show episodes
 
Exploring all things genetics. Cambridge University Alumnus and current CEO of Sano Genetics Dr Patrick Short analyses the science, interviews the experts and helps share the stories of people who have been personally affected by genetic conditions. To take part in the latest research studies mentioned in this podcast please visit sanogenetics.com/research
 
Living With explores what it’s like to live with a chronic health condition. Health Union integrates the power of human connection and technology, uniting people in the shared experiences of life with chronic health conditions. Advocates from different Health Union communities are interviewed, sharing how they have learned to cope with trying symptoms and treatments.
 
As a Crohns patient, sometimes life gets tough in the health stakes. Yet if I tweak my diet, I can often feel better. Research has taught me so much and I would like to share some of my tips with you as well as letting you feel you are not alone! Sharing stories of life and updates on what is going on too! See my blog Lusher Life Nutrition http://www.louiseusher.co.uk http://www.twitter.com/louiseusher
 
3mdiagnostics is soon launching 'daily mcq poll with Sunday diagnostic tests ' The mcq discussions will be integrated with online live discussions| we also offer Internal Medicine PODCAST for U.S resident physicians | A modern platform that delivers an exciting approach to apply , consolidate and conceptualize Internal Medicine in the most precise way ever to be established | The concepts and content discerned for MCQ's, clinical case practice as well as spot diagnosis , algorithm and concep ...
 
Loading …
show series
 
Hello, and welcome to this week's episode of The Ankylosing Spondylitis Podcast. My name is Jayson Sacco and I'm your host and I hope everybody is doing fantastic. I wanted to go over a couple of emails that I got. Both of them are really cool. The first one is from Alex Levine and Alex has a fitness channel and in the shownotes I’ll have a link to…
 
This week we talk to Steff Di Pardo, a patient advocate and writer who has Ankylosing Spondylitis - which is a chronic autoimmune disease. She talks about the long road to diagnosis, how she started opening up about her condition to friends and family on Facebook, and her decision to bring her refreshing honesty to a wider audience with her blog, T…
 
Kat Arney returns to the podcast to discuss her new book ‘Rebel Cell’, which takes an evolutionary look at cancer. Kat talks about the book beginning as an idea while working on her PhD at Cancer Research UK to spending the last few years researching, conducting interviews and undertaking the book writing process. Patrick and Kat also discuss the n…
 
Hello, and welcome to this week's episode of The Ankylosing Spondylitis Podcast. How is everyone doing? Here in Michigan where I'm located, summer's unfortunately coming to an end and we're moving into fall and for me and my Ankylosing Spondylitis, the storm systems that come through on a much more regular basis, the wet cold that's coming at the e…
 
Welcome to this week's episode of The Ankylosing Spondylitis Podcast. I'm very excited to have on this guest this week. I think it's awesome to bring in fellow people with Ankylosing Spondylitis to not only hear their story, but also learn from them about what they're doing to deal with the pain deal with Ankylosing Spondylitis. And not feel so iso…
 
Hello, and welcome to this week's episode of The Ankylosing Spondylitis Podcast. I hope everybody is doing fantastic, It's been just amazing weather here as we wrap up the summer, can't believe I'm saying that. I am look forward to moving into the fall. I want to take care of a couple of housekeeping things before we get started. If I could get eve…
 
We talk to Peter about Nightingale Health's work with the UK Biobank, including recent research that shows their blood test could be used predict severe COVID19 well before onset of symptoms. The company's vision includes not just population-scale research like the UKBiobank, but creating a system that is focused on prevention and early detection r…
 
Hello, and welcome to this week's episode of The Ankylosing Spondylitis Podcast. I hope everyone is doing fantastic. This week's message is all about ways to distress yourself and you know how, to hopefully put yourself in a better position with your Ankylosing Spondylitis and your mental state. This last week has been a bit of a challenge as my fa…
 
