TURN IT UP! Open House is a monthly electronic music mix show featuring today’s newest & grooviest deep, tech and progressive. Hosted by Randy Seidman, Open House includes his own mixes as well as exclusive guest mixes from the biggest DJs around the world. Look for Open House on stations around the world, including Digitally Imported & the iTunes store. Also available on Android platforms as well! Thank you for the 400,000+ downloads!
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Best Siedman podcasts we could find (updated July 2020)
Best Siedman podcasts we could find
Updated July 2020
Updated July 2020
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Two Rare Mama Bears, a Cure CMD Podcast - where we discuss all things Congenital Muscular Dystrophy and Rare Disease...All subtypes, ages, abilities and topics with the intent to connect the CMD community. This podcast is about bringing together affected individuals, their family, researchers, clinicians, industry, and policy-makers to have conversations with the goal of moving the needle on the mission of Cure CMD. Hosts: Megan Meyer and Matty Manley.
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Open House Podcast
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Episode 185 | Randy Seidman + DJ Everyday
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2:00:10
Click the post for details on this episode! Welcome back to Open House. Randy Seidman here with another two hours of the grooviest beats. A solid episode is lined up for you today; my recent set featured on ‘In A Dream’ for LA’s 88.9fm, followed by an exclusive session with my favorite artists, DJ Everyday … Continue reading »…
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Episode 184 | Randy Seidman + Lampé
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1:58:34
Click the post for details on this episode! Welcome back to Open House. Randy Seidman here with another two hours of the grooviest beats. Hope everyone is healthy and happy during these trying times. A solid episode is lined up for you today, fresh jams in the first hour followed by an exclusive session with … Continue reading »…
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Open House Podcast
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Episode 183 | Randy Seidman + WHO ELSE
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1:59:42
Click the post for details on this episode! Welcome back to Open House. Randy Seidman here with another two hours of the grooviest beats. A solid episode is lined up for you today, fresh jams in the first hour followed by an exclusive session with the talented artist from Argentina, WHO ELSE. For now, turn … Continue reading »…
Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the world -- including the Cure CMD community -- to stand together for the causes they believe in. Especially now, we must stay connected! In this episode, we are joined by CMD community member, Mark Beare, who talks ab…
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053 - STABLE Accounts and COVID-19 stimulus checks
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ABLE Accounts give people with disabilities more independence and financial security by providing tax-free savings plan for disability-related expenses without losing needs-based benefits. We are joined by Nick Hancart, Public Affairs Manager for STABLE for Ohio Treasurer of State. Nick shares with us how individuals can seek out their own state’s …
Are you living with a rare disease or a parent/caregiver to someone who is? I Stay Home For Rare™ is a campaign and fund for those standing with us in this cause. Levi Gershkowitz joins us to share how through this new platform, together we are raising awareness and funds to help people in this time of heightened need. We stay home in solidarity wi…
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Open House Podcast
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Episode 182 | Randy Seidman + The Dualz
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1:59:50
Click the post for details on this episode! Welcome back to Open House. Randy Seidman here with another two hours of the grooviest beats. I hope everyone is staying healthy and happy during these trying times. A groovy episode is in store for you today, with fresh jams in the first hour followed by an … Continue reading »…
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051 - Only the vulnerable will be at risk, your "only" is my everything
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31:19
Matty & Megan do a check-in episode after the first week of COVID-19 quarantine at home…. Including a comparison to how this experience is similar to winter for medical complex families, a discussion how we’re handling all the things, and tips for maintaining sanity and caring for mental health while also attempting to safeguard our families’ physi…
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050 - Pro tips from a seasoned NIH visitor with Kierra Sunris
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40:04
By Cure CMD (Matty Manley & Megan Meyer)
Click the post for details on this episode! Welcome back to Open House. Randy Seidman here with another two hours of the grooviest beats. Great times last month playing around Germany. Awesome three sold out show with the mushroom boys. The remix package of ‘System’, the tune I made with Da Fresh, is out now … Continue reading »…
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049 - Understanding the basics of drug development - Why it's taking so long and so much money
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46:42
By Cure CMD (Matty Manley & Megan Meyer)
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Open House Podcast
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Episode 180 | Randy Seidman + Milkwish
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2:00:32
