Best Lichensclerosis Podcasts (2024)

1
Communication, Vulnerability, and Sex Positivity Transform an LS Relationship 1:03:54

18d ago1:03:54

1:03:54

If you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly about sex and intimacy, leading to frustration and distance instead of connection. But what if there's a way to enhance your communication and connection, even in the midst of challenges? Let's dive i…

1
Live Lichen Sclerosus and Sexual Wellness Panel Replay 1:15:49

1M ago1:15:49

1:15:49

Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs Join us for this informative panel discussion on lichen sclerosis and sexual health. Hosted by Kathy Ruiz-Carter, we have a talented group of experts: patient advocate Jacly…

1
Rebuilding Relationships and Reconnecting with Lichen Sclerosus 23:04

1M ago23:04

23:04

Topics: What is the LSSN Wholistic Healing Summit? Importance of addressing relationships affected by Lichen Sclerosus (LS) Summit focus: Partners, Caregivers, and Disclosure Sessions for patients, partners, and caregivers Wellbeing activities for stress management Opportunities to connect with other attendees Key Points LSSN is a non-profit patien…

1
Unraveling The Hormone And Microbiome Puzzle In Lichen Sclerosus 38:01

3M ago38:01

38:01

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Maus…

1
Unlocking LS Wisdom: Exploring the Comprehensive Content of LSSN 59:49

6M ago59:49

59:49

Get ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, they're empowering LS warriors like me. But just when everything seems perfect, a shocking revelation threatens to unravel all their progress. Will they overcome this unexpected obstacle? Find out on …

1
Why You Need to be at the LSSN Mini Summit 30:20

8M ago30:20

30:20

Have you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It’s our 3-day, 100% virtual event presented by medical experts on rarely discussed conditions, such as lichen sclerosus. You may be saying, I already have LS. Why do I need to know about other conditions? Or I don’t want to know about anything else. But the thing is, this is VERY …

1
Find Your Power Through Pelvic Health with Wellness.By.Penny 25:37

11M ago25:37

25:37

In this episode, you will be able to: Explore the impact of holistic methods on pelvic health and wellness. Harness the strength of your pelvic area to alleviate pain. Foster a nurturing environment for individuals coping with pelvic pain. Unlock a fulfilling life through empowerment for those with chronic conditions. My special guest is Penny Pete…

1
The Challenges of Research with Sophie Rees 1:04:30

11M ago1:04:30

1:04:30

In this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the development of a checklist of diagnostic criteria to help health professionals diagnose LS accurately and quickly. Sophie highlights the challenges in recruiting participants for research studies, part…

1
Listen to This If You're Looking For Evidence-based Information and Community 12:39

1y ago12:39

12:39

When I started the podcast, I never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, we strive to make a brighter tomorrow for those facing the same struggle I once did. But what does the future hold for this amazing network? Learn more and get yo…

1
How steroids affect lichen sclerosus patients with Dr. Jill Krapf 46:10

1y ago46:10

46:10

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosus, one must consider al…

1
Do you want to Get Your Sexy Back? You need this program. 29:24

1y ago29:24

29:24

Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here’s the thing. You are not alone! What if we had a way to turn it around? If you're ready to get your sexy back, y…

1
Demystifying steroid treatment for lichen sclerosus 52:19

1y ago52:19

52:19

Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you’re on the fence about or want to learn more about steroids, this is the episode for you. In this video, you will learn: 1. Wha…

1
Pain Relief Without Pills: Ashlie Crewe's Guide to Treating Persistent Pelvic Pain 54:38

1y ago54:38

54:38

Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed t…

1
Dr. Rachel Rubin: Unlocking Clitoral Fusing Through Non-surgical Lysis 49:17

1+ y ago49:17

49:17

In this podcast episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Adhesions and how her innovative stretching procedure has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. "We have so much work to do because no one taught your doctor how to examine a clitori…

