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Edition 104: PWSA | USA Pulse
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(Please note, this episode was recorded under the name PWS Connect, and we have since changed the name to PWS United.)
Carrie and Anne, from PWSA | USA's Communication Dept., share the news and resources from PWSA | USA's Pulse newsletter, edition #104. Our Pulse covers upcoming fundraising events and conferences, advocacy highlights and actions, family support resources and offerings, the latest in research, trial opportunities and more. The Pulse newsletter is published digitally every Friday. Future podcast Pulse episodes will air the following Tuesday.
Links:
Congressional Letter of Support Blog Post
Rare Aware Art Share Submission Form
Ask Nurse Lynn "BM & GI Concerns"
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