Click the post for details on this episode! Welcome back to another episode of Open House. Randy Seidman here with another two hours of the grooviest beats. Great times last week playing with Dirty South at Sound in LA. Coming up in Feb, I’m playing in Berlin, Cologne and Hamburg in Germany… also keep an … Continue reading »…
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048 - Caring for the Caregivers - Angel Aid Cares, Cristol O'Loughlin
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47:09
By Cure CMD (Matty Manley & Megan Meyer)
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047 - Rasheera Dopson, Chronicling multiple rare diseases in “Beauty with a Twist”
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25:40
By Cure CMD (Matty Manley & Megan Meyer)
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Episode 179 | Randy Seidman (at AFTB in Bali) + Galestian
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2:00:01
Click the post for details on this episode! Hello everyone! Randy here, back with another two hours of the grooviest beats. Hope you all had a happy holiday season. Great times last month playing around Southeast Asia. Coming up in January catch me at Sound in Hollywood with Dirty South and February in Berlin, Hamburg … Continue reading »…
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046 - Caitlin Parker, Child Life Specialists
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“If a teacher and a nurse combined into a career” - that’s how Caitlin Parker quickly describes her career if she only had 5 seconds to share with you her passion for Child Life mission and vision. Caitlin joined us for episode 039, The White Space, and is with us again to help families like ours, like hers, learn more about family-centered care an…
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Episode 178 | Randy Seidman + Sohmi
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2:01:21
Click the post for details on this episode! Hello everyone! Randy here, back with another two hours of the grooviest beats. Coming up in December I’m playing in Bali, Thailand and Malaysia, then back home for shows in San Diego and at Exchange in LA at the end of the month. The rising LA talent … Continue reading »…
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045 - Anticipatory Grief, Jennifer Siedman - Courageous Parents Network
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Jennifer Siedman, Patient Disease Outreach Coordinator at Courageous Parents Network, joins us to talk on the topic of: Anticipatory Grief - grief that occurs before death or grief that comes with feeling or confronting emotions in advance of an event (loved one’s birthday or anniversary of death). Jennifer and her family know this all too well - i…
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044 - Secondary grief explored, with Lyn & Kate Baier - Nemaline Myopathy community
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Greta is a typical 11-year-old 6th grader who wants to go to school dances and hang out at her friends’ homes, but what is different for Greta is that these experiences always include a parent or nurse to accompany her. Greta lives with Nemaline Myopathy, cruises in a power chair, breathes via a tracheostomy, and needs suction to ensure her airway …
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Episode 177 | Randy Seidman + Eric Sharp
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2:00:08
Click the post for details on this episode! Hello everyone! Randy here, back with another two hours of the grooviest beats. Fun times last month playing Full Moon on the island of St. Martin in the Caribbean. Coming up this month I’m playing in Portland, Seattle and Brooklyn. Also my latest release wtih Da Fresh, … Continue reading »…
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043 - We Carry Kevan… with author, Kevan Chandler
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As an introduction to our November book club, Kevan Chandler sat down with us for this coffee house interview about his book “We Carry Kevan”, an inspiring story of camaraderie of six friends taking a journey through Europe without Kevan’s wheelchair - just a backpack to carry him in. Kevan shared with us his motivations to write this book, why he …
A six-year old “honorary astronaut” has his wish come true - to meet a real-life astronaut, Anne McClain, from his hometown, Spokane, Washington. Listen to this podcast episode to learn how the power of a tribe made crowdsourcing work to make a hometown wish happen for Matty’s son in less than 24 hours. Matty shares how her son, Matthew, has become…
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041 - Live BEYOND expectations...not live TO the expectations - Rachel Alvarez
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Rachel Alvarez's episode 2 of 4 in her series with us (her 1st episode is ep. 033).... When faced with adversity (and at times, multiple layers of it) individuals can find themselves struggling to see past today while trying to look toward new possibilities. Rachel shares with listeners her personal “success” story that had its share of adversity, …
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Episode 176 | Randy Seidman + Biscuit
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Click the post for details on this episode! Hello everyone! Randy here, back with another two hours of the grooviest beats. BPM in Portugal was awesome, also fun times this past week playing with James Zabiela in LA. Playing on the Caribbean island of St. Martin this month, followed by November dates in the States, … Continue reading »…
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040 - Bench to Bedside: Genetic Counseling (Casie Genetti, CGC)
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Diligent work performed at a laboratory bench results in advances in the healthcare industry and benefits for the patients it serves. Translation of science to the community through medical interventions delivered to the patient populations is the job of researchers and clinicians - but the job of a Certified Genetic Counselor takes that a step fur…
