Bem vindos ao podcast onde tal como na vida, tudo pode acontecer
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This podcast is for people with Charles Bonnet Syndrome (CBS), their caregivers, and allies. It's a space to offer awareness, information, support and hope. CBS is a condition that causes visual hallucinations in people who are blind or visually impaired. Host Shaimond Foye and occasional co-hosts interview people with CBS, their caregivers, ambassadors, PhDs, and medical professionals. Hosts and guests share their insights and research as we all work together to make a positive difference i ...
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RECLAME is an entertainment platform, on TV (Multishow/Globosat), Radio (Kiss FM/ Rock Reclame) and Internet, dedicated to the world of communication, creativity, marketing, advertising, focusing on the Brazilian and global advertising market, we cover the major festivals that celebrate the creativity as Cannes Lions International Festival of Creativity, for 17 straight years, and we are the only program in the electronic media specialized in covering the backstage of the main Brazilian adve ...
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Episode 32: Cognitive Neuroscientist Dr. Robin Walker
38:56
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In this episode of The Charles Bonnet Syndrome Podcast, host Shaimond welcomes Professor Robin Walker, a cognitive neuroscientist from Royal Holloway, University of London. They discuss Dr. Walker's extensive research on visual perception and macular degeneration, and his current focus on Charles Bonnet Syndrome. The conversation delves into a read…
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Episode 31: Patient Advocate Richie Kahn
1:07:04
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In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Richie Kahn, a public health professional, clinical researcher, and patient advocate. Richie shares his personal journey with optic atrophy and Charles Bonnet Syndrome. With a background in public health and a passion for patient advocacy, Richie talks about his career…
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Episode 30: Cognitive Appraisal Theory and Reframing Your Thoughts
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In this episode of the Charles Bonnet Syndrome podcast, host Shaimond delves into Cognitive Appraisal Theory, a psychological framework that explains how our interpretations of events shape our emotional responses. He explains the two stages of cognitive appraisal—primary and secondary—and provides therapeutic techniques such as cognitive restructu…
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Episode 29: Neuroscientist Dr. Kat Da Silva Morgan
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In this episode, Shaimond interviews Dr. Kat Da Silva Morgan from Newcastle University's Translational and Clinical Research Institute. Dr. Morgan discusses her extensive research into Charles Bonnet Syndrome (CBS), explaining her journey from psychology to neuroscience and her focus on visual hallucinations. She elaborates on the unique aspects of…
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Episode 28: Cognitive Neuroscientist Dr. Jennifer K Steeves
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In this episode, Shaimond and guest host Duchess Antoinette McDonald-Ellis welcome cognitive neuroscientist Dr. Jennifer K Steeves from York University. Dr. Steeves discusses visual and sensory processing, emphasizing her research on Charles Bonnet Syndrome (CBS). She recounts her discovery of CBS through collaborative research and shares insights …
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Episode 27: Dr. Anica Zeyen’s Charles Bonnet Syndrome and Research
1:08:56
1:08:56
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In this episode, Shaimond welcomes Dr. Anica Zeyen, a UK-based researcher who has CBS and cone-rod dystrophy. Dr. Zeyen shares her experiences with vision loss and the onset and development of her CBS symptoms. She offers insights into coping mechanisms and discusses how trust, relationships, and communication play a crucial role in managing the co…
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In this episode, Shaimond and guest host Dr. Gary Cusick welcome Sam Seavey, an online health advocate for the blind community and owner of the popular YouTube channel 'The Blind Life.' Sam shares his journey with Stargardt's disease and how it took him decades to fully accept his visual impairment. He discusses his work at the Bluegrass Council of…
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In this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes…
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Episode 24: Coping Mechanisms, General Tips, Natural Remedies and More
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14:07
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In this episode, Shaimond shares a comprehensive guide to coping with Charles Bonnet Syndrome (CBS). He covers general tips, coping mechanisms, natural remedies, and innovative treatments gathered from people with CBS and experts in the medical and research field. Key topics include recognizing hallucinations, stress management, utilizing support g…
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Episode 23: Lucia Ricardo from the CNIB
1:12:54
1:12:54
