Best East Grinstead Podcasts (2025)

1
#116 A personal thank you to the staff at East Grinstead Hospital 12:19

15d ago12:19

12:19

In the week leading up to Christmas, most people are doing final prep, presents, food and decorations. Instead of that happy normal I spent the week before Christmas as an inpatient, most of that time at East Grinstead Hospital. This podcast is my way of saying thank you to everyone who took care of me in East Grinstead. If you are a team looking t…

1
#119 What OMi Interactive can offer in care and Advance Care Planning with Chris Skinner 41:25

2h ago41:25

41:25

In this episode it is my pleasure to talk with Chris |Skinner, Regional Product Specialist for OMi. I briefly saw Chris and was introduced to OMi at a conference and wanted to learn more. In this podcast I find out about the range of services from OMi and focus particularly on the Life Stories initiative. I explore with Chris a novel way of documen…

1
#118 Mental Capacity, Best Interests decision making and the law with Alex Ruck Keene KC 48:31

1d ago48:31

48:31

In this episode it is my pleasure and honour to talk with Alex Ruck Keene KC. Alex is an English barrister, writer and educator. His practice is focused on mental capacity, mental health and healthcare law, and he is also a Professor of Practice at King’s College London. He also writes extensively, and is the creator of the website Mental Capacity …

1
#117 The MCA, Best Interests decision making and common misconceptions with Baroness Ilora Finlay 43:52

10d ago43:52

43:52

In this episode it is my pleasure and honour to talk with Baroness Ilora Finlay. We explore the Mental Capacity Act with a particular focus on what Best Interests means, how it can be misunderstood and what effective Best Interests decision making is. If you are a team looking to provide better end of life care, or set up a one off or complete educ…

1
#115 Conversations About Advance Care Planning 2024 Round Up 12:21

1M ago12:21

12:21

Martin here (podcast editor)... In this special, unplanned episode, we hear lots of important messages from episodes throughout 2024. Clare is unwell, but she's promised she'll be back very soon! An opportunity then to hear from the amazing guests we've had on this year. If you are a team looking to provide better end of life care, or set up a one …

1
#114 Better End of Life Report 2024. What we can learn about the current experience of end of life care in England and Wales with Professor Fliss Murtagh 36:23

29d ago36:23

36:23

In this episode it is my pleasure to catch up with Fliss Murtagh, Professor of Palliative Care at the Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull. Fliss talks through the 2024 Better End of Life Report and, to be frank, it’s a hard listen. The gaps and inadequacy of care are identified, with clear next step…

1
#113 Advance Care Planning: a firefighter's perspective with John Barlow 26:14

2M ago26:14

26:14

In this episode it is my pleasure to talk with John Barlow, a firefighter in Essex and London. The acute risk of the role is something we are familiar with, but John shares data on the longer term health risks associated with the profession. With this in mind, we explore how familiar fire fighters are with planning ahead, and what elements of Advan…

1
#112 Lasting Power of Attorney: a younger person’s perspective with Robyn Fuller 15:12

1M ago15:12

15:12

In this episode it is my pleasure to talk with the most special guest I have had so far - my daughter Robyn. We talk about Lasting Power of Attorney through the eyes of a younger person, challenge common perceptions and talk about ways that could make LPAs more relevant to young people. If you are a team looking to provide better end of life care, …

1
#111 Clare & Dani explore public awareness of DNACPR & ReSPECT 20:57

2M ago20:57

20:57

In this episode it is my pleasure to catch up with Dani and explore public awareness about DNACPR and ReSPECT. We highlight some key challenges, share what’s happening in our local patches and would love to hear from anyone with experience of delivering a public awareness ReSPECT campaign. If you are a team looking to provide better end of life car…

1
#110 Our Special Friends with Dr Bin Johnston 40:23

2M ago40:23

40:23

In this episode it is my pleasure to talk with Dr Bin Johnston, founder of the Suffolk based charity, ‘Our Special Friends. This incredible charity provides human-animal support services to vulnerable people with a love of animals. In discussion with Bin we explore the diverse work of Our Special Friends, Advance Care Planning inclusive of pets and…

1
#109 What Matters to You from a carers perspective with Thomas Whitelaw 31:56

2M ago31:56

31:56

In this episode it is my pleasure to talk with Thomas Whitelaw, National Lead for Person Centred Voices and know by many as Tommy on Tour. We explore What Matters to You from a carers perspective and Tommy shares how the experience of caring for his Mum proved the catalyst for the incredible work he does today. You can access the resource Tommy ref…

1
#108 Advance Care Planning: Reflecting on collaborations with Dani Ayre and the Waiting Room Revolution Team 29:28

