show episodes
 
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS ...
 
Welcome to the Overcoming MS | Living Well with MS podcast. Our family of podcasts includes our flagship, Living Well with MS, where In each episode, your host Geoff Allix will explore a different aspect of the OMS Program in greater depth. Other programs in our podcast family include Coffee Break featuring interviews with members of our diverse global community, and Ask Jack, featuring professional chef Jack McNulty answers food- and cooking-related questions. New episodes will be published ...
 
Season 5: Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian, facilitator and musician -- each living with Multiple Sclerosis -- are your hosts this season and explore the intersections of race, culture, politics, disability and all the things. Join us as we Raise the Temp! Connect with us. Instagram: Daana @retrosoul__ Carlos @caballonegrito Podcast Socials: Instagram: @myelinmelanin Twitter: @myelinmelanin Facebook: @myelinandmelanin ...
 
MedEdTalks Neurology is a continuing medical education podcast for physicians to allow them to learn while on the go and obtain CME credits. This show will focus in on multiple sclerosis and includes interviews with Dr. Patricia Coyle from Stony Brook Medical Center, Dr. Claire Riley from Columbia University, Dr. Clyde Markowitz from University of Pennsylvania and Dr. Bruce Cohen from Northwestern University.
 
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Autoimmune Adventures

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Autoimmune Adventures

Julie Stiles, Health and Transformation Coach

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Autoimmune Adventures is a podcast dedicated to helping people with autoimmune disorders reclaim their health and their life. The mission is to share cutting edge information and tools for people living with chronic illness and to create a community of support. Episodes will inspire you to say yes to the call to adventure of an autoimmune diagnosis, motivate you to take action to improve your wellness, encourage you on your path, and empower you to recognize the truth of who you are. Topics ...
 
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
 
The Multiple Sclerosis Discovery Forum (MSDF) is an online resource that aims to accelerate progress toward cures for multiple sclerosis and related disorders by sparking new ideas and catalyzing unforeseen connections. The site focuses attention on what is known and not yet known about the causes of these conditions, their pathological mechanisms, and potential ways to intervene. By communicating this information in a way that builds bridges among different disciplines, we will open new rou ...
 
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show series
 
Bio: Mindy Eisenberg, MHSA, C-IAYT is the Founder and Director of Yoga Moves MS, a nonprofit with the mission of improving the quality of life for individuals with MS, Parkinson’s Disease, and other neuromuscular conditions through the provision of adaptive yoga and holistic health and wellness education. Mindy has provided yoga therapy to individu…
 
Join us as we chat about Daana's newest adventure, Carlos being called Elton John's "illegitimate child" by randos on the internet, being banned on Instagram, Greg Abbott being a waste of disabled representation, and more. -- Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian, facilitator and…
 
One of the realities of living with MS is that you're often dealing with invisible symptoms. And because symptoms like numbness and tingling, fatigue, depression, vision issues, and pain aren't apparent to others, it can be hard for people around you to understand what MS is all about and, specifically, what you might be struggling with. Kathy Cost…
 
Dating can be tricky for anyone. And it doesn't get any easier if you happen to be living with MS. In addition to all the typical dating considerations, you also have to think about things like if, how, and when to disclose your MS. You want to make sure your dating activities are physically doable. That might mean no long walks on the beach when t…
 
Bio: Dr. Mikhail (Misha) Kogan, MD, ABIOM, RCST is a leader in the newly established field of Integrative Geriatrics. He is the chief editor of the first definitive textbook of the field entitled “Integrative Geriatric Medicine”, published by Oxford University Press as part of Andrew Weil Integrative Medicine Library series and is frequent speaker …
 
Join us us for a conversation about radical self love, the importance of creating a luscious, beautiful and peaceful space, the joy and simplicity of the Three's Company apartment and other thoughts about tending your prooverbial gardens. -- Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian,…
 
Imagine that, using your smartphone, you log into a Zoom call from home. You connect with your MS specialist and, while you're chatting, an artificial intelligence-based system is analyzing biometric measurements that will enable your doctor to deliver or fine-tune an MS treatment plan that's been personalized to meet your exact needs. That's the v…
 
Welcome to Living Well with MS Coffee Break #34, where we are pleased to welcome Leah Tsirigotis as our guest! Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you’ll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal…
 