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In this episode, Shaimond and Antoinette interview Lucia Ricardo, a program lead at the Canadian National Institute for the Blind (CNIB). They explore the condition's history, personal experiences, the importance of awareness among medical professionals, and the impact of peer support. Lucia shares insights into the CNIB's efforts in supporting ind…
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Episode 22: Vicky Hamilton’s Story and Research
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In this episode, Shaimond interviews Vicky Hamilton, a PhD candidate performing research on Charles Bonnet Syndrome (CBS) at Griffith University, Queensland College of Art and Design in Brisbane, Australia. Hamilton shares her journey with CBS. Utilizing art and digital technology, Hamilton's research focuses on recreating the visions experienced b…
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Episode 21: Low Vision Occupational Therapist Meagan Chapman
49:22
49:22
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In this episode, Shaimond interviews Megan Chapman, an occupational therapist specializing in low vision, from Low Vision Works in Sarasota, Florida. They discuss the role of occupational therapy in helping individuals with low vision, including those suffering from Charles Bonnet Syndrome (CBS). Chapman explains the broad scope of occupational the…
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Episode 20: Graphic Novelist Gareth Brookes
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38:06
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In this episode, Shaimond and guest co-host Dr. Gary Cusick interview graphic novelist and researcher Gareth Brookes. Brookes discusses his graphic novel, “A Thousand Coloured Castles” which features a main character with Charles Bonnet syndrome (CBS). Inspired by his grandmother's experiences with the condition, Brookes aims to raise awareness and…
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In this episode, Shaimond interviews Dr. Jasleen Jolly, Associate Professor in Vision and Eye Research at Anglia Ruskin University in Cambridge, England and Director of Jolly Vision Science. Dr. Jolly discusses her extensive work and research on Charles Bonnet Syndrome. She explains the misconceptions about the syndrome, its prevalence and highligh…
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Episode 18: Scot Muirden from the Charles Bonnet Syndrome Foundation
1:25:41
1:25:41
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In this episode, Shaimond interviews Scot Muirden, Director at Charles Bonnet Syndrome Foundation AU. He explains the mission of the Foundation, which includes providing direct services to those affected by CBS and raising awareness within the medical and healthcare sectors. The conversation covers the importance of a multidisciplinary approach to …
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In this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome. Contac…
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In this episode, Shaimond interviews Chris Wilsdon a representative from the Kent Association for the Blind, to discuss Charles Bonnet Syndrome (CBS) and how his organization supports the visually impaired in Kent and parts of London, UK. Wilsdon shares his personal journey from experiencing vision problems to dedicating over 15 years to aiding tho…
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In this episode, Shaimond interviews Tanya Straker, who shares her journey as a caregiver and discusses her book “6 Life Hacks For Family Caregivers,” her weekly caregiver support group, Coffee with Caregivers, and shares tips to help caregivers manage, among other things she does to support people on their journey to being their best self. For mor…
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In this episode, Shaimond and Eva interview Susan Michel who shares her journey with Retinitis Pigmentosa, Macular Degeneration and Charles Bonnet Syndrome. For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregi…
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Episode 13: Leonid Skorin Jr., DO, OD, MS
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1:03:40
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In this episode, Shaimond and Eva interview Dr. Leonid Skorin, an ophthalmologist at the Mayo Clinic. He gives an ophthalmic view of Charles Bonnet Syndrome. Contact Dr. Skorin at Skorin.Leonid@mayo.edu For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-bas…
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In this episode, Shaimond and Eva interview Irvine Harris who shares his journey with Macular Degeneration and Charles Bonnet Syndrome. Contact Irvine at harrisfl@gmail.com Irvine’s website https://savinghumanity.net/ For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cu…
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Episode 11: Judith Potts from Esme's Umbrella
1:10:14
1:10:14
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In this episode, Shaimond interviews Esme’s Umbrella founder, Judith Potts. She shared how she first became aware of Charles Bonnet Syndrome (CBS) when it affected her mother and how she founded Esme's Umbrella, her Charity that focuses on raising awareness, offering support and sourcing funding for research for CBS. Contact Judith Potts at judith@…
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In this episode, Shaimond and Eva interview Dave Hommel who shares his story as a caregiver for his mother who has journey Charles Bonnet Syndrome. Contact Dave at williamdhommel@gmail.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virt…
