The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We're here to provide information and education so people can make informed choices about end of life care.
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Honoring the Dead with Beautiful Burial Shrouds
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Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of high-end scented burial shrouds for the natural funeral industry. Virginia sources a variety of high-quality organic fabrics which are soft to the touch…
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Quality Care is the Goal at Residential Hospice Homes
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My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry. #hospice #endoflife #death #dying #caregiver #caregiving https://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes Residential hospice homes…
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The last conversation you want to have shouldn’t be the last one you do have. Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we die," to life. She’s the co-founder of the When You Die Project which hosts a resource-rich website, podcast, and documentary trilogy. The When You Die Pr…
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The Best Advice From a Devoted Dementia Caregiver
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Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to navigate the healthcare system as an advocate, deal with sleep deprivation, and to care for herself along the way. Rosanne Corcoran is the creator and h…
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Get the Help You Need to Navigate a Hospice Journey
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Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figu…
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How to Train Your Doctor with Dr. Matthew Tyler
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Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it…
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Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for…
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As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care. He became aware of the gaps in hospice and palliative care that cause patients to struggle. The deaths of his parents and a dear friend provided a p…
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Grief Coach Shelby Forsythia on How to Grow Through Grief, Part 2
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In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve lost. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way throug…
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Grief Coach Shelby Forsythia on How to Grow Through Grief, Part 1
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Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief…
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How to Navigate the Dementia Journey With Compassion
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Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person’s legacy is a top pri…
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Occupational Therapists are an Important Part of Hospice Care
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Welcome to Season 9 of The Heart of Hospice Podcast! Occupational Therapists Emilia Bourland and Dr. Brandy Archie are sharing how OTs can improve the quality of life for patients and caregivers on hospice care. OTs are underutilized in end-of-life care, but they’re an essential part of the hospice interdisciplinary team. There’s a lot of support O…
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Helping End of Life Professionals Fill Their Cup
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Erin Whalen, founder of Compassionate Coaching, is working to help end of life and grief professionals love their work again. Using her unique gifts, Erin and the Compassionate Coaching theater troop employ “playback theater” to develop engaging programming that centers around giving and receiving empathy. They work with end of life teams to mitiga…
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What You Need to Know About Hospice Medications withPharmacist Ellen Fulp
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Pharmacist Ellen Fulp is passionate about using medications appropriately to care for patients who are at their most vulnerable. As a part of the hospice interdisciplinary team, Ellen collaborates with the hospice director and nurse to ensure quality of life is supported, and a patient’s suffering is reduced. Caregivers and patients often misunders…
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What You Need to Know About Finding Your Grief Style
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Funeral director and author Jodi Clock knows personally how each person finds a grief style that’s the best, healthy fit for themselves. As host of the “I Woke Up Dead - Now What?” podcast, Jodi is having conversations about our common experiences with death, shares best practices, and asks the tough questions in order to prepare for end-of-life re…
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How to Have the Hard Conversations Before the Hard Things Happen
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Hospice nurse Eileen Spillane of Befriending Death has learned to be comfortable with the uncomfortable. Eileen is the Founder of Befriending Death and has been a Registered Nurse for over thirty years, specializing in Oncology, Critical Care, and Obstetrics. She is a certified Life Coach from New Ventures West, a former Zen Hospice Project Volunte…