3M ago29:28

29:28

This episode features a conversation and great catch up with Dani Ayre and the Waiting Room revolution Team. We discuss how the Advance Care Planning Conference developed, and the joy of working together for the Hope for the Best Plan for the Rest UK road tour. We also explore the next steps in bringing the principles of the Waiting Room Revolution…

1
#107 Assisted Dying, Advance Care Planning and the choices we have now 26:51

3M ago26:51

26:51

This episode expands on a discussion I had with Nick Ferrari from LBC around assisted dying, specifically in response to Wes Streeting statement that he is “not sure that as a country we have the right end-of-life care available to enable a real choice on assisted dying.” It’s my first solo episode and I explore the reality of end-of life-care prov…

1
#106 Leaving Gracefully with Beverley Bulmer 29:55

3M ago29:55

29:55

In this episode it is my pleasure to speak with Beverley Bulmer, a Funeral Celebrant and founder of Leaving Gracefully, End of Life Planning. We explore the difference it can make when plans are in place, when and how to take the first steps and what Leaving Gracefully can offer. If you are a team looking to provide better end of life care, or set …

1
#105 Poverty & care at the end of life with Sam Royston 39:07

3M ago39:07

39:07

Sam Royston is Director of Policy and Research of Marie Curie, the UK’s end of life charity. He was previously Policy Director at The Children's Society, and is a former chair of the End Child Poverty coalition. He is also author of the book "Broken Benefits: What's gone wrong with welfare reform". In this episode we discuss the Marie Curie 2022 Dy…

1
#104 What Matters to You with Karen Turner 35:06

4M ago35:06

35:06

In this episode it is my pleasure to talk with Karen Turner. Karen is a physiotherapist with a clinical background in oncology and palliative care. Karen is now Head of Improvement at the Royal Free Hospital where she Champions the benefit and impact of asking What Matters to You. We explore how Karen became interested in the What Matters to You mo…

1
#103 Diagnosing Dying & the power of words with Dr Joe Hawkins 48:03

4M ago48:03

48:03

In this episode I talk with Dr Joseph Hawkins, best known as Joe to his colleagues and patients where he works at St Peter’s hospital in Chertsey. Joe is a palliative medicine consultant and has worked in community, hospital and hospice settings as both registrar and consultant. If you are a team looking to provide better end of life care, or set u…

1
#102 Clare & Dani reflect: Interventions and CPR 16:19

4M ago16:19

16:19

I am thrilled that Dani will be joining me as a regular guest on the podcast. We’re going to be reflecting on updates, resources and our experiences around Advance Care Planning. In this episode we explore recent research into radiological tests in the last six months of life. We also discuss the Dr Kathryn Mannix TED Talk, Heart Stopping moments a…

1
#101 Ageing Without Children and Advance Care Planning with Penny Shepherd 43:59

4M ago43:59

43:59

In this episode it is my pleasure to talk with Penny Shepherd. Penny is the coordinator and co-founder of Ageing Without Children East Kent (AWOC East Kent), a group run by and for people who are ageing without the support of adult children, either because they never had children or for other reasons. We explore the Advance Care Planning challenges…

1
Coleraine 37:32

6M ago37:32

37:32

Mark Steel's In Town - Coleraine "...Coleraine is a big town and is ready for City status..." This week Mark visits the town of Coleraine in Northern Ireland. This is the 13th series of Mark's award-winning show where he travels around the country visiting towns that have nothing in common but their uniqueness. After thoroughly researching each tow…

1
Nether Edge 33:41

6M ago33:41

33:41

Mark Steel's In Town - Nether Edge “...a place where all the baristas know your name..." This week, Mark is in Nether Edge, a leafy suburb of Sheffield which wants to become a village. Here he samples the local honey, visits the local shops and cafes, a rum keg, the bowls club that once threw out Ronnie Wood for inappropriate behaviour, and he talk…

1
Stoke-on-Trent 40:12

6M ago40:12

40:12

Mark Steel's in Town - Stoke-on-Trent This week, Mark is visiting the town of Stoke-on-Trent, in Staffordshire. This is the 13th series of Mark's award-winning show where he travels around the country visiting towns that have nothing in common but their uniqueness. After thoroughly researching each town, Mark writes and performs a bespoke evening o…

1
East Grinstead 35:22

7M ago35:22

35:22

This week Mark visits the West Sussex town of East Grinstead. This is the 13th series of Mark's award-winning show where he travels around the country visiting towns that have nothing in common but their uniqueness. After thoroughly researching each town, Mark writes and performs a bespoke evening of comedy for a local audience. As well as East Gri…