Hello, and welcome to today's episode of The Ankylosing Spondylitis Podcast. How's everybody doing? I can't believe this year is more than halfway over. It's flying by even as, as goofy as 2020 has been. The year is just flying right by today's episode going to be a little bit different. There's a website that I like, and I sign up to get notificat…
 
Sonya Abraham is a clinical senior lecturer in rheumatology and a research physician at Imperial College London. We talk to her about BAME representation in clinical research and about her rheumatology research, including the role of the microbiome, and what COVID19 researchers can learn from existing rheumatology research. We talk about why divers…
 
Hello, and welcome to today's episode of The Ankylosing Spondylitis Podcast. I'm really glad that you could join me today because we're going to have fun today, we're going to be combining some of my favorite subjects history, modern medicine, and a little bit of speculation mixed in. So stay tuned. This one should be a lot of fun. I've partnered u…
 
Tapoka Mkandawire is a PhD student in parasitology & genomics at the Wellcome Sanger Institute. She studies neglected tropical diseases, which affect hundreds of millions of people worldwide but aren't that well known in the UK. Tapoka talks about what’s causing the reducing rates of these diseases, and what role the gut microbiome plays in parasit…
 
Jayson: Welcome to this week's episode of The Ankylosing Spondylitis Podcast. Today I'm very excited because we're going to touch on a subject that I get a lot of requests and information about, and that is yoga, specifically yoga for people that have Ankylosing Spondylitis. And today I've got both Jamie Boder and Geoff Lindsay on. Jamie is an inst…
 
Keith McArthur is one of the parents re-writing the rules for research in rare disease. Keith is CEO of the CureGRIN foundation, a non-profit backed by the Chan-Zuckerberg Initiative. Keith and his co-founder Denise Rehner believe that patients hold the power to accelerate research and drive progress, and that a cure for GRIN Disorders is possible.…
 
Professor Sir Rory Collins, Founder and Chief Executive of the UK Biobank, talks to us this week about the origins of this world-changing project that has catalysed a wave of new discoveries in large part by levelling playing field in data access. In this inspiring conversation Professor Sir Rory Collins describes the 'if you build it, they will co…
 
Welcome to this week's episode of The Ankylosing Spondylitis Podcast. This week's topic is something has been a huge challenge for me this week fatigue. But first, I want to welcome the new listener from Guatemala, which marks the 95th country that the show has been downloaded in. And also, don't forget to head over to spondypodcast.com to sign up …
 
Hello, and welcome to this week's episode of The Ankylosing Spondylitis Podcast. This week I wanted to talk about chiropractic care. You know, that's probably one of the few topics that when brought up online will really can develop into some heated conversations about should you or should you not? And so I thought I'd take a little bit of a look a…
 
Andrea Ganna has been leading COVID19HG, a worldwide effort to understand the role that our genetics plays in COVID-19 infection and severity. In this episode, we discuss some of the group's findings so far and the origins of this initiative, which has now attracted hundreds of researchers from over 50 nations. Do you enjoy our podcasts? Would you …
 
Show Notes: Aerilyn Medina – Aerilyn has a small business where she teachs about inclusion and equity for people with disabilities, She also helps people with disabilities and their accessibility needs. Her website is oarcidservices.ca Her Instagram it's aeriekm17 for her facebook is Aerilyn Medina. Michelle Bell – Michelle has a Youtube channel wi…
 
Genomic data, is big data - so how do we actually make sense of this huge amount of data? And why should we use 'the cloud’ to store and analyse it? We discuss how the cloud enables faster, safer, and less expensive genomic data analysis, and what the future could look like when AI is used to analyse the vast amount of human genetic data being gene…
 
Hello and welcome to this episode of The Ankylosing Spondylitis Podcast. How is everyone doing? I hope everyone is having just a fantastic week. So if you're on my website spondypodcast.com, you'll notice a link on the main page called Buy Me A Coffee. And that's a link that I used for anybody that wants to provide, you know, a donation to help kee…
 
