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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Chasing the Horizon is a podcast by, about and for motorcyclists. We talk to motorcycle industry figures, technical experts and riders just like you no matter what bike they love to ride. Please sign up on the mailing list at http://tinyletter.com/chasingthehorizon and subscribe in popular podcast apps or listen to every episode at http://chasingthehorizon.us.
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Fmr. The Michael Brooks Show crew Matt Lech & David Griscom work to cover & build a strong, popular, working-class rooted, no BS Socialist Left. With a special focus on the international struggle and Texas, the South, & the West. The weekly show is live on Youtube @ 7 Central with Griscom streams on Tuesday afternoon.
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CBS News’ Face the Nation with Margaret Brennan is America’s premier Sunday morning public affairs program. For nearly 70 years, Face the Nation has sought to help audiences understand how current events affect their lives. Today, that mission remains the same. Hear moderator Margaret Brennan’s illuminating and informative interviews with elected officials, policy experts and foreign leaders. Face the Nation airs Sundays at 10:30 AM, ET on the CBS Television Network and at 12 PM, ET on the C ...
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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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Award-winning LBC radio presenter, writer and ‘For the Many’ podcast co-host, Iain Dale brings his acclaimed, incisive insight on current affairs as he speaks with high profile media and political figures.
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Welcome to the Conversations @ The Salt Line, a Vassar College podcast. Hosted by Wesley Dixon, this podcast will explore subjects that stimulate, reflect on the world’s grand challenges, and find common ground while embracing diverging perspectives because we understand that pursuing honest dialogue and debate nurtures an intellectual curiosity that leads to understanding and connection.
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Welcome to Entrepreneur Intel, a podcast where we discuss the most important strategies for success from amazing entrepreneurs. Host Wes Mathews sits down with business owners to learn about how they got started running their own business, what helped them succeed and the biggest lessons they learned along the way. Be sure to catch new episodes every Thursday morning, and to make sure you never miss out on any insights, don’t forget to subscribe to Apple Podcasts, Spotify, You Tube or wherev ...
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Patrick Blumenthal (@PatrickJBlum) interviews some of the world's leading economists, political scientists, and philosophers to discuss their ideas and what they mean for society, technology, and the economy.
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Welcome to GORCAST Podcast! Hosted by Taylor Gorman, GORCAST dives into fascinating discussions with musicians, comedians, creatives, young entrepreneurs and more. Each episode uncovers unique stories, experiences, and insights, bringing you closer to the people shaping today's cultural landscape. Subscribe to GORCAST for weekly episodes full of engaging interviews, thought-provoking conversations, and a look inside the minds of your favorite personalities. Watch the video for every episode ...
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Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Gravity

Brett Kaufman

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If you’ve ever wondered what it looks like behind the scenes on the way to becoming the foremost CEOs, authors, community builders, artists and thought leaders from around the world, Gravity will take you on a journey to discover just that. You can expect a deep dive into the shared layers of our human experience so we can raise our levels of consciousness and community.Entrepreneur, philanthropist, and real estate developer Brett Kaufman leads these conversations with a deep sense of curios ...
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Better Late is a nostalgia podcast where we review classic (and not so classic) TV shows from the 90's and early 2000's. My name is Wes and I host with my wife Jori, who is beautiful, but does not appreciate all my Star Wars references. This is your chance to hear about some shows you may have missed, and why you should check them out. Also there's lots of bad impressions, stories about our marriage, and reminiscing about the VHS era. Better Late than never! We upload new episodes bi-weekly!
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Every Sunday morning we explore different, specific creative spaces by interviewing individuals who play in those sandboxes of creativity. We welcome a live audience each week and at the end of each interview, our audience participates in a hands on activity.
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Life Life Rare

Stephen V. Smith

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Are you facing trials? Are physical and mental challenges weighing you down on our journey? Through his experiences with the rare disease myasthenia gravis, host Stephen V. Smith shares encouragement and inspiration as he seeks to create a life of meaning and connection. "Live Life Rare" is the companion podcast to the newsletter of the same name, which can be found at liveliferare.com. Join in the conversation as Stephen helps us discover and pursue what a rare life means to each of us.
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Futuristic Feminists

