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myFace, myStory

Dina Zuckerberg, myFace

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myFace’s Dina Zuckerberg hosts a monthly broadcast and podcast series with interviews and roundtable discussions from the craniofacial community. myFace, myStory aims to help educate the public about craniofacial differences and what those with facial differences deal with as individuals and as a community. Sharing these stories will enable those within the community to feel empowered by letting them know they are not alone and that their voices are heard.
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Abundant Hope

Kate Glaser & Sarah Hallas

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We’re Kate & Sarah, two gals thousands of miles from each other that have one beautiful thing in common…well, besides our red hair and both being moms to little ones who take up so much of our hearts and attention…we both crave stories that uplift the heart! There is an abundance of good stories throughout this world that promote the power of love, kindness and hope and we will be highlighting these stories as well as the heroes who are changing our world; one inspiring story at a time. Join ...
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On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Austin Halls born with Moebius Syndrome. He has incorporated his psychology degree, his journey, and his music to promote that you can love yourself and overcome any challenge that comes your way. Austin will share his journey to the musician and now model that he is…
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On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Justin Stewart, who will share his journey from being born with frontonasal dysplasia with a cleft in his nose to being a signed model and the adversity and challenges he faced along the way. Through motivational speaking, he encourages others to be true to themselve…
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On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Kathleen Watt, an opera singer on some of the biggest stages whose life changed when she was diagnosed with bone cancer in her face. She will speak about her memoir, REARRANGED where she writes about coming face-to-face with mortality, disfigurement, having her face …
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On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Naomi Levinshtein and Aaliyah Booker. They will share their personal journeys, and their advocacy work, and discuss the profound importance of the "Don't Stare, See Me" campaign for themselves and their community. - [Announcer] Welcome to "myFace, myStory: Voices fro…
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On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Leah Riman, who will share her journey from when her son, Logan, was born with a bilateral cleft lip and palate, blindness and other challenges to the music prodigy he is today. At the age of 2, Logan started playing the piano and he has played on some of the greatest stages…
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On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Mary Avella, born with Crouzon Syndrome. They will discuss how those with facial difference can hide their true selves wearing both figurative and/or literal masks, even creating a personality. What happens when you remove those masks and reveal who you are underneath? - [An…
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On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Jeremy and Henry Shipp. Jeremy is a writer for the Disney Junior cartoon, Firebuds. His son, Henry, was born with a cleft lip and palate and was the inspiration - and the voice - for the car character Castor on the Clefthood episode. Jeremy and Henry will talk about their jo…
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On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Dr. Kathleen Bogart, who will bring us on her journey growing up with Moebius Syndrome and why she pursued a PhD in Psychology that would shape who she is today. She will share some of her research including her most recent Facial Differences Disclosure Study as well as talk…
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Host Dina Zuckerberg sits down with Sora J. Kasuga, Face Equality Activist, to discuss her intersectional experience of living with multiple marginalized identities including being Japanese-American, neurodivergent, queer, and having a facial difference (lymphatic malformations and venous malformations on the left side of her face). Sora shares her…
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On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Amy Mendillo – author, advocate, and parent of a child born with a cleft lip and palate. Amy discusses themes from her new parent guidebook, I’ve Just Seen a Face: A Practical and Emotional Guide for Parents of Children Born with Cleft Lip and Palate, including the roles of …
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In honor of Apert Syndrome Awareness Month in June, host Dina Zuckerberg sits down with Morgan McGahan, Sara Pollak, and Emily Krebs - three best friends who were all born with Apert Syndrome. They will discuss their journeys, shared experiences, lifelong friendships, and overcoming the challenges associated with a craniofacial difference to achiev…
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On this month’s myFace, myStory, host Dina Zuckerberg sits down with Erin Ashayeri, the Mom of a child born with a cleft palate. When he was born, like all parents, they were thrilled, overwhelmed, and exhausted. Then to their surprise, they learned the next day that their son was born with a cleft palate. Erin shares her journey to finding support…
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On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Ruth Rathblott, a TEDx and inspirational speaker, bestselling author, and an award-winning nonprofit leader. Ruth shares her journey of living with a limb difference which she spent much of her life hiding and how she has come out of hiding. She speaks about how to c…
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On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Ava Marie Beeler, who has been a member of the myFace Community since her first surgery at 2 years old. Ava seems like a typical young woman her age, however, she is anything but typical. In fact, she’s quite extraordinary! Ava was born with Pfeiffer Syndrome, a rare craniof…
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On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by David Roche, an inspirational humorist with a facial difference, vascular malformation. David shared details about how he overcame the shame he felt about his differences, learned to accept them, and realized that his flaws and his gifts are one and the same. Additionally, t…
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Navigating life with a craniofacial condition certainly comes with challenges. On this month’s episode of myFace, myStory, host Dina Zuckerberg is joined by Dorsey Ross - minister, podcaster, and public advocate born with Apert Syndrome. Dorsey wants us all to remember that with support, community, and faith - whether that be faith in yourself, you…
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On this month’s myFace, myStory, host Dina Zuckerberg was joined by Matthew Joffe, born with Moebius Syndrome. Matthew is the Director of Outreach and Education at the Wellness Center at LaGuardia College/CUNY in New York. This episode was a special and intimate conversation between Dina and Matthew where they discussed his journey of living with M…
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On this month’s myFace, myStory, host Dina Zuckerberg spoke with New York makeup artist and long-time friend of myFace, Naomi Levinshtein, along with founder and director of POSITIVE EXPOSURE, a non-profit organization that promotes a more inclusive world through award-winning photography and educational programs, Rick Guidotti. This episode was a …