Bio: Dr. Colin Bannon is a retired medical doctor (GP-General Practitioner) who was diagnosed with MS at the age of 58. He was born in London and after early years working in farming and factories, studied medicine in Sheffield, qualifying in 1985. He was a GP in Devon for over 20 years. Colin realized that smoking, the western diet, and stress wer…
 
In last week's episode, we looked at talking with kids about MS. This week, we'll visit the opposite end of the spectrum as Dr. John Corboy discusses some of the things you'll want to think about as you age with MS. Dr. Corboy is a professor of neurology at the University of Colorado School of Medicine, and the Director of the Rocky Mountain Multip…
 
Join us us for a conversation about the nuance and complexity of disability pride, the power of radical self love, and a problematic e-mail that Daana received from a well-known doctor with MS. Oh yeah, Terry Wahls: https://www.youtube.com/watch?v=DxXJH2jZm0w -- Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (th…
 
Whether we adults admit it or not, kids see everything. That includes seeing a parent or other family member who's living with MS. And because kids don't have an understanding of neurological conditions, they use their imaginations to fill in the blanks. That can very quickly take them down a rabbit-hole that's far scarier than the reality of livin…
 
Welcome to your next “plating” of Ask Jack, featuring the prodigious culinary talents of professional chef, writer, and OMSer Jack McNulty answering food and cooking questions from our community that inform their healthy OMS lifestyle. Check out the show notes below that dig deeper into this episode’s topic. You can submit your questions for Jack a…
 
Everybody remembers the day -- sometimes, even the moment -- when they were diagnosed with MS. And in that moment, you may not have known very much about living with MS, but you probably felt like everything was about to change. One of the most common emotional responses to MS is grief. Joining me to talk about the relationship between grief and MS…
 
Join us as we share our silver linings and our horrified reflections on the recent diabolical decisions of SCOTUS. We also discuss how we use our voices and bodies to be "extra" in the face of erasure. -- Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian, facilitator and musician -- each liv…
 
When I began thinking about launching RealTalk MS, one of the first things I did was listen to other podcasts for the MS community. Five years ago, there weren't nearly as many podcasts focused on MS as there are today, but one of the podcasts I listened to was FUMS. And after listening to that podcast, I remember feeling inspired about moving forw…
 
Welcome to Living Well with MS Coffee Break #33, where we are pleased to turn the tables and welcome our very own very own podcast host Geoff Allix as our guest! Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you’ll join Geoff Allix for an intimate chat with a different member of our glo…
 
Health disparities, systemic inequities, and discrimination often stand in the way of gaining access to MS care for members of the LGBTQ+ community. As we explore some of the obstacles faced by members of the LGBTQ+ community in accessing healthcare, we'll gain the clinician's perspective in our conversation with MS specialist, Dr. William Conte. W…
 
Bio: Shari Short is a patient advocate, a professional in healthcare communications and naturally, a standup comedian. As Senior Director of Insights and Strategy at Bionical Solutions, she has over 20 years of experience in patient education from behavior change to clinical trial recruitment. A developmental psychologist by training, Shari has hel…
 
Join us as we share our silver linings and lament about the disorienting and uncomfortable satisfaction in hearing evil folks tell the truth. Oh, and Carlos refers to Johnny Depp as "the Rachel Dolezal of the Cherokee Nation", and it was everything. -- Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), …
 
One afternoon during the Consortium of Multiple Sclerosis Centers Annual Meeting, I set up my equipment at the National MS Society's booth in the conference exhibit hall and recorded some conversations with a few old friends and a few new friends of the podcast. In this week's episode, we'll hear a couple of those conversations. Before I left for t…
 
In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL. Instead, Tyler's life was turned upside down by an MS diagnosis. For some people, that would have been the end of the story. For Tyler, it was only the beginning. In this week's episode, Tyler Campbell talks about his transformation…
 
With over 20 options, what is the best multiple sclerosis treatment for me? Selecting an appropriate disease-modifying therapy (DMT) needs to consider your risk of worsening disability over time. Your age, sex and race can affect your prognosis and can influence the power of treatment chosen. Details about your early relapses and MRI activity are v…
 
Welcome to Living Well with MS Coffee Break #32, where we are pleased to welcome Regina Beach as our guest! Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you’ll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal st…
 
Join us as we explore the dangerous minds of temps, and the privilege that informs their delusional thinking -- from outlandish optics to complete disability erasure. Our hearts are with the victims and families impacted by the massacre in Uvalde. -- Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a …
 
