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A podcast for people with Neurofibromatosis (NF-1, NF2-SWN, and Schwannomatosis)--and the people who care for them.
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My Life’s Journey is about navigating through this thing called life. We will have individuals share their real-life journeys and how they overcame the trials of life past and present to who they are today. Along with other much-needed conversations. “This ride ain’t easy but sure is worth it” -Ri
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The Role Of Service Dogs In NF With John Manth
43:08
43:08
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My guest this episode is John Manth, father of Leah Manth, who was diagnosed with Neurofibromatosis Type 2 (NF2-SWN) in 2007. John discusses their family's journey in seeking treatments and a cure for NF2, his extensive involvement in various NF organizations, and the impactful role of their service dog, Dasher. The conversation covers topics such …
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Strategies For Living With Chronic Pain With Dr. Frank Buono
1:01:54
1:01:54
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This episode features Dr. Frank Buono, an Associate Research Scientist and Lecturer at the Yale School of Medicine, discussing his research on utilizing digital technologies to assist with treatment for individuals with rare diseases like neurofibromatosis (NF), with a focus on managing chronic pain. Dr. Buono talks about his latest project, a mobi…
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Welcome to Decoding NF! This is just a brief introduction to the show.By Shane Smith
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The Other Side of this: Life with NF1 Episode #2
23:11
23:11
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On this week’s episode of My Life’s Journey with Ri, we will talk about a rare skin condition named Neurofibromatosis (NF1) that host Ri was diagnosed with at the age of 12. We are all on a life’s journey. We have all experienced test, trials, set backs, promotions, highs and lows. You are not alone on this Journey! Let’s Connect: https://www.insta…
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On this first episode of My Life’s Journey, Ri talks about the why this Podcast started. We are all on a life’s journey. We have all experienced test, trials, set backs, promotions, highs and lows. You are not alone on this Journey! Let’s Connect: https://www.instagram.com/forherworth/ https://youtube.com/@forherworth www.tiktok.com/@forherworth Sh…
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