Best Jon Magnuson Podcasts (2024)

1
Knowledge is Power: Part 1 35:19

8d ago35:19

35:19

The knowledge we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease. Survey – Patient Empowerment Program PodcastRegister for the 20…

1
Adopting a Rare Son with Paul Compton 33:39

22d ago33:39

33:39

Paul Compton and his wife Andrea chose to start a family through adoption. Unknown to anyone, one of their adopted boys, Taeson, was the inheritor of DRPLA, a progressive brain disorder caused by a mutation in the ATN1 gene. Determined to find a treatment and advocate for their son and others with the disease, the Comptons established CureDRPLA. In…

1
Ion Channel Mutations: The Complexities of Treatment 30:16

1M ago30:16

30:16

Mutations affecting ion channels are the most common cause of 'applications for treatment' submitted to n-Lorem. These channels regulate the passage of essential electrically charged ions, like sodium, potassium, calcium, and chloride, into cells. Alas, ion channels pose a significant challenge in the ASO discovery process, as there is little room …

1
Why We Dose Intrathecally 29:18

2M ago29:18

29:18

The affected organs of our patients determine the route of administration for an ASO, as certain routes can better target specific organs and offer the best potency. The central nervous system (CNS) is the most common target we encounter, and for this, we dose intrathecally. Let’s dive into how this is done and the particulars of why this approach …

1
Behind the ASO Design and Discovery with Konstantina Skourti-Stathaki, Ph.D. 27:33

2M ago27:33

27:33

Konstantina Skourti-Stathaki leads the n-Lorem research team behind the design and discovery of ASOs. Nadina, as we at n-Lorem call her, has a passion for helping patients and an excitement for science that is contagious. She joins the Patient Empowerment Program podcast to discuss her day-to-day activities as n-Lorem’s Director of ASO Design and D…

1
Best of the 2023 Nano-rare Patient Colloquium 36:51

3M ago36:51

36:51

We’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origin…

1
Bold, Traditional, and Sacramental Church Planting (with Tony Melton) 58:58

3M ago58:58

58:58

In the last episode of Season 8, Canon Dan is joined by Fr. Tony Melton to talk about bold, traditional, and sacramental church planting. This conversation will encourage and challenge you to consider what it means to boldly take our tradition outside the walls of our churches. Also: We are hosting a virtual conference on October 9th and 10th, The …

1
The Hurdles of Insuring Patients with Nano-rare Mutations with Alan Lotvin, M.D. 50:51

3M ago50:51

50:51

What's preventing insurers from covering the specialized care of patients with nano-rare mutations, thereby expanding access to available treatment options? Is it the population size, cost, or perceived risk? Given that the initial discovery of nano-rare mutations is relatively recent, paving the way for this population requires a nuanced approach …

1
Anna’s Story of Hope and Help: FUS-ALS with Sonja Kämpfer and Dr. Neil Shneider 43:06

4M ago43:06

43:06

Stan Crooke speaks with Sonja Kampfer and Dr. Neil Shneider, associate professor of motor neuron disorders at Columbia Medical School, about Sonja’s daughter, Anna. Anna was diagnosed with an aggressive, fatal form of ALS at the age of 16. ALS is rare in teenagers, and this form of ALS is the worst of the worst. Sonja tells Anna’s story initial sym…

1
S8E10 Living in the Book of Common Prayer (with Julie Lane-Gay) 51:13

4M ago51:13

51:13

In this episode, Canon Dan is joined by Julie Lane Gay to discuss her upcoming book, "The Riches of Your Grace: Living in the Book of Common Prayer." Julie, a writer and trained horticulturist, explores the impact of the Book of Common Prayer on her daily life. She shares how the BCP serves as both a personal and communal guide to prayer, making li…

1
Mostyn’s Story: Mother’s Day Special with Zoe Hummel 50:06

4M ago50:06

50:06

Motherhood is a journey filled with challenges, but every step is worth it for the love and joy it brings. Zoe Hummel joins the show in this special Mother’s Day episode to discuss her son Mostyn’s emotional story to diagnosis, and the unique challenges and triumphs of being a nano-rare mom. Order your Mother's Day card by May 6, 2024! All proceed …

1
S8E9 The Crafts of Writing and Church Planting (with Alastair Sterne) 1:14:06

4M ago1:14:06

1:14:06

In this episode, Canon Dan Alger discuss the significant role of writing in church planting with Alastair Sterne, an experienced church planter and author based in British Columbia, Canada. Alastair shares his journey from becoming a Christian to founding his own church, emphasizing how writing—from newsletters to blogs and books—has been integral …

