Best Tetralogy Of Fallot Podcasts (2024)

1
Terminating a wanted pregnancy led to advocacy. Riata shares her story of her baby Riana's diagnosis of Tetralogy of Fallot and AVSD heart defect. 1:12:57

2h ago1:12:57

1:12:57

Riata shares her story of her baby Riana and the diagnosis of Tetralogy of Fallot and Atrioventricular septal defect (AVSD, a heart defect) and T21. Riata was 29 at the time of this first pregnancy. She had to travel for care, due to living in a very rural part of Wyoming. Riata wishes to share her story to remind those opposed to abortion that abo…

1
Pediheart Podcast #308: Can Preoperative Modeling Improve Fontan Design/Outcomes? 31:10

2h ago31:10

31:10

This week we delve into the world of the single ventricle when we speak with Dr. David Hoganson, Assistant Professor of Surgery at Harvard Medical School about a recent work he co-published with investigators from Boston Children’s Hospital on computational fluid dynamic modeling in the planning of the Fontan operation. Single ventricle heterotaxy …

1
Pediheart Podcast Replay of #242: Chronic Lower Extremity Venous Insufficiency In The Fontan Patient 25:27

6d ago25:27

25:27

This week we turn back the clocks to re-review a recent research letter from the team at the Harvard Congenital Heart Program about venous insufficiency in the Fontan patient. Why do patients with Fontan circulation develop chronic venous insufficiency and what are the implications of this problem in the Fontan patient? What sort of evaluation shou…

1
From Heart Block to Myotonic Dystrophy: A Survivor's Tale 33:58

10d ago33:58

33:58

Send us a Text Message. What if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block and other heart conditions. From coping with an abnormally low heart rate a…

1
Pediheart Podcast #307: Impact Of Ischemic Time On Pediatric Heart Transplant Outcomes 31:49

6d ago31:49

31:49

This week we delve into the world of heart failure and transplantation when we review a recent PHTS study assessing the impact of ischemic time on outcomes of pediatric heart transplantation. What is considered to be a long ischemic time and what is the impact on outcomes in the pediatric patient undergoing transplant? Why does it appear as the imp…

1
Navigating Life with HLHS and Marfan Syndrome: Rachael's Powerful Story 32:12

6d ago32:12

32:12

Send us a Text Message. Discover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations and two device implants, all while avoiding open-heart surgeries. Rachael a…

1
Journaling & writing to honor all our losses and babies. Carmen Grover, author of A Diary to My Babies, shares her story of 5 separate miscarriages and 2 TFMRs. 46:47

8d ago46:47

46:47

Carmen Grover is mom to 11 babies, 4 earthside and 7 in her heart. These are their names in order: Amity, Will, Kaia, Baby G, Case, Maelie, Butterfly Baby, Jude, Aida, Zach, and Charlotte. She is the author of A Diary to My Babies and the journal companion to that grief memoir, A Diary to Our Babies. Two of her losses have been to TFMR and she's co…

1
Pediheart Podcast #306: Assessing The LV In The Ebstein's Patient 25:48

11d ago25:48

25:48

This week we review a recent report assessing LV function and properties in the Ebstein's anomaly patient using CMR. How often is LV dysfunction observed in the Ebstein's patient who is about to undergo surgical Cone repair? How often did the echo underestimate LV dysfunction in comparison to the 'gold standard' CMR? How often is LV non-compaction …

1
Chapter 10: Life Lessons from Congenital Heart Defects: Stories of Hope and Resilience 35:54

24d ago35:54

35:54

Send us a Text Message. What happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my Younger Self," where she offers wisdom and reflections that will resonate w…

1
Pediheart Podcast #305: Safety And Efficacy Of ICE For Pediatric And Congenital Ablations 35:45

18d ago35:45

35:45

This week we delve into the world of electrophysiology and review a recent report from the team at Primary Children’s hospital on the use of intravascular ultrasound for EP ablation procedures in children. How is this technology useful for ‘routine’ ablations in kids? Are there some forms of tachycardia where its use is more important than others? …

1
Chapter 9 of "The Heart of a Heart Warrior" Featuring Heart Warrior Authors 47:06

21d ago47:06

47:06

Send us a Text Message. How do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects (CHD). Join us as Megan Tones sets the stage with an introduction to Chapt…

