A Community And Podcast For Stroke Survivors And Carers
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Keeping you up to date with the latest and most important updates in immune-mediated inflammatory diseases.
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Perispinal Etanercept Experience: A Paramedic’s Stroke Recovery Story
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Perispinal Etanercept: A Breakthrough in Stroke Recovery? Stroke recovery is often a long and arduous journey, particularly for individuals suffering from chronic post-stroke symptoms. In recent years, etanercept, an anti-inflammatory biologic typically used for rheumatoid arthritis, has gained attention for its potential in treating neurological d…
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320. Dwayne's Remarkable Stroke Journey and Perispinal Etanercept – Listen Now!
1:40:12
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321. Surviving Ischemic Stroke - Fred’s Journey – Listen Now!
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10 Things Stroke Survivors Should Know After They Have Had a Stroke
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Discussing RA: Long-term safety and efficacy of upadacitinib in SELECT trials
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Join Professor Iain McInnes and Professors Hideto Kameda and Rieke Alten for the latest episode on The Immune-Mediated Inflammatory Disease Forum, where they discuss the latest information and data in RA. In this episode, they discuss two papers which investigate the long-term efficacy and safety of upadacitinib in the SELECT trials.…
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2 Years Post-Stroke: Steve Lawrence’s Inspiring Story of Recovery, High Blood Pressure, and Sensory Overload
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Stroke Recovery After 2 Years: Overcoming Hemorrhagic Stroke, High Blood Pressure, and Sensory Overload Recovering from a stroke is a long and often challenging journey, especially when it involves a hemorrhagic stroke, high blood pressure, and the complications of sensory overload. Two years post-stroke is a significant milestone where survivors r…
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319. 2 Years Post-Stroke: Steve Lawrence's Inspiring Story of Recovery, High Blood Pressure, and Sensory Overload
1:32:41
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Discussing AxSpA: Incidence of uveitis following bimekizumab treatment
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Join us for the latest axSpA podcast brought to you by the Immune-Mediated Inflammatory Disease Forum! This month, Dr Sofia Ramiro is joined by Professors Hideto Kameda, Atul Deodhar, and Xenofon Baraliakos to discuss a recent study on the incidence of uveitis in patients with axSpA that were treated with bimekizumab.…
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How Rachel Paverman Overcame a Cavernoma and Hemorrhagic Stroke: A Story of Resilience and Hope
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Overcoming a Cavernoma and Hemorrhagic Stroke: Rachel Paverman’s Inspiring Journey When it comes to medical conditions that are both rare and life-altering, few people are familiar with the term “cavernoma.” Even fewer have experienced the terrifying ordeal of a hemorrhagic stroke caused by this condition. Rachel Paverman is one such individual. He…
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318. From Stroke to Recovery: Rachel Paverman's Inspiring Journey After Cavernoma & Hemorrhagic Stroke
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Author Interview: Professor Laura Andreoli, 2024
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Join Professor Peter Nash from the Griffith University in Brisbane, and Professor Laura Andreoli, a Professor of Rheumatology at the University of Brescia, as they discuss her recent paper ‘The outcomes of children born to mothers with autoimmune rheumatic diseases’, published in The Lancet. Rheumatology on 11th June 2024.…
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Sunny’s Inspiring Stroke Survivor Story: A Journey of Recovery and Transformation
1:19:58
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A Stroke Survivor’s Journey: From High Blood Pressure to Personal Transformation Introduction The journey of a stroke survivor is often marked by a profound transformation—one that encompasses not only physical recovery but also emotional and spiritual growth. For many, this journey begins unexpectedly, as was the case for Sunny Kakaiya, whose life…
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317. Sunny’s Inspiring Stroke Survivor Story: A Journey of Recovery and Transformation
1:19:59
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Discussing RA: Neutrophil-to-lymphocyte ratio and treatment response to filgotinib
