Best What The Cf A Cystic Fibrosis Podcast Podcasts (2024)

1
All That Really Matters: A Conversation & Book Reading with Dr. David Weill (Video) 27:24

1d ago27:24

27:24

In this podcast, David Weill, MD, discusses his newest – and first fictional – book, All That Really Matters, in which transplant plays a central theme. Dr. Weill spent over 20 years as a transplant physician, including as Director of Stanford’s Center for Advanced Lung Disease and the Lung Transplant Program. In addition to sharing a reading from …

1
All That Really Matters: A Conversation & Book Reading with Dr. David Weill (Audio) 27:24

1d ago27:24

27:24

In this podcast, David Weill, MD, discusses his newest – and first fictional – book, All That Really Matters, in which transplant plays a central theme. Dr. Weill spent over 20 years as a transplant physician, including as Director of Stanford’s Center for Advanced Lung Disease and the Lung Transplant Program. In addition to sharing a reading from …

1
Demystifying the Colonoscopy Process - Jeffrey King, MD (Video) 59:00

1d ago59:00

59:00

Colonoscopy screenings are the #1 way to prevent colon cancer. In this recorded webinar, join Jeffrey King, MD, gastroenterologist at National Jewish Health, for a candid conversation about how to prepare for a successful colonoscopy as someone with CF, and what to expect during the procedure. By demystifying the colonoscopy process, it is hoped th…

1
Demystifying the Colonoscopy Process - Jeffrey King, MD (Audio) 59:00

1d ago59:00

59:00

Colonoscopy screenings are the #1 way to prevent colon cancer. In this recorded webinar, join Jeffrey King, MD, gastroenterologist at National Jewish Health, for a candid conversation about how to prepare for a successful colonoscopy as someone with CF, and what to expect during the procedure. By demystifying the colonoscopy process, it is hoped th…

1
Stretch Your Budget: What To Make With What You Have - Maggie Williamson (Video) 30:05

1M ago30:05

30:05

In this third podcast of our Stretch Your Budget series, join Maggie Williamson, a professional chef living with cystic fibrosis post-transplant, to learn tips on what to shop for and how to stretch $20 to create several days’ worth of meals. Maggie provides a base recipe for ‘batch cooking’ (see link below) to make large quantity and versatile mea…

1
Stretch Your Budget: What To Make With What You Have - Maggie Williamson (Audio) 30:06

1M ago30:06

30:06

In this third podcast of our Stretch Your Budget series, join Maggie Williamson, a professional chef living with cystic fibrosis post-transplant, to learn tips on what to shop for and how to stretch $20 to create several days’ worth of meals. Maggie provides a base recipe for ‘batch cooking’ (see link below) to make large quantity and versatile mea…

1
How To Plan For the Future On Limited Resources - Arek Puzia, MBA (Video) 21:15

2M ago21:15

21:15

In this podcast, Arek Puzia, CPA, CFP, and the father of a daughter with cystic fibrosis, provides information on planning for the future when resources are very limited. Learn what to consider in growing your assets with a low cost and well diversified portfolio, company 401K plans, and first-time home ownership programs. Also, Arek shares some ti…

1
How To Plan For the Future On Limited Resources - Arek Puzia, MBA (Audio) 21:16

2M ago21:16

21:16

In this podcast, Arek Puzia, CPA, CFP, and the father of a daughter with cystic fibrosis, provides information on planning for the future when resources are very limited. Learn what to consider in growing your assets with a low cost and well diversified portfolio, company 401K plans, and first-time home ownership programs. Also, Arek shares some ti…

1
Stretch Your Budget: CF Food Expenses – A Panel Discussion (Video) 37:47

2M ago37:47

37:47

The hardships of eating on a restricted budget are widespread, and food insecurity is three times higher within the cystic fibrosis community than the national average. Join Arek Puzia, CPA, CFP, father of a child with CF, Tiffany Raffino, LCSW, MSW, from UCSF, and Georgia Brown, advocate and an adult with CF, for a panel discussion on strategies t…

1
Stretch Your Budget: CF Food Expenses – A Panel Discussion (Audio) 37:47

2M ago37:47

37:47

The hardships of eating on a restricted budget are widespread, and food insecurity is three times higher within the cystic fibrosis community than the national average. Join Arek Puzia, CPA, CFP, father of a child with CF, Tiffany Raffino, LCSW, MSW, from UCSF, and Georgia Brown, advocate and an adult with CF, for a panel discussion on strategies t…

1
Stretch Your Budget: CF Living Expense – Resources (Video) 23:26

2M ago23:26

23:26

In this second podcast in our Stretch Your Budget series, Tiffany Raffino, LCSW, MSW, CF Social Worker at UCSF, connects families impacted by cystic fibrosis with resources to help ease financial burdens and elevate quality of life. Tiffany addresses health insurance, medication assistance, financial assistance, transportation, caregiving support, …

