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Expert Tips for Becoming a Leading Voice in Patient Advocacy with Fibromyalgia Patient Advocate Kristal Kent

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Manage episode 418781150 series 2318186
Content provided by Understanding Autoimmune. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Understanding Autoimmune or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
In recognition of Fibromyalgia Awareness Month, the latest episode of the Autoimmune Hour features host Sharon Sayler and guest Kristal Kent, an army veteran and fibromyalgia advocate. Kristal shares her self-advocacy journey and emphasizes the importance of raising awareness for invisible illnesses. She discusses how her personal experience with fibromyalgia led her to become an advocate for legislative and social media attention. Kristal also highlights
• the need for more research and better representation of invisible illnesses.
• the importance of self-education, tracking symptoms, and advocating for one’s health,
• the necessity for inclusivity in advocacy, representing all affected demographics, including men,
Lastly, Kristal inspires others to find creative ways to support their chosen cause and much more...
More About Our Guest: Kristal Kent is an Army Veteran living with Fibromyalgia. Through her journey, Kristal identified the lack of support, healthcare options, and education for those living with Fibromyalgia, especially Veterans. To address the gap in healthcare and community support, Kristal created the initiatives “The Fibromyalgia Pain Chronicles” and “Veteran Voices For Fibromyalgia” to address the inequities in healthcare along with engaging in VA Policy Advocacy, Legislative Advocacy, and Systems Advocacy to emote positive change for those living with Fibromyalgia.
Kristal previously served as a Board of Trustee for the Fibromyalgia Care Society of America and the WEGO Health Patient Advisory Board and participated on the Cleveland Clinic’s Patient Panel. Kristal is also a member of the Society For Participatory Medicine, WEGO Health’s Patient Leader Network, a Co-op member of Savvy Cooperative, and a member of the American Legion. You can find more at www.veteranvoicesforfibromyalgia.com and great videos with Kristal at www.youtube.com/@thefibromyalgiapainchronicles
Share this link with your family and friends: www.understandingautoimmune.com/Advocate_2024

* Your host is not a doctor nor a medical professional. Your host, guests, and all medical professionals appearing on the show share opinions only during our presentation. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.
©2024 Sharon Sayler and UnderstandingAutoimmune.com
If you’ve listened to the show, you know it’s what my friends call my irrational passion... Please help us continue to offer help and hope for those with autoimmune and long-term health challenges by supporting The Autoimmune Hour podcast: https://www.spreaker.com/podcast/the-autoimmune-hour--2935987/support.
  continue reading

457 episodes

Artwork
iconShare
 
Manage episode 418781150 series 2318186
Content provided by Understanding Autoimmune. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Understanding Autoimmune or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
In recognition of Fibromyalgia Awareness Month, the latest episode of the Autoimmune Hour features host Sharon Sayler and guest Kristal Kent, an army veteran and fibromyalgia advocate. Kristal shares her self-advocacy journey and emphasizes the importance of raising awareness for invisible illnesses. She discusses how her personal experience with fibromyalgia led her to become an advocate for legislative and social media attention. Kristal also highlights
• the need for more research and better representation of invisible illnesses.
• the importance of self-education, tracking symptoms, and advocating for one’s health,
• the necessity for inclusivity in advocacy, representing all affected demographics, including men,
Lastly, Kristal inspires others to find creative ways to support their chosen cause and much more...
More About Our Guest: Kristal Kent is an Army Veteran living with Fibromyalgia. Through her journey, Kristal identified the lack of support, healthcare options, and education for those living with Fibromyalgia, especially Veterans. To address the gap in healthcare and community support, Kristal created the initiatives “The Fibromyalgia Pain Chronicles” and “Veteran Voices For Fibromyalgia” to address the inequities in healthcare along with engaging in VA Policy Advocacy, Legislative Advocacy, and Systems Advocacy to emote positive change for those living with Fibromyalgia.
Kristal previously served as a Board of Trustee for the Fibromyalgia Care Society of America and the WEGO Health Patient Advisory Board and participated on the Cleveland Clinic’s Patient Panel. Kristal is also a member of the Society For Participatory Medicine, WEGO Health’s Patient Leader Network, a Co-op member of Savvy Cooperative, and a member of the American Legion. You can find more at www.veteranvoicesforfibromyalgia.com and great videos with Kristal at www.youtube.com/@thefibromyalgiapainchronicles
Share this link with your family and friends: www.understandingautoimmune.com/Advocate_2024

* Your host is not a doctor nor a medical professional. Your host, guests, and all medical professionals appearing on the show share opinions only during our presentation. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.
©2024 Sharon Sayler and UnderstandingAutoimmune.com
If you’ve listened to the show, you know it’s what my friends call my irrational passion... Please help us continue to offer help and hope for those with autoimmune and long-term health challenges by supporting The Autoimmune Hour podcast: https://www.spreaker.com/podcast/the-autoimmune-hour--2935987/support.
  continue reading

457 episodes

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