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Join Professor Iain McInnes and Professors Hideto Kameda and Peter Nash for the latest episode on The Immune-Mediated Inflammatory Disease Forum, where they discuss the latest information and data in RA. In this episode, they discuss a paper that investigated whether the baseline neutrophil-to-lymphocyte ratio had an effect on the treatment respons…
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Discussing PsA: 2023 EULAR recommendations and improvements in PROs with deucravacitinib
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Join Professors Peter Nash, Philip Mease, and Laura Coates as they discuss the top publications in the world of PsA. This month, they focus on the updated 2023 EULAR recommendations for PsA and the improvement of PROs reported in a Phase 2 trial with deucravacitinib.By The Immune-Mediated Inflammatory Disease Forum
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Discussing PsA: Guselkumab and analysis of genetic markers
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Join Professors Peter Nash, Philip Mease, and Laura Coates as they discuss the top publications in the world of PsA. This month, the conversation covered the post hoc analysis of PsA patients receiving guselkumab, focusing on disease control across domains and patient characteristics, and a systematic review and meta-analysis on genetic markers and…
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Discussing AxSpA: Upadacitinib in nr-axSpA and certolizumab pegol by baseline MRI and CRP status
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Join us for the latest axSpA podcast brought to you by the Immune- ediated Inflammatory Disease Forum! This month, Dr Sofia Ramiro is joined by Professors Hideto Kameda and Xenofon Baraliakos to discuss the results of a Phase 3 trial on upadacitinib in nr-axSpA and the clinical outcomes of certolizumab pegol treatment in nr-axSpA stratified by base…
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Discussing PsA: Bimekizumab therapy in PsA
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Join Professors Peter Nash, Philip Mease, and Laura Coates as they discuss the top publications in the world of PsA. This month, they focus on the latest publication by Su, et al. and discuss the latest in bimekizumab therapy in PsA.By The Immune-Mediated Inflammatory Disease Forum
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IMID Author Interview: Dr Blanca Hernández-Cruz, 2024
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Join Professor Peter Nash from the Griffith University in Brisbane, and Blanca Hernández-Cruz, a rheumatologist at Virgen Macarena University Hospital in Seville, as they discuss her recent paper ‘Janus kinase inhibitors and tumour necrosis factor inhibitors show a favourable safety profile and similar persistence in rheumatoid arthritis, psoriatic…
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Discussing AxSpA: Long-term etanercept response & real-world effectiveness of tofacitinib & adalimumab
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Join us for the latest axSpA podcast brought to you by the Immune-mediated Inflammatory Disease forum! This month, Dr Sofia Ramiro is joined by Professors Hideto Kameda, Atul Deodhar and Xenofon Baraliakos to discuss the long-term etanercept response in patients with radiographic axSpA and the comparison of tofacitinib and adalimumab in a real-worl…
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Discussing AxSpA: Secukinumab retention over time & sacroiliac joint improvements between DMARDs
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Join us for the latest axSpA podcast brought to you by the Immune-mediated Inflammatory Disease forum! This month Dr Sofia Ramiro is joined by Professors Hideto Kameda and Atul Deodhar to discuss the retention rate of secukinumab over two different time periods. Our faculty then move on to discuss another publication, which compares the improvement…
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Discussing PsA: Long-term safety of ixekizumab & bimekizumab treatment in a TNFi-IR population
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Join Professors Peter Nash, Philip Mease, Frank Behrens, and Laura Coates as they discuss the top publications in the world of PsA. They discuss two highly relevant topics in the field, including the long-term safety of ixekizumab as well as bimekizumab treatment in a TNFi-IR population.By The Immune-Mediated Inflammatory Disease Forum
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Join Professor Iain McInnes for the latest episode on The Immune-Mediated Inflammatory Disease Forum, where he discusses the latest information and data in rheumatology. In this episode, he discusses two papers that that add to the knowledge of common treatments relating to RA. In our first paper, Juergen Rech and colleagues present the results of …
