Sure, it’s good to be flexible in life, but all things have their limits! If you’ve ever lived with a connective tissue disorder, you know all too well how often joint conditions like Ehlers-Danlos Syndrome (EDS) can go unrecognized by doctors and result in life-altering symptoms from pain and fatigue to gastrointestinal issues and insomnia. Whether you’re living with a hypermobility condition, treating one, or know someone living with their own – the greatest secret weapon you can use to ma ...
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Professor Jim Al-Khalili talks to leading scientists about their life and work, finding out what inspires and motivates them and asking what their discoveries might do for us in the future
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The Cardiovascular CME podcast is a new educational offering from Mayo Clinic, featuring content geared towards physicians, physician assistants, and nurse practitioners who are interested in exploring a multitude of cardiology-related topics. Tune in and subscribe to explore today’s most pressing cardiology topics with your colleagues at Mayo Clinic and gain valuable insights that can be directly applied to your practice. No CME credit offered for podcast episodes at this time.
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Listen in as Katie Lockwood, MD, a primary care pediatrician at Children’s Hospital of Philadelphia, discusses hot topics in primary care with CHOP subject-matter-experts as they weigh in on issues affecting the daily practice of pediatricians. This podcast is for general informational and educational purposes only and is not to be considered as medical advice for any particular patient. Clinicians must rely on their own informed clinical judgment in making recommendations to their patients. ...
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The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
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The most engaging conversation between health professionals happens in chance meetings in the hallways. During these moments so much is learned .*One Thing* brings together thought leaders in conversation and we share it with health enthusiasts , practitioners, and learners. Our conversations primarily focus on one significant thing in the arenas of gut health, brain health, immune system, metabolism, performance, and aging . This for clinicians and patients alike who are insightful and moti ...
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Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community. With unwavering dedication, our heartfelt conversations bring to light the storie ...
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Navigating Life with HLHS and Marfan Syndrome: Rachael's Powerful Story
32:12
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Send us a Text Message. Discover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations and two device implants, all while avoiding open-heart surgeries. Rachael a…
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Episode 104 Marfan Syndrome with Dr. Amanda Lynn Hoffman
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In today’s episode, we have the honor of hosting a truly remarkable guest, Dr. Amanda Lynn Hoffman. As the first Naturopathic physician with Marfan syndrome to specialize in this field, Dr. Amanda Lynn offers invaluable insights for both individuals living with Marfan's Syndrome and their caregivers. Her groundbreaking work in Naturopathic medicine…
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Marfan Surgery Guest: Alberto Pochettino, M.D. Hosts: Paul A. Friedman, M.D. Marfan syndrome is a genetic abnormality where the fibrillin protein is abnormal. That affects all collagen structures within a given individual. Phenotypic features involve ocular abnormalities such as lens dislocation and a higher risk of retinal detachment, as well as d…
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Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoicesBy Dr. Linda Bluestein, MD
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Overcoming Pain in EDS: Building Stronger Bodies with Wealth Founders Katie & Andrew Dettelbach
1:18:20
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform …
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Discovering a Myocardial Bridge at 65: Jeff's Journey to Heart Health Advocacy
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Send us a text Have you ever ignored a small discomfort only to realize it was something far more serious? Join us on "Heart to Heart with Anna" for an eye-opening conversation with Jeff, the creator and host of a non-profit podcast network, who discovered a congenital heart defect called a myocardial bridge at the age of 65. Jeff recounts his terr…
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Cardio-oncology: What is the Big Picture, What Drugs to Use, and What Tests to Follow
27:47
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Cardio-oncology: What is the Big Picture, What Drugs to Use, and What Tests to Follow Guest: Chadi Ayoub, M.B.B.S., Ph.D. Hosts: Sharonne N. Hayes, M.D. In this podcast, we will describe more frequent cardiotoxic effects associated with cancer therapies. Identify imaging modalities that can be used to detect and evaluate cardiotoxicity and common a…
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Darren Croft on killer whale matriarchs and the menopause
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Darren Croft studies one of the ocean’s most charismatic and spectacular animals – the killer whale. Orca are probably best known for their predatory behaviour: ganging up to catch hapless seals or attack other whales. But for the last fifteen years, Darren Croft’s focus has been on a gentler aspect of killer whale existence: their family and repro…
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Twins account for 3% of live births in the US and are at risk of higher rates of fetal growth restriction, congenital anomalies, twin-twin transfusion syndrome, twin anemia polycythemia sequence, selective fetal growth restriction, and cord entanglement. In this episode, Michael Posencheg, MD, a Children's Hospital of Philadelphia neonatologist and…
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Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD
1:04:53
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In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic p…
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Episode 105 : The Beauty and Burden of Autism with Dr. Sandra Paulsen
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In episode 105 of the One Thing Podcast, Dr. Adam Rindeinterviews Dr. Sandra Paulsen, a renowned psychologist and author, about her professional journey and expertise in psychotherapy, focusing on her work with autism and Eye Movement Desensitization and Reprocessing (EMDR). Dr. Paulsen discusses her own experiences with autism, her approach to tre…
