Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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Look Forward - Summer 2024 - Issue 183
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This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2024 (Issue 183). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources. Contents in this edition are as follows: TRACK 2: Our Annual Conference is heading north (Tina Garvey) TRACK 3: Our ever-popular Annual Conference he…
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Join Research Intern Aysha in conversation with Research Development Manager Kate and Communications Manager Jane as they take us through the history of the charity, why we are called Retina UK and what conditions we support. Don't miss out on this informative podcast!
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Webinar: Bright Futures: Empowering young adults with inherited sight loss
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Hosted by Retina UK’s James Clarke and Aysha Ahmed, this session is in conversation with 3 young adults, who have turned challenges into triumphs. Listen to their gripping journeys and exciting plans for the future. Discover the power of peer support and connect with a community that understands. Guest Speakers: Karolina Pakenaite: An inspiring adv…
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Accessible Voting During the General Election
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Listen to Matthew Carr, Special Projects Lead at Retina UK as we discuss accessible voting during the general election. Please find resources mentioned in this episode below: Call the Helpline: +44 0300 111 4000 Email the Helpline: helpline@RetinaUK.org.uk RNIB: https://www.rnib.org.uk/get-involved/support-a-campaign/voting-and-elections-what-you-n…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if your prefer, call us on 01208 821334.…
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Webinar: From isolation to exploration: what you can do to build your confidence when travelling
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During Loneliness Awareness Week, we're hosting a special webinar to address the challenges faced by individuals with sight loss when it comes to travel and mobility. Research by RNIB has highlighted the critical need for enabling greater fulfilment and freedom through travel, with a significant impact on quality of life. According to their finding…
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Webinar: Walking into Wellness: Uniting Movement and Mental Health this May!
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Did you know May is National Walking Month? As part of Mental Health Awareness Week, we're exploring the power of movement. As the weather turns warmer and we are happier venturing out a little more, we look at the activities that some of our communities are getting involved with. Getting out in the fresh air is good for sole, in fact 'movement' is…
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Have some questions about the Big Give Kind2Mind campaign? Listen to our Head of Fundraising Jo, as she discusses more about the Big Give. From how to donate to why this campaign is a game changer for us.
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The latest e-Newsletter from Retain UK. Please consider donating to Retina UK through a monthly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…
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Webinar: How your donations make a difference...in conversation with our new research grantees
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Join Research Development Manager, Kate Arkell as she speaks to our latest research grantees about their projects. PhD studentship: Dr Matteo Rizzi, UCL Institute of Ophthalmology Investigating photopsia and photophobia in Stargardt disease. PhD studentship: Chloe Brotherton, Edinburgh University Understanding why different RPGR gene mutations can …
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: Join our mailing list - Retina UK
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Find out more about the Retina UK Weekly Lottery
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Join the fun and support a great cause. Our Weekly Lottery has now arrived. This podcast aims to answer any questions you may have and encourage you to take part. RetinaUK.org.uk/lottery
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Webinar: Fitness, blisters and fundraising ... being part of #TeamRetinaUK TCS London Marathon 2024
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This webinar was broadcast live on Thursday 21 March 2024. It is available in video format on our YouTube channel: https://youtu.be/oF5DP6XUsXk Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.Our Events and Community Fundraising Man…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2024 (Issue 182). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources. The short piano music at the beginning of thisrecording is a tribute to Norman Pampel FCA for his much acclaimed role as honorary treasurer of the Brit…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: RetinaUK.org.uk/get-involved/mailing-list/.
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Cataract surgery for people living with inherited sight loss
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Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery. People seem to come across conflicting advice from medical professionals, and there is understandably a lot of concern ar…
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Webinar: A family’s experience of clinical trial participation
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This webinar was broadcast live on Thursday 25 January 2024. It is available in video format on our YouTube channel: https://youtu.be/3kTVF8SoA0w. With more treatments coming through the development pipeline, we are all hopeful that more of those living with inherited sight loss will be offered the opportunity to take part in clinical trials in the…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: RetinaUK.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effective…
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In this last episode of Blindingly Chatty, Laura Tyler is interviewed by Paula McGrath about her internship at Retina UK, her journeybefore it, and all that she’s gained from her time in the organisation. Laura worked as a Communications Intern at Retina UK from February - November 2023.
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In this month’s edition of Blindingly Chatty, Laura Tyler and Mark Pampel follow on from the subject of musical instruments and discuss composition, improvisation and performance. Mark tells us how he got into music, along with giving some tips for those who are thinking of taking music to that next level.…
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Webinar: Artificial Intelligence (AI) with Dr Nikolas Pontikos
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This webinar was broadcast live on Thursday 7 December 2023. It is available in video format on our YouTube channel: https://youtu.be/x7ZyVxmla7I Nikolas is a bioinformatician, who uses computer power to tackle medical research challenges. He will be talking about his project to develop AI that will identify the genetic cause of an inherited retina…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2023 (Issue 181). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources. Contents in this edition are as follows: Track 2: Reflecting back and looking forward (Tina Garvey) Track 3: Harnessing the power of AI Track 4: Searchin…
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Webinar: Support through Access to Work - World Sight Day Special
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A video version of this Webinar is available on our YouTube channel: https://youtu.be/0s1C3kXnXWc Join us for a brief overview of the Government’s Access to Work scheme, learn how it could support you at work, and hear the experiences of a number of people with inherited sight loss who receive an Access to Work grant.We will be joined by Josh Freeh…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan eff…
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The Blind Poet, Dave Steele, talks candidly about his diagnosis, his poetry and his optimistic mindset. https://www.theblindpoet.net/
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This podcast covers the most important professionalswho work with the sight loss community, along with their abbreviations and what they do to improve people’s lives.