1
Struggling with Stress and LS? You need to hear this! 28:39

2y ago28:39

28:39

Hey! Welcome! I'm on a bit of a hiatus with Podcast as I build out Lichen Sclerosus Support Network, but, when my girl Jaclyn from The Lost Labia Chronicles told me about her latest project, I was like, "girl, we need to make a podcast episode and let our community know". So here we are! If you experience a lot of stress from living with lichen scl…

1
Is Somatic Sex Education for YOU? 26:38

2y ago26:38

26:38

Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth. Shauna is one of our Holistic Healing Summit speakers. We hope you can join us. With over 30 sessions dedicated to approaching LS from a whole-body approach, there's something for every LS Warrior. Find out more at holistichealingsummit.live We…

1
Unravelling 9 Years of Managing LS Naturally Through AIP 54:10

2+ y ago54:10

54:10

Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. Here's what Angie Alt and I cover: 1. How Angie Alt transformed the Paleo Diet into the Autoimmune Protocol to manage her Lichen Sc…

1
How to apply your LS steroid treatment correctly with Dr. Jill Krapf 44:18

2+ y ago44:18

44:18

Were you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn to for information? Don't worry because we get answers to those questions in this episode and more with Dr. Jill Krapf, leading LS researcher and specialist. To contact and work with Dr. Krapf, go to w…

1
Why are health goals important? 24:19

2+ y ago24:19

24:19

It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals! We set at least one life and one LS goal we want to work on inside our private membership. Every week we set mini-goals to get us to our big goals. And let me tell you, this process WORKS. We've had so many amazing transfo…

1
Top 5 Episodes of 2021 31:41

2+ y ago31:41

31:41

Welcome. If you’ve been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was the year of transition, and because of that, there weren’t very many episodes published, but you kept coming back. I appreciate you so much! If you’ve just found me, I want to thank you for listening, a…

1
Pediatric Lichen Sclerosus with Dr. Sandy Flann 54:29

2+ y ago54:29

54:29

Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus…

1
Don't Let Lichen Sclerosus Take Control Of Your Life 17:37

2+ y ago17:37

17:37

Hey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it rob you of the vibrant and wondrous person you are. I want to thank our sponsor, Lichen Sclerosus Support N…

1
What's the best lubricant for Lichen Sclerosus? 38:15

2+ y ago38:15

38:15

Hey! Welcome! Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options online and had no clue what to buy? Have you ever wondered what you should look for and avoid in a lube? If yes, this is the episode for you! Today I am here with my amazing friend and follow LS warrior,…

1
LS Grooming Best Practices with Dr. Cynthia Wesley 1:02:13

2+ y ago1:02:13

1:02:13

Today, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is passionate about vulvar care, hygiene, and grooming. She will share her tips on how to take care of your vulva when you have Lichen Sclerosus. We discussed everything from using the bathroom, bathing,…

1
How Pelvic Floor Physical Therapy Helps Lichen Sclerosus with Ashley Stump 51:26

2+ y ago51:26

51:26

Hey welcome! This week I'm so excited to finally publish this episode with Ashley Stump. She's a pelvic floor physical therapist who knows all about Lichen Sclerosus. I learned so much during this episode, we talked about what pelvic floor physical therapy is, why women with Lichen Sclerosus need it, what to expect on your first visit, and we talke…

1
Covid Update 17:32

2+ y ago17:32

17:32

If you're seeing two of these or getting this episode really late, apologies. I realized half of my listeners didn't get the episode because I released it in video format versus audio. 🤦🏽‍♀️ Either way everyone should have at least one version of the episode. Thanks for understanding. Heeeyyy! Longtime no see. lol Life has been busy and a bit hecti…

1
Lichen Sclerosus Provider Directory and an LS Nonprofit? 30:22

3y ago30:22

30:22

Hey!!! Welcome! I'm so happy you're here. I've got some AMAZING news. We have released the searchable provider directory! It's ready for you to explore. It's brand new so we have to work out all the kinks as we grow it but it's better than nothing. https://lichensclerosuspodcast.com/searchable-lichen-sclerosus-provider-database/ We have some equall…