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Clinical Quantification of Myocardial Blood Flow Using PET
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Clinical Quantification of Myocardial Blood Flow Using PET Guest: Panithaya Chareonthaitawee, M.D. Hosts: Malcolm R. Bell, M.D. In this podcast, we will describe the clinical applications of PET MBF quantitation and discuss the strengths and limitations of PET MBF quantification. Topics Discussed: Why has PET myocardial perfusion imaging seen such …
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Bill Gates on vaccines, conspiracy theories and the pleasures of pickleball
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Bill Gates is one of the world's best-known billionaires - but after years at the corporate coalface building a software empire and a vast fortune, his priority now is giving that wealth away. And his ethos for doing it has been shaped by science. Famed for co-founding Microsoft, in recent decades Bill’s attention has turned to philanthropy via The…
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Group Rehabilitation for POTS with Emily Rich, OT
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how o…
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From Heart Block to Myotonic Dystrophy: A Survivor's Tale
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Send us a Text Message. What if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block and other heart conditions. From coping with an abnormally low heart rate a…
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3D Visualization of the Heart in Immersive Technology Like Mixed Reality
17:47
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3D Visualization of the Heart in Immersive Technology Like Mixed Reality Guest: Dr. Klaudia Proniewska Host: Anthony H. Kashou, M.D. The most commonly applied way of teaching students the foundations of human anatomy and physiology involves textbooks and lectures. This method of transmitting knowledge causes difficulties for students, especially in…
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Teen Communication: Learning language to build character, resilience, and relationships (Episode 174)
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Talking with teenagers can feel challenging, but in this episode, Kenneth Ginsburg, MD, MSEd, an attending physician in the Division of Adolescent Medicine and the Co-Director of the Center for Parent and Teen Communication at Children's Hospital of Philadelphia, shares lessons learned from his years of research and experience with adolescents. Dr.…
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Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD
1:06:41
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. Sh…
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Kip Thorne on black holes, Nobel Prizes and taking physics to Hollywood
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The final episode in this series of The Life Scientific is a journey through space and time, via black holes and wormholes, taking in Nobel-prize-winning research and Hollywood blockbusters! Kip Thorne is an Emeritus Professor of Theoretical Physics at Caltech, the California Institute of Technology, and someone who’s had a huge impact on our under…
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Connective Tissue Disorders and Lipedema with Karen Herbst, MD
1:16:38
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tis…
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Chapter 10: Life Lessons from Congenital Heart Defects: Stories of Hope and Resilience
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Send us a Text Message. What happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my Younger Self," where she offers wisdom and reflections that will resonate w…
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Hypertensive Disorders of Pregnancy and CV Risk
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Hypertensive Disorders of Pregnancy and CV Risk Guest: Thais D. Coutinho, M.D. Hosts: Paul A. Friedman, M.D. Hypertensive disorders of pregnancy are common and are associated with a significant increase in the risk of future cardiovascular diseases. Despite the well-established statistics, this increase in risk is not well recognized by patients or…
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Vicky Tolfrey on parasport research and childhood dreams of the Olympics
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It's summer - no really - and although the weather might have been mixed, the sporting line-up has been undeniably scorching - from the back-and-forth of Wimbledon, to the nail-biting Euros, to the current pageantry of the Summer Olympics. Next month the 2024 Paralympic Games get underway in Paris, involving the world’s very best para athletes; and…
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Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover …
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Episode 103. Conscious Eldering with Ron Pevny
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Episode 103: Conscious Eldering with Ron Pevny These days, getting older seems to be more like a war rather than a rite of passage. "Take this pill or this potion to reverse aging and stay young," they say. But is that really how we should view aging? We question this and more in this episode, where I welcome Ron Pevny, the director of the Center f…
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Chapter 9 of "The Heart of a Heart Warrior" Featuring Heart Warrior Authors
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Send us a Text Message. How do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects (CHD). Join us as Megan Tones sets the stage with an introduction to Chapt…
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Genomics in Inflammatory Cardiomyopathies
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23:10
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Genomics in Inflammatory Cardiomyopathies Guest: Naveen L. Pereira, M.D. Hosts: Kyle W. Klarich, M.D Patients with heart failure and ventricular arrhythmias can have inflammatory heart disease such as myocarditis or sarcoidosis. The diagnosis is typically made by imaging studies including cardiac MRI and PET scans. However, it is critical to perfor…
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Dawn Bonfield on inclusive engineering, sustainable solutions and why she once tried to leave the sector for good
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The engineering industry, like many other STEM sectors, has a problem with diversity: one that Dawn Bonfield believes we can and must fix, if we're to get a handle on much more pressing planetary problems... Dawn is a materials engineer by background, who held roles at Citroën in France and British Aerospace in the UK. But, after having her third c…
