We focus on everything and anything Glanzmann's Thrombasthenia. From treatments to community spotlights, experts, and of course, the most current updates on the cure. The GRF podcast is sure to have something of interest to the GT community. Please visit our website at curegt.org and consider donating to help us continue our efforts to find a cure.
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Lauren's Adoption Journey: Parenthood with Glanzmann's Thrombasthenia
27:02
27:02
Play later
Play later
Lists
Like
Liked
27:02
In the latest episode of "Bruised Not Broken: Life with Glanzmann's Thrombasthenia," Melissa Zdziarski and guest Lauren Hurley share their heartfelt stories of navigating motherhood while affected by GT. Lauren, a GT patient from Massachusetts, recounts her lifelong battle with Glanzmann's Thrombasthenia and her determination to become a mother thr…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Resilience with Glanzmann's Thrombasthenia: Robie’s Story
52:13
52:13
Play later
Play later
Lists
Like
Liked
52:13
In this podcast, host Taylor and guest Robie share a heartfelt conversation about Glanzmann's Thrombasthenia, a rare genetic bleeding disorder. They discuss Robie's journey, struggles, surgeries, and life lessons. The dialogue covers adapting to the disorder, family decisions, and not letting it limit one's life. Want to Sponsor the Podcast? Contac…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Young Adults & Teens with Glanzmann's Thrombasthenia
34:36
34:36
Play later
Play later
Lists
Like
Liked
34:36
WE'RE BACK!!! After a brief hiatus while planning and organizing the 2023 GRF Conference, Bruised Not Broken: Life with Glanzmann's Thrombasthenia is back. This episode is slightly different than other episodes, and that's because not only were we able to record it together in person, but we sat around a table and just had a conversation about grow…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Gene Therapy, Haemnet & Glanzmann's Thrombasthenia
53:34
53:34
Play later
Play later
Lists
Like
Liked
53:34
Taylor and Peter chat with Luke Pembroke from Haemnet. Luke is the Director of Community Engagement with Haemnet and spearheads their podcast, Haemcast. Haemnet is a specialist research and communications consultancy in the bleeding disorder community. You might be familiar with their name; they conducted the Glanzmann's 360 survey. It was during a…
…
continue reading
April’s episode of Bruised Not Broken: Life with Glanzmann’s Thrombasthenia features Dr. Alan Michelson. Dr. Michelson’s achievements throughout his almost 50-year career in medicine are numerous. He is currently Professor of Pediatrics and Medicine, Emeritus at Harvard Medical School. He also serves as the Center for Platelet Research Studies’ Dir…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
A Glanzmann's Thrombasthenia Patient's Advocacy Journey
26:17
26:17
Play later
Play later
Lists
Like
Liked
26:17
Esme Vazquez found her calling in life through her work in occupational therapy. She believes having Glanzmann's Thrombasthenia helps her empathize and better care for the children she works with. Advocating for her patients became a passion that spilled over into her personal life and fueled her drive to advocate for the voiceless in her world of …
…
continue reading
Jessica and her husband, Nick, were informed of Mia’s Glanzmann’s Thrombasthenia diagnosis when Mia was just four months old. Now, two years after that diagnosis, Jessica is her daughter’s biggest advocate and is determined to spread awareness and education throughout her community. Join us with special guest host Glanzmann’s Research Foundation’s …
…
continue reading
![Artwork](/static/images/128pixel.png)
1
The Highs and Lows of Glanzmann's Thrombasthenia
36:28
36:28
Play later
Play later
Lists
Like
Liked
36:28
In this episode, we turn inward and speak with our very own Peter Zdziarski and Julia Smith. They allow us to take a glimpse into their lives growing up with Glanzmann's Thrombasthenia by sharing their highs and lows throughout the years. These two jump outside of their comfort zones to encourage more people within the GT community to share their s…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
A Cure to Glanzmann's Thrombasthenia on the Horizon?
18:55
18:55
Play later
Play later
Lists
Like
Liked
18:55
Join Peter and Taylor as they speak with Dr. David Wilcox, who has spent close to 30 years researching a cure and advocating in the medical research community for Glanzmann’s. Tune in to hear how advances in the medical field have brought him close to a cure and how you can help him get even closer. DISCLOSURE: Dr. David A. Wilcox, Ph.D., is the in…
…
continue reading