Best Amy Williford Podcasts (2024)

1
Amy Freitag: Weaving New York’s Future with Threads of Community and Generosity 36:19

1h ago36:19

36:19

Join us in this inspiring episode of The Caring Economy as we sit down with Amy Freitag, a dynamic leader at the helm of the New York Community Trust. Amy shares her fascinating journey from her roots in Akron, Ohio, to becoming a key figure in New York's philanthropic landscape. With over 100 years of legacy behind the Trust, Amy offers insights i…

1
Knowledge is Power: Part 1 35:19

8d ago35:19

35:19

The knowledge we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease. Survey – Patient Empowerment Program PodcastRegister for the 20…

1
Small Business, Big Impact: How Lynette Bell Drives Economic Growth 32:17

7d ago32:17

32:17

Join us for an inspiring episode of The Caring Economy as host Toby Usnik interviews Lynette Bell, President of the Truist Foundation. With a focus on strategic philanthropy, economic mobility, and community development, Lynette shares her journey from a banking career to leading initiatives that uplift underserved communities. Learn how Lynette is…

1
Adopting a Rare Son with Paul Compton 33:39

22d ago33:39

33:39

Paul Compton and his wife Andrea chose to start a family through adoption. Unknown to anyone, one of their adopted boys, Taeson, was the inheritor of DRPLA, a progressive brain disorder caused by a mutation in the ATN1 gene. Determined to find a treatment and advocate for their son and others with the disease, the Comptons established CureDRPLA. In…

1
Legal Eagle: Rebecca Williford’s Journey in Disability Rights 31:12

9d ago31:12

31:12

Welcome to The Caring Economy with your host Toby Usnik. In our latest episode, we're honored to feature Rebecca Williford, the President and CEO of Disability Rights Advocates (DRA), the nation's leading nonprofit legal center focused on disability rights impact litigation. Rebecca shares her incredible journey from a legal fellow to CEO, detailin…

1
Ion Channel Mutations: The Complexities of Treatment 30:16

1M ago30:16

30:16

Mutations affecting ion channels are the most common cause of 'applications for treatment' submitted to n-Lorem. These channels regulate the passage of essential electrically charged ions, like sodium, potassium, calcium, and chloride, into cells. Alas, ion channels pose a significant challenge in the ASO discovery process, as there is little room …

1
Resurrecting Education: Father Leahy’s Battle to Rebuild St. Benedict’s 40:31

1M ago40:31

40:31

Father Edwin Leahy’s journey is a testament to commitment, resilience, and transformative leadership. He became the 23rd Headmaster of St. Benedict’s Prep in 1972, a role he assumed at the age of 26. Under his guidance, the school reopened its doors after a brief closure, starting with just 89 students and 14 faculty members, including thirteen mon…

1
Heartfelt Leadership: Joan Steinberg’s Action for Youth Mental Health 32:06

1M ago32:06

32:06

Joan Steinberg’s journey is one of passion and purpose. Starting her career in public relations and the nonprofit sector, Joan found her true calling at Morgan Stanley, where she has been making a significant impact for over two decades. With a focus on strategic philanthropic efforts, Joan has spearheaded initiatives that have benefited over 37 mi…

1
Why We Dose Intrathecally 29:18

2M ago29:18

29:18

The affected organs of our patients determine the route of administration for an ASO, as certain routes can better target specific organs and offer the best potency. The central nervous system (CNS) is the most common target we encounter, and for this, we dose intrathecally. Let’s dive into how this is done and the particulars of why this approach …

1
Behind the ASO Design and Discovery with Konstantina Skourti-Stathaki, Ph.D. 27:33

2M ago27:33

27:33

Konstantina Skourti-Stathaki leads the n-Lorem research team behind the design and discovery of ASOs. Nadina, as we at n-Lorem call her, has a passion for helping patients and an excitement for science that is contagious. She joins the Patient Empowerment Program podcast to discuss her day-to-day activities as n-Lorem’s Director of ASO Design and D…

