Artwork

Content provided by Mendelspod Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Mendelspod Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Player FM - Podcast App
Go offline with the Player FM app!

Connecting the Dots for a Community of Rare Disease Patients: Terri Klein, MPS Society

 
Share
 

Archived series ("Inactive feed" status)

When? This feed was archived on August 29, 2022 10:12 (1+ y ago). Last successful fetch was on July 07, 2022 16:01 (1+ y ago)

Why? Inactive feed status. Our servers were unable to retrieve a valid podcast feed for a sustained period.

What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.

Manage episode 220745176 series 1348337
Content provided by Mendelspod Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Mendelspod Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
The MPS Society is a rare organization. Not just because it is an umbrella for the rare diseases that have in common lysosomal storage malfunction. But because it is one of the largest rare disease organizations in the world. Terri Klein is the CEO leading the MPS Society. She says the group has over three thousand members on their roster. This brings some strength and resources in an area where low numbers intensifies an uphill battle.
  continue reading

398 episodes

Artwork
iconShare
 

Archived series ("Inactive feed" status)

When? This feed was archived on August 29, 2022 10:12 (1+ y ago). Last successful fetch was on July 07, 2022 16:01 (1+ y ago)

Why? Inactive feed status. Our servers were unable to retrieve a valid podcast feed for a sustained period.

What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.

Manage episode 220745176 series 1348337
Content provided by Mendelspod Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Mendelspod Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
The MPS Society is a rare organization. Not just because it is an umbrella for the rare diseases that have in common lysosomal storage malfunction. But because it is one of the largest rare disease organizations in the world. Terri Klein is the CEO leading the MPS Society. She says the group has over three thousand members on their roster. This brings some strength and resources in an area where low numbers intensifies an uphill battle.
  continue reading

398 episodes

All episodes

×
 
Loading …

Welcome to Player FM!

Player FM is scanning the web for high-quality podcasts for you to enjoy right now. It's the best podcast app and works on Android, iPhone, and the web. Signup to sync subscriptions across devices.

 

Quick Reference Guide