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SCI Care: What Really Matters

International Spinal Cord Society (ISCoS)

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A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at the heart of what ISCoS does. The podcast series will be an extension of ISCoS, philosophy to make ...
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Send us a Text Message. The Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcast…
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Send us a Text Message. Welcome to the future of Spinal Cord. In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord. Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal in…
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Send us a Text Message. Managing bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI). In a recent podcast episode host, Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia is joined by Josefin Oja, a nurse and urotherapist at the spin…
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Send us a Text Message. In this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation …
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Send us a Text Message. This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening. This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break t…
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Send us a Text Message. This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy. Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives…
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Send us a Text Message. In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction. They discuss physical health alongside social health and lifestyle factors that need to be con…
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Send us a Text Message. In this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference. The opinions of our host and guests are their own; ISCoS…
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Send us a Text Message. In this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS. Kathy and Julian r…
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Send us a Text Message. In this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation. They also discuss the challenges and strategies of in…
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Send us a Text Message. In this episode, Christine Hendry, CEO of the Spinal Research Institute, chats with two standout grant recipients for ISCoS 2023, Jacob Schoffl and Kiera Tranter to discuss their research. Jacob discusses research on the effects of spinal cord injury on autonomic and psychosocial health. Meanwhile, Kiera, a physiotherapist s…
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Send us a Text Message. In this bonus episode, Eric Weertz and Geraldine Jacquemin discuss the work of the ISCOS Disaster Committee and the unique difficulties faced in conflict settings that they support, including developing the ISCoS SCI toolkit. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints,…
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Send us a Text Message. In this episode, Spinal Research Institute CEO, Kristine Hendry interviews grant awardee Dr. Haleluya Moshi from Tanzania. Dr Moshi discusses his research on traumatic spinal cord injury in rural areas. Listen as he shares his experience at ISCoS 2023. The opinions of our host and guests are their own; ISCoS does not endorse…
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Send us a Text Message. In this episode, Dr Samford Wong, Chair of the newly formed nutrition special interest group, is joined by fellow group members Sharon Lee, Firas Sarhan and Hanne Bjorg Slettahjell as they discuss the plans and developments for this SIG. There will also be a Nutrition SIG workshop to be held in ISCoS 2024, more details to co…
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Send us a Text Message. In this bonus episode, Kristine Hendry, CEO of The Spinal Research Institute, interviews Robert Buren, a researcher studying at the University of British Columbia, Canada and SRI grant awardee, on his research highlighting the effectiveness of cognitive behavioural therapy in managing neuropathic pain and attending benefits …
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Send us a Text Message. In this episode, Candice Care-Unger is a renowned psychosexual therapist and specialist social worker from Sydney. Candice shares her insights on attending the pre-conference psychosocial day. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If …
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Send us a Text Message. In this bonus episode, Beth Collins, a clinical lead at Wellspect Healthcare, interviews colleague and friend Sallyanne Haigh on her recent surgery experience in a non-spinal setting. They discuss the significant gaps in SCI care and the lack of training and knowledge within these settings. Sallyanne shares that despite the …
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Send us a Text Message. In this bonus episode, we talk about a new federally funded research project that involves ISCoS members Professors Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig. They are working on an international comparative study of rehabilitation length of stay for people living with spinal cord injuries. What's the ultimat…
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Send us a Text Message. Claire Lomas MBE welcomed over 900 participants to the recent 62nd ISCoS meeting in Edinburgh. She shared her moving story from her life before a spinal cord injury to the difficulties she faced immediately after to the triumphs she enjoys since she grieved the life she lost and accepted the life she now has, ultimately chan…
