A new podcast devoted to the business of Quantum Technology
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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Interviews with Neuroscientists about their New Books Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/neuroscience
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ISPIM - the International Society for Professional Innovation Management - is a community of members from research, industry, consulting and the public sector, all sharing a passion for innovation management - how to successfully create new products, processes and services from ideas to stimulate economic growth and well-being. Formed in Norway in 1983, ISPIM is the oldest, largest and most active truly global innovation network.
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ᓂᐱᕗᑦ, ᐃᓄᐃᑦ ᓄᓇᖃᑎᒌᑦ ᓇᓚᐅᑎᑯᑦ ᑐᓴᕐᓴᐅᓚᕐᓂᐊᑐᑦ CKUT 90.3FM ᑯᑦ ᒪᓐᑐᔨᐊᓚᒥ. ᖃᓪᓗᓇᑦ ᓄᓇᖓᓂ ᓯᕗᓪᓕᐸᑦᓯᐊᒥ ᑐᓴᕐᓴᐅᓚᕐᓂᐊᑐᖅ ᐃᓄᓐᓄᑦ ᐊᐅᓚᑕᐅᓗᓂ ᐊᒻᒪᓗ ᑲᑎᑎᑦᓯᔪᖅ ᐃᓄᓐᓂᑦ ᖃᓪᓗᓇᓂᒥᐅᓂᑦ. ᑐᓴᕐᓂᔭᕐᑐᑦ, ᑐᓴᕋᑦᓴᓂᑦ ᐅᖄᔪᑦ, ᐅᓂᑲᑐᐊᑐᑦ ᐊᒻᒪᓗ ᐊᐱᕐᓱᑕᐅᔪᓂ ᑐᓴᖃᑦᑕᓚᖓᒐᑦᓯ ᐅᓪᓗᒃ ᐱᒋᐊᓚᕐᑐᖅ ᐅᑦᑐᐱᕆ 6, 2015 CKUT 90.3FM ᑯᑦ ᒪᓐᑐᔨᐊᓪᒥ. ᐃᓚᐅᒍᒪᕖᑦ! ᐅᖃᐅᓯᑦᓴᖃᕐᐱᑦ, ᓇᓚᐅᑎᒃᑯᑦ ᐃᒻᒥᓂᒃ ᑐᓵᒍᒪᕖᑦ, ᓂᐱᕗᑦᑯᓐᓃᑦ ᐃᑲᔪᕐᑎᐅᒍᒪᕖᑦ ᑐᓴᕐᓴᐅᓂᒃᑯᑦ. ᐃᑲᔪᕐᑎᐅᒍᒪᒍᕕᑦ ᒪᐅᖓ ᐊᓪᓚᕕᖃᒍᓐᓇᑐᑎᑦ nipivut@gmail.com ᐃᑲᔪᕐᑎᒌᑦ: ᓄᓇᓕᕐᔪᐊᑦ ᐱᕙᓪᓕᐊᓂᖓᓂᑦ ᕿᓂᕐᑏᑦ ᐃᓕᓐᓂᐊᕕᕐᔪᐊᖅ (Concordia University) The Cabot Square Project, CKUT Native Solidarity News ------ Ni ...
