Jamie Bartlett, host of the hit podcast The Missing Crypto queen, is back with another gripping, investigative serial. In his new series, Jamie tells the story of Megan Bhari, an inspirational 16 year old girl who in 2012 launches a charity to grant wishes to seriously ill children. The charity is called Believe in Magic and it attracts the support of the biggest boy band in the world: One Direction. Believe in Magic soon becomes a household name in the child cancer community, putting on par ...
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Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease. Please Note: We recognise that everyone's experience's are completely unique and will be different for everyone. The people who come on the podcast are sharing their own personal experiences, these may differ from yo ...
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The Apartheid Killer – a new investigation. All the victims were black and the youngest was just 12 years old. Some relatives are still searching for the graves. They were killed during a three-year bloodbath in the 1980s, in the South African city of East London – by one person. He killed so many, he lost count. It has been 30 years since the whit…
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Episode 59 - Spotlight on Women in Neuroscience
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In this episode Anna talks to Anna Solth and Victoria Wyes about their experiences of being neurosurgeons and women in the field of neuroscience. They share their passion for neuroscience and the work they are doing now and their plans for the future. Better Safe Than Tumour Money Advice Clinic
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In this episode we meet Gavin Burden and Louise Worthington who have both been diagnosed with brain tumours, Gavin has been living with his brain tumour for 28 years after he was diagnosed at 21. Gavin and Louise have been friends for years so when Louise was diagnosed with a brain tumour in 2018 Gavin reached out to her to offer support. In the ep…
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Episode 57 - Spolight on Mental Health Support
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In this episode, Chandos talks to Beth Ryall, about the support available at the charity for people who are experiencing difficulties with their mental health following a brain tumour diagnosis. You can find out more about the support available here Better Safe Than Tumour Money Advice Clinic
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Episode 56 - Rehabilitation for brain tumours
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In this episode, we talk to Anya Jones and Kaz Melvin about their experiences of rehabilitation. Anya was diagnosed with a brain tumour and needed extensive rehabilitation after her diagnosis and treatment whilst Kaz has both personal and professional experience of brain tumours and rehab. She is a physiotherapist but also supported her sister Ria …
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Episode 55 - Spotlight on Research into Glioblastomas
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In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneously targeting both cancer cells and their supporting immune microenvironment in the hope of finding more …
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Episode 54 - Living with a rare brain tumour and Everest in the Alps
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In this episode, we talk to Alex, Katie and Martin. At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support internationally. In February 2024 Martin, along with 3 of his friends are taking on the Everest in the Alps chal…
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Episode 53 -Using exercise as a form of therapy
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In this episode, we talk to Liam Young about his recovery from his brain tumour. Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer. Liam talks about how at 25 he had never prioritised his health, but after his diagnosis he realised how important health a…
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In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old. Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams! After his diagnosis and surgery, Ravi decided that he want to do something tha…
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Episode 51 - Spotlight on the Ways Ahead Research Project
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In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's. The Ways Ahead research project aims to understand more about the lived experience of people with low grade gliomas and how to improve their quality of life…
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Episode 50 - Life after losing a parent - Growing and Thriving
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In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life. Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now works with other families who are impacted by brain tumours. Will shares what it was like for him as an 11 year…
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Episode 49 - Spotlight on the Children & Families Service
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In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole about the support that is available to families who have children under 18. Some of the things mentioned in this episode include: Family Days Brainy Bags Online support group for parents Talking to children about brain tumours Tali…
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Episode 48 - (TW) Coming to terms with change
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(Trigger Warning) In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family. He talks about the impact on mental health and the impact of trauma that parents and loved ones experiene as a result of a brain tumour diagnosis. This episode…
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Episode 47 - Spotlight on Young Adults Masquerade Ball
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In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball. Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis. We also hear from other young adults about the impact these events have on people like th…
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Episode 46 - (TW) 'Your child has a brain tumour'
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56:11
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(Trigger Warning) In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later. This episode contains conversations that some people may find distressing such as the effects of the tumour…
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If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do. In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to find any resources for parents to help her explain to her …
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Episode 44 - Spotlight on Ahead of the Game Foundation
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In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients. Dave talks about what led him to creating Ahead of the Game and what services they provide. You can find out more about Ahead of the Game here You can read more about Dave Bolton here You c…
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Megan’s mother disappears, Jamie tries to track her down. Evidence published reveals a shocking conclusion. Finally, Jamie can give everyone involved some answers.By BBC Sounds
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Why did Megan and her mother set up Believe in Magic? Jamie investigates their link to pop megastars One Direction. He discovers crucial evidence is about to be published.By BBC Sounds
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Revelations about Megan’s childhood provide vital clues. An expert tells Jamie about a little - understood yet disturbing medical phenomenon.By BBC Sounds