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039 - The White Space {Caitlin Parker}
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Caitlin Parker, a North Carolina mama to a sweet young daughter with LAMA2, does a little bit of a tongue in cheek rant on accessible parking - but also educates listeners on laws that apply to rights users of the accessible spaces. She reminds us of a great quote she found on www.myparkingsign.com: “we prefer the phrase ‘accessible parking’ rather…
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Episode 175 | Randy Seidman + Anakim
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Click the post for details on this episode! Hello everyone! Randy here, back with another two hours of the grooviest beats. Exciting month ahead, this weekend I’m back at Derbycon in Louisville, and at the end of the month at Clinic in Hollywood with James Zabiela. Also looking forward to popping by BPM in Portugal. … Continue reading »…
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038 - I love it when a plan comes together
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Matty and Megan talk about SciFam take-aways and how they were processing information they valued from the conference, and further - how to communicate it to their medical teams. They then chat on strategies they (and listeners) can use to ensure the science is translated through patient communities and then activated to care teams. One action item…
Matty and Megan find themselves in a bit of a pity party (or stuck in a rut) lately. While occasionally pity parties can comfort you, sometimes you keep asking yourself what did you do to deserve whatever it is that made you so sad in the first place. Through the course of this episode, Matty and Megan have decided to stop apologizing for disabilit…
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Episode 174 | Randy Seidman + D-Nox & Beckers
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Click the post for details on this episode! Hello everyone! Randy here, fresh back from an awesome tour of Australia. Today’s episode features some of my favorite recent tunes followed by the exclusive airing of D-Nox & Beckers recent set at Lighthouse Festival in Croatia. Turn it up! Randy Seidman’s Website – Click HERE Randy … Continue reading »…
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036 - Connecting rare disease individuals to researchers - Patient Registry & Sanford CoRDS
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Rare disease individuals, including those with neuromuscular disorders, are often longing for a treatment, and hopefully one day… a cure. When planning a clinical trial, it is important for researchers to find enough eligible participants that can be contacted quickly. That’s where a patient registry (or database) is critical - there the patients’ …
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035 - Always on the move - Patrick Veltri
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“Life is about how you react to situations and the decisions you make” - insightful words from Patrick Veltri, a Canisius College student, living in Buffalo, NY who has taken his passion of sports and sports management and turned it into a future career path. Patrick, a Merosin Deficient CMD (LAMA 2) community member, teaches listeners to be positi…
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Episode 173 | Randy Seidman + Presa (at Sound, LA)
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Click the post for details on this episode! Hello everyone! Randy here, coming to you from Australia, with shows this week in Brisbane at Family, Sydney at Home, and Melbourne at Prince Bandroom. Today’s episode features some of my favorite recent tunes followed by the debut of my homey Presa’s recent live recording at Sound … Continue reading »…
There is only so much a Mama Bear can take when she is defending her cubs…. and why do special needs or medically complex parents feel the need to defend? Fight or flight? In this episode, Matty and Megan explore recent experiences that have evoked a full on mama bear response - and also what each are doing to try and discern when to let the mama b…
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033 - Epic Rachel Alvarez, Cure CMD's Executive Director | Rachel’s series - Part 1
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28:07
If you are a believer in fate, this episode is for you! Listen as Cure CMD’s Executive Director, Rachel Alvarez, tells her own personal story of how someone coming into her life at the most unexpected time was not by accident (as it turns out), and would actually set the trajectory for her future career path. Rachel explains how and when Cure CMD f…
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Episode 172 | Randy Seidman + Florian Kruse
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2:00:10
Click the post for details on this episode! Welcome back to Open House! Randy Seidman here, with another two hours of the grooviest beats. Today’s episode features some of my favorite recent tunes followed by an exclusive session with the German heavyweight, Florian Kruse. Looking forward to shows next month in Denver, Colorado as well … Continue r…
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032 - Not looking in the rear view mirror, Brendan Sullivan
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59:10
Cure CMD’s commitment is to create community for ALL subtypes - we’ve got another story from the dystroglycanopathy, cognitively impaired community. In this episode, Brendan Sullivan shares the story of his two beautiful daughters with Walker-Warburg Syndrome that ultimately took their lives - and then how he’s not looked in the rear view mirror si…
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031 - Wheelchair Rapunzel...Inclusion, self-love & body positivity with Instagram Blogger, Alex Dacy