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Send us a Text Message. In this bonus episode, we caught up with Mohit Arora, Senior Research Fellow and Senior Lecturer at the University of Sydney talking with student and colleague PhD student Jacob Shoffl at the Psychosocial pre-conference day on the 8th Oct during ISCoS 2023. They discuss their biggest takeaways of the day and why they are ISC…
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Send us a Text Message. Welcome to SCI Care: What really Matters, Edinburgh conversations. This is a series of discussions recorded live during the #ISCoS2023 meeting. Our guests include Debbie Green, the Chair of the Nurse Special Interest Group, Tracey Tattam, a renowned nurse educator, Veronika Geng from Germany, and Letitia Graves from Houston …
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Send us a Text Message. In this episode, Dr Ali Jamous talks to Claire Lomas MBE taking us through Claire's remarkable journey from a devastating accident to finding a new purpose in life. Claire shares her experiences from before her accident and the difficult early years of recovering from her injury and when hope seemed lost. She will discuss th…
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Send us a Text Message. Dr Abayomi Salawu is a neuro-rehabilitation consultant at Hull University Teaching Hospital NHS Trust who is pioneering the use of virtual reality (VR) in rehabilitation. Dr Ram Hariharan is a consultant in spinal injuries at the Princess Royal Spinal Injuries and Rehabilitation Centre in Sheffield and the chair of the UK SC…
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Send us a Text Message. In this enlightening discussion, host Dr Ram Hariharan, a consultant at the Princess Royal Spinal Cord Surgery Centre in Sheffield and Chair of the UK Spinal Cord Surgery Research Network, speaks with Mr Nigel Henderson, a former consultant at Stoke Mandeville Hospital and later the clinical director of the National Spinal I…
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Send us a Text Message. In this conversation, Heather Pownall interviews Stephen Muldoon, the ISCOS Education Chair, during the ISCoS 2022 meeting in Vancouver. They discuss the value of both face-to-face conferences and virtual platforms, discussing their respective benefits and how they can complement each other to promote accessibility, educatio…
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Send us a Text Message. In this bonus episode, Eric Wetz and Geraldine Jman discuss the work the ISCOS Disaster Committee have been doing, covering how to help SCI patients in an area of crisis such as Afghanistan, as well as including distance learning and the work on the SCI toolkit ISCOS has been working on with the WHO. We hope you enjoy it. Th…
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Send us a Text Message. In this episode, we do things a little bit differently as we find out more about the company Aneuvo and who better than to interview founder Yi Kai than the company's VP of Global Marketing and Strategy, Katie Valez. We hope you enjoy it. The opinions of our host and guests are their own; ISCoS does not endorse any individua…
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Send us a Text Message. In this episode, Dr. Jane Duff speaks with Ty Van Demon and Kimberly Monan to discuss the multidisciplinary attendance of the psychosocial pre-conference and how psychology and psychosocial care are so important in SCI. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given…
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Send us a Text Message. In this episode, Jennifer Coker chats with Dr Andrew Park, a colleague and friend from Craig Hospital. They talk about first-time attendees, light bulb moments, and coming out of isolation. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If you…
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Send us a Text Message. In this bonus episode, ISCOS President, Professor. Ruth Marshall and Walt Lawrence, an SCI peer mentor, who has worked tirelessly to help other people with SCI regain Hope and independence have a lovely discussion as Walt shares his story and their chance meeting in 1986. The opinions of our host and guests are their own; IS…
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Send us a Text Message. In this bonus episode, our team caught up with Sue Cross, a physiotherapist from Stoke Mandeville Hospital. Sue has now joined the ISCOS Education Committee, and in this conversation she discusses the importance of resources such as the ISCOS eLearn and textbook and how beneficial it is to attend an ISCOS meeting in person a…
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Send us a Text Message. In this episode, our ISCoS education chair Stephen Muldoon talks with Nepalese students Surjana Bootun and Bina Gywali to discuss attending ISCoS 2022 and what learnings they can take back to Nepal. Here is what they have to say The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoin…
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Send us a Text Message. In this bonus conversation, Prof Ruth Marshall talks with Praxis Indigenous People’s Liaison Richard Peter. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If you enjoyed this podcast, please rate, review and subscribe with the podcast provider…
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Send us a Text Message. In this bonus episode, Dr Jennifer Coker speaks with Merna Seliman and Nattha Boonthanakorn about their experience as first-time attendees as SRI grantees and the importance of such grants. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If you…
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Send us a Text Message. In this episode, Dr Jennifer Coker has a wonderful discussion with the Spinal Research Institute CEO Kristine Hendry and Emma Peleg, the International Spinal Cord Research Collaborations Manager and the importance of their partnership with ISCoS and offering grants to early career researchers to attend ISCoS meetings through…