Futuristic Feminists

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If the Future is Female, what does that look like? Activist and artist Michelle Mullet interviews forward thinking Feminists about their work and what their visions for the future look like.
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CINE ENTERTAINMENT TALK ist der zweiwöchentlich erscheinende Podcast des Entertainment Blog rund um das Thema Film und Fernsehen mit Schwerpunkt auf Action- und Genre-Produktionen von den 80ern bis heute. Seit 2015 haben wir eine Vielzahl an Episoden mit meist über zwei Stunden Laufzeit sowie zahlreiche weitere Specials produziert. Thematisch ist (fast) nichts vor uns sicher. Bis dato haben wir u.a. Tribute an Meisterregisseure wie Wes Craven, Richard Donner und George A. Romero oder die Vit ...
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Freedom Talks

Freedom Physical Therapy Services

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We set out to talk with physical and occupational therapists, along with other healthcare providers about the state of healthcare, hot button topics, and treatment options in different healthcare segments.
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Awaken, discover and connect to the deeper meaning of the world around you with Oprah's Super Soul. Hear Oprah’s personal selection of her interviews with thought-leaders, best-selling authors, spiritual luminaries, as well as health and wellness experts. All designed to light you up, guide you through life’s big questions and help bring you one step closer to your best self.
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Join founder and CEO of Gylee, Chris Bergman, and senior producer and cohost, Kim Edwards on Gylee and Friends, the podcast that delves deep into the world of game development and pixelated adventures! From the minds behind the upcoming 4-player co-op beat ’em up, RA RA BOOM, featuring ninja cheerleaders from outer space, we bring you insider insights and gaming shenanigans you won’t want to miss. Don’t forget to wishlist RA RA BOOM on Steam and join us every week for a dose of gaming fun an ...
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St. Louis on the Air

