show episodes
 
Welcome to the Overcoming MS | Living Well with MS podcast. In each episode, your host Geoff Allix will explore a different aspect of the OMS 7-Step Recovery Program in greater depth. New episodes will be published approximately once per month, and will feature interviews with scientists, fitness specialists, diet experts, stress reduction professionals and OMSers themselves. The podcast will also feature inspirational, real-life stories from people with multiple sclerosis about the daily ch ...
 
MedEdTalks Neurology is a continuing medical education podcast for physicians to allow them to learn while on the go and obtain CME credits. This show will focus in on multiple sclerosis and includes interviews with Dr. Patricia Coyle from Stony Brook Medical Center, Dr. Claire Riley from Columbia University, Dr. Clyde Markowitz from University of Pennsylvania and Dr. Bruce Cohen from Northwestern University.
 
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS ...
 
Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) -- two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA. Though they live in two different states, in two different parts of the country, through the amazing power of technology, they virtually join each other to share their experiences about living life with MS. They are often joined by noted MS speciali ...
 
The Multiple Sclerosis Discovery Forum (MSDF) is an online resource that aims to accelerate progress toward cures for multiple sclerosis and related disorders by sparking new ideas and catalyzing unforeseen connections. The site focuses attention on what is known and not yet known about the causes of these conditions, their pathological mechanisms, and potential ways to intervene. By communicating this information in a way that builds bridges among different disciplines, we will open new rou ...
 
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
 
Autoimmune Adventures is a podcast dedicated to helping people with autoimmune disorders reclaim their health and their life. The mission is to share cutting edge information and tools for people living with chronic illness and to create a community of support. Episodes will inspire you to say yes to the call to adventure of an autoimmune diagnosis, motivate you to take action to improve your wellness, encourage you on your path, and empower you to recognize the truth of who you are. Topics ...
 
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show series
 
Welcome to our second installment of Ask Jack, featuring the prodigious culinary talents of professional holistic chef Jack McNulty answering food-related questions generated by you, our community. Check out the show notes below that dig deeper into the topics covered on this episode. Set your dials to this station when Ask Jack #3 premieres on Jul…
 
Episode 9:Disability Law With Guest Andrew Kantor In this episode, we discuss disability law (ERISA law). Disability discrimination is defined as when you need accommodations and your workplace denies you, even though it would allow you to continue to do your job. Disability law is related to when insurance companies don’t pay for disability benefi…
 
The COVID-19 pandemic has created what experts are calling a mental health crisis of unparalleled proportion. Many people affected by MS have had to add pandemic-related stresses and anxieties to the already existing anxieties that come from living with a chronic illness. And that's a lot to carry around every day. Joining me to talk about managing…
 
Episode 8: Let's Talk About Multiple Sclerosis In this episode, we discuss all things Multiple sclerosis. Multiple sclerosis is a chronic disease of the central nervous system, that attacks the myelin that covers the nerve fibers in the brain and spinal cord. Symptoms vary widely, but can include pain, numbness/tingling, eye manifestations, fatigue…
 
When a person is diagnosed with MS, the entire family is diagnosed with MS. In Chapter 2 of our latest intimacy series, we focus on connection and families. We are joined by two amazing MS care partners -- Becca Agauas & Courtney Townsend. Becca's mother, Faith has MS, and she shares her reflections on the importance of communication. Find Becca on…
 
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. In today's episode, we're talking about empowering people living with MS to become full partners in their MS treatment and the importance of good communication between patients and their doctors. We're also introducing MS in the 21st Century, a resource that …
 
Episode 7: Chase Joseph's Story With RSD, EDS, Tics, Dysautonomia, and Autism In this episode, we discuss Chase Joseph’s story. Chase was diagnosed with autism, Ehlers Danlos Syndrome, OCD, ADHD, dysautonomia (neutrally mediated hypertension), costochondritis, and gastroparesis. When he was 14, he had an exploratory laparotomy, and the surgeon nick…
 
In today's special episode of RealTalk MS, Dr. Michael Kornberg is going to give us a glimpse into emerging research and the future of MS treatments. So, if you'd like to peer into the not-too-distant future for a preview of the new MS therapies that will be available to you, this is the conversation you're looking for. Dr. Kornberg is an Assistant…
 