1
Malvern 40:26

7M ago40:26

40:26

Mark Steel's In Town - Malvern “...if ever after I'm dead you hear someone whistling this tune on the Malvern Hills, don't be alarmed, it's only me" -Edward Elgar. This week Mark visits the Malvern hills in Worcestershire. This is the 13th series of Mark's award-winning show where he travels around the country visiting towns that have nothing in co…

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#100 Planning not panicking: Advance Care Planning with Martin Whiskin 49:25

7M ago49:25

49:25

In this very special 100th episode I talk with Martin Whiskin, an award winning voiceover artist and podcast editor. Martin is very importantly the technical expertise behind Conversations About Advance Care Planning. We reflect on episodes 75 to 100 and how they have impacted us both personally and professionally. As ever, I am blown away by Marti…

1
Margate 41:16

7M ago41:16

41:16

Mark Steel's In Town - Margate “...a nice spot not vulgarised by crowds of literary people...” Oscar Wilde In this first episode Mark visits the lovely seaside town of Margate in the Thanet district of Kent. A magical place where T.S Eliot wrote a verse of The Wasteland, J.M.W Turner painted views of the Harbour, Tracy Emin spent her formative year…

1
#99 The Victoria & Stuart Project: helping people with learning disabilities plan for the end of their life 56:23

7M ago56:23

56:23

In this episode it is my pleasure to meet the team behind the Victoria and Stuart Project, a tool kit and resource for end of life planning for people with learning disabilities within all care settings. I learn about the triggers for the project, how the work developed and find out about the incredible resource that has been created. If you are a …

1
#98 Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John 1:02:13

7M ago1:02:13

1:02:13

In this episode I talk with Louisa Nicoll, wife of John and palliative care nurse. Louisa generously shares their family experience following John's sudden and life changing diagnosis of cancer. We talk about what it felt like for John to receive chemotherapy and the decision to stop palliative chemotherapy. We also explore what the word treatment …

1
#97 The End of the Road Show - how the arts can support Advance Care Planning with Su Squire 36:26

8M ago36:26

36:26

In this episode it is my pleasure to talk with Su Squire. Su is a storyteller, poet, theatre-maker and Death Cafe facilitator. Her performance company, Off the Twig, creates work that encourages conversation and positive action around themes of death, dying and grief. We explore the catalyst that led to Sue’s creative work and the impact that story…

1
#96 Advance Care Planning: making it real with Tara Humphrey 35:08

8M ago35:08

35:08

In this episode it is my pleasure to talk with Tara Humphrey, founder and CEO of THC Primary Care. It is a super episode in which we explore why Advance Care Planning is so important to Tara and how to use the model of Getting Your House in Order to guide planning ahead. Our conversation shows how to normalise Advance Care Planning and I am so grat…

1
#95 Organ donation with Dr Radha Sundaram 40:55

8M ago40:55

40:55

In this episode it is my pleasure with Radha Sundaram an NHS consultant in intensive for the last 16 years in Scotland. Radha is an advocate for organ donation and improving awareness amongst our diverse society. She has had a long-standing interest in end of life care and has been responsible for the guidelines in NHS Greater Glasgow and Clyde. Ra…

1
#94 What we can learn about S46 funerals and Advance Care Planning with Evie King 54:27

8M ago54:27

54:27

In this episode it is my pleasure to talk with Evie King, author of the incredible book Ashes to Admin. I learn from Evie what it means to have a Section 46 council funeral and, most importantly, that nobody is nobody. Evie describes the care and detail that goes into a council funeral dispelling myths about what it means to die alone and sharing w…

1
#93 Dying Matters with Dr Lucy Pain 35:36

9M ago35:36

35:36

In this episode it is my pleasure to talk with Dr Lucy Pain, who is this year’s Dying Matters Awareness week expert. I have the chance to thank Lucy publicly for recommending Conversations About Advance Care Planning as part of the recommended books (and more) for Dying Matters Awareness Week. We explore the importance of week, why language matters…

1
#92 Getting Your House in Order: Planning End of Life Care with Clare Fuller & Dani Ayre 53:37

9M ago53:37

53:37

In the final episode of our series of podcasts, we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This episode focuses on Advance Care Planning associated specifically with End of Life Care. We explore what is meant by End of Life Care and break down care into the last years,…

1
#91 Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani Ayre 27:19

9M ago27:19

27:19

In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource se…

1
#90 Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani Ayre 23:52

9M ago23:52

23:52

In the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost…

1
#89 Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani Ayre 26:40

10M ago26:40

26:40

In the third episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you don’t want and how this can be documented in an Advance Decision to Refuse Treatment. If y…

1
#88 Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani Ayre 18:11

10M ago18:11

18:11

In the second episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you do want and how this can be documented. If you are a team looking to provide better end o…