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What You Need to Know About Integrative Palliative Care
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“What do I need to know about you as a person to take the best care of you?” This is how integrative palliative medicine physician Dr. Delia Chiaramonte starts conversations with her patients. It’s a Dignity Question that lets her patients know she cares about them as a person. Delia works in integrative palliative medicine to care for the whole pe…
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End of Life Doula Provides Beautiful Family-Involved Home Funerals
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End of Life Doula Trina Wacasey works to ensure that clients and families have the kind of personalized death care they want. Using family-guided care customized to fit their beliefs, needs, and wants, Trina guides caregivers through deaths, post-mortem care, and rituals after death. After working in the corporate world, Trina was drawn to the work…
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Revolutionary Advocacy for Military Veterans at End of Life
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Today’s guest Dr. Qwynn Galloway-Salazar is a Veteran, death doula, compassionate educator, and the founder of In Their Honor, a national initiative raising awareness and addressing Veterans' unique challenges as they approach the end of life. Qwynn is also the spouse of a combat veteran and understands the role of veteran caregivers. 1 in 4 Medica…
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Learning the Truth About Autism and Grief
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Dr. Kenneth Doka and Alex Lamorie of the Hospice Foundation of America’s Autism and Grief Project are advocates for people with autism. Dr. Doka is a prolific author, editor, and lecturer, past president of the Association for Death Education and Counseling, and a member and past chair of the International Work Group on Death, Dying, and Bereavemen…
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The Remarkable Story of Humanist Chaplain D.S. Moss
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Devin (D.S.) Moss brings a sense of reverence for life and a curiosity about death to his work as a chaplain. During a conversation with a Zen Master about Buddhist beliefs about the afterlife, the suggestion was made to him that he would make a good chaplain. Devin didn’t think he could do the work of spiritual care because of his humanist beliefs…
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How to Best Serve Military Veterans on Hospice
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1 in 4 Medicare hospice patients is a U.S. military veteran. End of life workers need to know how to take care of their special needs and enhance their quality of life. It’s important for EOL teams to know the signs of PTSD and how to listen when these patients (and their caregivers!) are communicating what they need. Many military veterans experie…
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What It Really Takes to be a Hospice Caregiver
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Christina Keys can tell you the realities of being a caregiver for someone with a serious illness - the good, the bad, and the ugly. As the sole caregiver for her mother following a catastrophic stroke, Christina experienced financial, emotional, mental, physical, and relational impacts. The relationship between the two women was complicated, follo…
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This trio of End of Life Doulas is educating the public and other doulas about EOL doula work, and how they support people as they die. Diane Button, Gabby Jimenez, and Angela Shook are sharing their wisdom along with practical guidance for doula work. With heart, compassion, and respect for the intensity of death, the three EOL doulas discussed th…
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Shelley Henry is an Advocate for Quality Hospice Care
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Hospice nurse Shelley Henry is supporting nurses working in end of life care with advocacy, video tips, and support for their self care. Shelley uses the two words “divine intervention” to describe how she got ino working with patients at the end of their lives. After 20 years in the hospice industry, Shelley remains committed to preserving the art…
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A Beautiful Conversation About Death with Sarah Cavanaugh
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Sarah Cavanaugh believes having conversations about death helps us clear the air and find peace, whether those discussions are in person or in our hearts and minds. Sarah is the founder of Peaceful Exit, a company that explores all aspects of grief and loss. She co-designed a curriculum to open the conversation around the physical, psychological, a…
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Elizabeth Miller Provides Practical Tips for Being a Remote Caregiver
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As a caregiver her entire adult life, Elizabeth Miller has learned how to find the joy in the caregiving life. As a Certified Caregiving Consultant, she helps other caregivers make the best of their own experience. Elizabeth joined forces with her siblings to provide support for their parents, and for her developmentally delayed brother. Each sibli…
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What You Need to Know About Advance Care Planning with Gail Rubin
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Gail Rubin, The Doyenne of Death, has been talking about death and dying for years - and she’s still alive. As an award-winning death speaker, Gail uses humor and film clips to educate the public about advance care planning, funeral pre-planning, and estate planning. She’s a Certified Thanatologist and a featured speaker at TEDxABQ, where she spoke…