Starting a family is a big step for anyone. And when you're living with MS and you're on MS medications along with other symptom management medications, planning a family creates a lot of questions about what's safe and what's not. Dr. Annette Langer-Gould, a clinician-scientist and MS specialist in the Kaiser-Permanente health system, joins me to …
 
Bio: Arlene Faulk has had a passion for writing from a young age beginning in the 8th grade when she wrote and published her class newsletter, The Tattler. She earned a BA in Journalism from the University of Iowa, reporting on everything from Led Zeppelin concerts to protests of the Vietnam War. She went on to receive an MA in Speech Communication…
 
Think about how much faster, easier, cheaper, and less invasive it would be if MS could be diagnosed by a simple blood test. Scientists have identified biomarkers that can be used to diagnose MS and even predict MS before someone experiences any symptoms. Biomarkers may even be used to predict MS progression before it occurs. Joining me to discuss …
 
Digital technology has transformed our lives. For people living with multiple sclerosis, electronic health opens a new world. Biosensors in our smartphones and wearable devices can monitor physical activity levels and sleep and may detect MS disease changes faster than that next neurologist appointment. New apps can help people with MS manage and t…
 
This weekend, we experienced several mass shootings, more specifically, mass murders -- terrorist, white supremacist hate crimes, at that. We grieve for those we lost at the hands of a white supremacist, terrorist in Buffalo, New York. Join us as we gather our thoughts about the collective white supremacist nightmare we're living through. We also c…
 
When my wife was diagnosed with MS in 1997, the annual cost of her MS medication was $9,000. Today, the annual cost of that same medication is $110,000. We cannot allow the insanity associated with the cost of MS medications to continue. Joining me to discuss the impact of the outrageously high cost of MS medications -- and what each of us can do a…
 
Welcome to Living Well with MS Coffee Break #31, where we are pleased to welcome Nigel Bartram as our guest! Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you’ll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal s…
 
For some, the journey to their MS diagnosis is relatively quick and straightforward. For others, it can be lengthy and convoluted, sometimes taking years. Joining me to talk about some of the twists and turns that can pop up on the road to being diagnosed with MS is Dr. Michael Robers, a neurologist in the Multiple Sclerosis Program and an assistan…
 
Multiple sclerosis frequently causes visual impairment. 70% of people living with the disease can develop optic neuritis at some point and often the first sign of MS. The symptoms, medical evaluation, treatment and prognosis of optic neuritis are conveyed. Besides multiple sclerosis, other causes are discussed including MOG antibody-associated dise…
 
Welcome to the second season premiere of Ask Jack, featuring the prodigious culinary talents of professional chef, writer, and OMSer Jack McNulty answering food and cooking questions from our community that inform their healthy OMS lifestyle. Check out the show notes below that dig deeper into this episode’s topic. You can submit your questions for…
 
Being disabled is hard -- being a wheelchair user amplifies the challenges. Join us as Daana shares the trauma and drama associated with...going to the dentist. The lipstick Daana references: https://www.beautybakerie.com/ The ridiculously priced van service: https://www.transtarmedical.com/ The awesome dental clinic: https://emergencydentalofmilwa…
 
Planning for your financial future is good advice for everyone. But when you're living with MS, financial planning is an important part of the game plan for living your best life. Joining me to talk about the things you'll want to keep in mind as you develop your personal financial roadmap is Dick Bell, a professional financial advisor who has work…
 
Bio: Mathew Embry is an internationally recognized documentary filmmaker and advocate for people and families dealing with multiple sclerosis. After being diagnosed with MS in 1995, Mathew is currently symptom-free of MS and freely shares the science-based strategies he uses to control his MS on MS Hope. Questions: What are the core principles of t…
 
Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results of a study that was commissioned by the National MS Society. Joining me to talk about what this study revealed and what it means to individuals and families…
 
Rapid recent advancements have led to blood tests (biomarkers) to track multiple sclerosis disease activity. A biomarker is something that can be measured to check normal functioning or the impact of a disease. Blood biomarkers are common in medicine to measure response to therapy such as measuring hemoglobin A1c levels for diabetic control and cho…
 
Join us as we talk about Elon Musk, his hair plugs, eugenics, the oligarchy -- all the things. -- Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian, facilitator and musician -- each living with Multiple Sclerosis -- are your hosts this season and explore the intersections of race, culture, p…
 
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