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Camilla Nord, "The Balanced Brain: The Science of Mental Health" (Princeton UP, 2024)
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There are many routes to mental well-being. In this groundbreaking book, neuroscientist Camilla Nord offers a fascinating tour of the scientific developments that are revolutionising the way we think about mental health, showing why and how events--and treatments--can affect people in such different ways. In The Balanced Brain: The Science of Menta…
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137: An Interview With Karin Hoelzer, DVM, PhD, Senior Director of Policy and Regulatory Affairs at NORD
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Karin Hoelzer, DVM, PhD, senior director of policy and regulatory affairs at the National Organization for Rare Disorders (NORD). Dr. Hoelzer discusses the importance of convincing the US Congress to renew the Rare Pediatric Disease Priority Review Voucher Program, which is set…
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Quantum Tech Pod Episode 77: Preview of Q+AI NYC Event with Lawrence Gasman, IQT President
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Tune in to the latest episode of the Quantum Tech Pod, where host Jake Duhaime is joined by Lawrence Gasman, President of IQT Research, for a deep dive into the world of Quantum and AI. With the highly anticipated Quantum + AI event coming up in New York City on October 29-30, Lawrence shares his expert insights into the current landscape of these …
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Quantum Tech Pod Episode 76: Julien Camirand Lemyre, Nord Quantique CEO and Co-Founder
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The latest Quantum Tech Pod with Julien Camirand Lemyre, CEO and Co-founder, Nord Quantique is live!Julian was born in a small town in Quebec called Sutton – a very beautiful environment where he got to a lot of stuff like skiing!He has a PhD in Experimental quantum computation from the University of Sherbrooke and conducted research on fabricating…
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136: An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP)
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Susan Ward, PhD, founder and executive director of the Collaborative Trajectory Analysis Project (cTAP), which seeks to broaden patient eligibility for clinical trials in Duchenne muscular dystrophy.By Rare Care Podcast
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Nick Chater, "The Mind Is Flat: The Remarkable Shallowness of the Improvising Brain" (Yale UP, 2019)
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Psychologists and neuroscientists struggle with how best to interpret human motivation and decision making. The assumption is that below a mental “surface” of conscious awareness lies a deep and complex set of inner beliefs, values, and desires that govern our thoughts, ideas, and actions, and that to know this depth is to know ourselves. In the Th…
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135: An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls'
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Taylor Kane, founder and executive director of 'Remember the Girls.' The charity advocates for female carriers of X-linked rare disorders including Duchenne muscular dystrophy and hemophilia.By Rare Care Podcast
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134: An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Therapies for MS
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews neurologist Jeffrey A. Cohen, MD, of Ohio's Cleveland Clinic on the latest developments in cellular therapies to treat multiple sclerosis.By Rare Care Podcast
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Iris Berent, "The Blind Storyteller: How We Reason about Human Nature" (Oxford UP, 2020)
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Do newborns think-do they know that 'three' is greater than 'two'? Do they prefer 'right' to 'wrong'? What about emotions--do newborns recognize happiness or anger? If they do, then how are our inborn thoughts and feelings encoded in our bodies? Could they persist after we die? Going all the way back to ancient Greece, human nature and the mind-bod…
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133: An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA
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133: An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS
12:20
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jacquelyn Bainbridge, DPharm, a neurology professor at the University of Colorado in Aurora, on the benefits of medical cannabis in treating multiple sclerosis.By Rare Care Podcast
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132: An Interview With Michelle C. Werner, CEO of Alltrna
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David Badre, "On Task: How Our Brain Gets Things Done" (Princeton UP, 2020)
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On Task: How Our Brain Gets Things Done (Princeton UP, 2020) is a look at the extraordinary ways the brain turns thoughts into actions—and how this shapes our everyday lives. Why is it hard to text and drive at the same time? How do you resist eating that extra piece of cake? Why does staring at a tax form feel mentally exhausting? Why can your chi…
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131: An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Flavia Nelson, MD, director of the Multiple Sclerosis Center of Excellence at the University of Miami in Florida, on the difficulties of diagnosing neuromyelitis optica spectrum disorder.By Rare Care Podcast
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Quantum Tech Pod Episode 75: Algorithmiq CEO & Co-Founder, Sabrina Maniscalco
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My latest Quantum Tech Pod with Sabrina Maniscalco – CEO and co-founder, Algorithmiq, is live!Sabrina grew up in a small town called Mazzara, in southwestern Sicily, facing Africa.Two years before she went to university, she got a telescope as a birthday present and started to observe the stars and read about how galaxies are formed. This is what s…
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130: An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio
10:06
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kevin M. Flanigan, MD, director of the Center for Gene Therapy at the Abigail Wexner Research Instute of Nationwide Children’s Hospital in Columbus, Ohio. The subject of our talk is exon skipping therapies for Duchenne muscular dystrophy.…