1
Acceptance and Resilience: A Round Table Discussion 57:18

3y ago57:18

57:18

Hey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts of acceptance and resilience with some members of the LS Warriors membership. The concepts of acceptance and resilience are critical to living with a disease such as Lichen Sclerosus. In this round tabl…

1
How to Find Peace After Stress Triggers Your LS, Jennifer's Story 45:24

3y ago45:24

45:24

I’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the b…

1
Unraveling the Diet- Lichen Sclerosus Connection with Erica Eberl 52:46

3y ago52:46

52:46

Uncover the potential connection between your diet and long-term health with this groundbreaking research on Diet and LS. Erica Eberl is a 23-year-old dietitian and LS warrior who was diagnosed less than a year ago. She has used her skills and resources to research LS and diet and shares her findings to help others. After Erica Eberl was diagnosed …

1
Heather Cooan: Healing Lichen Sclerosus with Nutrition Therapy 1:00:08

3y ago1:00:08

1:00:08

Unearth the root cause of your Lichen Sclerosus and transform your life with Heather Cooan's real talk about nutrition and lifestyle changes. "But she didn't let that hold her down, and she advocated for herself and was able to heal her cancer and her Lichen Sclerosus support Network through the use of naturopathic therapy." Heather Cooan is a cert…

1
How Self-Advocating Actually Helped Beat Vulvar Cancer 41:13

3y ago41:13

41:13

Today we are joined (again) by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Last episode we heard her diagnosis story. Unfortunately, Heather went undiagnosed for over 25 years, allowing her Lichen Sclerosus to develop into vulvar cancer. This was a gross failure of the medical system. In today’s episode, we lea…

1
How The System Failed Heather Cooan. 34:49

3y ago34:49

34:49

Today we are joined by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Heather’s journey from how the medical system let her down to self-advocacy and taking control of her health and body is nothing short of incredible. Her story will be told in two parts. Today, we begin with when Heather’s symptoms first began t…

1
Jaclyn's Lost Labia Journey: Finding Community 38:43

3y ago38:43

38:43

Hey! Welcome. I'm excited to bring you the second part of my conversation with my LS sister, Jaclyn. In this episode, she shares what it took to go from suffering so bad she had to stop having sex with her new husband to having multi-orgasm sex multiple times a week. I hope this story inspires you because you can do this too! I truly believe you ca…

1
Jaclyn's Lost Labia Journey: Surviving Alone 55:20

3y ago55:20

55:20

Hey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sur…

1
How to Snap Out of Appointment Anxiety 28:08

3+ y ago28:08

28:08

This week we talk about an awful drive I recently had to the doctor's office. I was overtaken by negative thoughts and emotions of what the future might bring. Eventually, I pulled myself out of those negative thoughts and emotions so I could do what I needed to do. I want to share with you my technique for staying in the present and changing my fo…

1
Carrie Bock’s LS Journey: From Pain To Love 1:01:21

3+ y ago1:01:21

1:01:21

Does Lichen Sclerosus make penetrative sex painful for you? Has LS been a factor in a relationship breakup? Are you single and wonder if you'll ever be in a healthy relationship again? These are all questions this week's guest had to confront. After the demise of her 10-year marriage, she was determined to find out what was happening to her body. I…

1
How are reproductive age women and steroids similar with Dr. Jill Krapf 54:28

3+ y ago54:28

54:28

Welcome to season 2 of Lichen Sclerosus Podcast. For our first episode, the esteemed Dr. Jill Krapf and I discuss new research into women of reproductive age with LS. This under-studied group is often misdiagnosed or turned away being told ridiculous things. If you're between 18 and 50 and want to be part of the research head over to lichensclerosu…

1
How GRATITUDE can top FEAR and ANXIETY when you have LICHEN SCLEROSUS 26:50

3+ y ago26:50

26:50

I woke up this Thanksgiving with a message of gratitude on my heart. Please don't let the fear and anxiety of Lichen Sclerosus pull you from the joy and happiness in your life. Find and focus on the pockets of gratitude and positivity. Make sure you sign up for next months virtual meetup at https://www.subscribepage.com/lsconnect And don't forget t…