1
Diversity Maven: Traci Sanders’ Expert Approach at Verizon 35:08

2M ago35:08

35:08

Hey there, friends! I’m Toby Usnik, and I'm thrilled to share the latest episode of The Caring Economy with you. Today, we have the privilege of chatting with Traci Sanders, the incredible VP-Global Head of Diversity, Equity, and Inclusion at Verizon. Traci is a true pioneer in fostering an inclusive workplace, and her journey is nothing short of i…

1
Best of the 2023 Nano-rare Patient Colloquium 36:51

3M ago36:51

36:51

We’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origin…

1
Future-Proof Your Brand: Lessons in Digital Mastery from Vladimir Botsvadze 36:16

2M ago36:16

36:16

Join host Toby Usnik on The Caring Economy as he sits down with Vladimir Botsvadze, a luminary in digital transformation and marketing. In this episode, Vladimir shares his extraordinary journey from growing up in Georgia to becoming a globally recognized thought leader and influencer. Vladimir, named the #1 Global Marketing Thought Leader by Think…

1
The Hurdles of Insuring Patients with Nano-rare Mutations with Alan Lotvin, M.D. 50:51

3M ago50:51

50:51

What's preventing insurers from covering the specialized care of patients with nano-rare mutations, thereby expanding access to available treatment options? Is it the population size, cost, or perceived risk? Given that the initial discovery of nano-rare mutations is relatively recent, paving the way for this population requires a nuanced approach …

1
Anna’s Story of Hope and Help: FUS-ALS with Sonja Kämpfer and Dr. Neil Shneider 43:06

4M ago43:06

43:06

Stan Crooke speaks with Sonja Kampfer and Dr. Neil Shneider, associate professor of motor neuron disorders at Columbia Medical School, about Sonja’s daughter, Anna. Anna was diagnosed with an aggressive, fatal form of ALS at the age of 16. ALS is rare in teenagers, and this form of ALS is the worst of the worst. Sonja tells Anna’s story initial sym…

1
Frontlines to Law Lines: Lindsey Savage's Mission for Military Spouse Lawyers 31:29

3M ago31:29

31:29

Join us on this enlightening episode of "The Caring Economy," where we dive into the remarkable journey of Lindsey Savage, a senior vice president at Blackstone and a staunch advocate for military spouses in the legal profession. Discover how Lindsay is transforming the landscape for military spouse attorneys through her pioneering efforts with the…

1
From Print to Pixels: A Conversation with Newsweek's Dr. Dev Pragad on Media Transformation 24:08

3M ago24:08

24:08

In this enlightening episode of The Caring Economy, join us as we delve into the remarkable journey of Dr. Dev Pragad, CEO of Newsweek. Discover how a background in technology and academia fueled his innovative approach to revitalizing one of the world's most storied media brands. Dr. Pragad shares candid insights into the strategic decisions that …

1
Mostyn’s Story: Mother’s Day Special with Zoe Hummel 50:06

4M ago50:06

50:06

Motherhood is a journey filled with challenges, but every step is worth it for the love and joy it brings. Zoe Hummel joins the show in this special Mother’s Day episode to discuss her son Mostyn’s emotional story to diagnosis, and the unique challenges and triumphs of being a nano-rare mom. Order your Mother's Day card by May 6, 2024! All proceed …

1
Ink and Judgment: Fabio Bertoni on Steering The New Yorker's Legal Compass 32:07

4M ago32:07

32:07

Gain valuable advice from Fabio on building a successful career in media law, emphasizing the importance of resilience, adaptability, and ethical decision-making. Join us on Spotify for a riveting conversation with Fabio Bertoni, where you’ll gain a deeper understanding of the crucial role legal minds play in the world of media and journalism. Whet…

1
The Conscious Executive: Daryl Brewster on Crafting Impactful Careers 41:10

4M ago41:10

41:10

Join us on "The Caring Economy" as we sit down with Daryl Brewster, the spirited CEO of CECP, whose career is a masterclass in marrying commerce with conscience. With a storied resume that spans over 30 years, including leading multimillion-dollar businesses and orchestrating significant corporate comebacks, Daryl is now turning the tide towards in…