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The news creates shock waves. Could the sleuths have got it wrong? Jamie gains rare access to doctors’ reports, which could reveal what happened to Megan.By BBC Sounds
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The sleuths reveal their findings. Believe in Magic’s supporters defend Megan. Some terrible news breaks, that forces the sleuths to reconsider everything they’ve discovered.By BBC Sounds
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Megan fundraises for treatment abroad. Her condition deteriorates while in hospital in America. When anonymous sleuths discover she’s not where she claims, who will believe them?By BBC Sounds
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In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours. They share how these were often dismissed by GPs and not taken seriously despite also having a range of other symptoms which were all indications that something wasn't right and needed looking into. They explain what the headaches were like …
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A teenage girl with a brain tumour starts a charity for sick children. It captures the support of pop megastars, One Direction. But questions arise - is Megan really ill?By BBC Sounds
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Charity, celebrity, illness and control. The extraordinary story of a teenage girl and her charity Believe in Magic, which ends up challenging the very nature of sickness itself.By BBC Sounds
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Episode 42 - Spotlight on Family Led Partnerships
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In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity. She explains what family led partnerships are, the different types and why they are so important to the charity. Family led partnerships are so much more than just rasing money for the charity as Phoebe explains in this episode. If you have any questions you ca…
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In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV. They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and more. You can find out more about chemotherapy here and if you would like to speak to our support team you can emai…
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Episode 40 - Spotlight on TIME, using art to tell stories of brain tumours
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In this episode, we talk to Hannah Waldron about the TIME Art Exhibition . The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a brain tumour, as well as artwork from upcoming and renowned artists from around the globe. The aim of the exhibi…
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Episode 39 - Caring beyond a brain tumour
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In this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day' about their experiences of caring for their partners who both live with the impacts of brain injury. Elizabeth's husband Paull had a stroke when he was just 38 and Julia's husband Hector had a subarachnoid brain haemorrhage when he was also 38. Whilst not caused…
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Episode 38 - Spotlight on getting benefits and money advice (UK)
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In this episode, Chandos talks to Denise one of our benefits advisers. Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with Citizens Advice to provide support and information around not just benefits but a wide range financial issues. …
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In this episode we talk to e people, Jess, Reece and Kate about the impact seizures have on their lives, from being the first sign there was something wrong to the day to day challenges of managing their seizures. We talk about the different types of seizures and how medication can help to get these under control. You can find out more about brain …
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Episode 36 - Spotlight on Involvement Champions
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In this episode, Neil Munn and Donald Innes talk about their time as Involvement Champions for the charity. They share what being an Involvement Champion means, not just in terms of their role and what they have done as Involvement Champions but also what it has meant to them personally and the feeling that they have had a real say in the direction…
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Episode 35 - Christmas - Caring for or coping with the loss of a loved one
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We know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this may be a time of remembering a loved one you have lost. In this episode, we talk about some of the challe…
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Episode 34 - Living with a Brain Tumour At Christmas
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27:27
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In this episode, we talk about some of the challenges of having a brain tumour over the festive season. For some of you, this might be your first Christmas since receiving your diagnosis and have mixed feelings about the impending festivities. The team share some personal experiences of how having a diagnosis has changed the way they celebrate the …
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Episode 33 - Spotlight On Our Young Ambassadors - Making Positive Changes
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27:04
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In this episode, Anna talks to fellow young ambassadors Rhudi and Victoria about the Young Ambassador Program which is a 2-year program tum by the charity for young people aged 18 - 25. They talk about what made them want to become ambassadors for the charity and some of the great things they have done during their first year in the program. The Yo…
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Episode 32 - How to prepare for the death of a loved one
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In this episode, we're joined again by Sacha Langton-Gilks to talk about how to prepare for the death of a loved one and explore what it means to give someone a good death and help them die well. Trigger warning: In this episode, we do talk about the final stages of death and some of the physical processes that take place at the end of life. If you…
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Episode 31 - Spotlight on Community Fundraising - How our community helps fund research
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In this episode, Chandos talks to Community Fundraiser Firzana Khan about how our community works with the charity to raise money for vital research into better treatments and cures for brain tumours. They talk about the different ways people can raise money from cycle rides and runs to charity balls. Firzana explains the vital role our community f…
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Episode 30 - The importance of an Advance Care Plan
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In this episode we talk about the importance of having an Advance Care Plan in place, what it is, how you go about doing one an why it is so important. Sacha Langton- Gilks son DD died when he was 16 from his brain tumour. Sacha like most people felt ill prepared and ill-informed about how to prepare for the death of a loved one. The experience ins…
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Episode 29 - Spotlight Revisited - National Eye Health Week
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This episode was recorded in September 2021 but as this week is National Eye Health week we thought we'd revisit this episode where Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses. Lorcan talks you…
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Episode 28 - What exactly is Gamma Knife?
