Update From The Rare and Undiagnosed Communities


Manage episode 153065871 series 1080258
By Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio streamed directly from their servers.
Mary Elizabeth Parker returns to update listeners on the what's happening in the world of rare and undiagnosed diseases. She has spent time at NIH and with the leading researchers in the area of genetics and rare diseases. She will also update us on her organization U R Our Hope. Also, appearing on the show is Deanna who tell us her story of searching for a diagnosis.

71 episodes available. A new episode about every 23 days averaging 44 mins duration .