21. Tracy Shaw, A Mother on a Mission to Find Answers for a Daughter with CVID

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In pursuit of answers for her daughter, Tracy Shaw went on a diagnostic odyssey. Thanks to Tracy’s research, using data from Madison’s many hospitalizations and visits with 21 doctors, Madison was diagnosed with common variable immune deficiency (CVID) at age 13. On today’s episode, Tracy and I talk about the judgement she faced as a single parent and caregiver, why she was inspired to tell her story and work for change, and how she navigates her role as a safety net for Madison.

Learn more about Tracy and check out the show notes here.

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54 episodes available. A new episode about every 7 days averaging 40 mins duration .