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Welcome to our podcast, Everything Real Estate! At Allison Cahill and Partners, we specialize in Luxury Properties at Walt Danley Christie's International Real Estate in Scottsdale, Arcadia, Paradise Valley & Carefree. My family has lived in Scottsdale for nearly 15 years. We have lived all over the country, but once we moved to Arizona there was no getting me out of the Valley. We have lived in some great cities, but Scottsdale is my favorite. My experience as a corporate attorney has given ...
 
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews MeiLan K. Han, MD, chief of the University of Michigan’s Division of Pulmonary & Critical Care in Ann Arbor. Dr. Han, a spokeswoman for the American Lung Association, leads groundbreaking research on oxygen delivery in chronic lung disease and has also written a book on the sub…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sigbjørn Berentsen, MD, PhD, a hematologist and senior researcher at Norway’s Haugesund Hospital. Dr. Berentsen is an expert in the role of carnitine in regulating LCFAOD.By Rare Care Podcast
 
Having a sibling can be amazing. Siblings can be built-in playmates and best-friends, your partner in crime and a constant in an individual's life. Siblings represent deep-roots and home for the entire life journey they embark on together. But sibling relationships are not without complications. In this episode, we are talking to sibling pairs wher…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews researcher Adrian Krainer, PhD, from the Cold Spring Harbor Laboratory in New York. Dr. Krainer perfected the RNA splicing technique that led to the development of nusinersen, the first treatment for spinal muscular atrophy.By Rare Care Podcast
 
Firefighter Richard Scheidt emerged from the building carrying the body of a 10-year-old boy, and Lasker snapped a photograph. The image remains among the most poignant to emerge from the blaze at Our Lady of Angels School on Dec. 1, 1958, that killed 92 children and three nuns.By Fire & Iron Media
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michael Yeaman, PhD, chief medical advisor to the Guthy-Jackson Charitable Fund, based in Los Angeles. Dr. Yeaman speaks about neuromyelitis optica spectrum disorder (NMOSD), a rare autoimmune disease that was once thought to be a form of multiple sclerosis.…
 
Need a last-minute gift-giving idea? You’re in luck because in this episode, we are talking all about fun do-it-yourself crafts and gift-giving, recipes and more. We have two guests joining us who are known for their art, entertaining and baking skills and we are all sharing ideas for how to make do-it-yourself easy AND accessible. Campfire Bars Re…
 
The holidays can be a fun, festive time of year. There are decorations, music, parties, food...but for many, the holidays can be an incredibly stressful time. And when dealing with an illness or disability, like a neuromuscular disease, while the holidays can still be lots of fun, there are also additional circumstances that can increase our stress…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donald S. Wood, PhD, president and CEO of the Muscular Dystrophy Association (MDA). Their conversation focuses on the latest therapies for Duchenne muscular dystrophy, Pompe disease, and spinal muscular atrophy, and on the upcoming 2022 MDA Clinical & Scientific Conference.…
 
This month, we continue our series on "Access to the World," with a look at architecture. In this episode, Mindy speaks with Dominic Marinelli. Dominic is talking all about building codes in commercial architecture to make buildings accessible, how those codes change and evolve year to year, and how we can all do our part to make buildings more acc…
 
This month, we continue our series on “Access to the World,” with a look at architecture. In this episode, Mindy speaks with Paul Robertson who lives with Limb Girdle Muscular Dystrophy, type 2J. Paul recently built a new home to suit his changing mobility and joins us to discuss the building process and what he did to make his new home accessible.…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cori Forster, vice-president of the Cold Agglutinin Disease Foundation (CADF) — a nonprofit organization formed to advocate for patients and families affected by CAD. We also talk about research on new therapies for this extremely rare anemic disorder.…
 
A special live episode from Illuminated Brew works with Army Special Forces K9 handler Dan Traeder. Special guest Lt Sophia Traeder of the US Army and friends Brian and Alfredo. Dan talks about his military career before and after 9/11, and how he got into the fire service where he worked with Brian and Alfredo at the Lincolnwood IL Fire Department…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dr. Haggi Mazeh, an endocrine surgeon at Hebrew University's Hadassah Medical Center in Jerusalem. Dr. Mazeh, one of Israel's top experts on thyroid cancer, talks extensively about the challenges of treating medullary thyroid carcinoma.…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Harsha K. Rajasimha, PhD, in Herndon, Virginia. Dr. Rajasimha cofounded the Organization for Rare Diseases India and is now CEO of Jeeva Informatics, which aims to improve the diversity, equity, and inclusion (DE&I) of patients in clinical trials worldwide.…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, talks to pulmonologist Naftali Kaminski, MD, professor of medicine and pharmacology and chief of Pulmonary, Critical Care and Sleep Medicine at Yale University School of Medicine in New Haven, Connecticut. Dr. Kaminski discusses the recently announced Three Lakes Consortium for Pulmonary …
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durhane Wong-Rieger, PhD, president and CEO of the Canadian Organization for Rare Disorders (CORD) and chair of Rare Diseases International (RDI). Dr. Wong-Rieger talks about the challenges of diagnosing and treating diseases in Canada, as well as advancing access to therapies …
 