1
When TFMR is for YOUR health. Marie-Laure shares how she lost her baby Juliette to early onset preeclampsia. 1:13:07

23d ago1:13:07

1:13:07

When TFMR is for YOUR health, also called Termination for Maternal Health or Termination for the Pregnant Person’s Health, it can bring an extra layer of survivor’s guilt. Marie-Laure shares how she lost her baby Juliette to early onset preeclampsia with severe features and IUGR (intrauterine growth restriction). Her symptoms became more pronounced…

1
Pediheart Podcast #304: Pediatric Cardiology Pioneer Dr. Sylvia Griffiths - An Appreciation 33:13

25d ago33:13

33:13

This past week marked the passing of the great pediatric cardiology pioneer, Dr. Sylvia Griffiths. Dr. Griffiths was a trainee of Dr. Ruth Wittemore of Yale University and was one of the founders of the pediatric cardiology program at NY Presbyterian Hospital in the mid 1950's with Dr. Sidney Blumenthal. Her career spanned 7 decades, all at NY Pres…

1
"The Heart of a Heart Warrior" Chapter 8 Featuring Megan Tones and Julie Kerr 42:01

28d ago42:01

42:01

Send us a Text Message. Ever wondered how a heartfelt community can transform lives through stories and shared experiences? Join me on this special episode of "Heart to Heart with Anna" as I express my gratitude for the overwhelming birthday wishes from the congenital heart defect community. You'll be introduced to the latest literary gem from Baby…

1
Pediheart Podcast #303: Outcomes Of Heart Transplantation Of The Single Ventricle Adult 34:03

1M ago34:03

34:03

This week we review a recent paper from last 2023 about outcomes of cardiac transplantation in the adult congenital heart patient (ACHD). Little has been written on this topic until this very robust and large scale report. How do single ventricle ACHD patients fair at transplant and how do they compare to non-ACHD heart transplant recipients? Why m…

1
Termination for anencephaly. Samantha explains how this loss has impacted her relationships and spirituality. 35:53

1M ago35:53

35:53

Samantha is a TFMR mom who lost her second daughter to anencephaly at 17 weeks pregnant. She came on today to share how this great loss has shifted her relationships and beliefs. Resources mentioned: 1. ASCEND TFMR Grief Circle - If you are a bereaved TFMR parent looking for group grief support, I invite you to check out our upcoming grief circles …

1
Heart Warrior Transformations: From Challenges to Creative Triumphs 28:11

1M ago28:11

28:11

Send us a Text Message. Have you ever wondered how living with a congenital heart defect can shape one's life journey? This week, we’re diving into the remarkable stories of heart warriors, those extraordinary individuals who navigate life with congenital heart defects. I'm Anna Jaworski, and in this episode, we explore the powerful metaphor of tra…

1
Pediheart Podcast Replay Of #231: Gender Inequity In Congenital Cardiac Electrophysiologist Salary 25:22

1M ago25:22

25:22

This week we go back in time to 20222 to re-review an episode focusing on gender disparities in salary in the field of congenital electrophysiology. To what degree are female electrophysiologists paid less than their male counterparts despite similar levels of education, work effort and seniority? What interventions could be enacted to help 'mind t…

1
Pediheart Podcast #302: Ductal Stenting In a Low Resource Environment 30:05

2M ago30:05

30:05

This week's topic is ductal stenting in a low resource environment. We review a recent report from the team at Amrita Institute in Kerala, India about their large, over 10 year experience in ductal stenting. Why has this approach superceded BTTS in this environment? How does the team determine if a patient is a candidate and what morphologies of du…

1
Navigating Parenthood with a Congenital Heart Defect During Covid-19: Amelia Woods' Journey 30:52

2M ago30:52

30:52

Send us a Text Message. What happens when you're expecting a baby with a congenital heart defect during a global pandemic? Join me, Anna Jaworski, as I sit down with Amelia Woods, a courageous heart mom who faced this exact challenge. Amelia shares the emotional rollercoaster of managing her son Henderson's dextrotransposition of the great arteries…

1
A book of TFMR stories & why these stories NEED to be told w/ Ale Muñoz, co-author & editor of Flowers in Our Womb 15:58