1
Is Lichen Sclerosus Lowering Your Sex Drive? 35:02

3+ y ago35:02

35:02

Fresh off the first Lichen Sclerosus Podcast Virtual Meetup I'm excited to bring fresh insights. As I'm sure you know because you live it Lichen Sclerosus does terrible things to our sex life. Sometimes stopping it completely. This week we look at how our libido is impacted by LS and how we can get it back. There's tons of information to look at. A…

1
My Diagnosis Story: Kathy 1:06:23

3+ y ago1:06:23

1:06:23

I'm so excited to bring back one of my favorite guests. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak with her again. We go in-depth on my story and discuss some of the decisions I made. My hope is that you learn something from my experiences or at the v…

1
Lichen Sclerosus Diagnosis Stories: You Are Not Alone 29:22

3+ y ago29:22

29:22

This week four Lichen Sclerosus Warriors share their diagnosis stories with us. Although each of their stories is individualized they all have similarities to our own. LS can be such a lonely disease but by sharing our stories we realize there are thousands of women feeling and going through what we are going through. I hope you feel a little less …

1
How to still have a great relationship despite Lichen Sclerosus 31:57

3+ y ago31:57

31:57

Have you ever thought about how LS will or has affected your relationship? How it has or will affect your partner? This week I was inspired by a DM I received on Instagram from a young man looking to support his companion. The love and care he expressed sent me looking for actionable tips for how we can maintain healthy happy relationships despite …

1
7 Ways To Stop Vulvar Itch From Lichen Sclerosus 19:50

3+ y ago19:50

19:50

Do you have the itch? You know the one I'm talking about. The one that makes your vulva feel like ants are crawling all over it. That unforgiving desire to scratch. Yeah, that one. This week we discuss why we itch when we do and I give you seven ways ladies combat the itch. As always don't forget to subscribe and share. Follow me on Instagram @lich…

1
The Mental Side of Lichen Sclerosus 31:52

3+ y ago31:52

31:52

This week I make my contribution to World Mental Health Day. I am super passionate about the aspect of mental health in Lichen Sclerosus. In this episode, we discuss what research has been done on Lichen Sclerosus and mental health as well as hear from some Lichen Sclerosus sisters and their thoughts on LS and mental health. If you need help with m…

1
Why I hesitated to check my vulva but you shouldn't delay. 21:02

3+ y ago21:02

21:02

Did you know you were supposed to check your vulva each month? Yep! But what exactly does that mean? What are we looking for? What do we do if something doesn't look right? In this episode, I share my first experience checking my vulva and provide you with step-by-step directions on how to check yours. First time I checked my vulva So here's the th…

1
How to advocate for yourself and make your doctor an effective partner 22:03

3+ y ago22:03

22:03

Is your train of thought, "I'm going to the doctor so they can tell me what's wrong and they can fix me."? Yeah, mine used to be too. Until I started advocating for myself and made my doctor my partner in healthcare. This week I give you my three-stage plan on how to create that partnership. If you have any tips or tricks you use to advocate for yo…

1
Lichen Sclerosus Basics 17:24

3+ y ago17:24

17:24

Have you recently been diagnosed with Lichen Sclerosus or just started looking into it? If so this is the episode for you. Today we talk about causes, symptoms, treatments, and best practices. This is not a know-all be all, it is the basics to get you started down a path of wellness and acceptance. Don't forget to subscribe. IG - https://www.instag…

1
Update: Where the hell have I been? 13:28

3+ y ago13:28

13:28

Just wanted to let you know I was alive and what's going on. Mentioned in this episode: Reconnecting and Healing with the 2024 Wholistic Healing Summit Does Lichen Sclerosus make you feel isolated or affect your relationships? You're not alone. The Lichen Sclerosus Support Network's Wholistic Healing Summit is here to help you find connection, supp…

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