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The Ultimate Gift of Precious Time at End of Life
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Jennifer O’Brien is sharing details of her caregiving journey, telling the story of her husband’s life-limiting illness and how she’s learned to make the most of Precious Time. After working 35+ years as a practice management consultant to physicians, Jennifer supported her husband Bob up to and through the end of his life. As a hospice and palliat…
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How to Provide LGBTQ Inclusive Care From Kimberly Acquaviva
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The story of the terminal illness and death of Kimberly Acquaviva’s wife Kathy is powerful, intense, real… and human. As a hospice social worker and LGBTQ+ community advocate, Kim knows what good end of life care looks like. During their experience with Kathy’s end stage cervical cancer, the women discovered that none of the hospice agencies where …
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How a State Senator Improved Hospice Care in Her Home State
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Senator Meg Cappel turned her experience as a caregiver for her terminally ill mother into advocacy and now works to promote hospice care in her home state. Meg believes a true legacy - one that lasts - is a legacy of kindness. Years of working as a special education teacher taught her the importance of seeing people and meeting them where they are…
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Help Texts Offers Expert Grief Support With Text Messages
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Supporting people who are grieving is fulfilling, joyful work. Just ask Help Texts founder Emma Payne. After having a personal loss, Emma realized how much we could improve how we support grievers. She’d spent years working in the tech space. That knowledge helped launch Help Texts. Their service provides grief support for events like pregnancy los…
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How to Improve Patient Care With Pastoral Thanatologist Joelle Johns
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Joelle Johns believes telling people they’re dying gives them an opportunity to say the goodbyes, do the final things they want to do, apologize, and forgive. Joelle is a death midwife and grief counselor, as well as a pastoral thanatologist and clinical chaplain, having just completed her designation as a Board Certified Clinical Chaplain (BCC). S…
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Life Experiences Offer Opportunities for Death Doula Jo-Anne Haun
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Death Doula Jo-Anne Haun has found growth and meaning in working with the dying. As co-founder of Death Doula Network International, Jo-Anne works to support and educate about the work of death doulas. Jo-Anne uses her personal gift of gentle humor in her volunteer work as a therapy clown (Code Name: Buttons). Jo-Anne’s habit of incorporating a lit…
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Francesca Arnoldy Is A Guide For End Of Life Planning
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Death literacy advocate and Community Doula Francesca Arnoldy is sharing the role of a death doula and how to support someone through a time of intensity. She’s the author of The Death Doula's Guide to Living Fully and Dying Prepared, a workbook that offers the opportunity to explore mortality and end-of-life care planning. In her work as an end …
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Barbara Karnes on How to Care for a Person With Dementia
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Award-winning End of Life Educator Barbara Karnes takes a deep dive into the unique challenges of caring for someone with dementia at end of life. Caregivers often find their responsibilities accumulating over time as the disease trajectory continues. They’re forced to live in the present, to see their loved one as who they are today. The goal is t…
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Valuable Lessons Learned From a Mom Who Lost a Child
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*Trigger warning - this episode contains a description of an intense death event and the death of a child. Please make space for your self care if you find the topic overwhelming. Juli Henderson has turned the loss of her son into meaningful advocacy, sharing her wisdom with other caregivers. Juli and her husband Chris were the parents of a son, Ro…
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Dr. Karen Wyatt Shares a Physician's Perspective on Hospice and Healthcare
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Hospice physician Dr. Karen Wyatt wants people to get comfortable thinking about death, and have time to plan for the end of their lives. Karen is the host of the End of Life University podcast and author of 7 Lessons for Living from the Dying. She’s considered a thought leader in end of life care. We talked about lots of topics related to hospice …
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Doula Karen Hendrickson Shares Her Powerful Story of Grief as a Teen
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*Trigger warning - this episode contains a description of an intense death event. Please make space for your self care if you find the topic overwhelming. Death doula Karen Hendrickson’s brother died suddenly when she was sixteen years old. That event became a lifelong lesson in death and dying, grief, and how to support teens during a loss. As co-…