1
Stretch Your Budget: CF Living Expense – Resources (Audio) 23:26

2M ago23:26

23:26

In this second podcast in our Stretch Your Budget series, Tiffany Raffino, LCSW, MSW, CF Social Worker at UCSF, connects families impacted by cystic fibrosis with resources to help ease financial burdens and elevate quality of life. Tiffany addresses health insurance, medication assistance, financial assistance, transportation, caregiving support, …

1
Unleashed Stories: CF Pet Perspectives (Video) 14:07

4M ago14:07

14:07

In this podcast, you’ll meet the pets that make a big difference in the lives of adults living with cystic fibrosis and hear stories of how these furry friends provide unconditional love, support, and acceptance. The CDC acknowledges that the bond between people and their pets can increase fitness, lower stress, and bring happiness to their owners.…

1
Unleashed Stories: CF Pet Perspectives (Audio) 14:07

4M ago14:07

14:07

In this podcast, you’ll meet the pets that make a big difference in the lives of adults living with cystic fibrosis and hear stories of how these furry friends provide unconditional love, support, and acceptance. The CDC acknowledges that the bond between people and their pets can increase fitness, lower stress, and bring happiness to their owners.…

1
Colon Cancer and CF: Panel (Video) 53:46

5M ago53:46

53:46

People with cystic fibrosis have 5-10 times the risk of developing colon cancer (25-30 times the risk post-transplant). Learn about the connection between colon cancer and CF, and the vital importance of early screening in this recorded webinar. CFRI Executive Director, Siri Vaeth, was joined by community members Anna Payne, Thomas Horal, and Elyse…

1
Colon Cancer and CF: Panel (Audio) 53:46

5M ago53:46

53:46

People with cystic fibrosis have 5-10 times the risk of developing colon cancer (25-30 times the risk post-transplant). Learn about the connection between colon cancer and CF, and the vital importance of early screening in this recorded webinar. CFRI Executive Director, Siri Vaeth, was joined by community members Anna Payne, Thomas Horal, and Elyse…

1
Recursos de asistencia a paciente 1:59

5M ago1:59

1:59

La guía integral de recursos de CFRI proporciona información sobre varios programas ofrecidos por nuestros socios. Escuche a Alicia Maciel, miembro de la comunidad de CFRI, mientras explica dónde encontrar y como utilizar la guía de recursos de asistencia al paciente de CFRI. Manténgase informado de cómo acceder a fuentes de apoyo financiero, asist…

1
Cancer de Colon y Fibrosis Quistica 4:39

5M ago4:39

4:39

¿Sabía que las personas con FQ tienen entre 5 y 10 veces más probabilidades de desarrollar cáncer de colon? Las personas con FQ tras un trasplante de pulmón tienen un riesgo entre 25 a 30 veces mayor, y los portadores de FQ también tienen más probabilidades de desarrollar cáncer de colon. Escuche a Alicia Maciel, miembro de la comunidad de CFRI, ha…

1
Diversity, Equity and Inclusion in Cystic Fibrosis 3:00

6M ago3:00

3:00

CF impacts people of every race and ethnicity. Due to the misperception of CF as a disease impacting only those of European descent, many individuals go years without a diagnosis. In this moving film, CF community members share their experiences and their commitment to advocating for increased awareness on diversity, equity and inclusion among the …

1
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Video) 26:49

8M ago26:49

26:49

Dr. Stephen Aller, Associate Professor at the Department of Pharmacology and Toxicology at the University of Alabama in Birmingham, presents results from CFRI-funded research on the role of CFTR Arginine-933 in FDA-approved drug potentiation. His team used cryo-electron microscopy (cryo-EM) to visualize high-quality structures with limited quantiti…

1
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Audio) 26:49

8M ago26:49

26:49

Dr. Stephen Aller, Associate Professor at the Department of Pharmacology and Toxicology at the University of Alabama in Birmingham, presents results from CFRI-funded research on the role of CFTR Arginine-933 in FDA-approved drug potentiation. His team used cryo-electron microscopy (cryo-EM) to visualize high-quality structures with limited quantiti…

1
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Video) 32:07

8M ago32:07

32:07

Dr. Kenichi Okuda, a Research Associate at Marsico Lung Institute at University of North Carolina at Chapel Hill, presents results from CFRI-funded research on pathways maintaining basal mucin and CFTR-mediated fluid secretion in the human distal airway. He argues that airway cells are a therapeutic target for molecular therapy for CFTR function re…

1
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Audio) 32:07

8M ago32:07

32:07

Dr. Kenichi Okuda, a Research Associate at Marsico Lung Institute at University of North Carolina at Chapel Hill, presents results from CFRI-funded research on pathways maintaining basal mucin and CFTR-mediated fluid secretion in the human distal airway. He argues that airway cells are a therapeutic target for molecular therapy for CFTR function re…