Hello and welcome to this episode of The Ankylosing Spondylitis Podcast. How's everybody doing here in the Northern Hemisphere, I'm in North America and we're having summer, the heats going and man, it feels really, really nice. I know for you in the southern hemisphere, the winter is kicked in. So in areas like Australia and so forth, you're getti…
 
Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast, I wanted to take care of a couple housekeeping items. First and foremost, I got a download the other day from the 91st country to have at least one download take place. And that was a download, a single one that came out of Iraq. So to whoever did that, I hope you enjoy the s…
 
This episode covers some of the dramatic changes in the field of medical research as a result of COVID19 making it unsafe for people to visit medical research facilities, and medical professional's time and efforts being redirected to fighting the new virus. The guests on the podcast are Paul Wicks, a digital health consultant and scientific adviso…
 
Hello, welcome to this episode of The Ankylosing Spondylitis Podcast. I hope this show finds everybody doing fantastic. I want to thank those people that went over to spondypodcast.com and signed up for the newsletter, I really appreciate that it's great to see the numbers growing. And, you know, I look forward to communicating with everybody throu…
 
Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast. Well, welcome back to the show. It's great to have everybody listening and I wanted to do a couple things right up front. First, I got a really great review I wanted to share with you that came in via podchaser (see link at end of notes) and you can find a link to podchaser i…
 
Why do some people have a severe response to COVID-19, and others seem to have no symptoms at all? Is the answer in our genes? This week we talk to Chris Wigley, the CEO of Genomics England and Interim SRO for Data-NHSX, and Dr Richard Scott, the clinical lead for rare disease at Genomics England and consultant clinical geneticist at Great Ormond S…
 
Jayson: Michael, welcome to this episode of the Ankylosing Spondylitis podcast. And based upon the introduction and what we're going to cover today, I may have to change that name at some point down the road. Welcome to the show. Michael Thank you, Jayson. And thank you for having me. And yes, there's certainly time to change terminology around our…
 
Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast. It's really hard to believe this is episode number 50 and I really never thought that I would get this far. Well, it's not a huge number of episodes, it's still kind of a milestone and that I didn't know what would happen when I started this, if anybody would even listen. So …
 
This week we talk about COVID19 and what it’s really like to have the virus. Talking to Adelina Chalmers, who first started experiencing symptoms 8 weeks ago - and was admitted to the hospital 6 weeks ago - talks about how it has been mis-sold as being just like the flu. Adelina is a podcaster and runs a consultancy called ‘The Geek Whisperer’ whic…
 
Jayson Sacco, Welcome to this episode of the Ankylosing Spondylitis podcast. Well, as many of you know, I started the show to just kind of be cathartic for myself and get some of my feelings about Ankylosing Spondylitis and how it affected me off of my chest, so to speak. But as I did it in the show gained popularity, and more and more listeners ca…
 
How is the diet going during lockdown in the UK? Come along with me on this walk...let's chat. My nutrition channel: http://www.youtube.com/motivweight Did you know I'm a keen writer as well as a blogger and creating these videos? http://www.louiseusher.co.uk Facebook: http://www.facebook.com/louiseusherwritesTwitter: http://www.twitter.com/louiseu…
 
Jayson Sacco: Welcome to this episode of The Ankylosing Spondylitis Podcast. I can't tell you how excited I am today to have Dr. Grace Levy-Clarke on today. The reason is that she is an ophthalmologist based in the Tampa Florida area. And one of the things that affects not only myself and I have the damage in my right eye to prove it, but many of u…
 
What’s it like having a disease so rare, you’re misdiagnosed? Or you’re the only one in the whole of the UK to have it? David Rose is a rare disease advocate, an ambassador for Great Ormond Street Hospital, and part of the team at Rare Revolution magazine, an online magazine dedicated to rare disease patients and their voices. He’s the only known p…
 
Loading …

Quick Reference Guide

Copyright 2020 | Sitemap | Privacy Policy | Terms of Service
Google login Twitter login Classic login