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Gabby Jimenez Offers Guidance on Medical Aid in Dying in Her New Book
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Hospice nurse and end of life doula Gabby Jimenez of the Hospice Heart shared her thoughts in our great conversation about supporting MAID caregivers, and her new book Dignity Day. Hospice and end of life workers should know what Medical Aid in Dying (MAID) is, regardless of their personal opinion about MAID. If patients and caregivers ask question…
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Dr. Lucy Kalanithi Tells Her Remarkable Story of Life After Loss
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Caregiver, physician, wife, and griever - Dr. Lucy Kalanithi shares her remarkable journey with her husband Dr. Paul Kalanithi, author of When Breath Becomes Air. Lucy’s experience with her terminally-ill husband and his death has shaped how she approaches patient care and thinks about human suffering. Dr. Kalanithi is a Fellow of the American Coll…
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Chaplains Complete a Sacred Space Between Machine and Medicine
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Chaplain J.S. Park has a powerful voice - raw, transparent, and real. He’s using it to influence how people care for people at the end of life. J.S. will tell you he’s heard all the regrets in his work with the dying. As a hospital chaplain in a Trauma 1 center, J.S. provides grief counseling, attends every death, helps with end-of-life decision-ma…
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A Conversation With Diane Hullett of the Best Life Best Death Podcast
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Diane Hullet, host of the Best Life Best Death podcast, believes in authentic conversations, holding space for those who are dying, and supporting others as they define their own “best death”. With the experience in her own family of eight deaths supported at home by hospice and having worked as a teacher for many years, Diane felt drawn to combine…
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Dr. Kaishauna Guidry Teaches Doctors How to Have Difficult Conversations
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Dr. Kaishauna Guidry is keeping it real when it comes to difficult conversations about hospice, dying, and death. As the host of the Dr. G at the Heart of Healthcare podcast, she’s teaching her listeners about challenging healthcare issues. She’s a fierce advocate for quality care, and empowers others to get the best from their care. She’s comforta…
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Looking Into the Heart of a Hospice Physician
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Hospice physician Lauren Templeton knows the power of pausing, taking a moment to reflect on end of life wishes even when things are tense and chaotic. Dr. Templeton is a fierce advocate and a strong voice for advance care planning, palliative care, and upstream discussions about end of life. As a hospice medical director, Lauren walks alongside se…
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How a Daring Nurse From California Began a Hospice in Kenya
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Hospice nurse Juli Boit works to care for the dying in Kenya, providing desperately needed care and services. She is an author, community builder, and nonprofit leader working at the intersection of faith, global health, and human dignity. For eighteen years, Juli has lived and worked in Africa, founding and serving as International Director of Liv…
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Wind Phones Are Helping Grievers in Unexpected Ways
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Sending a message to someone we love on the wind using a Wind Phone is a beautiful way to express grief. Amy Dawson knows the power of being able to express grief emotions. She’s a Master Grief Coach and manages the My Wind Phone website. Amy didn’t originate the Wind Phone but she promotes the phones on her website. The first Wind Phone was create…
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The Hidden Value of Chaplains at End of Life
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Chaplain Wes Moldogo is an advocate for integrating spiritual care into the care of patients, service members, and their families. As a chaplain for the military as well as hospital and hospice patients, Wes educates about the value chaplains bring to the care of people with life-limiting illness. 1 in 4 Medicare hospice patients is a US military v…
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Death Doulas are Expert Guides at End of Life
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Death Doula Jill McClennen helps clients transform their fear of death and dying while they work to live life fully, eventually dying with a feeling of closure. Whether it’s advance care plan conversations or supporting family members when a loved one is actively dying, death doulas provide expert guidance. Jill McClennen is a certified death doula…
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Dignity Pajamas are a Great Choice to Provide Comfort and Dignity
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Dignity Pajama designer Fran Goldberg used ingenuity to create pajamas for bedbound patients, and created meaning following the death of her parents. As a clothing designer, Fran knows design and fabrics. As a caregiver for both her parents at the end of their lives, she learned the importance of comfort, dignity, and convenience in pajamas. The de…
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