St. Louis Public Radio

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St. Louis on the Air creates a unique space where guests and listeners can share ideas and opinions with respect and honesty. Whether exploring issues and challenges confronting our region, discussing the latest innovations in science and technology, taking a closer look at our history or talking with authors, artists and musicians, St. Louis on the Air brings you the stories of St. Louis and the people who live, work and create in our region.
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Hollywood Gold is a talk show podcast that pulls back the curtain on the making of some of the industry’s most iconic movies, through interviews with notable producers and filmmakers. Hosted on Acast. See acast.com/privacy for more information.
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The Bonnie Sher Show, Boomer Life is a live 50 minute Internet radio program dedicated to a generation of Americans who continue to be a major force for social change and poster children for independence and self?€?expression. Host Bonnie Sher is the child of stage and screen industry veterans and a prot?©g?© of the late Sammy Davis, Jr. She is an actress, musician and entrepreneur with an indelible presence in the entertainment industry, including coveted spot on the ?€?DList,?€? celebritie ...
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In this episode of P4A Let's Talk Rare, hosts Georgie and Owen Bryant from Partners For Access are joined by Wes Michael, founder and president of Rare Patient Voice LLC. Wes shares the organization’s journey from its beginnings as a community project for hemophilia patients to a global platform that connects rare disease patients and caregivers wi…
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We often hear the stories of patients and caregivers. Rare Patient Voice is well known for connecting family's stories with the researchers who need to hear them. The founder, Wes Michael, sat down with us to share the results of a caregiver survey they conducted in late 2023. The findings were interesting and affirmed much of what parents raising …
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A survey from The Midwest Newsroom and Emerson College Polling Center asked registered voters in several Midwest states, including Missouri, about measures on the Nov. 5 ballot as well as a variety of political, social and economic subjects. Daniel Wheaton, data reporter for the Midwest Newsroom, discusses the poll’s findings on the Politically Spe…
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After years of legislative inaction, popular sports betting apps FanDuel and DraftKings are funding a ballot initiative that would allow for Missourians to place bets on their phones, in casinos and at sporting venues. But they are facing well-funded opposition: Missourians Against the Deceptive Online Gambling Amendment. Brooke Foster, a spokeswom…
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Missouri was one the first states to ban most abortions after Roe v. Wade fell in 2022, but now abortion rights opponents are facing a serious challenge in November. Amendment 3 would enshrine abortion rights in the state constitution. Stephanie Bell of Missouri Stands With Women explains why her group is opposed to the amendment. A previous editio…
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Tyler Cowen has long nurtured an obsession with music. It’s one of the few addictions Tyler believes is actually conducive to a fulfilling intellectual life. In this bonus episode, a year after Tyler walked us through the world of the Avant-Garde, and his favorite pop music, Tyler guides us through some of the major pillars of Russian classical mus…
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Black Americans are more likely to start menopause early and gain less treatment to manage symptoms — that’s according to a recent review of menopause literature. In this encore presentation, Dr. Makeba Williams, an associate professor and vice chair of professional development and wellness in the Department of Obstetrics and Gynecology at Washingt…
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Greenwood Cemetery has been through a major transformation in recent years — due in large part to a married couple who grew up in the area and felt called to restore the cemetery after it fell into disrepair. Raphael and Shelley Morris of the Greenwood Cemetery Preservation Association join to talk about the 150-year-old cemetery’s history, its res…
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Neun, zehn, das müsst ihr sehen! Oder besser gesagt hören, denn NIGHTMARE ON ELM STREET 5 – DAS TRAUMA macht seinem Namen alle Ehre und begann den Abstieg der Serie. Oder? Christoph, Florian, Sam und Kevin stürzen sich auf diesen oft stiefmütterlich behandelten Titel. Denn liegt da vielleicht doch ein kleiner Geheimtipp im Verborgenen oder war es s…
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Send us a text Jason Kander sits down with his old state house roomate Don Calloway to recall his early beginnings in the Kansas City organizing scene, his days as a State Representative, his remarkable and unlikely rise to being the youngest statewide elected official in the country as Missouri's Secretary of State, to his historic run for the Uni…
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Writer/director Hallie Meyers-Shyer reflects on the creation of Goodrich, set to release this Friday, October 18th. In this episode, she delves into the emotional and personal stories that inspired this heartwarming tale of a complex father-daughter relationship. Hallie discusses the casting process and how the legendary Michael Keaton, known for h…
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Tyler Cowen is a world-renowned economist, professor, columnist, and co-author of the influential economics blog Marginal Revolution. Graduating from George Mason University with a Bachelor of Science in Economics, and later receiving his PhD in economics from Harvard University, he has developed a vested interest in the economics of culture, as he…
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Original Air Date: June 12, 2019 In a live appearance at UCLA’s Royce Hall, New York Times best-selling author, Rhodes scholar and decorated U.S. Army veteran Wes Moore asks a powerful question: “After years working at the same job, have you ever realized you've just been going through the motions for as long as you can remember?” Wes shares how he…
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Link to debate coverage - https://www.youtube.com/live/czx4HK7uDUoMatt & David talk about the US letter to Israel demanding a shift on policy. Then we are joined by Slate journalist Alex Sammon (@alex_sammon) to talk about his recent piece on the huge crypto money dump in the 2024 election. https://slate.com/news-and-politics/2024/10/trump-harris-c…
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Tiffany Robertson started Touchy Topics Tuesday after the killings of Michael Brown, Jr. and VonDerrit Myers, Jr. in 2014. The diverse group meets weekly to have difficult conversations about race, politics, and culture. Ten years after those initial weekly meetups, Robertson’s current goals are to help people and organizations “intentionally integ…
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This week on Crime Wave: Sharon Dukett has given readers an electrifying debut thriller. In THE SHUTDOWN LIST, Anita Forester witnesses her husband being dragged away by police during a protest for environmental causes. Anita embarks on a perilous journey to find her husband, unaware of the crucial secret he has kept from her. Anita’s search leads …
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Indian immigrants are the fastest-growing foreign-born population in the St. Louis region. That momentum is happening at a pivotal time as in American politics. Three Indian Americans with longtime Midwest roots – attorney Arindam Kar, journalist Meera Nagarajan, and higher ed professional Jacob Chacko – share perspectives on what compels Indian Am…
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“It's so fun to see this community organically grow. And nothing makes me happier than when I teach group training and seeing the group form new friendships. it's beautiful.”– Kara Shaffer Today on Gravity: Kara’s childhood and growing up as a competitive gymnast Becoming a collegiate athlete Changing course on a path to self-discovery and acceptan…
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Mark Pawlosky is a former reporter for the Wall Street Journal, editor in chief of CNBC on msn, and editorial director for American City Business Journals (ACBJ), he oversaw financial news channels in the US, London, Munich, Paris, Tokyo and Hong Kong. BLACK BIRD is the latest novel in his Nik Byron book series. Please visit his website at: https:/…
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