A Diagnosis Means Everything...Or Does It? - Betty's Story (BUB #1)


Manage episode 110616909 series 89547
By Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio streamed directly from their servers.

Host Sarah Evans tells the story of her daughter Betty and how they arrived at her diagnosis of Potocki-Shaffer Syndrome, an extremely rare genetic disorder.

22 episodes available. A new episode about every 15 days averaging 26 mins duration .