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We were joined for this popular ‘Ask the expert’ session by Samantha de Silva, a consultant ophthalmic surgeon at Oxford Universities Hospital Trust. She answered a wide variety of questions relating to inherited retinal dystrophies. If you would prefer to watch a video of the Webinar, it is available on our YouTube Channel: https://youtu.be/f_1UEV…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit RetinaUK.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821334.…
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The difference we made in 2022
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E-newsletter August 2023
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On this episode Laura Tyler, Yanan Yu, and Steve Golden talk about their experiences with learning and playing instruments, and how people with sight loss can play and learn no matter their level of vision.
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This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2023 (Issue 180). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources. Contents in this edition are as follows: Track 2: The best days of the year (Tina Garvey) Track 3: Articles for the Blind Track 4: Your newsletter, your ch…
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In this episode Laura and Mark talk about their dreams and how they see the world in sleep. Mark is living with retinitis pigmentosa so his sight has deteriorated over his life, whereas Laura lost her sight at a very young age. They also briefly cover Charles Bonnet Syndrome (CBS).
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Retina UK Annual Conference - 24 June 2023
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Welcome to the 46th Retina UK Annual Conference where we come together for knowledge sharing, support, and empowerment within the inherited sight loss community. Whether you are attending online or in person this year, thank you for joining us. We have a packed programme for you today. This conference aims to foster a collaborative environment, bri…
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Retina UK Professionals' Conference - 23 June 2023
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Welcome to the fourth Retina UK Professional Conference where we come together to support you in your work with the inherited sight loss community. Working in partnership we aim to equip you with the knowledge you need to make the biggest difference for your service users. We are pleased to offer CPD accreditation for today's Conference. It is avai…
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Retina UK E-newsletter June 2023
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Retina UK - Introduction to the charity and a guide to services
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This leaflet is available in audio, PDF and Word formats. If you would like to access the leaflet in one of the other formats, please visit RetinaUK.org.uk/resource/leaflet/
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Have you ever really thought about how you use your sensations after sight loss? Does your sense of humor relate to your ability to tell a joke or hear a joke? Find the answers to these questions and more in our ‘Blindingly Chatty’ podcast from Laura and Mark.
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Retina UK Professionals' Conference - 23 June 2023 - PROGRAMME
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This event is free to attend and will be CPD-accredited. Attend in-person in London and network with colleagues, or online. Highlights include: Experience of diagnosis/points of impact for those living with inherited sight loss: Dr Jasleen Jolly, Anglia Ruskin University Sight loss pathway: A collaborative approach: Robert Cooper, Strategic Engagem…
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Retina UK Annual Conference - 24 June 2023 - PROGRAMME
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Book now to attend the Retina UK annual conference in London, or online, on Saturday, 24 June. The event is free to attend and highlights will include: Retina UK vision of treatments for all - Gene therapy – Augmentation, editing, and silencing: Prof Tara Moore, Ulster University. - The potential of stem cell treatments: Prof Lyle Armstrong, Newcas…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit RetinaUK.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821334.…
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Webinar: Hair care and styling with Anna Cofone
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This is a recording of a video held on Thursday 18 May. The full video recording can be found on our YouTube channel: https://youtu.be/3m1wWmQ8bIEhttps://youtu.be/3m1wWmQ8bIE We are excited to be joined by Hair Stylist Anna Cofone to explore all things hair and scalp care.Anna is a session hairstylist with 20 years experience working in the fashion…
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Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives. Download the Volunteer Impact Report in PDF format
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…
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Webinar: Getting involved with Retina UK, the value of volunteering
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This webinar was first shown on Thursday 13 April 2023. A recording including the video content is available on our YouTube channel: https://youtu.be/9_DeX0Q3wYE. Explore the value of volunteering with the Retina UK team, listen as they share their thoughts on volunteering and the benefits it’s brought them. From raising their self esteem and confi…
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Unproven treatments - we talk to BBC reporter Ramadan Younes and Professor Robert Maclaren
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The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer: https://www.bbc.co.uk/iplayer/episode/p0f8vnvm/blind-faithThis documentary highlights a really significant and concerning issue that impacts families …
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Webinar: Low vision services, aids and equipment
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This webinar was first shown on Thursday 23 March 2023. A recording including the video content is available on our YouTube channel: https://youtu.be/0rjqHsz7EU4. Join us and the Low Vision Team from Focus Birmingham talk about how you can access your local low vision service, the benefits of a low vision assessment and see some of the equipment th…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2023 (Issue 17o). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/publications.
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What is the UK Inherited Retinal Dystrophy Consortium (UKIRDC) and why does it exist?
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Kate Arkell, Research Development Manager at Retina UK hosts this edition alongside Dr Madina Kara, Director of Research and Innovation at Fight for Sight. They are joined by Prof Graeme Black and Prof Alison Hardcastle. Graeme is Professor of Genetics and Ophthalmology at Manchester Uni, and a consultant ophthalmologist at Manchester Royal Eye Hos…
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Webinar: Ask the expert with Simon Keightley
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This webinar was originally broadcast on 23 February 2023. It is also available in video format on our YouTube channel: https://youtu.be/lcMpSSdxWuU. Following the success of our last round of ‘Ask the Expert’ Webinars, we will be holding three more throughout 2023. Our first Expert is Simon Keightley, a consultant ophthalmic surgeon and Director o…
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