21. Tracy Shaw, A Mother on a Mission to Find Answers for a Daughter with CVID


Manage episode 222029394 series 2413114
By Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio streamed directly from their servers.

In pursuit of answers for her daughter, Tracy Shaw went on a diagnostic odyssey. Thanks to Tracy’s research, using data from Madison’s many hospitalizations and visits with 21 doctors, Madison was diagnosed with common variable immune deficiency (CVID) at age 13. On today’s episode, Tracy and I talk about the judgement she faced as a single parent and caregiver, why she was inspired to tell her story and work for change, and how she navigates her role as a safety net for Madison.

Learn more about Tracy and check out the show notes here.

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