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Discussing AxSpA: Risk of Uveitis with Different bDMARDs & PROs following Secukinumab Treatment
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Join us for the latest axSpA podcast brought to you by the Immune-mediated Inflammatory Disease forum! This month Dr Sofia Ramiro is joined by Professors Hideto Kameda, Atul Deodhar and Xenofon Baraliakos to discuss the risk of acute anterior uveitis across different bDMARDs in patients with AS. Our faculty then move on to discuss another publicati…
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Join Professor Iain McInnes for the latest episode on The Immune-Mediated Inflammatory Disease Forum, where he discusses the latest information and data in rheumatology. In this episode, he discusses two papers that show the long-term safety and efficacy of JAK inhibitors, both of which have a study period of 6.5 years. In our first paper, Roberto …
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Discussing PsA: Clinical Response to Guselkumab & Sequential Lines of b/tsDMARDs
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Join Professors Peter Nash, Philip Mease, and Laura Coates as they discuss the top publications in the world of PsA. They discuss two highly relevant topics in the field, including the clinical response to guselkumab and the research surrounding sequential lines of b/tsDMARDs.By The Immune-Mediated Inflammatory Disease Forum
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Join Professor Iain McInnes for the first episode on The Immune-Mediated Inflammatory Disease Forum, where he discusses the latest information and data in rheumatology.In this episode, he discusses two papers that aimed to advise on treatment of rheumatic diseases in a real-world setting. In our first paper, Emma Dures and her colleagues compiled t…
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Discussing AxSpA: Long-Term Outcomes of Secukinumab & JAKis in Clinical Practice
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Join us for the latest axSpA podcast brought to you by the Immune-mediated Inflammatory Disease forum! This month Dr Sofia Ramiro is joined by Professors Hideto Kameda and Xenofon Baraliakos to discuss the long-term impact of secukinumab treatment on bone-related outcomes and BTMs in r-AxSpA patients over two years. Our faculty then move on to disc…
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Discussing PsA: Secukinumab & The Effect of Sex on the Long-Term Persistence of Targeted Therapies
30:33
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Join Professors Peter Nash, Philip Mease, Frank Behrens, and Laura Coates as they discuss the top publications in the world of PsA. They discuss two highly relevant topics in the field, namely the effect of sex on the long-term persistence of targeted therapies, as well as the impact of secukinumab on synovitis and enthesitis.…
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Discussing AxSpA: Bimekizumab in AxSpA & Secukinumab Patient Clustering
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Join us for the latest axSpA podcast brought to you by the CSF! This month Dr Sofia Ramiro, consultant rheumatologist and senior researcher at Leiden University Medical Centre and Zuyderland Medical Centre, is joined once again by experts with a wealth of clinical knowledge. Joining her is Hideto Kameda, Professor of Internal Medicine at Toho Unive…
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Healing and Hope: Jenna Muscat’s Ischemic Stroke Recovery
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Cerebral Venous Sinus Thrombosis: Symptoms and Causes Cerebral venous sinus thrombosis (CVST) is a rare but serious condition characterized by the formation of a blood clot in the dural venous sinuses, which drain blood from the brain. Understanding the symptoms and causes of CVST is crucial for timely diagnosis and treatment. Understanding Cerebra…
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316. Healing and Hope: Jenna Muscat's Ischemic Stroke Recovery
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Join Professor Peter Nash from the Griffith University in Brisbane, and Dr Adam Goldman, an epidemiology researcher at The Chaim Sheba Medical Center in Tel-Hashomer, and an epidemiology researcher and lecturer at Tel-Aviv University, as they discuss his recent paper ‘Adverse cardiovascular events in rheumatoid arthritis patients treated with JAK i…
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315. Young Stroke Survivor's Inspiring Recovery Story - Kenya Robinson
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Young Stroke Survivor’s Inspiring Recovery Story – Kenya Robinson