1
Embracing the Future: Aging with CF - Ahmet Uluer, DO, MPH; CF and Colon Cancer: My Lived Experience - Anna Payne 54:22

9M ago54:22

54:22

Dr. Ahmet Uluer, a medicine and pediatric trained pulmonologist and Director of the Adult Cystic Fibrosis Program at the combined Boston Children’s Hospital and Brigham & Women’s Hospital Adult Cystic Fibrosis Center, gives an overview of the impact of and risk associated with aging for people with CF, including GI cancers, complications associated…

1
Panel: Parenting with CF - Lucy Barnes; Matthew DeFina; Carl Robinson; moderated by Mary Helmers, RN 36:11

9M ago36:11

36:11

Lucy Barnes, Matthew DeFina, and Carl Robinson, three adults with CF who are also parents, share their individual paths to parenthood. Moderated by Mary Helmers, the discussion explores panelists’ experiences with reproductive health discussions with their CF care providers; their partners’ key roles; finding balance with parenting, working and man…

1
Advances in mRNA Therapy: New Applications for Cystic Fibrosis - Deepika Polineni, MD, MPH 36:32

9M ago36:32

36:32

Dr. Deepika Polineni, Cystic Fibrosis Center Director and Associate Professor in the Department of Pediatrics, Division of Allergy and Pulmonary Medicine at Washington University in St. Louis, provides a comprehensive overview of messenger ribonucleic acid (mRNA) therapy as a novel therapeutic option for CF. She discusses early studies of safety an…

1
Inside The Art Of Dominic Quagliozzi - Part 2 (Video) 20:59

9M ago20:59

20:59

Dominic Quagliozzi is a captivating and renowned artist living with cystic fibrosis and the recipient of a double lung transplant. He works within several mediums including painting, drawing, as well as performance and video art. In Part Two, Dominic shares a more in-depth look into his works, including the motivation and reasoning in the physical …

1
Inside The Art Of Dominic Quagliozzi - Part 1 (Video) 15:24

9M ago15:24

15:24

Dominic Quagliozzi is a captivating and renowned artist living with cystic fibrosis and the recipient of a double lung transplant. He works within several mediums including painting, drawing, as well as performance and video art. In Part One, Dominic shares how he first started on his journey expressing his lived experience through art, and how art…

1
Inside The Art Of Dominic Quagliozzi - Part 2 (Audio) 20:59

9M ago20:59

20:59

Dominic Quagliozzi is a captivating and renowned artist living with cystic fibrosis and the recipient of a double lung transplant. He works within several mediums including painting, drawing, as well as performance and video art. In Part Two, Dominic shares a more in-depth look into his works, including the motivation and reasoning in the physical …

1
Inside The Art Of Dominic Quagliozzi - Part 1 (Audio) 15:24

9M ago15:24

15:24

Dominic Quagliozzi is a captivating and renowned artist living with cystic fibrosis and the recipient of a double lung transplant. He works within several mediums including painting, drawing, as well as performance and video art. In Part One, Dominic shares how he first started on his journey expressing his lived experience through art, and how art…

1
Understanding and Managing Pain in CF: A Biopsychosocial Approach - Amanda Bruce, PhD; Deborah Friedman, PhD 42:43

9M ago42:43

42:43

Dr. Amanda Bruce, Associate Professor and licensed clinical psychologist at the University of Kansas Medical Center, and Dr. Deborah Friedman, licensed clinical psychologist in the Massachusetts General Hospital Department of Psychiatry and Assistant Professor of Psychology at Harvard Medical School, discuss the use of cognitive-behavioral therapy …

1
Improving CF Airway Mucociliary Clearance: Toward Transition from Animals to Humans - Carlos Milla, MD; Nam Soo Joo, PhD 21:01

9M ago21:01

21:01

Dr. Carlos Milla, Professor of Pediatrics at Stanford University School of Medicine and the Director of the Stanford Cystic Fibrosis Center, and Dr. Nam Soo Joo, Senior Research Scientist in the Department of Pediatrics at Stanford University, present results from CFRI-funded research on improving CF airway mucociliary clearance. They discuss resul…

1
Targeting IRBIT to Correct Bicarbonate Secretory Defects in Cystic Fibrosis - Zachary Sellers, MD, PhD 35:45

9M ago35:45

35:45

Dr. Zachary Sellers, Assistant Professor of Pediatrics and the Associate Chair of Research in Pediatric Gastroenterology at Stanford University, presents results from CFRI-funded research on targeting IRBIT to correct bicarbonate secretory defects in CF. His work aims to identify new ways to treat CF-associated gastrointestinal complications regard…

1
Research 6:14

9M ago6:14

6:14

11M ago44:17

44:17

1y ago33:35

33:35

Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funded. There's still no cure, and not everyone can take Trikafta, so CFNZ want all in the community to know th…

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What The Cf A Cystic Fibrosis Podcast

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