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129: An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy
8:31
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durresamin Khan, the Pakistani mother of a boy with Duchenne muscular dystrophy, about the difficulties of obtaining treatment for DMD patients who are ineligible for gene therapy.By Rare Care Podcast
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128: An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy.By Rare Care Podcast
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John Thomas Maier, "The Disabled Will: A Theory of Addiction" (Routledge, 2024)
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John T. Maier's The Disabled Will: A Theory of Addiction (Routledge Press, 2024) defends a comprehensive new vision of what addiction is and how people with addictions should be treated. The author argues that, in addition to physical and intellectual disabilities, there are volitional disabilities - disabilities of the will - and that addiction is…
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Anna Abraham, "The Creative Brain: Myths and Truths" (MIT Press, 2024)
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A nuanced, science-based understanding of the creative mind that dispels the pervasive myths we hold about the human brain—but also uncovers the truth at their cores. What is the relationship between creativity and madness? Creativity and intelligence? Do psychedelics truly enhance creativity? How should we understand the left and right hemispheres…
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127: An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Duchenne muscular dystrophy.By Rare Care Podcast
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Dasha Kiper, "Travelers to Unimaginable Lands: Stories of Dementia, the Caregiver, and the Human Brain" (Random House, 2023)
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If you’ve ever worked with dementia patients before, you know how unique and bizarre the experience can be, and how little the stereotypes actually hold up to the experience. Even knowing about the diagnosis often does little to help us in caring for people, and many caregivers find themselves getting sucked into behavioral loops of their own. This…
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Quantum Tech Pod Episode 74: Quantum AI with Enrique Lizaso Olmos, CEO Multiverse Computing
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My latest Quantum Tech Pod with Enrique Lizaso Olmos, Founder and CEO of Multiverse Computing, is live!Enrique has a degree in mathematics, a PhD in biostatistics, an MD, and an MBA. He is also a former university professor, having taught engineering, mechatronics, statistics, finance, and marketing at the Universitat Autonoma de Barcelona.For 22 y…
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126: An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD)
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).By Rare Care Podcast
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The Reality of Scientific Research: A Discussion with John W. Cave
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In this episode we speak with Dr. John W. Cave, a scientist and thought leader who has been in the research world for over 20 years. Dr. Cave has worked at a variety of elite research institutions at the intersection of biochemistry, neurology, and brain injury and has long history of mentoring younger scientists. Listen to our conversation for his…
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Sharrona Pearl, "Do I Know You?: From Face Blindness to Super Recognition" (Johns Hopkins UP, 2023)
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In Do I Know You? From Faceblindness to Super Recognition (Johns Hopkins University Press, 2023), Dr. Sharrona Pearl explores the fascinating category of face recognition and the "the face recognition spectrum," which ranges from face blindness at one end to super recognition at the other. Super recognizers can recall faces from only the briefest e…
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125: An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases.By Rare Care Podcast
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The Quest to Understand the Unconscious in Art, Mind, and Brain, from Vienna 1900 to the Present
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Eric Kandel was born in Vienna in 1929. In 1938 he and his family fled to Brooklyn, where he attended the Yeshiva of Flatbush. He studied history and literature at Harvard, and received an MD from NYU. He is a professor of biochemistry at Columbia University, and won the 2000 Nobel Prize in Medicine for his research on memory. In addition to his sc…
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125: An Interview With Sarah Glass, PhD, of the n-Lorem Foundation
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.By Rare Care Podcast
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Quantum Tech Pod Episode 73: Zhanet Zaharieva, Chief Operating Officer of Quantum Dice
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My latest Quantum Tech Pod with Zhanet Zaharieva, Chief Operating Officer of Quantum Dice, is live!Zhanet earned a DPhil from the University of Oxford in Materials Science where she designed novel methods for the development of quantum dot technologies.As the result of creating a patent application from her doctoral research, Zhanet began consideri…
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124: An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis
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123: An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.By Rare Care Podcast
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Quantum Tech Pod Episode 72: Andrei Dragomir, Aquark Technologies
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My latest Quantum Tech Pod with Andrei Dragomir – Co-Founder and CEO of quantum company Aquark Technologies is live!Andrei grew up in Romania in a house with a scientific focus: his mother is a professor of physics, and his father is an engineer. He remembers as a kid going to his mom's lab after school, where his toys of choice were the devices ly…
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Luis H. H. Favela, "The Ecological Brain: Unifying the Sciences of Brain, Body, and Environment" (Routledge, 2024)
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Ecological psychology holds that perception and action are best explained in terms of dynamic interactions between brain, body, and environment, not in classical cognitivist terms of the manipulation of representations in the head. This anti-representationalist stance, argues Luis Favela, makes ecological psychology deeply at odds with dominant tre…
