Manage episode 221068527 series 2413114
When Lucy Wiese was three years old, she was diagnosed with a rare disease called Job’s Syndrome (or Hyper IgE Syndrome). For Jan Wiese, Lucy’s mom, that was the beginning of her journey as a full-time caregiver. On today’s episode, Jan and I talk about the trajectory of her daughter’s serious illness and the experimental treatment Lucy received at the NIH, how she and her husband have navigated caregiving for Lucy while also parenting their son Joel, and her hopes for Lucy’s future and her own.
Learn more about Jan and check out the show notes here.
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47 episodes available. A new episode about every 7 days averaging 40 mins duration .