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Send us a Text Message. In this inspirational episode, we have the privilege of hearing the unique patient perspective of a surgeon who operated on SCI patients prior to his own spinal injury. Mr Mohammed Belal is a consultant urologist who has treated many SCI patients during his medical career. In 2021 he had a cycling accident and sustained a sp…
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Send us a Text Message. In this episode of ‘SCI Care: What Really Matters’ we focus on sharing information on the technological innovations in our field with a discussion about transcutaneous spinal stimulation (TSS). Our guest host for this episode is Dr Daniel Graves, Professor and Associate Dean of Research at the College of Rehabilitation Scien…
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Send us a Text Message. In this episode of ‘SCI Care: What really Matters’ we talk about how to reduce the risks associated with long-term intermittent catheterisation. Our host is John Thomson, clinical education manager for Wellspect, UK. John has worked in the medical device industry for over 20 years, having formerly been a nurse, and has worke…
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Send us a Text Message. 'It’s about making sure that the family can see how that's going to fit in with their child for the here and now, but also I'm very much thinking I've got to hand this child on to adult services with two good kidneys. It's about not just the continence, but keeping the kidneys healthy into adulthood.' – Dr Allison Graham Wel…
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Send us a Text Message. Welcome to the second episode of series 3 – SCI Care: What really matters. Susie Charlifue introduces this episode with Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia; Veronika Geng, Head of the Advisory Centre for Nutrition and Digestion for Spinal Cord Injured People in Lobbachand, German…
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Send us a Text Message. Welcome to the first episode of series 3 – SCI Care: What really matters. Our guest host is Maria Bergsten from Wellspect, who are partnering with ISCoS for this series of podcasts sharing stories, discussions and insights into bladder and bowel management as a critical part of SCI care – improving patients’ quality of life …
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Send us a Text Message. Welcome to the 12th episode of series two of ‘SCI Care: What really matters’ and the third collaborative episode between the International Spinal Cord Society (ISCoS) and Wellspect®. In this podcast episode, we follow on from the recent webinar on the 'Importance of patient-centred care in neurogenic bladder and bowel manage…
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Send us a Text Message. In this episode of SCI Care: What really matters, Prof Ruth Marshall is joined by Prof Daniel (Dan) Graves, Editor-in-Chief of Spinal Cord and Spinal Cord Series and Cases. In this conversation, both Ruth and Dan share their thoughts on the recent 60th Anniversary Annual Scientific Meeting what they enjoyed from the social m…
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Send us a Text Message. In our tenth episode of this series of SCI Care: What really matters, Prof Ruth Marshall is joined by her dear friend and colleague Dr Carlotte Kiekens. Dr Kiekens was one of our first ever guests on the podcast in series one as part of a panel discussing COVID-19: Current knowledge and best practices when we were just a few…
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Send us a Text Message. Welcome to the ninth episode of series two of SCI Care: What Really Matters. "The thrill of finding something new has never left me. I'm still looking to make people walk again." Prof Tator In this episode, Prof Ruth Marshall interviews Prof Charles Tator on what led him to neurosurgery, neurotrauma and SCI treatment. What c…
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Send us a Text Message. For this issue, we have collaborated with our educational partner Wellspect®. Rachael Chapple, the Global Urology Product Manager & Clinical Education Manager for Wellspect steps in as host joined by ISCoS President Prof Ruth Marshall and guest specialist Carina Andersson a nurse and urotherapist. Listen to this wonderful di…
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Send us a Text Message. Welcome to the seventh episode of series two of SCI Care: What Really Matters. This week our host Prof Ruth Marshall interviews Prof Cathy Craven to discuss osteoporosis, bone health and spinal cord injury. Prof. Craven is a Clinician Scientist appointed as an Associate Professor in the Department of Medicine, Division of Ph…
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Send us a Text Message. Our sixth episode is all about ISCoS! Dr Jennifer Coker takes the host's seat once more to chat with Daniel Graves, Editor-in-Chief of Spinal Cord and Spinal Cord Series and Cases, the official journals of ISCoS, and chair of the ISCoS Education Committee, Stephen Muldoon. Join them as they discuss their own history with ISC…
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Send us a Text Message. In this fifth episode, Prof Ruth Marshall is joined by Bev Collins, clinical lead nurse for Wellspect UK and Sallyanne Haigh, a nurse of 30 years, to discuss ‘a patients story.’ Sallyanne recounts her patient story starting six years ago when she sustained an L1 complete spinal cord injury during a horse-riding accident. Sal…
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Send us a Text Message. Welcome to the fourth episode of series two of SCI Care: What Really Matters. This week Dr Jennifer Coker steps in as the podcast host to interview her friend, colleague and mentor Dr Susie Charlifue on the role of the caregiver and why it is essential to attend the ISCoS annual scientific meeting. In this episode, Dr Charli…
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