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Childhood Cancer Talk Radio promotes Awareness of this very real and prevalent affliction, providing a forum for conversation and advocacy in a growing community of affected families, de-mystification of the experience with personal stories, information and resources. Let us be your voice. We aim to help people connect and support one another, and be a voice for prioritizing our children in cancer research.
 
Created and produced by Philippe Ungar: Sounds Like Portraits is a podcast with creative humans. Créé et produit par Philippe Ungar : Sounds Like Portraits est un podcast dédié aux humains créatifs. Concept: My guests speak about the creativity that fuels ideas and actions which lead to personal fulfillment. Answering my questions, my guests draw their self-portrait dotted with awareness, life-changing decisions, and a great desire to share with others. Guests: My guests work in very differe ...
 
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show series
 
Danielle Mérian est avocate, militante des droits humains et franchement heureuse de vivre. Au lendemain des attentats du 13 novembre 2015 à Paris, alors qu’elle est en train de déposer une fleur devant le Bataclan, un micro lui est tendu et son témoignage spontané qui parle de fraternité tout en refusant l’amalgame entre musulmans et terroristes p…
 
Mariah Olson was diagnosed in 1980 with neuroblastoma at the age of one year, and is a living testament as a survivor to the difficulties that so many children with cancer endure as a result of toxic, out-dated treatments they receive. She also attests to the pycho-social challenges of growing up with severe medical issues which affect children wit…
 
PNOC Foundation Administrators Allyn Campbell and Rachael Cassells join us to discuss the May 1 DIPG/DMG webinar and how people can register at www.PNOCF.events, and other upcoming webinars for the special month of May. For Brain Tumor Awareness Month, we share childhood brain cancer statistics and facts, and why awareness for childhood brain cance…
 
Julien Rosburger est membre de POA, l’acronyme de Petites Observations Automobiles sur YouTube. Je vous invite à découvrir ou à redécouvrir les épisodes de SLP: avec Renaud Roubaudi le fondateur de P.O.A qui parle de réenchanter l’automobile/ avec Philip Nemeth, le professeur de design de P.O.A. qui apprend à lire le design des voitures / avec Gild…
 
Noémie de Rothschild est Global Public Relation manager chez Eidos-Montréal, c’est un studio de développement de jeux vidéo qui a notamment travaillé sur de nombreuses sagas iconiques, entre autres Deus Ex, Tomb Raider ou Marvel’s Avengers. Noémie appartient à la génération "woke", cette génération qui est fatiguée par la communication souvent oppo…
 
Christina Wascher, a long-time childhood cancer advocate, is the President and founder of the All-In-to-Win Foundation based in Miami Florida since 2013. Christina has been a philanthropist and an entrepreneur in US and European project developments for Claridon International since 1982, specializing in start-up projects and bringing them to comple…
 
Mark Levine is one of those special people who are moved from an inner conscience and love for all children. Mark and his wife Debbie live in Stoughton, MA and have two children and two grandchildren. Retired from managing a small business for many years, Mark now devotes his life’s work to advocacy and activism for children afflicted with cancer. …
 
Three experts and current leaders in their respective fields join us today to discuss their involvement with the Childhood Cancer Prevention Initiative, beginning with David Levine, CEO of the American Sustainable Business Council, an organization which recognizes that our current system of capitalism does not work for most Americans, and strives t…
 
Dr. Ray Takigiku (founder and CEO) and Dr. Richard Curry, Medical Affairs Consultant at Bexion Pharmaceuticals discuss BXQ-350 and the 2 phase II adult clinical trials coming up as well as a phase II for a pediatric brain tumor, a potential breakthrough treatment. Additionally, other clinical and non-clinical data suggest BXQ-350 has activity in CN…
 
Episode en partenariat avec Ça s’est dit à la revue !, le podcast de la Revue des Juristes de Science Po Paris. Cette semaine, j’accueille Roger-Pol Droit, philosophe, écrivain, professeur, chercheur, homme de théâtre, journaliste et sans doute bien d’autres choses encore. Tout a commencé pour lui, au lycée, il y a près de 50 ans, par la découverte…
 