2M ago15:58

15:58

Ale Muñoz, co-author and editor of TFMR story anthology “Flowers in Our Womb” shares the inspiration behind this book and why sharing your own story of TFMR pregnancy loss can be so transformative. Find Flowers in Our Womb on Amazon in Kindle (e-book), paperback, and hardcover https://a.co/d/5jAa5eF Resources mentioned: 1.“Releasing a Wanted Pregna…

1
Navigating Romantic Life with a Heart Condition: Insights from Dr. Corinne Smorra 38:41

2M ago38:41

38:41

Send us a Text Message. What happens when your heart condition becomes part of your dating narrative? Today on Heart to Heart with Anna, we welcome back Dr. Corinne Smorra, a psychotherapist and adult living with congenital heart defects (CHD). Dr. Smorra opens up about her personal journey with truncus arteriosus and sheds light on the myths and m…

1
Pediheart Podcast #301: A Novel Mortality Risk Score For Repaired Tetralogy of Fallot 37:21

2M ago37:21

37:21

This week we review a novel multivariable model used to predict mortality in the repaired tetralogy of Fallot patient. Can this model identify who amongst the repaired TOF patients is at risk for death in the coming years? What are the most important inputs to this model? Why does the use of a validation cohort provide greater strength to this mode…

1
Pediheart Podcast #300: Discussion With Drs. John Triedman, J. Philip Saul And Edward Walsh - The Origins Of Pediatric EP In Boston 1:07:02

2M ago1:07:02

1:07:02

This week we listen in to a wonderful roundtable discussion with 3 of the pioneers in the world of pediatric electrophysiology, namely Dr. John Triedman, Dr. J. Philip Saul and Dr. Edward P. Walsh. All three were 'there at the beginning' and share their memories of how they helped to shape the field of pediatric EP. How did Drs. Walsh and Saul choo…

1
James Robinson's Emotional Odyssey: Love and Loss in a Heart Family 44:11

2M ago44:11

44:11

Send us a Text Message. What happens when your entire world is defined by hospital walls and medical jargon? On "Heart to Heart with Anna," we share the poignant and raw journey of James Robinson, a father who walks us through the emotional highs and profound lows of raising his son Nadav, who was born with a congenital heart defect known as single…

1
Back to work in high-risk maternal and perinatal postpartum healthcare after TFMR with Alissa, mother to Seamus 42:26

2M ago42:26

42:26

Alissa shares how she got a “grey” diagnosis (a term for a condition that could be survivable through fatal, on a spectrum of outcomes) for her baby in her second trimester which led to a decision to end her wanted pregnancy. As a postpartum and high-risk NICU and PICU healthcare worker herself, she felt that her prior knowledge and vicarious lived…

1
Pediheart Podcast #299: Public Reporting In Congenital Heart Surgery - The Good, The Bad And The Opportunities 36:15

3M ago36:15

36:15

This week we review a recent editorial commentary from multiple congenital heart surgical leaders in the US today. The topic of their expert opinion piece is the concept of public reporting of results and their 'amplification' through organizations such as US News and World Report, to name one. How has the use of the database from STS been sometime…

1
Pediheart Podcast #298: Do Children Need Aspirin Following Left-Sided SVT Ablations? 32:49

3M ago32:49

32:49

In this week's podcast, we discuss a work that tries to challenge convention when we review a recent work from the team at Emory University about anticoagulation following left sided ablation of SVT in children. A short course of aspirin is commonly prescribed in this setting but what is the evidence for this? How do patients who receive aspirin fa…

1
Pediheart Podcast #297: Pulmonary Atresia With Intact Ventricular Septum - Present Day Outcomes + Areas For Improvement 31:47

3M ago31:47

31:47

This week we review a recent large scale, multicenter study of the Pediatric Cardiac Intensive Care Society Investigators on outcomes of pulmonary atresia with intact ventricular septum (PA/IVS) in the present era. How are patients faring in the present era in comparison to the prior 1-2 decades? What are the most important factors to account for i…

1
Heartfelt Battles to Artistic Revelations with Amy Milz 31:08

3M ago31:08

31:08

Send us a Text Message. Amy Milz opens her heart to us—quite literally—in a candid recount of her life as a congenital heart defect survivor. With grace and vulnerability, she takes us through the paces of her medical odyssey, from the relentless advocacy of her mother to her personal victories in the operating room. Each scar tells a story of resi…