1
Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D. 48:53

4M ago48:53

48:53

Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare"…

1
S8E8 Navigating Church Planting as Spouses (with Janie Williams, Vandi Melton, and Kirstin Magnuson) 1:09:55

5M ago1:09:55

1:09:55

In this episode, our very own Janie Williams hosts a conversation with Vandi Melton and Kirstin Magnuson. Delving into the intricacies of planting a church alongside one's spouse, they candidly explore both the joys and trials encountered along the way. They offer valuable insights and practical wisdom applicable to anyone, whether directly involve…

1
Advanced Genetics Part 2 25:52

5M ago25:52

25:52

Genetics can be intricate, no doubt. With millions of mutations present in every human, one might wonder why not everyone is impacted by pathogenic diseases. The Patient Empowerment Program aims to assist you in grasping the fundamental concepts of various mutations and how they function, paving the way for you to enhance your understanding of gene…

1
S8E7 The Path of Sacramental Innovation in Church Planting (with Brandon Walsh) 56:23

5M ago56:23

56:23

In this episode, Canon Dan Alger and Brandon Walsh delve into the significance of creativity, innovation, and entrepreneurialism in church planting. They discuss the importance of equipping individuals for vocational ministry, the benefits of sacramental theology, embracing the risk of failure, as well as confronting fears associated with launching…

1
Advanced Genetics Part 1 30:13

5M ago30:13

30:13

Each time one of the cells in your body divides to form a new cell, 3 BILLION genetic letters must be accurately duplicated. That’s a big number and mistakes DO happen in everyone. That’s right, if you’re reading this, you have a genetic mutation. On This Episode We Discuss: Your genetic alphabet – nucleotides How to think about DNA Replication Typ…

1
S8E6 How Bishops Strengthen Church Planting (with Dan Gifford) 43:00

6M ago43:00

43:00

In this episode, Canon Dan Alger hosts a helpful conversation with Bishop Dan Gifford of the Anglican Network in Canada. They talk about the role and purpose of bishops, the benefits of episcopal governance for church planting, as well as how bishops can advocate for church planting. Just a reminder: This season of our podcast is brought to you by …

1
Sharing Hope Through Storytelling & Connection with Shanna Tolbert 43:08

6M ago43:08

43:08

What's one way to spread hope? By sharing your experiences and connecting with others who truly understand the everyday challenges nano-rare patients face. Shanna Tolbert was one of five nano-rare patient caregivers who participated in the panel, The Perilous Journey to Diagnosis and Treatment for Nano-rare Disease Patients. Listen to Shanna’s take…

1
S8E5 Seeing Anglican Church Planting Through Friendly Non-Anglican Eyes (with Daniel Yang) 59:42

6M ago59:42

59:42

In this episode, Canon Dan Alger connects with our friend Daniel Yang (World Relief). Daniel is well acquainted with the world of church planting, having planted churches himself and also through his time at The Send Institute at the Billy Graham Center at Wheaton College. Daniel is a friend of Anglicanism, and we asked him to give his perspective …

1
Our Mission is Personal with Sarah Glass 40:54

6M ago40:54

40:54

For n-Lorem’s Chief Operating Officer, Sarah Glass, the mission of n-Lorem is personal. Her son Ethan was diagnosed with a nano-rare mutation. A geneticist by training, she joined n-Lorem to oversee and direct the organization’s efforts to provide hope and potential help to those who need it most. It's more than just a job for her; she's powered by…

1
S8E4 The Beauty and Wonder of Urban Church Planting (with Jim Salladin) 1:04:39

7M ago1:04:39

1:04:39

In this episode, Canon Dan Alger hosts a captivating conversation with Jim Salladin from Emmanuel Anglican Church, NY. They delve into the dynamics of urban centers, discussing their beauty, brokenness, and the profound wonder and awe inherent in proclaiming the gospel within cities. This conversation offers great insights into the challenges and o…

1
Q&A #2 with Patient Families 45:45

7M ago45:45

45:45

Charissa Lipman joins n-Lorem founder and CEO, and host of the Patient Empowerment Program Podcast, Dr. Stan Crooke, in this question-and-answer episode to discuss additional questions asked during the 2023 Nano-rare Patient Colloquium. Charissa attended the inaugural Colloquium in October 2023 and brings the perspective of a patient family member,…

1
S8E3 Perseverance in Calling (with Jon Thompson) 56:55

7M ago56:55

56:55

This episode of our podcast features a conversation between Canon Dan and Jon Thompson, a pastor and author based in Ontario, Canada. They talk about the role of perseverance in church planting (and ministry in general), and how our understanding of calling can fuel us to press on. Make sure you check out Jon's new book Perseverance, as well as his…