1
#87 Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre 26:01

10M ago26:01

26:01

In this episode we explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We start at the very foundations and talk about why What Matters Most is at the heart of Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education progra…

1
#86 Think, Talk, Act with Wendy Hills 42:53

10M ago42:53

42:53

In this episode it is my pleasure to talk with Wendy Hills. Wendy has over 30 years’ experience as a Nurse qualifying in 1992, and specialising in Cancer and Chemotherapy. For a decade she developed chemotherapy services, including developing Nurse led chemotherapy and intravenous access in East Kent Hospitals. Wendy is currently the Director of Nu…

1
#85 The Safari Concept with Dr. Christian Ntizimira 1:07:24

10M ago1:07:24

1:07:24

In this episode it is my pleasure to talk with Dr. Christian Ntizimira, author of “The Safari Concept: An African Framework on End-of-Life Care” and Founder/Executive Director of the African Center for Research on End-of-Life Care. Christian shares the journey which led him to write the Safari Concept and we explore how culture and belief impact co…

1
#84 Alison Gardner & Sophy Horner Last Days Matter 46:30

11M ago46:30

46:30

In this episode it is my pleasure to talk with Alison Gardner & Sophy Horner from St John's Hospice about their incredible programme Last Days Matter. The programme aims to support people in looking after their loved ones at home and is very much a compassionate community approach to care. I learn how the programme was developed, what it includes a…

1
#83 Lasting Power of Attorney with Gary Ryecroft 37:19

11M ago37:19

37:19

In this episode it is my pleasure to talk with Gary Ryecroft, a solicitor and resident legal expert on Rip Off Britain. Gary has also been a trustee for what was the National Council for Palliative Care and later a chair of the Dying Matters Forum. This is a supper conversation, we talk about the podcast Gary created as part of the We Need to Talk …

1
#82 What living well with dementia looks like with Peter Berry and Deb Bunt 55:53

11M ago55:53

55:53

In this episode it is my pleasure to talk with Peter Berry and Deb Bunt. Peter was diagnosed at 50 with early onset Alzheimer’s. Previously the owner of a thriving timber business, Peter’s life changed upon the diagnosis. He has emerged through depression and two suicide attempts to be a passionate advocate of living well with dementia. A keen cycl…

1
#81 Talking through the intersection between critical care & EoLC with paramedic Jim Walmsley 45:09

11M ago45:09

45:09

In this episode it is my pleasure to talk to Jim Walmsley, a specialist paramedic in critical care. Jim talks about how Advance Care Planning impacts the work he does, sharing stories and experience.Jim also explains why he is fundraising for the Intensive Care Society and how you can follow and support his iconic high alpine challenge. If you are …

1
#80 Why I started a Death Café with Ewout Van-Manen 29:04

12M ago29:04

29:04

I’d heard about Death Cafés but never attended one and have always wanted to learn more about the movement. In this episode I have the pleasure of talking with Ewout, facilitator of the Death Café Suffolk Transitions. We talk about the origins of Death Cafés, how they run in practice and what drew Ewout to become involved. If you are a team looking…

1
#79 Helping to see the person behind the patient with OT Justine Robinson 39:11

12M ago39:11

39:11

In this episode it is my pleasure to talk with Justine Robinson, Occupational Therapist and Wellbeing Services manager at the Pilgrims Hospice. I learn about the role of an Occupational Therapist and we talk about how therapy work can help find the person in a patient. I learn too about the innovative Blackbird project, the story behind the project…

1
#78 Advance Care Planning: Listening not box ticking with Professor Alison Leary 27:35

12M ago27:35

27:35

In this episode it is my pleasure to talk with Professor Alison Leary. Alison is a Senior Consultant at the World Health Organisation, Human Resources for Health, and the Chair of Healthcare & Workforce Modelling at London South Bank University. It’s an important episode and based on Alison’s family experience. We talk the impact of receiving a for…

1
#77 What Matters Most in action and the power of Communication and kindness with Caroline England 30:38

1y ago30:38

30:38

Peter Camrass of Camrass Wills kindly supplied sponsorship to produce this episode. Peter has had no influence in the creation, development or content of this podcast and full control remains the responsibility of Clare Fuller.This is an important episode of Conversations About Advance Care Planning. It’s a very reflective episode with learning for…

1
#76 Companion Voices with Judith Silver 48:23

1y ago48:23

48:23

In this episode it is my pleasure to talk with Judith Silver, founder of Companion Voices. I learn about the origins, development and current work of Companion Voices. Judith shares what Companion Voices offers to people who are dying and describes how groups normalise conversations around death and dying. We talk about raising awareness of Compani…

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