1
Pediheart Podcast Replay of #200: Goal Directed Therapy In The Pediatric CICU - Follow The Lactate 1:04:36

3M ago1:04:36

1:04:36

In this replay of our milestone 200th episode of Pediheart, we review a 2005 paper from the team at Nicklaus Children's Hospital on how lactate level was used to monitor oxygen delivery and consumption in the postop congenital heart patient and the impact that a protocol involving frequent monitoring and response to this value improved outcomes in …

1
Mother's Day Reflections: The Valor and Vitality of Heart Moms 26:56

3M ago26:56

26:56

Send us a Text Message. When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to raise a child with a congenital heart defect. Join me, Anna Jaworski, in an episode where we explore the deep em…

1
Pediheart Podcast #296: Pulmonary Arterial Interventions Following The Arterial Switch Operation - Outcomes 33:25

4M ago33:25

33:25

This week we delve into the world of interventional cardiology and congenital heart surgery when we review a recent report from the team at Toronto Sick Children's Hospital about their experience with interventions in the pulmonary arteries following the arterial switch operation. How often are branch or main pulmonary artery narrowings serious eno…

1
The Courageous Chronicle of Hope: From Heart Surgery to Self-Discovery 34:29

4M ago34:29

34:29

Send us a Text Message. When my daughter Hope graced the podcast with her presence, her story wasn't just a chronicle of living with a single ventricle heart at 29—it was a profound testament to her strength amid her gender transition. Our conversation unveils the seamless integration of her heart health with her journey of self-discovery, all whil…

1
Ending a wanted pregnancy for T21. Plus IVF and pregnancy after loss. Becky shares her story 1:08:22

4M ago1:08:22

1:08:22

Becky shares her story of IVF and embryo loss followed by TFMR for Down’s Syndrome. After all the fertility challenges, she was able to get pregnant again with what is currently a healthy pregnancy. Listen in to her journey through pregnancy after TFMR and how she lives with grief and hope at the same time. Resources mentioned: The TFMR Support Cir…

1
Pediheart Podcast #295: Right Atrial Thrombus Post Gore Cardioform ASD Closure - Reason For Concern? 29:09

4M ago29:09

29:09

This week we review a report from Italy regarding the observation of RA disk thrombus formation in some patients following GORE Cardioform ASD closure. How common is this complication seen and are there some patient or device characteristics that would be considered higher risk for this complication? How does this information square with the Assure…

1
Embracing Life's Pulse Amidst HLHS and PLE Hurdles with Hollie Stephenson 36:18

4M ago36:18

36:18

Send us a Text Message. Witnessing your child's bravery and resilience as they navigate a life-altering condition like hypoplastic left heart syndrome (HLHS) is both harrowing and inspiring. Hollie Stephenson joins Anna to share the profound story of her son Tom, who not only fought through the early challenges of HLHS but also the complex battle w…

1
Healing through story & body practices after TFMR, fertility loss, recurrent miscarriage and stillbirth. Jenn Hepton shares her wisdom with us. 58:21

4M ago58:21

58:21

Jenn Hepton, parenting coach and founder of Motherhood Redefined + Loss in Transition shares her story of losing twins to TFMR, her other fertility and miscarriage losses and stillbirth of baby Loey. Even through all these tragic losses, Jenn shares light and healing through EFT, the "T.I.M.E. technique" and hypnobreathwork - practices she has used…

1
Pediheart Podcast #294: What Is The Evidence For Endocarditis Prophylaxis For Invasive Dental Procedures? 30:46

4M ago30:46

30:46

This week we delve into the world of antibiotic prophylaxis for dental procedures. What are the data to support its use in the congenital heart patient? Why has this been such a difficult topic to study? What do we now know about this topic and what still remains unanswered? Given the low prevalence but dire consequences of this disease, how can in…

1
Navigating the Emotional Landscape of Raising Children with Congenital Heart Defects 39:06

4M ago39:06

39:06

Send us a Text Message. When your child's heartbeat is a symphony laced with irregularities, every moment becomes a measure of uncertainty. This is the world heart moms like myself, Anna Jaworski, and my guest Kelsi Rogers live in every day. Join us as we peel back the curtain on the mental marathon of raising children with congenital heart defects…