1
Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D. 48:53

4M ago48:53

48:53

Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare"…

1
Worldschooling Across Seven Continents: The Almond Family 44:48

4M ago44:48

44:48

Welcome to this inspiring episode of The Caring Economy, hosted by Toby Usnik. Today, we're venturing into the extraordinary lives of Andi and Randy Almond, a remarkable couple who, alongside their children Finn and Aria, took the bold step of turning the world into their classroom for an entire year. Andi Almond, a seasoned leader in strategic com…

1
Soaring Ambitions: How Tara Grieb Turned Aeronautic Passion into Purposeful Leadership 30:22

5M ago30:22

30:22

Dive into a captivating episode of "The Caring Economy" as we welcome Tara Grieb, the dynamic Director of Operations at Old Rhinebeck Aerodrome. Join host Toby Usnik on a journey through Tara's inspiring evolution from a childhood filled with awe at airshows to spearheading the future of one of America's most cherished historical aviation sites. Di…

1
Advanced Genetics Part 2 25:52

5M ago25:52

25:52

Genetics can be intricate, no doubt. With millions of mutations present in every human, one might wonder why not everyone is impacted by pathogenic diseases. The Patient Empowerment Program aims to assist you in grasping the fundamental concepts of various mutations and how they function, paving the way for you to enhance your understanding of gene…

1
🚜Tractors & Trails of Philanthropy: John Deere's Drive for a Better Tomorrow 31:16

5M ago31:16

31:16

Join us on "The Caring Economy" as we commemorate a significant milestone: the 75th anniversary of the John Deere Foundation. Since its inception in 1948, the Foundation has been a beacon of hope, contributing over $400 million to foster community growth, enhance access to nutrition, shelter, and education, and support marginalized youths and nonpr…

1
Advanced Genetics Part 1 30:13

5M ago30:13

30:13

Each time one of the cells in your body divides to form a new cell, 3 BILLION genetic letters must be accurately duplicated. That’s a big number and mistakes DO happen in everyone. That’s right, if you’re reading this, you have a genetic mutation. On This Episode We Discuss: Your genetic alphabet – nucleotides How to think about DNA Replication Typ…

1
Beyond Business: Maryam Banikarim's Mission for a Better World 36:43

5M ago36:43

36:43

Dive into the heart of purpose-driven business with Maryam Banikarim on "The Caring Economy." Join us as host Toby Usnik uncovers how Maryam, a renowned change agent and brand architect, has shaped the narratives of global brands like Hyatt, NBCUniversal, and Gannett, steering them towards impactful societal contributions. Co-founder of NYCNext and…

1
The Giving Architect: Crafting a New Era with Tim Cadogan 33:25

6M ago33:25

33:25

Join us on "The Caring Economy" for an enlightening episode with Tim Cadogan, the visionary CEO of GoFundMe, who has been steering the platform towards new heights of philanthropy since March 2020. Under Tim's leadership, GoFundMe has seen remarkable growth, with the acquisition of Classy in 2022 marking a pivotal moment. This collaboration has emp…

1
Sharing Hope Through Storytelling & Connection with Shanna Tolbert 43:08

6M ago43:08

43:08

What's one way to spread hope? By sharing your experiences and connecting with others who truly understand the everyday challenges nano-rare patients face. Shanna Tolbert was one of five nano-rare patient caregivers who participated in the panel, The Perilous Journey to Diagnosis and Treatment for Nano-rare Disease Patients. Listen to Shanna’s take…

1
Beyond the Bottom Line: Sona Khosla's Revolution in Corporate Impact 36:36

6M ago36:36

36:36

Dive deep into the heart of corporate social responsibility with Sona Khosla, Chief Impact Officer at Benevity, in an inspiring episode that explores the nexus of business and social good. Sona, with over 15 years of dedication to mission-driven organizations, unveils her journey of shaping Benevity's role in the CSR space, fostering environments w…