Welcome to Living Well with MS Coffee Break #16, where we are pleased to welcome Rick Nelson as our guest! Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you’ll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal sto…
 
Episode 6: Let's Talk About Lupus In this episode, we talk about all things Lupus. Lupus (focusing on SLE) is a chronic autoimmune disease that causes inflammation and pain in any part of the body. There are several different types of lupus. Symptoms include fatigue, joint pain or swelling, headaches, fevers, sun sensitivity, butterfly rash, Raynau…
 
We're embarking on another intimacy series, but it's not what you think. We know that intimacy is much more than physical or romantic, even. In this series, we focus on connection and the many different ways that intimacy is fostered #becausems. Today we're joined by Lydia Guillory and Cathy Chester. They share their very different stories about ho…
 
Join us for Part III of "The Language of MS" -- a 3 part series produced in partnership with Emilyn. Today we chat about "toxic positivity". It's not just "good vibes only" when it comes to a disease like MS. All vibes should be welcomed... Emilyn is a free MS companion app to help manage life with MS. On Emilyn you can log your symptoms, medicatio…
 
Episode 5: Let's Talk About Sjogren's Syndrome In this episode, we discuss all things Sjogren’s Syndrome. Sjogren’s Syndrome is an autoimmune disease that causes dry eye, dry mouth, fatigue, and joint pain. Additionally, it can cause damage to other organs. It is diagnosed via blood tests, eye tests, and dental tests and is treated with medication …
 
With 200 million Americans having already received their COVID-19 vaccination, public health officials are warning that vaccine hesitancy is a growing challenge to our nation's ability to fully bounce back from the pandemic and resume something resembling the life we once knew. If what you're seeing and hearing about the COVID vaccines on social me…
 
Episode 4: Let's Talk Ehlers Danlos Syndrome In this episode, we discuss all things Ehlers Danlos Syndrome. EDS is a group of usually inherited connective tissue disorders characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. Symptoms vary, but can include widespread joint and muscle pain, walking difficulty, dislocat…
 
Observe. Accept. Release. Transform. Join us today as talk about what these words mean to us on our MS journeys -- and the grace necessary to really absorb them. We recently came across a post on Instagram from @yung_pueblo that reads: "Observe. Accept. Release. Transform." After sitting with it for a moment, we took some time to reflect on how the…
 
Join us for Part II of "The Language of MS" -- a 3 part series produced in partnership with Emilyn. Has anyone ever told you that if you had more faith or prayed harder your illness would be cured? It's happened to us, and it's gross. Today we chat about something called "spiritual bypass". Download the Emilyn: My MS Companion app for Apple and And…
 
Join us as we chat with Mindy Eisenberg, founder of Yoga Moves MS -- a community AND adaptive yoga classes dedicated to those with Multiple Sclerosis and other similar neuromuscular conditions. Connect with Yoga Moves MS on their website: http://yogamovesms.org and on Facebook and Instagram @yogamovesms. You can also find them on YouTube. You can f…
 
Dr. Amy Novotny is a highly trained physical therapist who has committed herself to helping people with varying medical conditions, including multiple sclerosis, learn how to manage and overcome the pain and discomfort their conditions cause. She is the creator of the PABR® method, a holistic approach to restoring the body to its full potential usi…
 
Episode 3: Lewis Temple's story with Ehlers Danlos Syndrome In this episode, guest Lewis Temple shares his story of living life with Ehlers Danlos Syndrome (EDS). He also has POTS, craniocervical and atlantoaxial instability, migraines, dislocations, trigger finger, and TMJ. It took him years to finally get a proper diagnosis. He start getting form…
 
Their website says that Destination Rehab takes an "innovative, out-of-the-box approach to physical therapy." This week, my guests are Sally McAllister and the founder of Destination Rehab, Dr. Carol-Ann Nelson. Sally is 70 years old and living with primary progressive MS. We're talking about how Sally's work with Dr. Nelson produced life-changing …
 
We are joined by two fantastic past guests -- Anna Sweeney, MS, RD, LDN, CEDRD-S, and Achea Redd -- for a chat about body narratives and how they are shaped by wellness culture. You can find Achea's books 'Be Free. Be You.' and 'Authentic You: A Girl's Guide to Growing Up Fearless and True' on Amazon and all booksellers. You can connect with her on…
 