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In this episode, myself and Andy talk to Katie about Gamma Knife Radiotherapy also known as Stereotactic Radiotherapy. Both Andy and Katie had this treatment when they had a recurrence of their brain tumours, they explain what the treatment entails and what it was like to undergo. You can find out more about Gamma Knife Radiotherapy here If you wou…
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Episode 27 - Spotlight on the Charity Lottery
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In this episode Chandos talks to Tamsin Tyson our Individual Giving Officer about the recently launched charity lottery. Tamsin explains what the lottery is and why we have decided to create a lottery as a way to continue to be able to raise money for vital research into brain tumours at a time when the cost of living rises have hit charities fundr…
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Episode 26 - What's it like to have a craniotomy?
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In this episode, we talk to Rob, diagnosed with a grade 2 glioma, and Carly, with a grade 2 oligodendroglioma, about what it's like to have a craniotomy. Both Rob and Carly had an awake craniotomy while Andy who has a grade 2 meningioma had a craniotomy under a general anaesthetic They share their experiences and things they found helpful. You can …
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Episode 25 - Spotlight on Signs and Symptoms - How we created a campaign
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23:59
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In this episode we talk to Ali Lopez, the charity's Campaigns and Communications Manager about how the charity created the new Signs And Symptoms campaign that the charity recently launched to raise awareness of the signs and symptoms of brain tumours. Ali talks through the process of creating a campaign like this and how involvement from the commu…
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In this episode, we talk to Betty and Sarah about their experience of having scans and the very real anxiety that often goes with this. They share some of the things they have found helpful in reducing the level of anxiety they feel in the run-up to their scan and things they do during the scan to help them get through the experience. If you'd like…
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Episode 23 - Spotlight on Improving Brain Tumour Care
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In this episode, senior involvement and impact manager Shannon Winslade joins Chandos to talk about how you can help us to improve the treatment and care of people diagnosed with a brain tumour. Shannon spoke about the importance of getting our community to share their experiences both good and bad so we can find out where the gaps in care are, wha…
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In this episode I talk to Kaz and Lauren about what it's like to loose a sibling to a brain tumour. For those of us that having siblings we know that the relationship we have with our siblings is different from any other relatonship we have. Kaz and Lauren share what it's been like for them when they found out their siblings had a brain tumour. The…
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Episode 21 - Spotlight on Strategy Update - Beyond Brain Tumours
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In this episode, Chandos talks to Andy about his involvement with the new strategy the charity is co-creating with the community. Andy is a volunteer that not only works on the podcast but is also part of the Steering group made up of members of the community, The Brain Tumour Charity and other organisations that are working to improve the treatmen…
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Episode 20 - Dating and relationships after a diagnosis
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In this episode, Chandos and our guest Laura talk candidly about the reality of dating after a brain tumour diagnosis and the difficulties of online dating and telling a prospective partner. They share their personal experiences and how they approach the world of dating and relationships whether online or in person. If you would like support around…
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Episode 19 - Spotlight with Alex Lochrane (CEO)
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In this episode, we meet our newest co-host Anna Blyszko as she and Chandos talk to our new CEO, Alex Lochrane. Alex joined the charity about 3 months ago and shares with Anna and Chandos some of his background, why he joined the charity and where he sees the charity going under his guidance. Alex also shares how our new strategy is being co-create…
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