Best Know Rare (Taren Grom Podcasts (2024)

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#4 Conquering the Science of Muscle Disease with Edgewise Therapeutics 21:15

1M ago21:15

21:15

In this episode of "Rare Insights," host Taren Grom speaks with Dr. Joanne Donovah, Chief Medical Officer at Edgewise Therapeutics, about groundbreaking advancements for severe, rare muscle disorders. Dr. Donovan shares why Edgewise’s approach to targeting the basic unit of muscle contraction and being able to preserve and protect muscle function c…

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#3 Transformative Cell and Exosome-Based Therapies with Capricor Therapeutics 20:01

2M ago20:01

20:01

In this episode of "Rare Insights," host Taren Grom sits down with Dr. Linda Marbán, Chief Executive Officer at Capricor Therapeutics, to discuss groundbreaking advancements in the treatment of Duchenne muscular dystrophy and other rare diseases through innovative cell and exosome-based therapies. Dr. Marbán shares her journey in the biotechnology …

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#2 Using “Sea Squirts” to rewrite RNA with Ascidian Therapeutics 24:21

3M ago24:21

24:21

In this episode of "Rare Insights," host Taren Grom speaks with Dr. Jay Barth, Chief Medical Officer at Ascidian Therapeutics, about groundbreaking advancements in RNA editing technology and its potential in the rare disease space. Dr. Barth discusses Ascidian’s innovative approach, inspired by “sea squirts,” and shares insights on the development …

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#1 Sustaining A Rare Disease Pipeline with Rocket Pharma 23:58

4M ago23:58

23:58

In this episode of "Rare Insights," host Taren Grom sits down with Dr. Kinnari Patel, President, Head of R&D and Chief Operating Officer for Rocket Pharma, to discuss the company’s burgeoning pipeline of rare disease assets and why applying data across its portfolio of potential treatments is just one key to the company’s success. Dr. Kinnari Patel…

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Introducing Rare Insights 2:01

5M ago2:01

2:01

“Rare Insights” is a podcast series interviewing industry and organizational leaders about the development of future therapies for rare diseases. On “Rare Insights” we bridge the gap between those living with rare diseases and the biopharmaceutical industry. Know Rare amplifies the voices of individuals with rare conditions, providing invaluable pe…

Podcasts Worth a Listen

Know Rare (Taren Grom Podcasts

Podcasts Worth a Listen

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Rare Insights: Uncovering The Future Of Rare Disease Treatments

Know Rare (Taren Grom, Liz Kay, Kaitlyn Taylor, Nina Wachsman, and DNA Today’s Kira Dineen)

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#4 Conquering the Science of Muscle Disease with Edgewise Therapeutics 21:15

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#3 Transformative Cell and Exosome-Based Therapies with Capricor Therapeutics 20:01

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#2 Using “Sea Squirts” to rewrite RNA with Ascidian Therapeutics 24:21

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#1 Sustaining A Rare Disease Pipeline with Rocket Pharma 23:58

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Introducing Rare Insights 2:01

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