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CF Patient Advocacy - eCystic Fibrosis Review bonus episode

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Manage episode 305449426 series 2065653
Content provided by DKBmed. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by DKBmed or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Please note, this podcast is not accredited and does not provide continuing education credit.

eCystic Fibrosis Review Program Director Donna Peeler, RN, is a Clinical Nurse at the Johns Hopkins Cystic Fibrosis Center in Baltimore. Recently she interviewed Ella Balasa, an adult with cystic fibrosis in Richmond Virginia, who has been working in CF Patient Advocacy.

Their discussion exchange focused on what clinicians and their patients with CF, as well as the parents of pediatric patients with CF, can do to help develop the kind of effective shared-decision making that leads to improved outcomes. Their discussion, which you can hear right here in just a moment, is also available in video format at the CF Education Center Resource Center’s Curriculum Builder, a program supported by Vertex Pharmaceuticals.



Hosted on Acast. See acast.com/privacy for more information.

  continue reading

205 episodes

Artwork
iconShare
 
Manage episode 305449426 series 2065653
Content provided by DKBmed. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by DKBmed or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Please note, this podcast is not accredited and does not provide continuing education credit.

eCystic Fibrosis Review Program Director Donna Peeler, RN, is a Clinical Nurse at the Johns Hopkins Cystic Fibrosis Center in Baltimore. Recently she interviewed Ella Balasa, an adult with cystic fibrosis in Richmond Virginia, who has been working in CF Patient Advocacy.

Their discussion exchange focused on what clinicians and their patients with CF, as well as the parents of pediatric patients with CF, can do to help develop the kind of effective shared-decision making that leads to improved outcomes. Their discussion, which you can hear right here in just a moment, is also available in video format at the CF Education Center Resource Center’s Curriculum Builder, a program supported by Vertex Pharmaceuticals.



Hosted on Acast. See acast.com/privacy for more information.

  continue reading

205 episodes

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