Personally connecting the dots. All of them. Benjamen Walker’s Theory of Everything is a proud member of Radiotopia, from PRX. Learn more at radiotopia.fm.
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S2E21. World of Mae
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Manage episode 199262597 series 1226361
Content provided by Gregory C. Del Duca, Jr. and Driven 2 Drink. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Gregory C. Del Duca, Jr. and Driven 2 Drink or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Today you'll meet Ada.
I'll allow Ada's Mom to tell you a bit about Ada:
Ada has Phelan-McDermid Syndrome: very rare genetic disorder caused by deletion/mutation of shank 3 gene. Only 1700 known cases but believed to be highly under diagnosed. No cure and life long symptoms include: little to no verbal abilities, hypotonia (low muscle tone), intellectual disabilities, PICA, seizures, autism symptoms, GI issues, sleep difficulties Ada is our angel baby magical fairy mermaid who marches to the beat of her own drum and teaches many wise lessons along the way. She will never be defined by pms rather she rises above her challenges through her love of authenticity, music, water, cuddles and awesome people. World of Mae (WOM) was created in her honor...follow Ada’s journey on Facebook or Instagram: @fairystrong. WOM is committed to always celebrate people of ALL abilities while spreading hope, understanding and awareness through Ada’s fairy beauty;)286 episodes
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Archived series ("Inactive feed" status)
When?
This feed was archived on June 03, 2021 01:08 (
Why? Inactive feed status. Our servers were unable to retrieve a valid podcast feed for a sustained period.
What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.
Manage episode 199262597 series 1226361
Content provided by Gregory C. Del Duca, Jr. and Driven 2 Drink. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Gregory C. Del Duca, Jr. and Driven 2 Drink or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Today you'll meet Ada.
I'll allow Ada's Mom to tell you a bit about Ada:
Ada has Phelan-McDermid Syndrome: very rare genetic disorder caused by deletion/mutation of shank 3 gene. Only 1700 known cases but believed to be highly under diagnosed. No cure and life long symptoms include: little to no verbal abilities, hypotonia (low muscle tone), intellectual disabilities, PICA, seizures, autism symptoms, GI issues, sleep difficulties Ada is our angel baby magical fairy mermaid who marches to the beat of her own drum and teaches many wise lessons along the way. She will never be defined by pms rather she rises above her challenges through her love of authenticity, music, water, cuddles and awesome people. World of Mae (WOM) was created in her honor...follow Ada’s journey on Facebook or Instagram: @fairystrong. WOM is committed to always celebrate people of ALL abilities while spreading hope, understanding and awareness through Ada’s fairy beauty;)286 episodes
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Personally connecting the dots. All of them. Benjamen Walker’s Theory of Everything is a proud member of Radiotopia, from PRX. Learn more at radiotopia.fm.
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Barry first found music when he borrowed his sister's record collection when he was about eight and was hooked. When Caroline started it was a new beginning, and he listened to all the stations, but Caroline was his favourite by far. Later he became a singer in a band, then started doing discos when he was 18. He joined Caroline in 1977, touring the country with the Caroline Roadshow for 10 years, having great fun. Barry helped with tender trips and worked on the Ross Revenge in '84 and '85. ...
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