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Deep dive into learning more about Instagram blogger Alex Dacy, also known as Wheelchair Rapunzel, as she discusses her Spinal Muscular Atrophy (SMA) diagnosis, path to becoming a blogger and social media influencer, as well as how she found herself in the advocacy, inclusion, self-love, and body positivity space while also an apparel merchandiser.…
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Episode 171 | Randy Seidman (at Sound Nightclub in LA) + Kuma
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Click the post for details on this episode! Welcome back to Open House! Randy Seidman here, with another two hours of the grooviest beats. Great times in Europe last month, at Ministry of Sound in London and Life Park in Istanbul. Today’s episode features a portion of my recent set at Sound Nightclub in LA … Continue reading »…
The Rare Action Network (RAN), powered by the National Organization for Rare Disorders (NORD), is a grassroots advocacy effort that serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across th…
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029 - If mama ain’t happy…. Respite, taking a break, mom vacation
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The demands of providing 24/7 care can be physically and emotionally draining for caregivers. Without breaks to maintain their own mental and physical wellness, caregivers can experience burnout. With no trusted, competent, caring person to turn to for respite, it can be difficult to maintain a household, run errands, exercise, or even take a showe…
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Episode 170 | Randy Seidman + Gabriel Rocha aka DJ PP
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Click the post for details on this episode! Welcome back to Open House! Randy Seidman here, with another two hours of the grooviest beats. Great times at Sound Nightclub in Hollywood this past weekend, and I recorded the set for a future episode! Up this month I’m playing in the UK at Rebellion in Manchester, … Continue reading »…
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028 - Local Advocacy, Mary McDirmid 100% In
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"What can I do?" After diagnosis many of us feel lost and helpless. We want to take action but don't know how. We want to feel like we are fighting back in some way. Mary McDirmid is doing just this in the Spokane community. After her daughter Ruthie was diagnosed with Tuberous Sclerosis Complex (TSC) Mary has been 100% in on making Spokane Washing…
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027 - Rawness of a newly diagnosed family
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On a weekly basis we hear of a family that enters the world of a diagnosis they didn’t expect (or maybe they did)....either way, it’s a unique world full of challenges. In this episode we visit with Lindsey Eubanks, as she explores the raw emotions she felt and a few tips for surviving the first year. Their spunky son, Lucas, was diagnosed one year…
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Episode 169 | Randy Seidman + No Pants Party
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Click the post for details on this episode! Welcome back to Open House! Randy Seidman here, excited to bring you another two hours of the grooviest beats. Great times in San Francisco and Portland last week. Up this month I’m playing in Philadelphia at Liaison Room and a couple shows in Austin for SXSW. Also … Continue reading »…
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026 - “Dads Take Over” Two Rare Daddy Bears
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When the moms are away in Washington D.C. for Rare Disease Week on Capitol Hill, the dads are going to play…..The dads decided to take over the microphone and record their perspectives of being CMD parents and what it has been like to watch their wives host a podcast. Find Two Rare Mama Bears on Facebook, Instagram & Twitter: 2raremamabearsListen t…
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025 - Current state of CMD research with Cure CMD Scientific Director
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Leading into Rare Disease Week on Capitol Hill when a team of more than a dozen CMD community members from around the U.S. will advocate for policies, greater funding, and support for CMD...we thought it would be good to check in with Gustavo Dziewczapolski, PhD, Cure CMD Scientific Director, on the current state of CMD research. Quick find for eac…
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Episode 168 | Randy Seidman + Aaron Bordas
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Click the post for details on this episode! Welcome back to Open House! Randy Seidman here, excited to bring you another two hours of the grooviest beats. Great times touring the States in January. This month I’m excited to play in Portland, Oregon and San Francisco. Also my latest tune on Easy Summer, called Beyond … Continue reading »…
Having a sibling with special needs is a reality many for many children, impacting the whole family. It’s a family dynamic that can both strengthen and stress even the tightest of bonds. Siblings of someone with special needs are more empathetic, more responsible and more resilient - but frequently they shoulder tremendous burdens that are not ofte…
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023 - Adaptive clothing...one of our own is revolutionizing the industry in a BIG way!
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As a leader in the fashion industry for 20+ years, in 2014 Mindy Scheier found herself on a journey discovering the huge need for adaptive clothing when her then 8 year son, Oliver, expressed the daily act of getting dressed and buttoning jeans was too hard and setting him apart from his peers. Oliver was diagnosed a few years prior with a rare for…
