog at http://anempoweredspirit.com. You can find us on the web at http://myelinandmelanin.com, Facebook, I…
 
Join us for a conversation with chronic illness advocate, blogger, and patient leader, Teresa Wright-Johnson. We chat about her chronic illness journey, advocacy, and "making room". Find Teresa and learn more about her work at http://teresawrightjohnson.com, and Instagram @privilegedheart. Find her on Twitter @ReesiesAllHeart. You can find us on th…
 
We end our MS Awareness Month programming with one of our favorite people -- The Nerdy Neurologist, Dr. Mitzi Joi Williams, MD. We chat about changing our mindsets, finding our purposes, and taking up space You can find Dr. Williams on Instagram @thenerdyneurologist and on her website at https://joilifewellness.com/ You can find us on the web at ht…
 
We are happy to be joined by Titianna Ammons -- a newly diagnosed MSer. Tati has an interesting story, and we're honored that she took time out of her busy schedule to chat with us. It was important for us to share as many kinds of stories as possible during MS Awareness Month -- the newly diagnosed journey to the OGs like us. Titianna is an advoca…
 
It's our second 2021 MS Awareness Month episode, and we're joined by our favorite physical therapist and certified MS specialist -- Dr. Gretchen Hawley, DPT. You don't want to miss this fantastic conversation. We chat about taking up space and treating the "whole person". You can find Dr. Hawley on IG @doctor.gretchen, on YouTube, as her website ht…
 
Join us for our first episode in MS Awareness Month 2021. We are joined by two incredible members of the MS community (and our friends) -- Ardra Shephard and Damian Washington. We chat about filling, taking up, and defining the space. Find Ardra at her website trippingonair.com. Check out Damian's YouTube channel at youtube.com/nostressms.And...jus…
 
Join us for a conversation with Jessie Ace, Lauren Freedman & April Moreno -- 3 content creators taking up space in the chronic illness community. As podcasters, we know how to hold the space, but how do we occupy it? Jessie Ace was the host of the Disabled to Enabled Podcast which ended in December 2020 (but can still be streamed online). She curr…
 
Join us for a continuation of a conversation we started in July 2020 about Black racial justice. We are joined by former guests Dr. Linda Chavers, PhD, Damian Washington, and Carlos Kareem Windham. We chat about racism, the January 2021 insurrection at the Capitol by white supremacist terrorists, and more. Find Carlos on Twitter @caballonegrito and…
 
Join us for a conversation about mental health with advocate and author Achea Redd. We chat about reaching out for help, taking up space, and what it means to "live free". You can find Achea's books 'Be Free. Be You.' and 'Authentic You: A Girl's Guide to Growing Up Fearless and True' on Amazon and all booksellers. You can connect with her online o…
 
We are so excited to be joined by Dawn's Neurologist/MS Specialist, Dr. Heidi Crayton, MD. We chat about taking up space and being treated as "whole people" -- not just cookie-cutter symptoms. Dr. Crayton is a board-certified neurologist, with a specialty in Multiple Sclerosis. She did a fellowship in multiple sclerosis at Georgetown where she esta…
 
Join us for an exclusive interview with actress, comedian, and MS advocate, Rain Pryor. We reflect on her father, the legendary Richard Pryor, and his MS journey. Connect with Rain on Facebook and Instagram @rainpryor. Purchase her book, Jokes My Father Never Taught Me: Life, Love, and Loss with Richard Pryor on Amazon. As always, you can find us o…
 
Join us for a conversation with DEI leader, Jimi Vaughn about containing and defining the space, as well as what it means to have a seat at the table in a society rampant with ableism. Connect with Jimi on his website: http://jimivaughn.com and Instagram @jimi_vaughn. As always, you can find us on the web at myelinandmelanin.com, Facebook, Instagra…
 
It's our Season 4 Premiere! This season, we're focused on "taking up space". What does it mean for people with Multiple Sclerosis? Join us for a conversation with Damian Washington as we unpack this important concept. Find Damian on his website: damianwashington.com and on his vlog: http://youtube.com/nostressms As always, you can find us on the we…
 
Please join us for a bonus episode -- a final farewell to 2020. Join us for a discussion about a few of the things that need to be retired in 2020 -- MS Edition. 2020 has been rough, so it's important that we take care to be gentle(r) to each other as comrades in MS. Society does a hell of a job of tearing us down -- let's lift each other up. We'd …
 
Please join us for the Season 3 finale of the Myelin & Melanin Podcast. It's been a wild ride. 2020 is definitely one for the books. 2020 has been filled with ups and downs for us, but we'd be remiss if we didn't celebrate our ups. From celebrating our 100th episode, to becoming an LLC, to producing and recording TWO intimacy series, networking wit…
 
Welcome to Realm 10 -- the last Realm in our second ever intimacy series, "This Part: Intimacy & MS". It's just us today -- no guests. Join us as we recap this exciting intimacy adventure. Access intimacy, BDSM, pleasure activism (deference to adrienne maree brown), sexual superpowers, kink, trust, communication, surrender...we covered all the thin…
 
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