Episode en partenariat avec Ça s’est dit à la revue !, le podcast de la Revue des Juristes de Science Po Paris. Avec Henri Leclerc, avocat pénaliste, militant humaniste et président d’honneur de la Ligue des droits de l’Homme. Après 65 ans au service de la justice, il a fait ses adieux au barreau le 31 décembre 2020. Pour lui, la défense est avant …
 
This edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years, between parents of children afflicted with brain cancer. For this, I have the honor of sharing conversation and perspective with fellow advocate Jonathan Agin, whose participation in the childhood cancer community spans…
 
Cette semaine, je suis avec Olivia Bransbourg, créatrice de parfums. A l'heure où chaque jour, près de 50 nouveaux parfums sont commercialisés dans le monde, elle a choisi de créer des fragrances originales, rares et délicates, en petites quantités, produites en France, Elle a commencé dans sa jeunesse à renifler pendant des heures des troncs d'arb…
 
Today's show is a recap of recent advances in childhood cancer advocacy and reiterates the basic facts about childhood cancer for which we strive to provide a worldwide platform for awareness at Childhood Cancer Talk Radio. As co-founder of DIPG Advocacy Group, host Janet Demeter is in a unique position to share the latests developments for childho…
 
In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and Marcelo Ortigao (Fort Collins, CO) share their personal experiences with DIPG, one of the more common types of childhood brain cancer, and the deadliest with very few survivors. DIPG Advocacy Group is…
 
Keith Desserich, co-founder of The Cure Starts Now worldwide charity for pediatric brain tumor research, joins us today at this hopeful new year's beginning. When Keith and his wife Brooke found out that their beautiful daughter Elena had DIPG, a devastating pediatric brain tumor in 2006, there were no dedicated clinical trials, no networks, no inf…
 
For the love of Aspen, diagnosed 6/20/2020 at the age of 4 with DIPG, a terrifying childhood brain cancer, father Ryan, mother Allison, and Aunt Tristin join us to share what this journey has been like as we are precariously close to the discovery of a cure. Along with grandfather William Agnew, this family is dedicated to raising greater public aw…
 
Childhood Cancer Talk Radio was fortunate to interview the man behind the camera of The Truth 365 for our show Thursday, Jan. 7 2021. A childhood cancer advocate since 2007, Mike Gillette is an Emmy Award-winning filmmaker and photographer who also serves as Public Relations Director for the Arms Wide Open Childhood Cancer Foundation. He lives in n…
 
En ce début d’année, j’avais envie de vous faire connaître une petite famille qui est partie à l'aventure pendant 14 mois, dans un vieux camion de pompier aménagé, sur les pistes d’Amérique du Sud. Vous pouvez les suivre sur le site coccinatus.com et voir de superbes paysages de nature ! Pour commencer, il y a Céline et Dominique, les deux adultes …
 
"Filling the gaps" is the mandate in the childhood cancer world rather than a nice idea. Kristena Kitchen with Bryanna's Love Foundation in Burlington, MD, works tirelessly with a small army of volunteers to make her programs work, inspired by her daughter Bryanna who lost her life to the deadly "ETP-ALL", or Early T-Cell Precursor ALL. "Give Kids …
 
In 2011, Andrew Heinrich founded the non-profit Project Rousseau, while an undergraduate student at Columbia University. The idea was –and still is- to provide underprivileged high school students with the opportunity of a college education. Since then, 100% of Project Rousseau students have faced chronic hunger, food insecurity or housing instabil…
 
Howard Salmon comes to us from the Ronald McDonald House near the UC Davis Children's Hospital in Sacramento, CA, where his son Liam is receiving some emergency care after having had some difficulty breathing. Liam was diagnosed in January 2020 with DIPG, diffuse intrinsic pontine glioma, a deadly and prevalent form of childhood brain cancer. Howar…
 
Alors qu’une 2e vague de Covid-19 atteint l’Europe, les Etats-Unis restent le pays le plus touché au monde avec officiellement (au 27 novembre) plus de 264 000 morts et 13 millions de cas d’infection recensés. Où en est la créativité des chercheurs ? Où en sont les vaccins ? Où en sont les traitements ? Plus généralement, qu’a-t-on appris d’essenti…
 
Anthony’s Avengers Defeat DIPG Foundation is a chapter of Michael Mosier Defeat DIPG Foundation, the parent foundation based in Maryland that honors the legacy of 6-year old Michael Mosier, who also courageously fought DIPG, succumbing in 2015. Katie Gaskin established Anthony’s Avengers Defeat DIPG Foundation in honor of her 7-year-old son, Anthon…
 