October is Disability Employment Awareness Month, so on this episode of Quest Podcast, we’re exploring the world of employment for individuals with disabilities. Despite a huge talent-pool of candidates in the U.S., only approximately 29% of individuals with disabilities hold positions in the current workforce. In this conversation, we’re discussin…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews David Goldenberg, MD, FACS, a surgical oncologist, and professor and chair of the department of otolaryngology-head and neck surgery at Penn State College of Medicine in Hershey, Pennsylvania. Dr. Goldenberg has just published the latest edition of his book, Endocrine Surgery o…
 
Corey and Steve interview the women from MDA. They talk about how they started within the organization, the unique fundraisers that firefighters around the area come up with, and where all that "Fill the Boot" money goes too. Special appearance from IAFF Local 1526, Franklin Park Firefighters union.By Fire & Iron Media
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jerry Vockley, MD, PhD, chief of medical genetics at Pennsylvania's UPMC Children's Hospital of Pittsburgh. Dr. Vockley is also the founder of INFORM, the International Network for Fatty Acid Oxidation Research and Management, which will hold its next annual conference virtuall…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Hagit Baris-Feldman, MD, director of the Genetics Institute at Israel's Tel Aviv Sourasky Medical Center. Dr. Baris-Feldman, who also chairs the Israel Medical Genetics Association and is an associate professor at Tel Aviv University's Sackler Faculty of Medicine, talks about w…
 
Vince talks to Alex Griff from Hazel Crest Il., Alex is a firefighter and fitness advocate. Alex is the coordinator for the MABAS 24 CPAT. Listen to Alex give tips on challenging the CPAT test. Alex talks about coming up in the fire service and tells a couple funny stories including cows falling from the highway.…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Barry Byrne, MD, director of the University of Florida's Powell Gene Therapy Center in Gainesville. Dr. Byrne has spent years researching potential gene therapies for Pompe disease, comments on the FDA's recent approval of avalglucosidase alfa-ngpt (Nexviazyme) to treat Pompe.…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eric Olson, PhD, chief scientific advisor at Vertex Pharmaceuticals and founding chair of the molecular biology department at the University of Texas-Southwestern Medical Center. Dr. Olson is an expert on Duchenne muscular dystrophy and CRISPR gene editing technology.…
 
This next episode in our "Access to the World" series focuses on hotel accommodations for individuals with disabilities. accessibleGO is a travel website, specializing in accommodations for disabled travelers. During this conversation we discuss the challenges involved in making travel arrangements for those with special accessibility needs and how…
 
The second in our "Access to the World" series, this episode focuses on the unique challenges air travel presents to individuals who use wheelchairs. We will discuss the current state of air travel and the inconvenience, and emotional strain it causes travelers who use wheelchairs. Then, we turn the tables to talk about solutions. The work that is …
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Edward Neilan, MD, chief medical officer at the National Organization for Rare Disorders (NORD). This is a new position at NORD, which serves as the umbrella organization for some 330 disease-specific patient advocacy groups. NORD also sponsors the annual Rare Diseases and Orph…
 
The guys talk to Caitlyn Brennen CEO of the 100 club, a non profit organization who help the families of fallen first responder who have suffered a line of duty death and so much more. learn about this amazing group of people and the things they do that you have never heard about before.By Fire & Iron Media
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Camille Bedrosian, MD, chief medical officer and executive vice president of Ultragenyx Pharmaceutical in Novato, California. Earlier this year, Ulragenyx won approval from the US Food and Drug Administration (FDA) for triheptanoin (Dojolvi®), a liquid medication that supplies …
 
vince and guest host Nick Felber from episode 27 talk to Peter Van Dorpe retired CFD member with 33 years of service with CFD. they talk about how Pete came up in the fire service right after the strike in 1980 and everything in between. a great look back into the "old school" ways of the Chicago Fire Dept.…
 
For individuals with NMD, or any disability, travel is complicated by all kinds of logistical issues and accessibility barriers. There are places and experiences that are "off-limits" to individuals who use wheelchairs because certain destinations just aren’t accessible, or accessible enough. Kevan and friends have broken through those barriers by …
 
We talk to Kurt and Ryan from Project Fire Buddies.Project Fire Buddies is an all volunteer, non profit organization that brings joy to kids struggling with serious illnesses. In their first year, they ran a Christmas toy drive, collecting presents from generous community members and purchasing some themselves, then delivering the gifts to the chil…
 
For anyone with NMD or other disabilities, getting from one place to another can be a challenge. On today's episode of Quest Podcast, we will be discussing the various options in accessible ground transportation, from driving adapted vehicles, to riding on buses and trains. We'll examine the various modes of transportation, what systems have been d…
 
Ryan Constantino and his mother 'Shenan' Cardwell-Constantino came into the studio to talk about their charity the Shield 23 Foundation Shield 23 supports active firefighters who find themselves suddenly battling for their lives against cancer in memory of their father and husband Firefighter/Paramedic Russ Constantino From the Gurnee Fire Departme…
 
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