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The life of a Spoonie with Saidee Wynn

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Archived series ("Inactive feed" status)

When? This feed was archived on July 31, 2021 10:07 (2+ y ago). Last successful fetch was on March 24, 2020 21:36 (4y ago)

Why? Inactive feed status. Our servers were unable to retrieve a valid podcast feed for a sustained period.

What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.

Manage episode 192527225 series 1253531
Content provided by The Knowbodies Podcast, Nick Bracciante, PT, DPT, and Will Boyd. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Knowbodies Podcast, Nick Bracciante, PT, DPT, and Will Boyd or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

The world of Saidee Wynn, taken from her blog spooniewarrior

"I didn’t choose the Spoonie life, the Spoonie life chose me.

If you aren’t sure what a Spoonie is, I urge you to look up the Spoon Theory. It’s a pretty awesome story that describes life with a chronic illness. Energy = Spoons (to sum it up in a super short way that doesn’t do the actual story justice…). It has become a symbol for those of us with chronic illnesses. Basically, we never have enough spoons.

I am currently fighting POTS, EDS, PTSD, and many other letter groupings. I feel like I’m out there trying to capture the entire alphabet! My symptoms from these illnesses have rendered me disabled and dramatically changed the way I interact with the world. They have also forced me to redefine myself in my current roles in life.

I am the mother of a super spunky, energetic little girl. I also have an amazing partner in life, who is absolutely my rock. You’ll be learning more about them as you follow my blog, because they will obviously be the subjects of many posts."

Check out Saidee's incredible blog, recommendations and advice on her website and social media:

Spooniewarrior

and "spooniewarrior" on facebook, instagram and twitter!

Show Notes:

  • Saidee is the author of spoonwarrior.com - all things chronic illness and the journey of healthcare
  • EDS - Ehlers Danlos syndrome
  • Navigating healthcare with persistent symptoms
  • The tipping point of chronic pathology
  • Where do people really learn and connect over their health journeys?
  • Why medical providers should not completely divide people from their diagnosis
  • What exactly is a spoon? And what about a spoonie?
  • Whats it like balancing the process of pregnancy and managing EDS?
  • “Ive heard of this before, but its not very common”
  • The biggest factor in a successful healthcare relationship - “If a doctor believes you”
  • Are chronic diseases “solvable” or “curable”

Keep your eyes peeled for Saidee’s upcoming blog posts, novels and more!

  continue reading

135 episodes

Artwork
iconShare
 

Archived series ("Inactive feed" status)

When? This feed was archived on July 31, 2021 10:07 (2+ y ago). Last successful fetch was on March 24, 2020 21:36 (4y ago)

Why? Inactive feed status. Our servers were unable to retrieve a valid podcast feed for a sustained period.

What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.

Manage episode 192527225 series 1253531
Content provided by The Knowbodies Podcast, Nick Bracciante, PT, DPT, and Will Boyd. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Knowbodies Podcast, Nick Bracciante, PT, DPT, and Will Boyd or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

The world of Saidee Wynn, taken from her blog spooniewarrior

"I didn’t choose the Spoonie life, the Spoonie life chose me.

If you aren’t sure what a Spoonie is, I urge you to look up the Spoon Theory. It’s a pretty awesome story that describes life with a chronic illness. Energy = Spoons (to sum it up in a super short way that doesn’t do the actual story justice…). It has become a symbol for those of us with chronic illnesses. Basically, we never have enough spoons.

I am currently fighting POTS, EDS, PTSD, and many other letter groupings. I feel like I’m out there trying to capture the entire alphabet! My symptoms from these illnesses have rendered me disabled and dramatically changed the way I interact with the world. They have also forced me to redefine myself in my current roles in life.

I am the mother of a super spunky, energetic little girl. I also have an amazing partner in life, who is absolutely my rock. You’ll be learning more about them as you follow my blog, because they will obviously be the subjects of many posts."

Check out Saidee's incredible blog, recommendations and advice on her website and social media:

Spooniewarrior

and "spooniewarrior" on facebook, instagram and twitter!

Show Notes:

  • Saidee is the author of spoonwarrior.com - all things chronic illness and the journey of healthcare
  • EDS - Ehlers Danlos syndrome
  • Navigating healthcare with persistent symptoms
  • The tipping point of chronic pathology
  • Where do people really learn and connect over their health journeys?
  • Why medical providers should not completely divide people from their diagnosis
  • What exactly is a spoon? And what about a spoonie?
  • Whats it like balancing the process of pregnancy and managing EDS?
  • “Ive heard of this before, but its not very common”
  • The biggest factor in a successful healthcare relationship - “If a doctor believes you”
  • Are chronic diseases “solvable” or “curable”

Keep your eyes peeled for Saidee’s upcoming blog posts, novels and more!

  continue reading

135 episodes

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