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myFace’s Dina Zuckerberg sat down with Appearance Activist and CEO of Face Equality International, Phyllida Swift. This episode explored Phyllida’s journey of sustaining facial scars in 2016 after a car accident, and how she turned that trauma into a triumph by becoming an Appearance Activist fighting for equality and inclusion for those with facia…
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myFace’s Dina Zuckerberg spoke with teenage disability advocate and TikTok sensation, Grace Nova. This episode shed light on Grace’s journey of growing up with Escobar Syndrome and how her unique experiences inspired her to use social media platforms to advocate for those in the disability and the craniofacial communities by providing an inside loo…
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myFace’s Dina Zuckerberg spoke to author, poet, retired nurse practitioner, and advocate for the cleft community, Luci Capo Rome about her memoir, Lucia's Story: My Imperfect Beauty, written in honor of facial differences. We will follow her journey of being born with a severe and complete bilateral cleft lip and palate and how she rose above all t…
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Lydia Dominick of Buffalo, NY is a successful business owner, running a popular balloon company and also working to beautify women through services like lashes and makeup. She also founded Buffalo Gives after the war on Ukraine broke out. What started as requests for food, diapers and combat supplies from those in her community turned into boots on…
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Advocating for your child with a cleft lip/palate or craniofacial condition can be challenging, but it has a critical impact on your child’s outcomes. In this episode, we heard from parents who have helped their children navigate and overcome bullying, supported their children through medical procedures and surgeries, and who have fought - and succ…
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In 2012, a baby girl was born without a right or left hemisphere of her brain. Doctors said she was essentially in a vegetative state, unable to see or hear. Relinquished by her birth parents, this two-week-old unnamed baby girl found her way to Cori Salchert’s home. Despite the infant's grim medical diagnosis, Cori took the baby and named her Emma…
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Dina Zuckerberg is the Director of Family Programs for myFace Foundation, a nonprofit organization out of New York City supporting those with craniofacial differences. Whether it's emotional support groups, online educational series, family networking or public awareness efforts, Dina's goal is to advocate for the craniofacial community and make su…
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BrandiLee Sawyer is the Director of Patient Advocacy for The SHEPHERD Foundation - a mission to revolutionize rare cancer, especially rare cancer in children. She is a proud mom of three boys, including her son Finn, who was just three when cancer took his life. Her son, a lover of avocados and superheroes, and his story remain at the forefront of …
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Jake Bodine is the Founder & CEO of God Behind Bars. Jake is passionate about helping those who are lost to find hope and faith through Jesus. He uses his talents to change the world for those behind prison walls and reunite broken families. Jake has served as the CEO of God Behind Bars for almost 9 years and was recently named of the Top 40 Leader…
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Sierra Cooke is the mother of four children, two who live on earth, and two who live in Heaven. She lives in Raleigh, North Carolina and works for a local ministry as a houseparent along with her husband, Canyon. Sierra lives her life with the purpose to encourage women to live Christ-centered, happy, and healthy lives through her podcast and onlin…
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At just 29, Fabi Powell lost her Army Ranger husband, Josh to Synovial Sarcoma cancer. She started the Josh Powell Foundation in his honor to help encourage newly diagnosed patients and fulfill wishes of those running out of time. At 33, she started IVF to have her late husband's baby. Two years later, still no baby, but by the grace of God and an …
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Grace Hackett is the Director of Engagement for Love One International - a global nonprofit centered in Tennessee that is saving the lives of babies and children in Uganda who are critically ill. It is not the goal for these children to be adopted to families outside of Uganda, but rather to treat them and come up with a resettlement plan, so they …
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The journey to find confidence and self-acceptance can be a long one for those in the craniofacial community, but rewarding nonetheless. myFace’s Dina Zuckerberg sat down with guest speaker Cleft Confidence Coach & Transformational Speaker, Iva Ballou, as they discussed how Ms. Ballou helps empower those growing up with craniofacial differences by …
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Midsi Sanchez just turned 8-years-old when she was walking home from school in Vallejo, California and her world changed forever. She was kidnapped by a stranger who grabbed her from the street just feet away from her home and forced her into his car. The man, later identified as felon and pedophile, Curtis Dean Anderson, kept her in his vehicle fo…
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In this episode of Abundant Hope our Co-Host Sarah Hallas and her friend Enaka Enyong share their incredible story of friendship, love, faith & hope. A whirlwind of events all began when Sarah’s then husband delivered shocking news to her and asked for a divorce. Sarah then moved to Nashville with Enaka and after settling in for only one month Sara…
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Kennith Allen Thomas – otherwise known as the “dancing dad” – took the internet by storm with his daily father-son dancing videos from his son’s hospital room. His young son, Kristian was diagnosed with leukemia and was also born with down syndrome. In the now-viral video called “When your son is cancer–free” Kenny and Kristian can be seen dancing …
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Robert Walker was born in Laramie and is a second generation Wyoming attorney. Upon graduating high school, Robert completed a two year mission for the Church of Jesus Christ of Latter Day Saints in Minas Gerais, Brazil. Robert joined Hickey & Evans in the fall of 2010 and has primarily represented clients in the areas of estate planning, probate, …
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myFace’s Dina Zuckerberg sat down with guest speaker Author Shelley Hull as they discussed Ms. Hull’s memoir, Shelley: The uplifting story of a battle to overcome disfigurement. This episode was autobiographical in nature as Ms. Hull spoke about the challenges and triumphs she dealt with while growing up living with Goldenhar Syndrome, the lessons …
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Hope Rises + Abundantly More = Abundant Hope. In this inaugural episode of Abundant Hope, hosts Kate Glaser + Sarah Grace Hallas discuss what inspired them to join forces and serve their ultimate mission, igniting hope through stories of love and goodwill. Topics Include: Hope Rises: Igniting Hope Across The Globe What Inspired Sarah To Create Abun…
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We’re Kate & Sarah, two gals thousands of miles from each other that have one beautiful thing in common…well, besides our red hair and both being moms to little ones who take up so much of our hearts and attention…we both crave stories that uplift the heart! There is an abundance of good stories throughout this world that promote the power of love,…
  continue reading
 