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In this episode, Shaimond discusses who Charles Bonnet was. For help with Charles Bonnet Syndrome call 704-389-0160 Contact me at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers support group email Dr. Cusick at garymcusick@icloud.com For the link to attend Pocklington …
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In this episode, Shaimond and Eva interview Theo Blue who shares his journey with Glaucoma and Charles Bonnet Syndrome. Contact Theo at theomblue@gmail.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregiv…
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In this episode, Shaimond and Eva interview Janet Duke, who shares her story as a family member and caregiver for her mother who has Charles Bonnet Syndrome. Contact Janet at jlduke88@gmail.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly…
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Dr. Gary Cusick shares how he has helped the blind and visually impaired community for decades and why he has chosen to help people with Charles Bonnet Syndrome (CBS) as his life’s passion. As of the release of this episode, he is the leading authority on CBS education, research and support in the U.S. Contact Dr. Gary Cusick at 502-439-0398 or gar…
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In this episode, Shaimond and Eva interview Jonathan Ward who shares his journey helping the blind and visually impaired community for nearly 40 years. He also discusses his visual impairment and first-hand experiences with Charles Bonnet Syndrome. Contact Jonathan at Jonathan.Ward@pocklington.org.uk For help with Charles Bonnet Syndrome call 704-3…
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In this episode, Shaimond and Eva interview Carole Hommel who shares her journey with Macular Degeneration and Charles Bonnet Syndrome. For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers support group em…
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In this episode, Shaimond and Eva interview Ken Ellis, who shares his story as a caregiver for his wife, Antoinette, who has Charles Bonnet Syndrome. Contact Ken at keproductiondesign@yahoo.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly…
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In this episode, Shaimond and Eva interview Antoinette McDonald-Ellis who shares her journey with Glaucoma and Charles Bonnet Syndrome. Contact Antoinette https://www.facebook.com/antoinette.mcdonald1 For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based…
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Episode 1: What is Charles Bonnet Syndrome
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32:27
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In this episode, hosts Shaimond Foye and Eva Potts introduce themselves and discuss what Charles Bonnet Syndrome is and why they created this podcast. For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers s…
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"Rock Reclame": Malvino Salvador (ator) e Priscilla Ceruti (dentsumcgarrybowen)
46:37
46:37
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Esse quadragésimo primeiro “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 27 de outubro, contou com o ator Malvino Salvador e Priscilla Ceruti, Diretora geral de planejamento e estratégia da dentsumcgarrybowen. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção ge…
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"Rock Reclame": Karen Junqueira (atriz) e Paulo Aguiar (Next)
1:11:59
1:11:59
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Esse quadragésimo “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 20 de outubro, contou com a atriz da TV Globo Karen Junqueira e Paulo Aguiar, Head de Mkt da Next. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentadores Felipe S…
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"Rock Reclame": Bruna Pazinato (atriz) e Lucia Bittar (CVC Corp)
1:23:05
1:23:05
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Esse trigésimo nono “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 13 de outubro, contou com a atriz e cantora Bruna Pazinato e Lucia Bittar, Diretora de Marketing B2C da CVC Corp. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os aprese…
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"Rock Reclame": Ana Paula Padrão e Viviane Mansi (Fundação Toyota Brasil)
1:31:36
1:31:36
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Esse trigésimo sétimo “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 06 de outubro, contou com a jornalista e apresentadora de TV Ana Paula Padrão e Viviane Mansi, Diretora de Comunicação e Sustentabilidade da Toyota e Presidente da Fundação Toyota Brasil. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, à…
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"Rock Reclame": Rafa Costa e Silva (chef de cozinha) e Bruno Montejorge (iFood)
1:25:12
1:25:12
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Esse trigésimo sexto “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 29 de setembro, contou com o chef de cozinha Rafa Costa e Silva e Bruno Montejorge, diretor de marcas e comunicação do iFood. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garc…
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"Rock Reclame": Flávia Alessandra (atriz) e Alexandra Pain (C6 Bank)
1:20:07
1:20:07
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Esse trigésimo quinto “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 22 de setembro, contou com a atriz Flávia Alessandra e Alexandra Pain, head de mkt do C6 Bank. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentadores Felipe S…
