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Rare with Flair

Casey Greer and Cassandra Mendez

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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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hi hello hey, get ready for some word vomit about oversharing! Loyal listeners may find this premise familiar since we did an episode about oversharing on social media just last year. Funnily enough though, oversharing isn’t limited to online experiences. Like many of our topics, this came up as part of living our daily lives and reflecting on the …
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hi hello hey, we need to talk about blood. Fear not, squeamish folks: this won’t get too graphic. As you may know if you’ve heard our tagline, we have the same rare disease, Hermansky-Pudlak Syndrome! We’ve talked about HPS in may forms: conferences in 2021, 2023, and 2024, chronic illness, and many other episodes on our vision. Unbelievably, we’ve…
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hi hello hey, we’re back to bring the “flair” by combining personal style and personalities! Whether you love fashion like us or despise shopping, it’s important to understand your style. Not only does it make your closet more cohesive, but it can also help you know what kind of pieces to buy that you’ll actually wear! Case learned about the 8 styl…
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hi hello hey, the title says it all: Cassandra’s guide dog, Romana, is retiring Like humans, guide dogs also get to retire from their years of hard work! Romana has worked for nearly 8 wonderful years and has earned a well deserved rest. In this episode, Cass explains what the retirement process entails. She and Case share memories and laughs from …
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hi hello hey, it’s springtime, which also means we get to recap one of our favorite things: the annual Hermansky-Pudlak Syndrome family conference! Back in 2021, we explained this very unique conference before back in episode 16 (!), so we recommend giving it a listen if you haven’t already. We love to recap these special times together like we did…
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hi hello hey, we’re back again to talk about life’s gray areas. It’s been a minute since we’ve talked about chronic illness, since one of the most recent episodes we did on it was nearly two years ago where we shared funny moments of being sick (check ep 40 out!). We really wanted to talk about our changing health since it’s been something we’ve be…
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hi hello hey, it’s March, which officially marks TEN years of our friendship! Since meeting at our very first Hermansky-Pudlak Syndrome Conference in 2014, we’ve always been friends, but our relationship has grown and changed over time. What started as periodic FaceTime calls became talking daily and maintaining a nearly four-year-old podcast! If y…
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