1
Pediheart Podcast #293: Sodium-Glucose Cotransporter 2 Inhibitors For ACHD Heart Failure 35:27

4M ago35:27

35:27

This week we review a recent work on the use of sodium-glucose cotransporter 2 inhibitors in the ACHD heart failure patient from Europe. Can these agents impact heart failure outcomes in this patient group? What is the mechanism by which they may improve outcomes? Are there data on their effects on the single ventricle patient? What sorts of side e…

1
Pediheart Podcast #292: Impact Of Prenatal Diagnosis On 22q11 Deletion Syndrome Outcomes 45:00

4M ago45:00

45:00

This week we delve into the world of fetal cardiology when we review a recent large, multicenter study on the impact of prental diagnosis of 22.q11 deletion syndrome. How did the prenatally diagnosed patients differ from those diagnosed postnatally in regards to degree of heart disease and postnatal morbidity and mortality? What is the role of cell…

1
Pediheart Podcast #291: Reducing Cognitive Biases In Congenital Heart Decision Making 40:00

5M ago40:00

40:00

This week we delve into the world of cognitive bias when we review a recent review of this topic by the team at the University of Arkansas. What are some of the more important common cognitive biases that plague humans and are particularly deleterious for good decision making in 'case management/surgical' conference? What are some approaches to red…

1
T18 diagnosis & abortion for medical reasons and grieving in a time of collective grief and genocide. Liz shares her story. 48:02

5M ago48:02

48:02

Liz tells her story of receiving an Edward's Syndrome (also known as T18) diagnosis and coming up against restrictive abortion laws and little understanding in the abortion space for her pregnancy loss. She also shares her experience with grieving during a time of massive loss with the Palestinian genocide. Resources mentioned: The TFMR Support Cir…

1
Heart Mom Kelsi Rogers on Jett's Electrical Problems with His Heart 49:25

5M ago49:25

49:25

Send us a Text Message. This episode of "Heart to Heart with Anna" features a very special heart mom. Kelsi Rogers talks about the surprising circumstances around her son's heart condition. Born with an electrical problem in his heart, Jett has already faced life-and-death situations several times in his short life. Not even three years old yet, he…

1
Pediheart Podcast #290: Junctional Rhythm And The Fontan Patient 39:05

5M ago39:05

39:05

This week we review a recent survey study on the topic of junctional rhythm and sinus node dysfunction in the Fontan. How important is this finding in our Fontan patients? When should a patient with a Fontan undergo pacemaker insertion? Is the loss of AV synchrony the more important hemodynamic effect of junctional rhythm or is it chronotropic inco…

1
An Author for CHD Adults with Learning Disabilities: Deanna Altomara 58:07

5M ago58:07

58:07

Send us a Text Message. As an author myself, I understand the power of stories to heal and inspire. That's why I'm thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself, Deanna understands what it means to have had open-heart surgery. Deanna's tal…

1
Pediheart Podcast #289: Transcatheter Edge-To-Edge AV Valve Repair In Congenital Heart Disease 36:25

5M ago36:25

36:25

This week we delve into the world of interventional cardiology and the Fontan when we review a recent report from the Children's Hospital of Philadelphia on the use of the "MitraClip" for the treatment of AV valve regurgitation in the congenital heart patient. Who would be a good candidate for this novel approach? What are the steps in planning or …

1
Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects 1:06:42

5M ago1:06:42

1:06:42

Send us a Text Message. When Ellen Boyer's voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with Down Syndrome. From the awe-inspiring feat of Chris Nikic, the first athlete w…

1
Pediheart Podcast Replay of #205: Cefazolin Dosing For Pediatric Cardiovascular Surgery 26:55

5M ago26:55

26:55

This week we review an episode from 2022 in the world of cardiac surgery and pediatric pharmacology when we review a work from Australia on levels of cefazolin during and after surgery. Is there an optimal dose regimen that will achieve proper MIC levels of drug? What should the goal of therapy be in regards to MIC levels? Are there novel means of …

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Tetralogy Of Fallot Podcasts

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