Depuis qu'il a reçu son diplôme d’esthéticien industriel dans les années 70, le monde a vraiment beaucoup changé. Avec les dérèglements climatiques, les gaspillages insensés et les inégalités croissantes, on découvre la nécessité de repenser nos modèles économiques. Pour Maurille, le design est au coeur de ces changements. Il est stratégique pour f…
 
A Class of 2020 graduate from UCLA in anthropology, Rachna Prasad is working on a Masters program in clinical research at the University of Zurich, living her dream and honoring the legacy of her brother Mithil, who lost his life to brain cancer. She also manages the Mithil Prasad Foundation based in San Jose where she is from, and is developing a …
 
Two special moms, Patricia Palman and Lenore Scatton, share about their amazing daughters who left a legacy of inspiration from their fateful battles with DIPG. Josephine Palman and Dana Scatton each had huge community followings and an outpouring of love and grief with their passing. They both coincidentally enjoyed the same beloved place in natur…
 
Candice Hamman and Carl Jansen VanVuuren tell the story of their son Owen who was diagnosed in June 2020 with DIPG, diffuse intrinsic pontine glioma. There are no treatment options besides the standard radiation and palliative care, and purchase of the experimental ONC201 from Germany. Candice and Carl share from the heart what it's like to feel he…
 
The Shepherd Foundation is working with Congress to introduce a bill to position the rare cancer community for better outcomes. Founder and rare cancer patient David Hysong and CEO Catharine Young join us to discuss the recent virtual briefing with Congressman G.K.Butterfield (NC-1) and Gus Bilirakis (FL-12), Greg Simon, former Director of the Canc…
 
Dernier épisode de cette série de 4 portraits consacrés au Compagnonnage, avec Sébastien D’Elia, tailleur de pierre dans la région parisienne. Après son Tour de France, il a choisi de devenir formateur de compagnons. Etre compagnon, c’est transmettre. Transmettre non seulement un savoir et des gestes techniques, mais également une façon d’être, lié…
 
Marti Jaenke Dexter tells the story of her youngest daughter of four children, Juliette, described sweetly as her "gift from God." She was born on July 9, 2003 with two rare genetic conditions, Pierre Robin Syndrome and Moebius Syndrome. Though one required surgery as an infant, Juliette had a happy, healthy childhood and social life. She was diagn…
 
3e épisode de cette série consacrée au Compagnonnage avec Arnaud Guignon, serrurier-métallier qui raconte ici son Tour de France marqué par des doutes, des problèmes de santé, mais surtout par un véritable sens de l’accomplissement professionnel et personnel. A la fin de son itinérance, Arnaud a été recruté par les Métalliers Champenois pour travai…
 
Childhood Cancer Talk Radio has the privilege of sharing with our listeners a window into the lives of three families facing a similar challenge: a child diagnosed with DIPG. At varying places in the journey, David Turner Jr., and Jayce Diaz, and Ryan Agnew, father to Aspen (4) share the realities of their lives. David Jr. has become an advocate fo…
 
Jean Mopin a bien failli ne jamais être reçu compagnon parce que dans les années 70, le métier de maréchal-ferrant était en train de disparaître. Mais il a persévéré et a fini par être reçu. Le Compagnonnage est à la fois une formation à un métier et un mode d'éducation à des valeurs. En se perfectionnant sur le plan professionnel, le compagnon con…
 
Cette semaine, le scénario de cet épisode c’est celui de l’intervieweur interviewé. Interviewé par sa femme. Cela fait 10 ans cette année que nous nous sommes rencontrés, mais il y a encore beaucoup beaucoup de questions que j’ai envie de lui poser sur son travail d’intervieweur. Philippe est écrivain, archiviste sonore et bien sûr, créateur de ce …
 
It's Childhood Cancer Awareness Month for all of our guests every day of the year...so it's important to us to share with the world our stories and the truth about childhood cancer. Today we see commercials asserting that 80% of children survive cancer, touting the work of this or that institution; many might thereby deduce that we're doing great w…
 