1
Our Mission is Personal with Sarah Glass 40:54

6M ago40:54

40:54

For n-Lorem’s Chief Operating Officer, Sarah Glass, the mission of n-Lorem is personal. Her son Ethan was diagnosed with a nano-rare mutation. A geneticist by training, she joined n-Lorem to oversee and direct the organization’s efforts to provide hope and potential help to those who need it most. It's more than just a job for her; she's powered by…

1
🌲Shaping a Greener Tomorrow Through Conservation Leadership 🌲 33:54

6M ago33:54

33:54

Dive into the heart of conservation on "The Caring Economy" with our latest episode featuring Jeff Vail, a visionary leader in land, minerals, and geology management for the United States Forest Service. With a career dedicated to nurturing and preserving the nation's vast landscapes, Jeff embodies the spirit of environmental stewardship. Join us a…

1
Q&A #2 with Patient Families 45:45

7M ago45:45

45:45

Charissa Lipman joins n-Lorem founder and CEO, and host of the Patient Empowerment Program Podcast, Dr. Stan Crooke, in this question-and-answer episode to discuss additional questions asked during the 2023 Nano-rare Patient Colloquium. Charissa attended the inaugural Colloquium in October 2023 and brings the perspective of a patient family member,…

1
Sowing Seeds of Sustainability: The Migliorelli Farm Story 33:58

7M ago33:58

33:58

Join us on "The Caring Economy" for an enriching episode that delves into the heart of sustainable agriculture, featuring Kenny and Chelsea Migliorelli, the passionate father-daughter duo from Migliorelli Farm. Nestled in the fertile lands of Northern Dutchess County, New York, their story is a blend of tradition, innovation, and unwavering commitm…

1
Finance with a Conscience: The Till Investors Story 37:20

7M ago37:20

37:20

In a compelling new episode of "The Caring Economy" with Toby Usnik, we meet the dynamic duo behind Till Investors, Ben Vivari and Kylelane Purcell. This episode is an exploration of how sustainable investing isn't just a buzzword but a profound transformation in the financial world. Ben Vivari, a Chartered SRI Counselor and MBA, brings his extensi…

1
Everybody Lives with Dan Doctoroff 48:37

7M ago48:37

48:37

We're diving into the archives to resurface this top downloaded episode from last year. Dan Doctoroff joined Patient Empowerment Program in February 2023 to talk about his mission to support a world where everyone with ALS lives. Dan is the former NYC deputy mayor for economics and former CEO of both Bloomberg L.P. and Sidewalk Labs. In this episod…

1
Eyes on the Future: Dr. V.K. Raju's Visionary Quest 29:35

7M ago29:35

29:35

In this enlightening episode of "The Caring Economy" with Toby Usnik, we journey through the life and achievements of Dr. V.K. Raju, a man whose vision extends far beyond the realm of ophthalmology. Born in Rajahmundry, India, Dr. Raju's story is one of passion, dedication, and an unwavering commitment to eradicating childhood blindness worldwide. …

1
Best of the 2023 Nano-rare Patient Colloquium 39:02

8M ago39:02

39:02

For the return of the patient empowerment program podcast, we’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the…

1
Care More in 2024: Exploring the Impact of Compassion of Wrigley with Anne Vela-Wagner 33:05

8M ago33:05

33:05

Join us in the 13th season of the "Caring Economy" podcast, where we delve deep into the heart of compassionate leadership and corporate social responsibility with our distinguished guest, Anne Vela-Wagner, Executive Director of the Mars Wrigley Foundation. In this engaging series, we explore the transformative power of caring in the business world…

1
How to Think About ”Risk” Part 2 35:28

9M ago35:28

35:28

Nano-rare diseases strip power from families and this often leads to hopelessness, anger, and dread. However, channeling these intense emotions to carefully navigate risk/benefit decisions is within one’s control. n-Lorem is different than standard drug development settings. Every risk/benefit decision that n-Lorem makes is in the context of the in…

1
Economic Frontiers: Conversations with Baroness Dambisa Moyo 33:57

9M ago33:57

33:57

In this compelling episode of "The Caring Economy," host Toby Usnik welcomes Baroness Dambisa Moyo, an influential figure whose life is a beacon of purpose-driven leadership. Born in Zambia, raised in the US, and now a member of the UK's House of Lords, Baroness Moyo's journey is nothing short of extraordinary. With degrees from the University of Z…