Join us for Part I of "The Language of MS" -- a 3 part series produced in partnership with Emilyn. Today we talk about the super problematic quasi-compliment "But you don't look sick" that many MSers have faced. Don't miss this great conversation. Emilyn is a free MS companion app to help manage life with MS. On Emilyn you can log your symptoms, me…
 
In this bonus episode, we talk with our guest about making space, holding space, and taking up space as a Black scholar & professor with MS. You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Consider supporting us through our Patreon -- http://patreon…
 
Episode 2: Jessica Temple's Story with Ehlers Danlos Syndrome In this episode, host Jessica Temple shares her chronic illness journey. She discusses that her medical journey started at age 2, and finally got a formal accurate diagnosis in November 2020. She has a diagnosis of Ehlers Danlos Syndrome, with a ton of associate conditions, such as POTS,…
 
MS affects almost 3 times as many women as men. Have you ever wondered why? When it comes to investigating sex differences in MS, my guest, Dr. Rhonda Voskuhl, has done more than just think about it. And her recent research may have uncovered an MS treatment for women undergoing menopause. Dr. Voskuhl is the President-elect of the International Org…
 
Welcome to Living Well with MS Coffee Break #15, where we are pleased to welcome Rebecca Stonor as our guest! Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you’ll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal …
 
Join us for a conversation with the blogger, advocate and according to Damian Washington the "O-est of Gs" in the MS world -- the amazing Cathy Chester. THE Cathy Chester. Find Cathy on Instagram @thecathychester, Twitter @cathyches, and her blog at http://anempoweredspirit.com. You can find us on the web at http://myelinandmelanin.com, Facebook, I…
 
More than half of all the people living with MS will develop problems with cognition. And while experiencing cognitive dysfunction can be challenging and frustrating, these kinds of changes can also be frightening. Joining me to talk about things you can do to better manage cognitive changes and preserve healthy cognition is neuroscientist and neur…
 
Cutting-edge research is revolutionizing how multiple sclerosis is diagnosed and monitored. The central vein sign on MRI may soon be a key way of confirming if someone has multiple sclerosis versus other conditions such as migraine, vasculitis, neurosarcoidosis and blockage of small blood vessels (from age, smoking and hypertension). Early clues on…
 
Episode 1: The Spoonie Struggle In this episode, host Jessica defines what a "spoonie" is, as well as the name "The Spoonie Struggle." She discusses the purpose of and vision of the podcast. She also rants about everyone's favorite questions "what is your current pain level from 0-10?" Links: Website Facebook Instagram Email Twitter Please subscrib…
 
Join us for a conversation with chronic illness advocate, blogger, and patient leader, Teresa Wright-Johnson. We chat about her chronic illness journey, advocacy, and "making room". Find Teresa and learn more about her work at http://teresawrightjohnson.com, and Instagram @privilegedheart. Find her on Twitter @ReesiesAllHeart. You can find us on th…
 
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrom…
 
On this episode of Living Well with MS, we are excited and honored to have as our guest OMS Chair and charity Founder Linda Bloom, whose personal story arc – going from the depths of despair after receiving her MS diagnosis to finding and realizing a path of realistic hope to healthy life through the OMS Program – mimics the experience of so many m…
 
About 80% of the people with relapsing-remitting MS will eventually be diagnosed with secondary progressive MS. At that point, their remissions stop and their MS symptoms continue to worsen. And about 15% of the people diagnosed with MS are diagnosed from the beginning with primary progressive MS. So identifying ways to optimally treat progressive …
 
We end our MS Awareness Month programming with one of our favorite people -- The Nerdy Neurologist, Dr. Mitzi Joi Williams, MD. We chat about changing our mindsets, finding our purposes, and taking up space You can find Dr. Williams on Instagram @thenerdyneurologist and on her website at https://joilifewellness.com/ You can find us on the web at ht…
 
Welcome to Living Well with MS Coffee Break #14, where we are pleased to welcome Katy Deacon as our guest! Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you’ll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal sto…
 
Living through a lockdown can be challenging, and it's resilience that helps us get through life's challenges and recover from setbacks. And while resilience may have become a new topic of conversation for the world at large, when you're living with the uncertainty of MS, you come to realize that resilience is one of the most important tools in you…
 
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