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Comprehensive Guide for Young Person Stroke Survivors Strokes can be devastating at any age, but they are particularly impactful when they strike the young. This post delves into the unique challenges faced by young person stroke survivors, offering essential information and support strategies to help them navigate their recovery and life beyond. W…
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314. Overcoming Adversity: Young Stroke Survivor Neetu’s Journey from Stroke to Strength
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Young Stroke Survivor Neetu’s Ischemic Stroke at 44: A Powerful Story of Recovery and Resilience
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Watch young stroke survivor Neetu Mehra’s inspiring journey from ischemic stroke at 44 to resilience and recovery. Click to hear her powerful story! Instagram Highlights: 01:27 Introduction 02:41 The Beginning Of A Young Stroke Survivor’s Journey 14:31 Young Stroke Survivor’s Medical Journey And Impact On Daily Life 24:23 Stroke Recovery Timelines …
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313. Neuroplasticity and Stroke Recovery - Dr Kenneth Monaghan
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Neuroplasticity and Stroke Recovery – Dr. Kenneth Monaghan
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Dr. Kenneth Monaghan shares insights on innovative stroke recovery therapies, the power of neuroplasticity, and the essential support needed for caregivers. Website YouTube Channel LinkedIn LinkedIn Newsletter University Profile ResearchGate Highlights: 02:33 Introduction 03:57 Developing New Treatments For Stroke Recovery 12:14 Getting Involved In…
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Author Interview: Professor Daniel Blockmans, 2024
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Join Professor Peter Nash from the Griffith University in Brisbane, and Professor Daniel Blockmans, from the Department of Internal Medicine at the University Hospitals Leuven, as they discuss his recent paper ‘Efficacy and safety of upadacitinib in patients with giant cell arteritis (SELECT-GCA): A double-blind, randomized controlled Phase 3 trial…
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Recurrent Stroke Survival: Maria Sclafani
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Understanding Recurrent Strokes: Causes, Prevention, and Management Introduction Every year, thousands of people experience recurrent strokes, significantly impacting their health and quality of life. If you or a loved one have suffered from a stroke, understanding the risks and preventive measures for recurrent strokes is crucial. In this comprehe…
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312. Recurrent Stroke Survival: Maria Sclafani
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Join Professor Iain McInnes and guest Professor Maurizio Cutolo for the latest episode on The Immune-Mediated Inflammatory Disease Forum, where they discuss the latest information and data in RA. In this episode, two papers that cover important topics in rheumatology are highlighted: the first paper presents the 5-year efficacy and safety results o…
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310. Diabetes, High Blood Pressure, and Stroke: Deven Matthews' Road to Recovery
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Recovering From Stroke – Fares Raffoul
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Recovering from a stroke, Fares Raffoul shares his journey from carpenter to survivor, highlighting resilience, neuroplasticity, and determination. The post Recovering From Stroke – Fares Raffoul appeared first on Recovery After Stroke.By Recovery After Stroke
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311. Recovering From Stroke: Fares Raffoul
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Diabetes, High Blood Pressure, and Stroke: Deven Matthews’ Road to Recovery
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Deven Matthews experienced a stroke due to undiagnosed diabetes and high blood pressure, leading to a journey of recovery and health transformation. The post Diabetes, High Blood Pressure, and Stroke: Deven Matthews’ Road to Recovery appeared first on Recovery After Stroke.By Recovery After Stroke
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Thalamic Stroke: Symptoms, Treatment, and Recovery
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Jenn Williams discusses her thalamic stroke recovery, the risks of the contraceptive pill, and the importance of self-advocacy and resilience. The post Thalamic Stroke: Symptoms, Treatment, and Recovery appeared first on Recovery After Stroke.By Recovery After Stroke
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309. Thalamic Stroke Recovery Journey: Contraceptive Pill Risks and Advocacy: Jenn Williams
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