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122: An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome
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121: An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD
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Quantum Tech Pod Episode 71: Lawrence Gasman, President, IQT Research – Inside Quantum Technology
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My latest Quantum Tech Pod with Lawrence Gasman, President of IQT Research, is live! Lawrence Gasman, a renowned expert in quantum technology, hails from North London and is an alumnus of Manchester University, where he studied mathematics and philosophy. He further honed his skills with an MBA from the prestigious London Business School. Over the …
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Christian Hansel, "Memory Makes the Brain: The Biological Machinery That Uses Experiences To Shape Individual Brains" (World Scientific, 2021)
1:10:41
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If you're interested in memory, you'll find a lot in Memory Makes the Brain: The Biological Machinery That Uses Experiences To Shape Individual Brains (World Scientific, 2021), from cellular processes to unique and interesting perspectives on autism. Detailed descriptions of cellular processes involved in forming a memory. Connecting those cellular…
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Charan Ranganath, "Why We Remember: Unlocking Memory's Power to Hold on to What Matters" (Doubleday, 2024)
1:02:11
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A new understanding of memory is emerging from the latest scientific research. In Why We Remember: Unlocking Memory's Power to Hold on to What Matters (Doubleday, 2024), pioneering neuroscientist and psychologist Charan Ranganath radically reframes the way we think about the everyday act of remembering. Combining accessible language with cutting-ed…
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120: An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza.By Rare Care Podcast
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119: An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy.By Rare Care Podcast
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Matt Qvortrup, "The Political Brain: The Emergence of Neuropolitics" (CEU Press, 2024)
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In this episode of the CEU Press Podcast, host Andrea Talabér (CEU Press/CEU Review of Books) sat down with Matt Qvortrup (Coventry University) to discuss his new book with CEU Press entitled, The Political Brain: The Emergence of Neuropolitics (CEU Press, 2024). Putting the “science” back into political science, The Political Brain shows how fMRI-…
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118: An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association
7:58
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases.By Rare Care Podcast
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Lawson R. Wulsin, "Toxic Stress: How Stress Is Making Us Ill and What We Can Do About It" (Cambridge UP, 2024)
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Our stress response system is magnificent - it operates beneath our awareness, like an orchestra of organs playing a hidden symphony. When we are healthy, the orchestra plays effortlessly, but what happens when our bodies face chronic stress, and the music slips out of tune? The alarming rise of stress-related conditions, such as heart disease, dia…
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Quantum Tech Pod Episode 70: Carmen Palacios-Berraquero, Nu Quantum Founder & CEO
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My latest Quantum Tech Pod with Carmen Palacios-Berraquero, Founder and CEO of quantum company Nu Quantum, is live! Carmen grew up in Spain and received an MSc in Physics from Imperial College London and a PhD from the University of Cambridge. Nu Quantum was a spin-out of the University of Cambridge’s Cavendish Laboratory in 2018. They are building…
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117: An Interview With Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, About Living With Spinal Muscular Atrophy
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, at the MDA's 2024 Clinical & Scientific Conference in Orlando, Florida. Walker, 39, has spinal muscular atrophy (SMA) type 2.By Rare Care Podcast
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116: An Interview With Seema Lalani, MD, Director of Project GIVE, a Pediatric Rare Disease Screening Program in the Rio Grande Valley of Texas
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Seema Lalani, MD, of Baylor College of Medicine in Houston, Texas. Dr. Lalani directs Project GIVE (Genetic Inclusion by Virtual Evaluation), a pediatric screening program in the impoverished 4-county Rio Grande Valley region of southern Texas.…
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Max Bennett, "A Brief History of Intelligence: Evolution, Ai, and the Five Breakthroughs That Made Our Brains" (Mariner Books, 2023)
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A Brief History of Intelligence: Evolution, Ai, and the Five Breakthroughs That Made Our Brains (Mariner Books, 2023) tells two fascinating stories. One is the evolution of nervous systems. It started 600 million years ago, when the first brains evolved in tiny worms. The other one is humans' quest to create more and more intelligent systems. This …
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Quantum Tech Pod Episode 69: Jan Goetz, Co-founder & CEO, IQM Quantum Computers
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My latest Quantum Tech Pod with Jan Goetz, Co-CEO of leading quantum company IQM Quantum Computers is live! Jan is a quantum physicist who earned his superconducting quantum circuits doctorate at Technical University of Munich.His company IQM Quantum Computers was founded in 2018 and is building Finland’s first commercial 54-qubit quantum computer …
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115: An Interview With Matt Trudeau of ITF Therapeutics, on Givinostat as a Therapy for Duchenne Muscular Dystrophy
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Matt Trudeau, head of ITF Therapeutics—a division of Italy's Italfarmaco—on treating Duchenne muscular dystrophy with givinostat, a histone deacetylase inhibitor.By Rare Care Podcast
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