1
Everybody Lives with Dan Doctoroff 48:37

7M ago48:37

48:37

We're diving into the archives to resurface this top downloaded episode from last year. Dan Doctoroff joined Patient Empowerment Program in February 2023 to talk about his mission to support a world where everyone with ALS lives. Dan is the former NYC deputy mayor for economics and former CEO of both Bloomberg L.P. and Sidewalk Labs. In this episod…

1
S8E2 - Leadership Development and Faith in Work (with Kevin Harlan) 59:51

7M ago59:51

59:51

This episode of our podcast features a conversation between Canon Dan and Kevin Harlan from Made to Flourish (madetoflourish.org). Delving into the intersection of daily work realities and spiritual formation, they explore the significance of integrating these aspects into all our endeavors. The discussion also sheds light on the advantage of a wel…

1
Best of the 2023 Nano-rare Patient Colloquium 39:02

8M ago39:02

39:02

For the return of the patient empowerment program podcast, we’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the…

1
S8E1 - Navigating the Call to Church Plant (with Seth Cain) 48:29

8M ago48:29

48:29

Welcome to Season 8 of the Always Forward Podcast! In this episode, Canon Dan speaks with Seth Cain about how to navigate a call to church planting—the questions one needs to consider on a personal level as well as what questions need to be explored on an organizational level.By Dan Alger

1
S8E0 - A Taste of Things to Come 9:54

8M ago9:54

9:54

Season 8 of the Always Forward Podcast is just around the bend. In this preview episode, Canon Dan shares about some updates to our podcast, our new partnership, topics we will cover this season, as well as some upcoming events. We can't wait to share this season with you!By Dan Alger

1
How to Think About ”Risk” Part 2 35:28

9M ago35:28

35:28

Nano-rare diseases strip power from families and this often leads to hopelessness, anger, and dread. However, channeling these intense emotions to carefully navigate risk/benefit decisions is within one’s control. n-Lorem is different than standard drug development settings. Every risk/benefit decision that n-Lorem makes is in the context of the in…

1
How to Think About ”Risk” Part 1 42:35

9M ago42:35

42:35

“How to Think About Risk” is arguably the most crucial topic ever discussed on the Patient Empowerment Program. Navigating decisions with substantial risk can be challenging, intricate, and even intimidating. The ability to detach from the intense emotions surrounding these choices is critical for making the best and most logical decisions. On This…

1
Inheriting Huntington’s Disease and Aspiring to Prolong Lives with Jeff Carroll 38:43

9M ago38:43

38:43

Jeff Carroll, Ph.D., inherited a gene that will eventually lead to symptoms of Huntington’s Disease. Alongside researching this debilitating disease as an Associate Professor of Neurology at the University of Washington, he’s a Scientific Advisor for n-Lorem and member of the Access to Treatment Committee (ATTC) that helps screen and assess submitt…

1
Living a Longer, Healthier, and More Fun Life with Chip Wilson 1:00:16

10M ago1:00:16

1:00:16

Chip Wilson, the creator of Lululemon and SOLVE FSHD, stands as a pioneer, business innovator, philanthropist, and a person affected by a rare disease. His passion for fitness led him to build a successful career in designing athletic wear, but a diagnosis of Facioscapulohumeral Muscular Dystrophy (FSHD), a degenerative muscle condition, altered hi…

1
Autopilot: The Autonomic Nervous System 22:04

11M ago22:04

22:04

The Autonomic Nervous System automatically controls essential processes whether you’re awake or asleep. It’s the employee of the month. It gets the job done at any time of the day without you even having to ask it. It is our body’s autopilot system, controlling functions we often take for granted, like heart rate, digestion, pupil dilation, and eve…

1
Better Health, Brighter Future for Rare with Dan Curran 29:52

11M ago29:52

29:52

Dr. Daniel Curran leads Takeda’s efforts to unlock innovation and deliver transformative medicines in a variety of rare-disease areas. Dan embraces learning from, collaborating with, and meeting members of the rare disease community in an effort to produce treatments that result in better health and a brighter future for rare. 2:02 How rare disease…

1
Sneak Peek of the 2023 Nano-rare Patient Colloquium 36:04

11M ago36:04

36:04

As the first ever Nano-rare Patient Colloquium is just around the corner, we are flipping the script. Spectrum News’ Brady Huggett interviews n-Lorem founder and CEO, Dr. Stan Crooke, and picks his mind to understand the inspiration behind the creation and want for this first of its kind nano-rare community event. Along with some background informa…

1
Planters Stories- Claude Atcho (interviewed by Jeff Bailey) 27:44

12M ago27:44

27:44

Here a bonus episode of the Always Forward Podcast! Listen in on a conversation between Canon Jeff Bailey and Rev. Claude Atcho, Vicar of Church of the Resurrection in Charlottesville, VA, and author of the Reading Black Books (available everywhere books are sold).In this engaging dialogue, Jeff and Claude delve into the profound ways our Anglican …