Zhang Zhang was born in Beijing. Since before she could even walk, she was trained to be a musician, not by choice, not by pleasure, but entirely due to her overbearing father. She told me that he saw her as an animal he wanted to turn into a champion on stage. At 18 years old, she met her mentor Sergiu Luca. From him, she learned how to play music…
 
The Fight Like Emilie Foundation is dedicated to supporting research, families, and initiatives and policy for childhood cancer awareness and research through advocacy. Trey Gibson joins us from Bossier City, Louisiana, to share the story of his daughter Emilie who was diagnosed with DIPG, a pediatric brain cancer in September of 2016 at the age of…
 
Jonathan Daniels, Senior Manager for Policy & Advocacy at the Cystic Fibrosis Foundation, lobbies Congress on behalf of the more than 30,000 people with Cystic Fibrosis in the United States on issues ranging from access to adequate, affordable health insurance to research and development policy. The Cystic Fibrosis Foundation (CFF) is the world's l…
 
In the year 2000, the annual reinsurance industry’s St. Patrick’s Day party, held at Jim Brady’s pub in Manhattan, becomes the first St. Baldrick’s event. The goal of shaving 17 heads and raising $17,000 turns into 19 bald heads and $104,000 donated to fund the research of the Children’s Oncology Group. By 2019, they had broken all fundraising reco…
 
Ce 121e épisode a été enregistré il y a 15 ans. Ou peut-être plus. En retrouvant cet interview, j’ai d’abord souri en écoutant ma voix qui m’a semblé venir d’un autre siècle. L’enregistrement est un miroir pour l’interviewé. Il l’est aussi pour l’interviewer. Si je ne suis pas sûr de la date exacte, je me souviens très bien de Florian Rodari éditeu…
 
Today’s show is a special tribute to the superhero advocates in the childhood cancer community, those concerned citizens among us who never draw attention to themselves but serve to help children with cancer in a variety of capacities, but one aspect of their lives which we are recognizing today is that each is acting out of empathy and compassion …
 
Pour ce 120e épisode, je reçois le designer Patrick le Quément. De 1987 à 2009, il a marqué de son empreinte les lignes de nombreux modèles du constructeur Renault, mais aussi tout le processus de conception des voitures de la marque. Parce que Patrick est un designer-stratège : il n’a pas seulement de l’imagination, il a aussi une vision. Il a imp…
 
Dans ce 119e épisode, on parle bateau, navigation et architecture navale. La mer, le vent, le soleil, l’horizon. Ça vous fait déjà rêver ? C’est normal. Ça s’est aussi passé comme ça pour Marc van Peteghem qui a co-fondé l’agence VPLP Design. Dans sa vie, Marc a souvent entendu : « dessine-moi un bateau ! » Forcément, ça fait 37 ans qu’il est archi…
 
This episode is part of “United for Bastille Day 2020” organized by the French Consulate in New York. I really want to thank them for the organization. You may have taken one of his cooking classes online, My guest on this very special day, is Sébastien Baud, chef de cuisine at the French Consulate in New York. What is so special about cooking for …
 
La vie de Daniel Deshays est une grande exploration des sons et du monde sonore en général. Pour commencer, il m’a appris que l’écoute est d’abord une affaire d’instinct. D’instinct de survie. J’écoute ce qui marque une différence dans mon environnement sonore. Une différence qui pourrait amener un danger. Ah ! Fausse alerte ! C’est juste le bruit …
 
Our Amazing Fighters started as a simple instagram page in August of 2014 by now 19-year-old LeAnna Headley from Richmond, VA to raise awareness for childhood cancer. Since then it has evolved into so much more than a social media page; Our Amazing Fighters is devoted to raising awareness, sharing stories, advocating for kids on Capitol Hill, and b…
 
Pour ce 116e épisode, j’ai rencontré Margot Delévaux écrivaine et journaliste à la RTS, la Télévision Suisse. Elle m’a parlé de sa passion pour son métier et de son feu intérieur. Oui, car il est beaucoup question de feu avec Margot. De feu, de flamme, de chaleur, d’étincelles, et forcément, de cendres. Vous allez comprendre pourquoi. Margot aime l…
 
Because most all of our children die from DIPG,the intense suffering and grief has remained out of sight and out of mind of mainstream consciousness for decades. There is still insufficient awareness in Congress and in our society to the urgent, unmet needs of most children with cancer, and certainly brain cancer, a prevalent form of pediatric canc…
 
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