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Ep7 Edition 106: PWSA | USA Pulse
Manage episode 439176130 series 3594946
Content provided by PWSA | USA. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PWSA | USA or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
(Please note, this episode was recorded under the name PWS Connect, and we have since changed the name to PWS United.)
We're bringing the newest edition of our Pulse newsletter, this time with some conversation and personal insight. Catch up on the latest news in the PWS community by listening to this edition of the PWS United podcast.
LINKS
Join PWS Connect on Discord TREND Connect Community and Research Initiative (google.com)
The Importance of Newborn Screening - Prader-Willi Syndrome Association | USA (pwsausa.org)
Share Your Story - Prader-Willi Syndrome Association | USA (pwsausa.org)
2025 United in Hope Conference - Prader-Willi Syndrome Association | USA (pwsausa.org)
PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA (pwsausa.org)
2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA (pwsausa.org)
Arizona Grand Resort & Spa - Reservations - Room Availability Search (synxis.com)
Gavin Gill Classic - Prader-Willi Syndrome Association | USA (pwsausa.org)
Answers for Audrey - Prader-Willi Syndrome Association | USA (pwsausa.org)
2024 #RAREis Global Advocate Grant (rareiscommunity.com)
Creating a Safe Home - Prader-Willi Syndrome Association | USA (pwsausa.org)
Friendship and Beyond: Navigating relationships and sexuality in PWS with Patrice Carroll webinar registration Webinar Registration - Zoom
Family Support Webinar: Creating an Individualized Health Plan (youtube.com)
Grandparents Day 2024 - Prader-Willi Syndrome Association | USA (pwsausa.org)
Call for 2025 Conference Abstracts Conference 2025 - IPWSO
ECHO Feeding and Swallowing Registration Meeting Registration - Zoom
ECHO Psychiatry and PWS Registration Meeting Registration - Zoom
ECHO Exercise Physiology Registration Meeting Registration - Zoom
VNS4PWS Clinical Trial: What You Need to Know (youtube.com)
PWS Clinics - Prader-Willi Syndrome Association | USA (pwsausa.org)
Clinical Trials - Prader-Willi Syndrome Association | USA (pwsausa.org)
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