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Contact with infected bats is the most common cause of human rabies deaths in the US, but dog rabies remains common worldwide. Learn about other wildlife that can carry rabies, post-exposure prophylaxis, high-risk hobbies and careers, and what rabies can teach us all. Andrew Steenhoff, MBBCh, DCH, attending physician in the Division of Infectious D…
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Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom
1:05:27
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic c…
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"The Heart of a Heart Warrior" Chapter 8 Featuring Megan Tones and Julie Kerr
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Send us a Text Message. Ever wondered how a heartfelt community can transform lives through stories and shared experiences? Join me on this special episode of "Heart to Heart with Anna" as I express my gratitude for the overwhelming birthday wishes from the congenital heart defect community. You'll be introduced to the latest literary gem from Baby…
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Understanding ECG Waveforms: Normal vs. Abnormal
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Understanding ECG Waveforms: Normal vs. Abnormal Guest: Dr. Peter van Dam Host: Anthony H. Kashou, M.D. The ECG interpretation is majorly driven by event detection, i.e. QRS onset and end, QT time, P wave etc. From these we can determine the normal heart rhythm, and some performance measures, like heart rate etc. The ECG waveforms, however, are muc…
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Raymond Schinazi on revolutionising treatments for killer viruses
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In recent decades, we've taken huge steps forward in treating formerly fatal viruses: with pharmacological breakthroughs revolutionising treatment for conditions such as HIV, hepatitis and herpes. Raymond Schinazi has played a big role in that revolution. Ray was born in Egypt, where his mother’s brush with a potentially deadly illness during his c…
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Recurrent Pericarditis: when is surgical pericardiectomy indicated
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Recurrent Pericarditis: when is surgical pericardiectomy indicated Guest: Kevin L. Greason, M.D. Hosts: S. Allen Luis, M.B.B.S., Ph.D. Upon completion of this podcast, the reviewer will understand that pericardiectomy is an important treatment option for patients with recurrent pericarditis, particularly where refractory to medical therapy. The out…
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Janet Treasure on eating disorders and the quest for answers
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From anorexia nervosa to binge-eating, eating disorders are potentially fatal conditions that are traditionally very difficult to diagnose and treat - not least because those affected often don’t recognise that there’s anything wrong. But also because of the diverse factors that can influence and encourage them. Janet Treasure is a Professor of Psy…
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Epilepsy and Teens: Counseling advice on managing epilepsy as an adolescent (Episode 172)
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According to the CDC, approximately 0.6% of children aged 0-17 have active epilepsy, so in a school of 1,000 students, this means 6 of them could have epilepsy. Adolescence is a time when patients have more autonomy in caring for their chronic disease and have changes in lifestyle factors, which could be risk factors for increased seizures. In this…
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Heart Warrior Transformations: From Challenges to Creative Triumphs
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28:11
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Send us a Text Message. Have you ever wondered how living with a congenital heart defect can shape one's life journey? This week, we’re diving into the remarkable stories of heart warriors, those extraordinary individuals who navigate life with congenital heart defects. I'm Anna Jaworski, and in this episode, we explore the powerful metaphor of tra…
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Surgical Pericardiectomy for Constrictive Pericarditis
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Surgical Pericardiectomy for Constrictive Pericarditis Guest: Kevin L. Greason, M.D. Hosts: S. Allen Luis, M.B.B.S., Ph.D. Upon completion of this podcast, the reviewer will understand that pericardiectomy is an important treatment option for patients with constrictive pericarditis. Extensive and complete pericardial resection is important to ensur…
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Anne Child on Marfan syndrome and love at first sight
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Marfan syndrome is a genetic disorder that makes renders the body’s connective tissues incredibly fragile; this can weaken the heart, leading to potentially fatal aneurysms. What’s more, anyone with the condition has a 50/50 chance of passing it on to their children. Dr Anne Child is a clinical geneticist who’s dedicated her professional life to fi…
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Navigating Parenthood with a Congenital Heart Defect During Covid-19: Amelia Woods' Journey
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Send us a Text Message. What happens when you're expecting a baby with a congenital heart defect during a global pandemic? Join me, Anna Jaworski, as I sit down with Amelia Woods, a courageous heart mom who faced this exact challenge. Amelia shares the emotional rollercoaster of managing her son Henderson's dextrotransposition of the great arteries…
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Cardiogenic Shock Recognition Guest: Jacob C. Jentzer, M.D. Hosts: Sharonne Hayes, M.D. Cardiogenic shock is a major cause of death and disability for patients with acute cardiac disease. Early recognition of cardiogenic shock is essential to allow timely intervention to avoid complications. Contemporary research and evolving definitions can facili…
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Conny Aerts on star vibrations and following your dreams
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Many of us have heard of seismology, the study of earthquakes; but what about asteroseismology, focusing on vibrations in stars? Conny Aerts is a Professor of Astrophysics at the University of Leuven in Belgium - and a champion of this information-rich field of celestial research. Her work has broken new ground in helping to improve our understandi…
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