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Helping Rare Disease Patients Navigate the World of Information

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Manage episode 173507854 series 60790
Content provided by RARECast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by RARECast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
The Internet has opened up a world of information to rare disease patients, but it can often be hard to access, understand, or evaluate. Raremark is working to keep rare disease patients up to date with the latest information about their conditions through its online community built around disease channels. We spoke to Raremark founder Julie Walters about the website, how it curates information, and how its ultimately seeking to empower rare disease patients to make better decisions about their own care.
  continue reading

510 episodes

Artwork
iconShare
 
Manage episode 173507854 series 60790
Content provided by RARECast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by RARECast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
The Internet has opened up a world of information to rare disease patients, but it can often be hard to access, understand, or evaluate. Raremark is working to keep rare disease patients up to date with the latest information about their conditions through its online community built around disease channels. We spoke to Raremark founder Julie Walters about the website, how it curates information, and how its ultimately seeking to empower rare disease patients to make better decisions about their own care.
  continue reading

510 episodes

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