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"Rock Reclame": Thierry Figueira (ator) e Léo Ávila (Agência Santa Clara)
1:10:59
1:10:59
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Esse trigésimo quinto “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 15 de setembro, contou com o ator Thierry Figueira e o Léo Ávila, VP de Criação da agência Santa Clara. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentadores…
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"Rock Reclame": Rodrigo Suricato (Barão Vermelho) e Luiz Calainho (empreendedor e apresentador)
1:24:01
1:24:01
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Esse trigésimo quarto “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 8 de setembro, contou com o empreendedor e apresentador de TV Luiz Calainho e Rodrigo Suricato, vocalista da banda Barão Vermelho. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roge…
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"Rock Reclame": Thiago Nigro (Primo Rico) e Laio Santos (Rico Investimentos)
1:24:30
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Esse trigésimo terceiro “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 1º de setembro, contou com o influenciador e youtuber Thiago Nigro (Primo Rico) e Laio Santos, CEO da Rico Investimentos (XP Inc). A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Rog…
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"Rock Reclame": Gabi Lopes (atriz e influenciadora) e Gal Barradas (publicitária e empreendedora)
1:22:05
1:22:05
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Esse trigésimo segundo “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 25 de agosto, contou com a atriz e influenciadora Gabi Lopes e a publicitária e empreendedora Gal Barradas. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentad…
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"Rock Reclame": Iuri Maia (Head MKT | Mercado Livre) e Nil Moretto (Jornalista | Coisa de Nerd)
1:22:04
1:22:04
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Esse trigésimo primeiro “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 18 de agosto, contou com a jornalista e influenciadora Nil Moretto (Jornalista | Coisa de Nerd) e Iuri Maia (Head MKT | Mercado Livre). A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral d…
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"Rock Reclame": Astério Segundo (35 Agency) e Ju de Paulla (influenciadora, apresentadora e DJ)
1:21:35
1:21:35
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Esse trigésimo “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 11 de agosto, contou com Astério Segundo, Fundador da 35 Agency e Ju de Paulla, influenciadora, apresentadora e DJ. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentad…
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"Rock Reclame": Marcela Mc Gowan (médica e ex-BBB20) e Sergio Giorgetti (Visa Brasil)
1:24:44
1:24:44
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Esse vigésimo nono “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 04 de agosto, contou com Sergio Giorgetti, VP de Marketing da VISA do Brasil e Marcela Mc Gowan, médica, especialista em sexualidade feminina e ex participante do BBB20. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss…
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"Rock Reclame": Gretchen (Cantora) e Rafael Ziggy (DPZ&T)
1:20:37
1:20:37
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Esse vigésimo oitavo “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 28 de Julho, contou com Gretchen, Cantora e rainha dos memes e o Diretor Executivo de Criação, Rafael Ziggy da DPZ&T. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os ap…
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"Rock Reclame": Marcelo Tas (Jornalista e Apresentador) e Cristina Duclos (Latam/Electrolux)
1:21:26
1:21:26
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Esse vigésimo sétimo “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 21 de Julho, contou com Marcelo Tas, Jornalista e Apresentador e a VP de Marketing da Latam/Electrolux, Cristina Duclos. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os…
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"Rock Reclame": Samara Felippo (Atriz) e Fábio Melo (M. Dias Branco)
1:28:30
1:28:30
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Esse vigésimo sexto “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 14 de Julho, contou com Samara Felippo, Atriz e o Diretor de Marketing da M. Dias Branco, Fábio Melo. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentadores Feli…
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"Rock Reclame": Guilherme Weber (Ator) e Pedro Cabral (Ampfy)
1:26:32
1:26:32
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Esse vigésimo quinto “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 07 de Julho, contou com Guilherme Weber, Ator e o CEO da Ampfy, Pedro Cabral. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentadores Felipe Solari, Natallia Rod…
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"Rock Reclame": Maurício Meirelles (Humorista) e Andrea Salinas (JCDecaux Brasil)
1:26:14
1:26:14
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Esse vigésimo quarto “Rock Reclame” ao vivo de 2020, transmitido ao vivo em 30 de junho, contou com Maurício Meirelles, Humorista e a Diretora de Marketing e Inovação, Andrea Salinas. A versão radiofônica especial e exclusiva do “Reclame” vai ao ar toda terça-feira, às 21h, ao vivo na Kiss FM 92,5. Com direção geral de Roger Garcia, os apresentador…
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