1
Liver: Diseases 14:40

1y ago14:40

14:40

Liver disease is a broad term encompassing a range of conditions that affect the liver's structure and function. The liver is extremely important as it wears many different hats when it comes to your body functioning properly like controlling metabolism, storing and breaking down nutrients for use, detoxification and more! No wonder there are many …

1
Planter Stories: Hope Amid the Flames From A Church Plant In Maui (with Jason Hill) 29:44

1y ago29:44

29:44

On this special unscheduled episode of the Always Forward Podcast Canon Dan speaks with Fr Jason Hill, planter at Kingsfield Mission in Maui, Hawaii. Learn how this young church plant is helping with relief efforts in the wake of the tragic wildfires and how you can support this sister church plant as they bring hope amid the flames.Find out more a…

1
Liver: The Master Chemist 20:23

1y ago20:23

20:23

The liver is a master chemist that sends copious signals to help control our appetite and breaks down fats to be stored and used as energy and to combat starvation. Next time you’re hangry, think of your liver kicking into overdrive. On This Episode We Discuss: Producing countless small chemical metabolites Controlling iron homeostasis The liver an…

1
Liver: Metabolic Magic 30:00

1y ago30:00

30:00

The liver has many important and magical metabolic functions. It converts the nutrients in our diets into substances that the body can use and filters toxic substances out from the body. You won't believe the sheer metabolic mayhem that happens behind the scenes!By n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

1
S7E10 - The Legacy of Tim Keller (with Tuck Bartholomew & Jim Salladin) 1:10:42

1y ago1:10:42

1:10:42

Two Canons for Church Planting, Tuck Bartholomew and Jim Salladin, had a conversation around Tim Keller's life and legacy. Both were directly influenced by Dr. Keller's ministry and had plenty to share on this closing episode of Season 7.By Dan Alger

1
Bottling Hope 30:23

1y ago30:23

30:23

Argonaut Manufacturing Services Inc. CEO, Wayne Woodard, joins the Patient Empowerment Program to detail how Argonaut bottles vials of hope for n-Lorem patients. Argonaut is n-Lorem's provider of Sterile Fill-Finish for an optimal ASO. This means that the lyophilized ASO powder, which was manufactured with good manufacturing practices (GMP), gets f…

1
Pursuing Diagnoses and Sequencing 42:26

1y ago42:26

42:26

Gay Grossman is the mother of an n-Lorem patient and co-founder of ADCY5.org. She has been active in the rare disease space for 25+ years and continues to fight and advocate for patients every single day by connecting ADCY5 families, speaking at events, and informing the entire rare community. On Wednesday, Gay joins the Patient Empowerment Program…

1
Lungs: Heavy Breathing — Diseases and Obstructions 16:02

1y ago16:02

16:02

Brace yourself for a deep dive into the various categories of lung disease. Obstructed airways and restricted blood flow pose significant risks to your body. So, learn preventive measures to safeguard your respiratory health. From pneumonia to the disruption of pulmonary blood flow, we'll explore the different culprits that block the flow of air an…

1
S7E9 - Reclaiming a Sacramental Mindset (with Dr. Hans Boersma) 50:20

1y ago50:20

50:20

Church planting is inherently a sacramental work--so how do we reclaim that sacramental work? Dr. Hans Boersma, keynote speaker at our upcoming Always Forward Conference in September, joins the show to discuss. You can get more details on the conference at www.always-forward.com/af-conference-2023.By Dan Alger

1
Lungs: Defending Airways 26:55

1y ago26:55

26:55

Let's take a deep breath and fill our lungs with air. Ahh, doesn't that feel good? Our lungs are responsible for taking in oxygen from the air we breathe and distributing it to organs throughout our bodies and then ridding those organs of carbon dioxide. Get ready to dive into a fascinating episode on our lungs and how they protect us against parti…

1
S7E8 - Assessing the State of Your Plant (with Jim Griffith) 55:52

1+ y ago55:52

55:52

How can we assess the health and state of our plants...before it's too late? Jim Griffith joins the show to discuss.By Dan Alger

1
One Year Anniversary: It Takes a Rare Community 45:43

1+ y ago45:43

45:43

May marks a year of podcasting for us, and we’re thankful for all those who have participated and the growing number of people who have listened to the podcasts. We are pleased with the overwhelming support for the podcast and the willingness of our partners and patients to share their stories. We launched our Patient Empowerment Program with the p…

1
S7E7 - GAFCON & Church Planting 38:10

1+ y ago38:10

38:10

Recently the Global Anglican Future Conference convened in Kigali, Rwanda. Dan shares how church planters can navigate their work with the variety of issues swirling about in the international Anglican Communion.By Dan Alger

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Jon Magnuson Podcasts

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