myFace’s Dina Zuckerberg sat down with guest speakers Dr. Alexis Johns, Melvin Farmer, Naomi Levinshtein, and Ava Beeler as they talked about life after high school and the complexities that come with the journey of transitioning into adulthood for those in the craniofacial community.By myFace
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myFace’s Dina Zuckerberg sat down with guest speakers Jeryl Brunner, Dean Kandilakis, Ann Piesen, and Eric Riklin as they talked about the challenges that those in the craniofacial community deal with while trying to navigate intimacy and building relationships while living with a facial difference.By myFace
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myFace’s Dina Zuckerberg sat down with New York Times best-selling author of the book Wonder, R.J. Palacio, myFace Board Member Sondra Neuschotz, and educator and parent of a young adult living with a craniofacial difference, Mary Butters, to collectively celebrate the amazing impact that Wonder has caused for the craniofacial community after being…
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myFace’s Dina Zuckerberg sat down for a panel discussion with Ava Beeler, Halley Crane, Nicole Hilton, and Rena Rosen as they spoke about the nuances of trauma experienced by those living with craniofacial differences, and how the different surgeries and medical procedures they received throughout their lifetime impacted them and their families.…
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myFace’s Dina Zuckerberg sat down for a discussion with Ariel Henley as they discussed her new memoir A Face for Picasso, and how she is using her personal story as a platform to advocate for mainstream inclusivity for the craniofacial community and to further educate the world about the experiences of those living with facial differences to help e…
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Joe Graf Jr. is a 23-year-old rising star on the racing scene who has competed in the ARCA Menards Series, NASCAR Modified Series, INEX Legends Car Series, and the INEX Bandolero Series. In 2021, he began his sophomore season in the NASCAR Xfinity Series, but Joe and his family have been supporting the craniofacial community for years. During this …
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Best-selling author, comedian, and internet sensation Sarah Cooper and her sister Charmaine Cooper, an accomplished nurse practitioner for over 2 decades, join host Dina Zuckerberg for a candid, in-depth conversation on humor, passion, and community on the next episode of our new podcast series, myFace, myStory. Born with Treacher Collins Syndrome,…
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Welcome to our first episode with an introduction to myFace, myStory, a new monthly series featuring conversations with the craniofacial community. Meet Dina Zuckerberg, Director of Family Programs at myFace, an amazing organization dedicated to changing the faces – and transforming the lives – of children and adults with facial differences by prov…
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