Manage episode 119876181 series 89547
Courtney is the mom to Connor and Brenna. Brenna has a rare skin disorder called Harlequin Ichthyosis. Courtney shares her story of Brenna's birth, diagnosis, and the ins and outs of Brenna's condition. We chat about balancing special needs with regular needs, celebrating beauty and how to respectfully approach a stranger who is different. Because of Brenna's condition her skin appears red and dry - kind of like she has a really bad sunburn. She has to stay lathered in Aquaphor to keep her skin moist. Brenna's different appearance attracts a lot of attention.
After nearly four years of being Brenna's mom, Courtney has learned some valuable lessons about how to best approach those with differences. If you've ever wondered what to do when your young child loudly comments on someone who is different, this episode is for you!
Learn more about Harlequin Ichthyosis
Follow Courtney's blog, Blessed By Brenna
22 episodes available. A new episode about every 15 days averaging 26 mins duration .