1
How to Think About ”Risk” Part 1 42:35

9M ago42:35

42:35

“How to Think About Risk” is arguably the most crucial topic ever discussed on the Patient Empowerment Program. Navigating decisions with substantial risk can be challenging, intricate, and even intimidating. The ability to detach from the intense emotions surrounding these choices is critical for making the best and most logical decisions. On This…

1
Unity in Action: The Claudia Romo Edelman Story 37:09

9M ago37:09

37:09

Join us on "Unity in Action," where we explore the remarkable journey of Claudia Romo Edelman, the visionary founder of the We Are All Human Foundation. With a career spanning over 25 years at prestigious organizations like the United Nations, UNICEF, and the World Economic Forum, Claudia has been at the forefront of global campaigns and movements …

1
Inheriting Huntington’s Disease and Aspiring to Prolong Lives with Jeff Carroll 38:43

9M ago38:43

38:43

Jeff Carroll, Ph.D., inherited a gene that will eventually lead to symptoms of Huntington’s Disease. Alongside researching this debilitating disease as an Associate Professor of Neurology at the University of Washington, he’s a Scientific Advisor for n-Lorem and member of the Access to Treatment Committee (ATTC) that helps screen and assess submitt…

1
Children's Advocacy with Lynn Margherio of Cradles to Crayons 30:11

9M ago30:11

30:11

Join me, Toby Usnik, on an enlightening episode of the Caring Economy, where we delve into the heart of social impact and innovation in the nonprofit world. In this inspiring conversation, we're honored to host Lynn Margherio, Founder and CEO of Cradles to Crayons, a national leader in tackling clothing insecurity among children. Discover how Cradl…

1
Scott Curran: Improving Global Impact – A World Philanthropy Day Special! 36:06

10M ago36:06

36:06

As we celebrate World Philanthropy Day on November 15th, join us in an extraordinary episode of The Caring Economy Podcast featuring Scott M. Curran, CEO of Beyond Advisers. Scott is the visionary behind some of the world's most influential social impact organizations and initiatives, including the Clinton Foundation, United Nations Foundation, The…

1
Charting the Future with Andi Cross: Navigating Business Growth and Ocean Advocacy | The Caring Economy 38:07

10M ago38:07

38:07

Dive deep with Andi Cross in this inspirational episode of "The Caring Economy," where passion for the planet meets business innovation. As the Expedition Lead for Edges of the Earth, Andi has spent over a decade masterminding growth strategies for startups and pivoting enterprises towards success. But it's not just about profit margins; it's about…

1
Living a Longer, Healthier, and More Fun Life with Chip Wilson 1:00:16

10M ago1:00:16

1:00:16

Chip Wilson, the creator of Lululemon and SOLVE FSHD, stands as a pioneer, business innovator, philanthropist, and a person affected by a rare disease. His passion for fitness led him to build a successful career in designing athletic wear, but a diagnosis of Facioscapulohumeral Muscular Dystrophy (FSHD), a degenerative muscle condition, altered hi…

1
Inside the World of Journalism and Politics with Jonathan Capehart 30:47

10M ago30:47

30:47

Deep dive into the dynamic world of journalism and politics with Pulitzer Prize-winning Associate Editor of The Washington Post, Jonathan Capehart. Join us for an engaging conversation as we explore his remarkable career and insights into the ever-evolving media landscape. Jonathan Capehart has been a prominent opinion writer at The Washington Post…

1
Andy Posner's Journey to Tackle Poverty: CEO of Capital Good Fund 38:17

10M ago38:17

38:17

Welcome to the Caring Economy Podcast, where we delve into the stories of individuals who are changing the world through innovative solutions. In this episode, we have the privilege of hosting Andy Posner, the visionary founder of Capital Good Fund, a game-changing organization that's transforming the way we approach poverty alleviation. Andy Posne…

Podcasts Worth a Listen

Amy Williford Podcasts

Podcasts Worth a Listen

Quick Reference Guide