Epilepsy Awareness Month


Manage episode 155144663 series 1148013
By Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio streamed directly from their servers.
A webinar dedicated to Epilepsy Awareness Month. Tom Stanton is the Executive Director of the Danny Did Foundation, an organization inspired by his own nephew Danny who was lost shortly before his fifth birthday to Sudden and Unexpected Death in Epilepsy (SUDEP). The Danny Did Foundation works to advance public awareness of SUDEP, enhance the SUDEP communication model between medical professionals and families affected by epilepsy, and mainstream seizure detection and prevention devices that may assist in preventing seizure-related deaths. Glenna Steele is the current president of the Glut1 Deficiency Foundation, a family organization dedicated to people living with epilepsy caused by Glut1 deficiency. The Glut1 Deficiency Foundation educates others about Glut1 Deficiency and its primary treatment (ketogenic diet), increasing awareness and advocacy for this condition, and supporting research that is working toward a cure.

24 episodes available. A new episode about every 18 days averaging 41 mins duration .